posted
Icon 1 posted 16 September, 2007 12:30 PM Profile for aiden424 Send New Private Message Edit/Delete Post Reply With Quote
"Wow, maybe we all need to grow up and act like adults.
Maybe we all need to be a little bit more understanding of each other. If we keep turning on each other what is the point to this web-site." ---------------------- "Here here"!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
We are here to learn, folks.....you don't have to agree.
I, for one, learn from hearing all sides of an issue. - I can make up my own mind from there.
All sides deserve respect, whether you agree or not.
Posts: 45 | From mn | Registered: May 2006
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quote:Originally posted by CaliforniaLyme: a name I find very offensive - "Negative Nelly."
I'd rather call you "Positive Polly". Posts: 30 | From Here | Registered: May 2007
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sometimesdilly
Frequent Contributor (1K+ posts)
Member # 9982
posted
We are all trying to cope, have been for a very long time, and on many days for many of us, often enough our very coping mechanisms are badly beaten up if not downright broken.
it is unremarkable to me that folks quibble and quarrel here.
being flat out mean is of course wrong. personally, i never read a Gigi post that i thought was mean. i can't remember a Gigi thread that didn't draw a large amount of argument, but as so many others here have said, shouldn't that at least be ok if not the very point of a discussion board?
Moderators- I know anyone can be banned here at any time at your discretion, but I think it is unfair and deeply disruptive to the genuine community on this board to throw folks off without at least informing the rest of us and explaining why the action was taken.
Absent any explanation, i can't understand why Gigi was banned, but disagree with the decision on its face.
please return Gigi to the board.
dilly
[ 16. September 2007, 09:44 PM: Message edited by: sometimesdilly ]
Posts: 2507 | From lost in the maze | Registered: Aug 2006
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breathwork
Frequent Contributor (1K+ posts)
Member # 567
posted
Sarah....as alwasy, you are the bee's knees...
Carol Ann
Posts: 1062 | From CA USA | Registered: Jan 2001
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SunRa
Frequent Contributor (1K+ posts)
Member # 3559
posted
I haven't been here much the past couple weeks and missed the controversial thread, but I'm very saddened and confused by GiGi's banning.
I've had the priviledge of spending time with her in person and I can assure you she is a very kind and caring person who only wants so deeply to help those of us still suffering.
Even though she's healthy enough to be out doing other things, she chooses to spend countless hours posting helpful info on here. Of course not everyone will agree with her opinions (and many feel the need to constantly remind us that) but it's info that a lot of us are interested in and cannot easily find elsewhere.
So, moderators PLEASE re-consider this decision. GiGi is a huge asset to this board and the whole lyme community.
to GiGi, thank you for all your help and support and although I can understand if you wouldn't want to, I do hope you will post again if allowed.
p.s. and although I doubt she meant to hurt anyone's feelings, I too appreciate her general bluntness. It's refreshing and much more tolerable than passive aggressiveness (like those who think posting smiley faces after rude comments somehow make them ok!?)
Posts: 1563 | From MA | Registered: Jan 2003
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lymemomtooo
Frequent Contributor (1K+ posts)
Member # 5396
posted
I am hopeful that Gigi will be reinstated. She does not need to come here. She does it to help others. Have others also been banned over this situation? lmt
Posts: 2360 | From SE PA | Registered: Mar 2004
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Health
Frequent Contributor (1K+ posts)
Member # 6034
posted
too much stress to post what I really feel, but I will when I have the strenght and I really
wonder if I stand alone in how I feel.
Trish
Posts: 1250 | From Canada | Registered: Aug 2004
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sometimesdilly
Frequent Contributor (1K+ posts)
Member # 9982
posted
TO SARAH and only SARAH:
your mailbox is full, and i know i won't remember to cut and paste to another PM the PM i just wrote that would not go, so everyone else, please excuse my chutzpah, but please butt out for a moment, oK? -------------------- hi Sarah-
you're right that you deserve to be able to come to the board without feeling you are being attacked personally.
i just went back and edited my post because i did not want you to think i was not being supportive of you.
i honestly think,though, that when gigi she said the negative nellie thing she was referring to me and others in stymie's thread, not you.
