daystar1952
Frequent Contributor (1K+ posts)
Member # 3255
posted
The health reporter for ABC affiliate WJLA in Washington, will be doing a health segment on Lyme disease Thursday evening. The reporter said that this segment will be scratching the surface and that it is extremely difficult to condense this subject into 3 minutes. This report will focus on the silent lyme wars taking place within the medical community and how the patients are caught in the middle. The reporter mentioned that if there is enough interest generated that perhaps she will be able to do a series on lyme.
This show can be watched live on the internet at WJLA.com. Her segment begins around 5:40 or so but you may want to tune in earlier. If you are not able to watch it live then you can watch the show archived ...which should be archived around 6:00 or so http://www.wjla.com/medical/
I think it would be very productive and much appreciated if as many of you as possible would write to the station and thank them for bringing the lyme controversey out in the open. This is a local channel but reaches many influential people in our capitol. You could include phrases such as (it's about time) or (only touched the surface)......(please continue, there is so much more.) And then if you wanted to add some bullets of advice on what else needs to be addressed that would be good also. Try to keep it grateful,sincere, short and to the point ...so they will be sure to read it. We so need to encourage these reporters and to convey to those above them, how serious a problem the lyme epidemic is. It would be especially effective if those in the health profession also voiced their opinion. So....tune in on Thursday. I'll try to remmember to send a reminder :-). Also if anyone wants to pass this on to any other lyme or related disease groups.....feel free.
posted
i sent email to all on my lyme group lists by emaill.
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daystar1952
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posted
Thanks so much guys. The reporter said they are already getting emails and the show hasn't even aired yet!!! She is very excited to have so much response. I found her boss's email on the net and it is [email protected]. Mr. Lord is his name. You may want to write and thank both of them.
Maybe it's because we, the patients, are in the middle of these lyme wars but it seems to me that lately things are exploding and the truth is going to come out but we must keep at it.
posted
for the life of me I couldn't find the story on the link above. was it removed or am i having a lyme-induced-moment?
many thanks
can't wait to see it!!!
allie
Posts: 300 | From Northeast | Registered: Dec 2006
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daystar1952
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posted
Helloooo
The link I posted at the top will be where the news report is posted AFTER it airs. So, if you miss the live report, by 6:00 tonight it should be archived at that link...hopefully :-)
Just remember, she has to present both sides but hopefully it will get the point across to the millions of suffering people out there. And.....any suggestions along with a thankyou, I'm sure would be welcome. Your comments will give them a direction to go in with any further reports on lyme.
tdtid
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Member # 10276
posted
I'm on there now. Betty, I imagine the time is EST since it's Washington DC time which would mean this should be on any minute now.
Cathy
-------------------- "To Dream The Impossible Dream" Man of La Mancha Posts: 2638 | From New Hampshire | Registered: Oct 2006
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tdtid
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Member # 10276
posted
It was just on and working on an email right now. Thanks for the heads up on this and hopefully it will be put in the archives so those that missed it will be able to see it.
Hopefully it's another step towards awareness. They did give an email address at the end but I didn't catch it, so using the one you gave us Daystar unless I can get it from the archives in which will send it again.
Cathy
-------------------- "To Dream The Impossible Dream" Man of La Mancha Posts: 2638 | From New Hampshire | Registered: Oct 2006
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...Sending an email to both email addresses now...
-------------------- �Did you ever stop to think, and forget to start again?� - A.A. Milne Posts: 1987 | From No. VA | Registered: May 2005
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cactus
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Member # 7347
posted
kellebelle, we must have been posting at the same time!
-------------------- �Did you ever stop to think, and forget to start again?� - A.A. Milne Posts: 1987 | From No. VA | Registered: May 2005
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tdtid
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Member # 10276
posted
Thank you both. The email just went out to BOTH email addresses and hopefully others will follow suit.
