posted
My doc is in the process of getting me approved for Rocephine via an IV PICC line. I was wondering if anyone could provide their thoughts on this ?
I have been treated as follows:
1st Month - Cats Claw 375mg 3 times a day
2nd Month - Minocycline 100MG 2x day and Cats Claw 375mg 3 times a day.
3rd Month - Minocycline 100MG 3x day and Cats Claw 375mg 3 times a day.
I am definitely worse, I think herxing for the past two weeks. Lots of neurological; fibromyalgia, fatigue, joint, etc... issues. Nothing "new" just all at once and much worse.
I also am taking various vitamins, herbal, and amino acids.
I am so confused with this recent diagnosis. I have been sick bad for three plus years and have had some syptoms since 1994. Prior diagnosis were depression; hypochondria, chronic fatigue, chronic fatigue immune dysfunction, pre-MS, fibromyalgia.
I also have mycoplasma.
Any thoughts or recommendations on the Rocephin, Bands reported, etc... would be appreciated. And thanks for the advice on my prior posts.
Posts: 48 | From New Jersey | Registered: Aug 2007
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It looks like and sounds like lyme disease. Contribute the confusion to the lyme. You are CDC positive with nuerological symptoms so insurance should pay and Rocephin should help termendously.
There are plenty of good orals, but IV was much easier for me. My major nuero symptoms were at bay from orals when I went on it, so I can't tell you how fast it will help.
High dose doxy saved my job, life, etc.
If you run into trouble, ask questions here and call your llmd. But it's pretty easy to self administer and you should be feeling better soon!
Mike
Posts: 87 | From Yorktown VA USA | Registered: Jul 2005
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posted
I am no doctor, but I am wondering why the switch to IV now when you seem to be getting results on the orals? It just seems that perhaps the orals have not been given much of a chance.
Are you seeing an LLMD? Did the LLMD consider co-infections? I would ask why he is switching you to IV now.
I just finished 5 months of IV Rocephin. Still have the PICC line in. It did help alot in brain function, and pain, wish it helped more in the energy category, though. I don't think the IV route was "easy". None of it is really, but in the long run, worth it.
If you have been sick that long, IV may be the best way to go. It just seems you are getting some results from the orals and perhaps they have not had a chance to do their work yet?
Robin
Posts: 276 | From Maryland | Registered: Dec 2006
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posted
The switch to IV now seems to be based on a couple of things.
First, I have been on doxycycline six different times over the past two years. This was for the mycoplasma which was found via PCR by a chronic fatigue doc. Each time for 2 to 4 weeks I was on it. I would get "better" but not great. And then awhile later need it again. I also had Cipro, Penicillin, Keflex, Zithromax, and Erythromycin for 1 to 2 week strecthes as well during this time period. The thinking is that the lyme may be resistant to many of these drugs as a result.
Second, I am going to an LLMD currently, that I am told is very highly regarded. This doc believes that the level of my neurological syptoms is quite severe and requires the switch to IV.
I am just not familiar with any of this really and still confused as to how I have been undiagnosed for so long. Up until 2.5 months ago I was still being told that this was "mostly" in my head and all of the sudden I have lyme disease and "real" brain and neurological problems that may be temporary or permanent.
This is a very confusing time for me and I am starting to be unable to fully understand all that is happening. Supposedly due to the neuro toxins. I don't know if this is true either.
I read this email five times, so hopefully there are no spelling errors.
Posts: 48 | From New Jersey | Registered: Aug 2007
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You built up pretty fast on the minocycline. If you check out www.roadback.org there are lots of people over there who have used minocycline for a long time. Many take months to get to your dosage and they feel also feel miserable for months.
I'm not a doctor but it seems to me that it's important that at least one antibiotic be consistently used for a long period of time i.e. doxy, mino, amoxy, and then other antibiotics can be pulsed in and out.
Maybe IV Rocephin is what you need and will really help as long as it is followed by adequate orals afterward.
Posts: 984 | From San Diego | Registered: Nov 2006
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posted
Due you know between Doxycycline and Minocycline which one is better (stronger) ?
Posts: 48 | From New Jersey | Registered: Aug 2007
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