if that was the case, it would have been helpful if she had made it clear to you that she wasn't referring to you.
i don't read all of the threads with gigi arguements because of the contention that usually seems to always be there- i'm sorry if i've missed something that seems perfectly obvious to you.
i've had that happen here ....until we accomplished something major togehter, and now we understand each other just fine.
i've come to realize that this board is like a small town comprised in not insignificant numbers of dsfunctional people, certainly myself included.
i know from "living" here, though that you are valued and liked- i am in the chorus of your supporters for sure- please feel good about coming here,ok?
hugs, dilly
Posts: 2507 | From lost in the maze | Registered: Aug 2006
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TerryK
Frequent Contributor (5K+ posts)
Member # 8552
posted
I value both Gigi and Sara, they have contributed a great deal to the lyme community.
What I've seen in the time that I've been here is that GIGI is constantly confronted by a relatively small group of people who do not like the content of her posts thus they are often hostile towards her.
I've seen a number of shocking personal attacks levied at GIGI. For a very long time she politely ignored them but it finally got to be too much and she left the board for a time. After a break, she came back only this time, when others started with their same negative diatribe towards her she would defend herself and sometimes she would speak her mind by making comments that would probably be misunderstood if one did not know the history of abuse that she has taken from some of these individuals.
In my view, she was baited and goaded and impeded from helping others until she finally got fed up (and who wouldn't have been fed up?). I have no idea what transpired to cause GIGI to be banned from this board but it is frustrating to see an extremely valuable member of this community be banned.
quote: I think the moderator or moderators who made this decision owe us an explanation.
I can understand your frustration but in actuality, the moderators don't owe explanations for their decisions/actions. They work (volunteer) on our behalf to make this forum usable and our use of this forum is a privilege, not a right.
I believe this is a privately owned forum thus joining this forum is like being invited into someone's home. We have no rights but the owners are gracious enough to allow us the use of their home. We may politely ask for explanations but it is not our right.
That said, I am not a volunteer on this site but I have been involved on other sites and I think that is the general rule on privately owned forums such as this.
Terry
Posts: 6286 | From Oregon | Registered: Jan 2006
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quote:Originally posted by sometimesdilly: Moderators- I know anyone can be banned here at any time at your discretion, but I think it is unfair and deeply disruptive to the genuine community on this board to throw folks off without at least informing the rest of us and explaining why the action was taken.
I agree. As a moderator (on another board)I know that when something like this occurs with so many board members being upset and confused...by now one of us would have stepped in and explained the situation.
I dont think its right for the whole board to be left in the dark about why GiGi is no longer allowed to post here. Obviously the majority of people here appreciate her efforts and find her to be a very valuable asset to this board.
I'm sure there are several others (like myself)who do not post here but still find GiGi's posts to be extremely helpful and very much needed.
I sincerely hope that the moderators can come to a better conclusion...it doesnt appear that a banning was fit for this situation.
-Rachel
Posts: 3 | From Northern California | Registered: Dec 2006
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Michelle M
Frequent Contributor (1K+ posts)
Member # 7200
posted
[QUOTE]Originally posted by CaliforniaLyme: I am hurt that people here seem to not care about me as a person at all and to care whether or not I am caleld names.
Sarah, I would feel rather forlorn if you weren't here any more. In your fifty gazillion posts I have never seen you express anything but kindness and compassion toward others.
Advice is like food. I like mine served warm.
Michelle
Posts: 3193 | From Northern California | Registered: Apr 2005
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bettyg
Unregistered
posted
i'm saddened; 2 people hurt ... sarah and gigi who both have contributed greatly to this board in educating us.
sarah with her newspaper artcles, pub med, her starting her own lyme obituary column, etc.
gigi with all her things that my neuro lyme mind just can't grasp.
don't want either of you off the board; bring gigi back please jenifer.
my 2 cents.
i just HATE THIS DAMN LYME DISEASE that has messed us all up neuroly, etc. none of us are in our right minds.
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posted
"I believe this is a privately owned forum thus joining this forum is like being invited into someone's home. We have no rights but the owners are gracious enough to allow us the use of their home. We may politely ask for explanations but it is not our right." -------------------------------------------------- I did not know that this was a privately owned forum - or what "guidelines" (don't we love that word!) are set in running and managing a privately owned forum.