Cathy
-------------------- "To Dream The Impossible Dream" Man of La Mancha Posts: 2638 | From New Hampshire | Registered: Oct 2006
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kelmo
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Member # 8797
posted
Sent a thank you from Arizona. That oughta get their attention.
daystar1952
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posted
Yes...it is in the archives at the link I listed up top. I thought it was great for a short segment ....and ended not with the opposition but with those who had been helped by long term antibiotics...especially the doctor.I think that what they end the segment with , many times, determines the view people will come away with.
I was excited to see them state at the end of the show that this was an ongoing investigation. Thankyou guys for writing to them. I know it will help
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Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
WOAH!!!!
Hold on a minute!!! PLEASE!!!
Did you read what they said in this report??
The IDSA is kicking the stuffings out of our LLMD's on national TV in Washington DC... and they are broadcasting it. We DON'T need that!!!
And they plan to do another report on the labs next?
NOT good!
We need to be CAREFUL before approaching the press and know what and who we are dealing with... or good intentions can and will go bad.
I certainly wouldn't be writing good letters or thank you's to them for this stuff. They plan to do it if you write or not as they have their own agenda here.... so NO encouraging them now. I don't think that it is needed!
And may I suggest... never write to thank reporters or the media BEFORE a segment is aired or published. And NEVER trust them any further than you can throw them... ever.
IF it were a "good for us" report.. yes.. then write AFTER it is shared to comment. But I wouldn't be thanking them when they say this kind of stuff ...
QUOTES- "THE OTHER SIDE OF THE MEDICAL COMMUNITY, IN FACT, THE MAJORITY, SAYS LYME IS NO EPIDEMIC. THAT CHRONIC LYME DOES NOT EXIST AND THAT LONG TERM ANTIBIOTICS ARE DANGEROUS IF NOT POTENTIALLY FATAL."
Dr. Henry Masur: "There are healthcare providers who are taking advantage of desperate patients and offering them therapies that we know do not work, offering them therapies that we know are harmful."
"DR. MASUR SAYS 30 DAYS OF ANTIBIOTICS IS ENOUGH TO KILL THE BACTERIA THAT CAUSES LYME AND THOSE WHO PRESCRIBE LONG TERM ANTIBIOTICS ARE "ROGUE" DOCTORS PRACTICING UNSAFE MEDICINE."
related stories: ABC 7 Medical: Bathroom Behavior ABC 7 Medical: Type One Diabetes
Anchor: TONIGHT ABC-7 NEWS BEGINS AN ON-GOING INVESTIGATION INTO LYME DISEASE.
A SILENT WAR IS BEING WAGED IN THE MEDICAL COMMUNITY OVER A POSSIBLE LYME EPIDEMIC. THE CASUALTIES: POSSIBLY TENS OF THOUSANDS OF SUFFERING PATIENTS.
KATHY FOWLER JOINS US WITH THE GREAT LYME DEBATE.
Kathy Fowler: TWO GROUPS OF DOCTORS ARE PITTED AGAINST EACH OTHER OVER JUST ABOUT EVERY ASPECT OF LYME DISEASE.... FROM THE VERY DEFINITION OF THE ILLNESS TO HOW IT SHOULD BE TREATED.
Story: REBECCA GRIFFIN COATS HERSELF IN BUG REPELLANT, EVEN IF SHE'S ONLY GOING OUTSIDE HER STERLING VIRGINIA HOME FOR A MOMENT. THE REASON; A TICK BITE SHE SUSPECTS GAVE HER LYME DIEASE. THE ILLNESS LEFT HER MENTALLY AND PHYSICALLY INCAPACITATED.
Rebecca Griffin: "the exhaustion was just incredible."
FOR NEARLY A DECADE SHE DIDN'T' EVEN KNOW SHE HAD LYME. SHE SPENT YEARS SEEING SPECIALISTS SEARCHING FOR CURES FOR HER MEMORY LOSS, MENTAL CONFUSION, JOINT PAIN, STRANGE RASHES AND CHRONIC FATIGUE.
Rebecca Griffin: "I had a database of doctors I was seeing and every six weeks something else was whacking out on me."
"hey you"
IT WAS FAMILY PHSYCIAN DR. SARAH FLETCHER WHO FINALLY DIAGNOSED REBECCA WITH LYME DISEASE.
Dr. Sarah Fletcher: "People are just suffering and it's getting mislabeled and misdiagnosed."
DR. FLETCHER AND INTERNIST, DR. NORTON FISHMAN SAY REBECCA'S STORY OF STRANGE SYMPTOMS AND MISDIAGNOSIS IS MUCH TOO COMMON.
Dr. Norton Fishman: "When they come in and they say I've been to John Hopkins I've been to rheumatologist the endocrinologist, I've been to the neurologist and finally the psychiatrist and they all tell me I'm crazy I say no you've got Lyme disease.. go no further."
THIS IS WHERE THE BATTLE LINES ARE DRAWN. ON ONE SIDE DOCTORS LIKE FLETCHER AND FISHMAN WHO BELIEVE LYME IS AN UNRECOGNIZED EPIDEMIC. THAT IF IT ISN'T DIAGNOSED EARLY AND TREATED PROPERLY IT CAN PROGRESS TO MORE SERIOUS AND DEBILITATING STAGES CALLED "CHRONIC LYME". THAT OFTEN NEEDS TO BE TREATED WITH HIGH-DOSE LONG TERM ANTIBIOTICS.
THE OTHER SIDE OF THE MEDICAL COMMUNITY, IN FACT, THE MAJORITY, SAYS LYME IS NO EPIDEMIC. THAT CHRONIC LYME DOES NOT EXIST AND THAT LONG TERM ANTIBIOTICS ARE DANGEROUS IF NOT POTENTIALLY FATAL.
Dr. Henry Masur: "There are healthcare providers who are taking advantage of desperate patients and offering them therapies that we know do not work, offering them therapies that we know are harmful."
DR. MASUR SAYS 30 DAYS OF ANTIBIOTICS IS ENOUGH TO KILL THE BACTERIA THAT CAUSES LYME AND THOSE WHO PRESCRIBE LONG TERM ANTIBIOTICS ARE "ROGUE" DOCTORS PRACTICING UNSAFE MEDICINE.
Dr. Henry Masur: "This minority of poorly trained physicians who feel passionate, if they really felt passionately about this they would collect their data so that we could see their data we could see what they base their diagnosis on."
DR. FLETCHER, A BELIEVER OF CHRONIC LYME AGREES SHE IS "PASSIONATE", PARTLY BECAUSE THIS BATTLE IS PERSONAL. SHE LIVES IN A LYME ENDEMIC AREA WAS DIAGNOSED AND DEBILITATED WITH LYME DISEASE 7 YEARS AGO. SHE SAYS LONG-TERM ANTIBIOTICS SAVED HER CAREER, HER LIFE.
Dr. Sarah Fletcher: "There was a 5 year period of time when I was on antibiotics I could think better and then when I came off the antibiotics I couldn't think as well and then when I would go back on the antibiotics my thinking got much better."
WITH NO CONSENUS AMONG DOCTORS ON THE DISEASE, THE PERVASIVENESS OR EVEN THE TREATMENTS, PATIENTS ARE LEFT IN THE MIDDLE WITH UNANSWERED QUESTIONS.
AFTER 3 YEARS OF ANTIBIOTICS REBECCA SAYS SHE'S GOT HER LIFE BACK. SHE DOESN'T THINK SHE'LL EVER BE "CURED" BUT SAYS WITH CONTINUED TREATMENT THE DISEASE IS NOW MUCH MORE MANAGEABLE.