At any rate - it seems to me that there is a resounding request (and need) to keep GiGi on this forum.
It doesn't sound to me that the forum members are going to let this go - Particularly, if there is no explanation. given. The need to have her on this board is too great.
Posts: 45 | From mn | Registered: May 2006
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Greatcod
Unregistered
posted
GiGi's posts are well informed and interesting, and she belongs on the board. She does seem to have a problem with any who dares to question or disagree with her, anyone who is at all sceptical about what Klinghardt claims. I'm sorry, I am sure he is a fine man, but he is not the Second Coming. No one has all the answers. I am certain that asking hard intelligent questions about any and all forms of treatment is a positive thing. To dismiss a patient's critical investigation of any treatment as "negative" is immature, even dangerous. Look at the recent thread on the Salt/C protocol.
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bejoy
Frequent Contributor (1K+ posts)
Member # 11129
posted
Hi Gigi,
Sending you thanks for your relentless support of people struggling with lyme, and your courage to express your ideas. Your information has been very helpful to me in my healing process! I hope to see you back here again soon.
-------------------- bejoy!
"Do not go where the path may lead; go instead where there is no path and leave a trail." -Ralph Waldo Emerson Posts: 1918 | From Alive and Well! | Registered: Feb 2007
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quote:Originally posted by mceline: - Particularly, if there is no explanation. given.
If the moderators told us about every member they dumped and why, it would fill the board pretty quickly. I have sent them probably 10 spammers and/or trolls links in the past 2 wks.
---and I'm sure there are that many and more that I don't know about!!--
If they turned around and explained to us why these people were dumped, it would clutter up the place and we'd be bored with it.
Just explaining.....I've already made my comments on the issue surrounding Gigi.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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map1131
Frequent Contributor (5K+ posts)
Member # 2022
posted
Gigi's Negative Nelley posting was in reference to some postings with "I can't, I'm dying, I'm ill and nobody will give me a pill that will end this nightmare today."
Not alot of patience with someone that is expecting wellness without positive thinking, taking many steps to change, listening/reading, thinking outside the box and seeking out to others who can offer ways to help through their experiences.
Pam
-------------------- "Never, never, never, never, never give up" Winston Churchill Posts: 6495 | From Louisville, Ky | Registered: Jan 2002
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sometimesdilly
Frequent Contributor (1K+ posts)
Member # 9982
posted
pam- ouch. how belittling and unkind....
i'm curious- are you relaying gigi's thoughts on what she said, or does your last post reflect your own opinion?
dilly
Tutu- i don't think anyone is asking the moderators for a daily body count of axed trolls.
Poofing a long-standing member without explanation is a wee bit different, don't cha think?
Posts: 2507 | From lost in the maze | Registered: Aug 2006
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posted
In solidarity with Gigi I will not be posting any more here until a public explanation is given. If Gigi is expelled who be next! Is this how the forum treats someone who has made thousands of posts?? Come on!
This is PC gone mad!
You dont treat your star performers like this!
I didnt agree with everything she said either but she had class!
hardynaka
Frequent Contributor (1K+ posts)
Member # 8099
posted
Wallace, I was thinking exactly that.
I will stop posting too until things are explained.
The board without her is much less interesting anyway.
Selma
Posts: 1086 | From Switzerland | Registered: Oct 2005
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lymeinhell
Frequent Contributor (1K+ posts)
Member # 4622
posted
Gigi, if you're out there, please know that you are appreciated for sharing your wealth of knowledge. I, for one, have been greatly helped.
This is so bogus..
-------------------- Julie _ _ ___ _ _ lymeinhell
Blessed are those who expect nothing, for they shall not be disappointed. Posts: 2258 | From a better place than I was 11 yrs ago | Registered: Sep 2003
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posted
Ok -- my opinion is: whatever the problem was, please resolve it with the involved people and then return Gigi to the board. Her contributions have been and will continue to be important here.