"Are you doing better? I think I"m doing better I can hold you... Yeah"
Kathy Fowler: NEXT DURING our ON-GOING INVESTIGATION WE'LL LOOK AT WHY LYME DISEASE "TESTING" CAN BE SO INACCURATE.
FOR MORE INFORMATION ABOUT "BOTH" SIDES OF THIS GREAT LYME DEBATE LOG ONTO OUR WEBSITE AT WJLA.COM IF YOU WOULD LIKE TO MAKE A COMMENT ON THIS TOPIC. EMAIL US AT [email protected]
daystar1952
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posted
Again TC...I think they did a great job. You know as well as I do... that they are supposed to present both sides. My immediate reaction was that it was weighted favorably on our side. 2 docs on our side compared to i idiot on the other side. Also all the patients were shown in a positive light and the subject in general was treated very seriously.
I say write and encourage them to do more ...along with suggestions. You might want to say that Dr. F could have been shown presenting a few more facts..but other than that I think it was well done
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shazdancer
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posted
I agree, daystar, they need to present both sides. I did not see the video, but read the transcript, and it sounds to me like they "get" the story: that the IDSA treat one way, the patients get sicker, they find long-term treatment, they get better.
They placed Masur's comments next to Dr. Fletcher's getting better by doing the opposite of his recommendations. Nice!
Posts: 1558 | From the Berkshires | Registered: Jul 2001
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kelmo
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Member # 8797
posted
I got a response from Mr. Lord at the station. He thanked me for my email and expected to hear more stories.
Don't disappoint him!
Posts: 2903 | From AZ | Registered: Feb 2006
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tdtid
Frequent Contributor (1K+ posts)
Member # 10276
posted
Tincup,
I think we can all appreciate the fact that you don't want ANY negative press for lyme and you are looking out for what is in the best interest for ALL of us suffering.
I would like to present a tiny bit on why I think many of us are feeling optomistic. Most news reports just aren't even talking about lyme. And if they do, it's to say something like the President had it but it was an "easy fix".
The news segment was on the "CONTROVERSY". I only wish I had seen this segment during my five years of going from all the specialists and having no clue where to turn. This would have opened my eyes.
Yes, they showed BOTH sides, but LOOK how slanted it was. They get one doctor talking crap and the compassion goes to the other side HANDS DOWN. If you were sick and didn't know why... wouldn't that atleast make you stop and think? Awareness that there is even a controversy out there is important in getting word to people of the "coverup".
If they went out and said, "this is lyme, this is all you have to do"....they would be hit hard by IDSA. This way, IDSA was represented, but not very well. I think the proof would be in the way they closed the segment since it's the last thing you see. It's a DOCTOR that had long term lyme that ONLY got her life back by the use of long term treatment.
Who would YOU believe? So when writing, it's easy to enforce our side in a short and brief manner and as far as IDSA, just pose a question to them asking what ISDA would do for those suffering long term since their solution give NO HOPE of cure.
Hopefully you will see that although this doctor from IDSA said horrid things, I think it was pretty obvious that the story on the "CONTROVERSY" definitely showed it swayed to our side.
Cathy
-------------------- "To Dream The Impossible Dream" Man of La Mancha Posts: 2638 | From New Hampshire | Registered: Oct 2006
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posted
I'm sorry to all who may be offended by this, but I have to agree with Tincup! There is already enough against us receiving the treatment we need.
I most certainly have NO desire to encourage those who are uneducated about LD to air things that will continue to work against us!
Yes, they need to present both sides, but they need to do it in a way that both sides are represented to the same degree.
I'm one of those that 'got it in the backside' from IDSAs little "30 days of abx is enough" back in 1999, when I was first dxed with this.
-------------------- May we all find peace one day and may peace prevail on earth ~ Traveler Posts: 66 | From traveling the U.S. | Registered: Aug 2007
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tdtid
Frequent Contributor (1K+ posts)
Member # 10276
posted
ARTraveler,
Just a quick question. You say that you went the path of the IDSA. I'm sure that's because you didn't even KNOW there were two sides? Correct?