Posts: 13171 | From San Francisco | Registered: May 2006
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map1131
Frequent Contributor (5K+ posts)
Member # 2022
posted
My Mama always told me "I can't never did anything". Over and over again the last few days on this site I keep recalling the childhood story of the "Little Train That Could".
That story reminds me of Gigi and how she kept coming back after being attacked by others for her life experiences and beliefs at helping others.
Pam
-------------------- "Never, never, never, never, never give up" Winston Churchill Posts: 6495 | From Louisville, Ky | Registered: Jan 2002
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Dawn in VA
Frequent Contributor (1K+ posts)
Member # 9693
posted
Gigi has given me (us) a great deal of information that we would have otherwise gone without. Emotions and whatever aside, she has contributed a lot of solid knowledge. I want her back!
-------------------- (The ole disclaimer: I'm not a doctor.) Posts: 1349 | From VA | Registered: Jul 2006
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At times I even thought she WAS Dr. K in disguise...
I'm speculating that Gigi went too far in her bluntness and advice and that the webmasters felt she was slurring the core message to newbies and that she even gave Lymenet a bad reputation.
From what I can tell, newbies come here for two main reasons: to find support and find quick help/LLMD.
Gigi was talking about removing mercury filling, kinesiology, etc. Stuff that's way out of the grasp of newbies. Like they wanna hear radical quack stuff like that.
Thus, someone like Gigi is not exactly a great asset to Lymenet, even though some of us who are now much wiser know that in fact she IS a great asset to Lymenet.
Just my 2c.
Michael
-------------------- I'm not an MD. The above is IMO and in my experience as well as from health related books.
I've had symptoms consistent with neurological Lyme disease since 1986. Was diagnosed with Lyme in 2004. Am feeling better now than ever before. Posts: 702 | From NY | Registered: Jul 2004
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luvs2ride
Frequent Contributor (1K+ posts)
Member # 8090
posted
Gee Michael
With that left handed compliment you just paid GiGi, you would make a great polititian.
The truth is most people that post here at lymenet are not well. GiGi is one of the exceptions to that fact. It took her 4 yrs but she is COMPLETELY WELL.
I don't know about you, but I want to hear anything and everything someone who is COMPLETELY WELL from lyme disease has to say.
Antibiotics alone are not curing lyme disease. Newbies need to know this. The sooner they know it, the better.
While on the antibiotics, more natural approaches must be done as well. Much of it will protect the body from the side effects of the drugs.
Eating a premium diet is a must do if you ever hope to get well. Incorporating some natural antibiotics in addition to the synthetic antibiotics into your diet such as garlic is an excellent way to keep the bugs on the run.
CoQ10 and magnesium are two examples of natural substances we all need to be taking as they are both protective of the heart. Probiotics are essential to add back the necessary bacteria to your gut that is killed off by the antibiotics. Remember, 70% of the immune system lies in the gut.
Whenever someone brings information to this board about alternative care, others should not get so defensive and come rushing into the thread like The Christian Crusaders of old.
It really isn't either/or treatment choices. You need not worry that all the poor, ignorant newbies are going to go to their corner shaman for all their treatment needs.
It actually takes a pretty committed alternative care believer to seek out alternative care doctors for their first approach.
Everyone else will go to their local doctor who is hardly going to offer alternative care.
Wallace and Hardy,
Please do not leave this board. Your input is valued too. Hardy, I have such interest in your posts because our symptoms are so similar, and Wallace, you just posted a thread a few days ago about "Dying to Get Well". I downloaded that book, read all 160 pages and am making a real effort to eat more raw fruits and veggies just because of your post.
These contributions are important and valuable. Please everyone, let's live and let live. Ok??
Luvs
-------------------- When the Power of Love overcomes the Love of Power, there will be Peace. Posts: 3038 | From america | Registered: Oct 2005
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quote:Originally posted by luvs2ride: With that left handed compliment you just paid GiGi, you would make a great polititian.
Hah, that is something I'll never be. I'm much too emotional and blunt...besides I hate being manipulated by bullies.
quote:Originally posted by luvs2ride: The truth is most people that post here at lymenet are not well. GiGi is one of the exceptions to that fact. It took her 4 yrs but she is COMPLETELY WELL.
I don't know about you, but I want to hear anything and everything someone who is COMPLETELY WELL from lyme disease has to say.
So do I. Read my post again, especially the last sentence (before "My 2c").
quote:Originally posted by luvs2ride: Antibiotics alone are not curing lyme disease. Newbies need to know this. The sooner they know it, the better.
While on the antibiotics, more natural approaches must be done as well. Much of it will protect the body from the side effects of the drugs.
Eating a premium diet is a must do if you ever hope to get well. Incorporating some natural antibiotics in addition to the synthetic antibiotics into your diet such as garlic is an excellent way to keep the bugs on the run.
CoQ10 and magnesium are two examples of natural substances we all need to be taking as they are both protective of the heart. Probiotics are essential to add back the necessary bacteria to your gut that is killed off by the antibiotics. Remember, 70% of the immune system lies in the gut.
I'm aware of all this stuff. Dropped the abx (useless for me at least) and did all the health stuff and am still doing it and plan to do it forever. Out of approximately 30 symptoms, I only have two left. Still hunting. Six months ago I still had a third symptom, namely chest pain. That went away after I had an old root-canal redone by a holistic dentist.
quote:Originally posted by luvs2ride: You need not worry that all the poor, ignorant newbies are going to go to their corner shaman for all their treatment needs.
Well I do worry about this. And it greatly upsets me too. Ignorance is prevalent. Over the last ~50 years, we have been brain washed into the "cure in a bottle" and evidence based medical approach. By whom? From our doctors and from adverticements.
My impression is that the majority of all newbies are ignorant. For sure I was. I thought LLMD+longterm abx was all I needed. And that's what I wanted to hear too, until 3months down the road it wasn't working. Only then did I start asking questions. Only then did I start warming up to alternatives. I suspect other newbies are no different.
quote:Originally posted by luvs2ride: It actually takes a pretty committed alternative care believer to seek out alternative care doctors for their first approach.
Sure does. A great hurdle to cross over for most people.
quote:Originally posted by luvs2ride: I downloaded that book, read all 160 pages and am making a real effort to eat more raw fruits and veggies just because of your post.
I didn't read his book. But when I hear someone promoting vegetarian diets I have to speak up. But before I speak up, I do believe and follow this too, that if you must have fruits and vegetables, eat them raw, fresh and organic. Though there are exceptions to this.
Have you ever heard that "One persons healthy food is another persons poison"?
Some people need very little vegggies but lots of protein, while others are the other way around in that they need very little protein but lots of veggies. That latter group just might succeed in being veggetarians. But the first group, to which I now know I belong, will fail.
I went down the vegan road and it was just no good. Took me a great deal of frustration and effort to realize that I'm mostly a protein type. I simply need animal protein in each meal to feel good. Avocadoes, nuts and olives just didn't do it for me.
Do yourself a favor and google "metabolic typing". See what people have to say about it. Maybe you need to spend $5 on a book to find out what your specific metabolic type is, but, well, that's very close to free. And you may very well find that you're a vegan.
There are thousands of books on diets, dandelion cures, etc. We all know by know that 99% of them don't help you. Though the book you're reading may be part of that 1% that gets it. However, most diet books are based on generalizations and they use the modern reductional approach to medicine and they exist to simply make someone a buck or two.
My 3c.
Michael
-------------------- I'm not an MD. The above is IMO and in my experience as well as from health related books.
I've had symptoms consistent with neurological Lyme disease since 1986. Was diagnosed with Lyme in 2004. Am feeling better now than ever before. Posts: 702 | From NY | Registered: Jul 2004
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Health
Frequent Contributor (1K+ posts)
Member # 6034
posted
I'm deleting this, it is too stressful for me to post about this and it is to upsetting to me.
Stress will kill me at this time.
Trish
Posts: 1250 | From Canada | Registered: Aug 2004
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SForsgren
Frequent Contributor (1K+ posts)
Member # 7686
posted
I don't believe GiGi is against antibiotics. In fact, her very own doctor is also my doctor and he is using antibiotics in my treatment of Lyme. So, though you might hear GiGi and myself say that antibiotics ALONE are not the answer, there is a time and a place for using them and I don't think that is disputed here. I personally use them but I also feel that if I had used them alone, I would not be doing as well as I am today. It is a much more complex illness. Metals, viruses, parasites, fungi, mold, etc. all play a role. I appreciate GiGi opening my eyes to all of it. Information is power and some of the most powerful information I have found on this site has come from GiGi.