If you had known, wouldn't you have wanted to look into it deeper before just assuming the ONLY side you knew about was correct?
I was diagnosed with everything under the sun and I knew NOTHING of lyme. Letting the public know there are two sides and NOT just the one that is being force fed to the majority is important.
Cathy
-------------------- "To Dream The Impossible Dream" Man of La Mancha Posts: 2638 | From New Hampshire | Registered: Oct 2006
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daystar1952
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Member # 3255
posted
UPDATE......Because people have written in there will be a 30 second update after Kathy Fowler's report tonite (which has nothing to do with lyme). The update will say something to the effect that we have had many responses from people all over the country with stories of misdiagnosis, neglect...etc so we WILL continue our investigation.
In order for there to be a controversey both sides have to be shown or it wouldn't be a controversey. I heard that the IDSA also complained that they were unfairly represented...imagine? I agree with Cathy and others that it was a well balanced report and that most people would be able to sense where the truth and compassion lies
Posts: 1176 | Registered: Oct 2002
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posted
Kind of amusing to hear the pompous IDSA comment about "poorly trained" doctors, immediately followed by a doctor with Lyme whose life and career were saved by long-term abx. I'd say she had enough training. Thanks Dr. F!
It might not be as immediately satisfying, but give the IDSA some airtime (alongside the truth), and they will continue to do themselves in. Better in the long run IMO.
...As long as we write those letters too.
Posts: 621 | From US | Registered: Jun 2006
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posted
I also wrote as I believe any reporter willing to air OUR side needs to be encouraged to do so...and more if possible! For too long the IDSA docs have taken charge of this disease! ENOUGH already!
Besides, that IDSA doc came off looking like a complete idiot and a horse's derriere...
In my email,I suggested they get in touch with Andy Wilson of OpenEye Pictures and hear about his documentary and why he chose to take this on...etc. Also sent the website so they could view the trailer and have his contact info.
The last line in the trailer of the documentary sticks in my mind....."and soon there will be a tsunami"....I haven't got that right, so correct me please.
Almost always agree with TC but I am mad as hell and we are NOT going to sit back and take their garbage any more. That's how the AIDS patients were finally heard. IMO, the wind is blowing in our direction right now, so let's roll!!!
-------------------- nan Posts: 2135 | From Tick Country | Registered: Oct 2000
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posted
I didn't see where they published the next segment in the series. Anyone know when the next one is? I don't live in the DC area anymore, so I can't receive it on local TV.
Posts: 131 | From PA | Registered: Aug 2007
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valymemom
Frequent Contributor (1K+ posts)
Member # 7076
posted
Masur describes/accuses doctors who treat tick-borne diseases as "rogue" and "poorly trained".......we need to come up with a descripter/phrase which describes them......one our interviewed docs can start using.
At the moment I can't think of one to sting......but I am sure others will be able to......
One that our doctors would use in interviews.
Posts: 1240 | From Centreville,VA | Registered: Mar 2005
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daystar1952
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posted
I will be able to let you guys know when the next segment is going to air
Posts: 1176 | Registered: Oct 2002
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Tracy9
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Member # 7521
posted
I forwarded it to practically everyone in my email directory; people NOT on the lymeboard and not well informed about this; and got many responses that all got it the way we'd like them to. One woman wrote me that her professor at UCOnn had been on "ABX for years, and she was so shocked by the IDSA doc's ignorant comments. I think that the piece is EXCELLENT; and if you don't show the controversary and the other side than you come across as being biased and putting your own spin on it. This way, the "facts" as they are called by both sides are there, but it is obvious who is the horses' arse here. I think everyone gets it that way; well done, and if anything I think IDSA looks like fools. Perfect!