-------------------- Be well, Scott Posts: 4617 | From San Jose, CA | Registered: Jul 2005
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Greatcod
Unregistered
posted
I believe that this could be resolved easily by having GiGi openly apologize to Sarah and to those she called "whiners busy digging their own graves". To post that about a Lymie openly expressing suicidal thoughts is inexcusible behavior. GiGi's banning is not about altenative versus conventional treatments. Its not about how much or how little of an asset she has been. It is about her denigrating remarks about other Lymenet individuals. Please keep in mind that many Lyme victims have neither the insurance nor the cash to pursue either long term IV ABX or expensive alternatives. I believe that both GiGi and Sarah have each spent $50,000 of their own money for their treatments.
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Health
Frequent Contributor (1K+ posts)
Member # 6034
posted
YES, that is right Greatcod, this is what it is all about.
I agree with you.
Trish
Posts: 1250 | From Canada | Registered: Aug 2004
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luvs2ride
Frequent Contributor (1K+ posts)
Member # 8090
posted
Hi Michael
Because I started my post talking to you, it sounded like the entire post was directed at you. It wasn't. I'm sorry about that. I was just making a light hearted joke about the way you were standing on both sides of the fence. It really was meant to be light hearted.
I'm not vegan and don't believe in it. Though when I was first diagnosed RA, a doctor who is vegan said "If leaky gut syndrome is the cause of my RA, then trying the vegan diet for 2 weeks should show significant improvement." I tried it and the improvement was just astonishing. So I stayed vegan for 4 mths.
I have always loved veggies and not really cared much about meat, especially didn't like steak. Well, after 4 mths vegan, I was craving steak. When I ate it, it was like eating chocolate cake. So delicious. I had to have steak once a week every week for months.
I think my body was deprived of something in steak. Maybe B12? Don't know. When I spoke of eating the raw fruits and veggies, I did not mean exclusively. Just trying to make it the majority of my diet and the meat a minority of my diet.
That's all. BTW, the book was not written by Wallace. He was referencing someone else. It is very good reading. I think the website is www.dyingtogetwell.com. Please note that even though she talks about fasting, she does say people on medications should not fast.
To others who are getting upset by this thread, please SOB.
Luvs
-------------------- When the Power of Love overcomes the Love of Power, there will be Peace. Posts: 3038 | From america | Registered: Oct 2005
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quote:Originally posted by Greatcod: I believe that this could be resolved easily by having GiGi openly apologize to Sarah and to those she called "whiners busy digging their own graves". To post that about a Lymie openly expressing suicidal thoughts is inexcusible behavior. GiGi's banning is not about altenative versus conventional treatments. Its not about how much or how little of an asset she has been. It is about her denigrating remarks about other Lymenet individuals. Please keep in mind that many Lyme victims have neither the insurance nor the cash to pursue either long term IV ABX or expensive alternatives. I believe that both GiGi and Sarah have each spent $50,000 of their own money for their treatments.
Well, if Gigi said that, thas no good...whether true or not...
And just for the record, I never thought that Gigi was against abx or px drugs in general. She was just wise about how and when to use them...
I personally believe px abx play a minor role in the recovery of the average person suffering from chronic LD (cause there's always exceptions). Detox, diet, lifestyle changes and holistic healing methods are far more important in the great scheme of things.
And now that I know what she said, I just think that Gigi got fed up with the "conventional" mainstream message about treatment protocols from this board.
I mean, I don't come here often. But every time I come back, I am perplexed about the general flavor of the postings which hasn't changed in the three years I've been coming here. The core message of Lymenet is still "find an LLMD and get your abx".
Does this really work for most people??? From all the posts I've read abx just ain't doing much, if anything. People go into remission again and again.
If this upsets me, I can sure understand if it upset Gigi (if in fact it did, I don't know) who spent a heck of a lot more time here than me. Sometimes I sure feel like snapping and telling people to stop whining about abx and sleep meds. It just upsets me so much that the mainstream medical profession and drug industry has such a stronghold on the vast majority of people that they can't see past the pill box and that the holistic approach is being swept aside again and again.
So power to you Gigi. Hope to see you back here soon. Next time, count to 10 or 100 or whatever before you hit that "Add Reply" button. And sending that apology out to Sarah can only be good for your spiritual state of mind which, as you know very well, has significant impact on your physiological health. And saying sorry, even if Sarah doesn't deserve it, will only build character. You can do it!!!
Michael
-------------------- I'm not an MD. The above is IMO and in my experience as well as from health related books.
I've had symptoms consistent with neurological Lyme disease since 1986. Was diagnosed with Lyme in 2004. Am feeling better now than ever before. Posts: 702 | From NY | Registered: Jul 2004
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quote:Originally posted by cmichaelo: From what I can tell, newbies come here for two main reasons: to find support and find quick help/LLMD.
Gigi was talking about removing mercury filling, kinesiology, etc. Stuff that's way out of the grasp of newbies. Like they wanna hear radical quack stuff like that.
I dont think you can speak for all newbies. I think you are actually insulting the intelligence of new members....who are fully capable of coming to their own conclusions....if given the chance.
When people with no experience/knowledge are jumping all over any mention of alternative treatment...calling it "quack stuff"...it disrupts the flow of the thread. Info. which may have been helpful to someone...even a newbie...is lost.
How is this supportive??
When I was a newbie I came here and found GiGi's posts to be the most helpful and informative...and today I feel the same. I have learned a ton from her without ever having posted here once.
The information in GiGi's posts were not out of my grasp...in fact they made perfect sense to me. I am much better off today having had the opportunity to learn so much from her posts. I am truelly grateful.
Also, I post about all these alternative methods on other health boards and I do not experience this type of rudeness and hostility. In fact people are very receptive...newbies especially.
I dont think people are looking just for quick info. and support....I think ultimately people do want to get BETTER and most are willing to spend time reading the personal experiences of others.
It makes it very difficult to do so in a hostile environment where people are constantly attacked for having acheived wellness in ways that arent "traditional".
As a one-time newbie...I have to say that GiGi gave me everything I was looking for. Her posts were invaluable to me...everything about mercury detox, kinesiology, LED, ART... all of those "radical" things that have helped me more than anything else.
So yes...GiGi is a very big asset to Lymenet....newbies included.
-Rachel
Posts: 3 | From Northern California | Registered: Dec 2006
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posted
While the moderators at LymeNet do appreciate the hard work and dedication given by many on this board, the LymeNet Rules are there for a reason and must be obeyed by everyone. That means if you have 1 post or 10,000, you must abide by the rules.
Warnings are given out before any banning occurs, unless it's a spammer. I will not disclose the reasoning behind Gigi's ban, except to say that a rule was broken. She is not the only one who was reprimanded.
There will be no special ``hall'' pass to frequent posters allowing them to break the rules when they feel it appropriate. However, I will reinstate Gigi based on the premise that she will follow LymeNet's rules. That goes for everyone else. I am awaiting her response to my offer to reinstate her.
I have noticed a lot of name calling and fighting going on. Those involved have been spoken to. This behavior shall not continue. If you have a problem with a member, PM/email them privately, keep it off LymeNet Flash, and act maturely. Otherwise, you are to email a moderator.
Remember, you are all in the same boat. You need each other!
There is more than one ``right'' way to treat Lyme. Your way is not best for everyone. Understand that. Be open to that fact that everyone responds differently when on a Lyme protocol. Make your point, answer rebuttal questions if necessary, and move on. Try to learn why another would prefer his/her way instead of yours. That is a healthy debate.
So, remember, do not bring your battles to LymeNet; go to the moderators. Also, if you see posts that don't belong in the forum it is posted in, for example the joke of the day in Medical, please email a moderator and provide the link.
On that note, this topic will be moved to Off Topic.
-------------------- Jenifer Stolow LymeNet.Org Webmaster Posts: 320 | From Upstate New York, USA | Registered: Feb 2001
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The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
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