13 years Lyme & Co.; Small Fiber Neuropathy; Myasthenia Gravis, Adrenal Insufficiency. On chemo for 2 1/2 years as experimental treatment for MG. Posts: 4480 | From Northeastern Connecticut | Registered: Jun 2005
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bettyg
Unregistered
posted
tracy, interesting reading the feedback from your sending to all in your address book!
yes, i'm like nan, LET'S ROLL while the fire is hot!
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David95928
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Member # 3521
posted
This segment seems well done to me and portrays our side in a positive light. It seems to me that good points to address in e-mails are that: 1. Masur can't comment without impguning other's itegrity integrity and training. 2. He says that doctors should present their eveidence but, in fact, have been excluded from the scientific conferences.
-------------------- Dave Posts: 2034 | From CA | Registered: Jan 2003
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lpkayak
Honored Contributor (10K+ posts)
Member # 5230
posted
daystar-are people posting their comments and are they being held back? i can't believe there are only 13 or so...
i tried to pm you but your box is full
i agree with you-i feel awful disagreeing with tin- i hope she will forgive me.
i just feel like we FINALLY have a chance to be heard and it seems like we are blowing it..lets not forget the oprah thing either..she is asking for stories
and i think below is a summary of what others have given for tips on what to say:
from cave: Write 'the unsent letter' to us here. Ranting about your frustrations. That's what support groups are for. God knows I did that enough of that, back in the day.Then write a short letter outlining just how wrong the IDSA's position is. Send that to ABC (remember-if you go to the abc page you just register -free-and comment there-not a snail mail letter)
From tdtid... So when writing, it's easy to enforce our side in a short and brief manner and as far as IDSA, just pose a question to them asking what ISDA would do for those suffering long term since their solution give NO HOPE of cure.
i think it might help for p.ervine to jump in and some of the others with writing experience-anyone know how to contact her?
tin...can you see our point? please don't be mad at me. lp
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
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merrygirl
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Member # 12041
posted
I liked the segment. They showed both sides, when we usually only see one. I sent thema lengthy story and thank you.
SOmeone who is smarter than me please email them the scientific data to prove the IDSA sucks.
Thanks Melissa
Posts: 3905 | From USA | Registered: May 2007
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Thank you for airing your news story about Lyme disease. My now-15 year old daughter came down with mysterious, debilitating symptoms when she was 13. A top student athlete suddenly became bed-ridden with pain. After a year of tramping around from one so-called "expert" to another, we still had NO diagnosis and no effective treatment. Finally, we got to a doctor with the training and experience to recognize chronic Lyme disease, and she began treatment. With long-term antibiotics, she's shown slow, steady improvement, though she's not yet finished with this miserable disease.
One comment about your story: Dr. Masur, of the IDSA, dismisses doctors who treat Lyme with long-term antibiotics as being a "minority." In our case, that's true. Our Lyme doctor is a minority of one--he's the only one of the DOZENS of doctors we saw who figured out what the problem was and took proper steps to correct it. The vast majority were no help whatsoever, and a few made things substantially worse.
I look forward to seeing the next installment of your series about Lyme.
Posts: 991 | From California | Registered: Feb 2006
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merrygirl
Frequent Contributor (1K+ posts)
Member # 12041
posted
I received a reply from Kathy Fowler tonight thanking me for sharing my story and she promises to work hard and promises to shed light on the very important Lyme topics!
What a great thing. I am impressed with her looking into ths debacle.
Thank you MS. Fowler!
Melissa
Posts: 3905 | From USA | Registered: May 2007
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Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
Merrygirl said...
"They showed both sides, when we usually only see one."
I assume you mean they only show the other side and not ours on TV? If so... might you have any examples of that?
merrygirl
Frequent Contributor (1K+ posts)
Member # 12041
posted
Tincup-I guess I can't- I am not trying to argue or anything,
I just thought it was a good segment. It seemed more in our favor I thought.
I am not as smart as some Lymies here, still learning.
Posts: 3905 | From USA | Registered: May 2007
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lpkayak
Honored Contributor (10K+ posts)
Member # 5230
posted
hey guys! check out the new comments! bush's speaking ability was brought up...phyllis wrote a great one... but my favorite line was from someone i don't think i know:
"Why can I, a simple, common factory worker, diagnose Lyme disease using the government websites but none of the doctors I saw in 2.5 years could not? "
keep writing! (www.wjla.com )keep asking others to- thanks for your time and energy
if you want to write your WHOLE story---maybbe send it to OPRAH ...she was collecting them awhile ago. i'll try to find out where to send and start a new thread. that way we can get double coverage for the energy we put into writing.
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
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lpkayak
Honored Contributor (10K+ posts)
Member # 5230
posted
tin you asked merry to show OUR side. i think it's ALL our side except this:
"THE OTHER SIDE OF THE MEDICAL COMMUNITY, IN FACT, THE MAJORITY, SAYS LYME IS NO EPIDEMIC. THAT CHRONIC LYME DOES NOT EXIST AND THAT LONG TERM ANTIBIOTICS ARE DANGEROUS IF NOT POTENTIALLY FATAL.
Dr. Henry Masur: "There are healthcare providers who are taking advantage of desperate patients and offering them therapies that we know do not work, offering them therapies that we know are harmful."
DR. MASUR SAYS 30 DAYS OF ANTIBIOTICS IS ENOUGH TO KILL THE BACTERIA THAT CAUSES LYME AND THOSE WHO PRESCRIBE LONG TERM ANTIBIOTICS ARE "ROGUE" DOCTORS PRACTICING UNSAFE MEDICINE.
Dr. Henry Masur: "This minority of poorly trained physicians who feel passionate, if they really felt passionately about this they would collect their data so that we could see their data we could see what they base their diagnosis on." "
already lots of responses are tearing what he said apart.
the rest including the pics/video is really showing our side. i think having masur act like a jerk strengthens our side.
ok-gotta go look for the oprah thread
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
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CaliforniaLyme
Frequent Contributor (5K+ posts)
Member # 7136
posted
I think this is great. Of course they have to show both sides with the reality of the situation.
It is a risk and amazing they are showing our side at all!!!!!!!!!!!!!!!!!!!!!
-------------------- There is no wealth but life. -John Ruskin
All truth goes through 3 stages: first it is ridiculed: then it is violently opposed: finally it is accepted as self evident. - Schopenhauer Posts: 5639 | From Aptos CA USA | Registered: Apr 2005
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posted
Yup!,and every doctor watching gets brain washed even more that 30 days of treatment is enough.
People letting down the lyme community is themselves. This disease can be helped alot with hyperbaric oxygen treatments.But they wont prescribe them. Where did the Columbia study get lyme patients? Except telling you, that us lyme patients need psyciatric meds.All that money got us nothing. Lyme patients need to forget Oprah,George Bush,etc. Lyme patients are treated cruely,pain,suffering,you name it. But we look fine so we gotta live in pain,and be sick every day. It is ashamed so many people are ill,and cant even have a name for there illness. There is only one way to get them to listen. And if it doesnt happen soon,we wont have doctors in the next few years.
Posts: 510 | From NEVERLAND.USA | Registered: Jul 2005
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lpkayak
Honored Contributor (10K+ posts)
Member # 5230
posted
anyone know how to contact ekpritch? he'she made a comment on the abc thing about thyroid-i'd like to talk with them...thanks
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
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lpkayak
Honored Contributor (10K+ posts)
Member # 5230
posted
well there's almost 20 different people commenting now..but they seem to move the comments around or delete thm or something
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
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but I am mad as hell and we are NOT going to sit back and take their garbage any more. That's how the AIDS patients were finally heard. IMO, the wind is blowing in our direction right now, so let's roll!!!![[woohoo]](graemlins/woohoo.gif)
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