Ann-OH
Frequent Contributor (5K+ posts)
Member # 2020
posted
This is not the AIDS type of acquired immunodeficiency,and I don't think it is affecting the heart of this child. (Not my child, but a good one, nonetheless.)
-------------------- Do unto others as you would have them do unto you. Remember Iam not a Doctor Just someone struggling like you with Tick Borne Diseases.
Ann-OH
Frequent Contributor (5K+ posts)
Member # 2020
posted
I wonder how many of us are limited in ability to fight Lyme disease because our immune systems are too weak. Weak to the point that antibiotics can't do the job alone.
That treatment is what i improved on the most. Something called Gamunex, i think its just another version of gammaguard. Its intravenous immunoglobulin. I get via infusions. It has all but eradicated my neuro symptoms. My blood showed autoimmune markers so the neurologist started to treat me with this. I highly reccomend giving this a shot. -Dawn
Posts: 6 | From Westchester County, NY | Registered: Apr 2007
| IP: Logged |
posted
I think immunodeficiency is the reason I'm not improving. I don't seem to have a very good functioning immune system. I am sick half the year from colds and flu's that my family and friends have. The problem is thatI seem to catch EVERYTHING and then it takes me months to get over it.
I don't think I'll get well unless I fix my immune system first.
Kathy
-------------------- You never know how strong you are until being strong is the only choice you have. Posts: 807 | From South Dakota | Registered: Jul 2005
| IP: Logged |
oxygenbabe
Frequent Contributor (1K+ posts)
Member # 5831
posted
Ann, I get small amounts of this, very helpful. Larger amounts might be more helpful but too expensive & also I get side effects (gallbladder doesn't like it, very thick molecule).
Gamunex is the best--no sugar or salt in the solution. IMO.
Cave76, btw is that a reference to Melbrooks (your monitor) becuase the other day I thought so and was remembering how funny the 2000 year old man was.
Anyway. To get IVIG for lyme you usually need a neuro diagnosis. Small fiber neuropathy is one for example. Immunodeficiencies, subclass deficiencies, can be tested but they're probaby not that common with lyme. I hear of a neurologist in NYC, who does a special dye-test for nerve fiber damage for lyme.
Posts: 2276 | From united states | Registered: Jun 2004
| IP: Logged |
frakktured1
Unregistered
posted
Just reading the precautions of this therapy that tree's first website brings up is rather scarey.
I have been told by the VA that I have an immune deficiancy...
However I don't know that I would readily give this a try due to my age and diabetes.
oxygenbabe
Frequent Contributor (1K+ posts)
Member # 5831
posted
Cave: "`Let `em all go to hell, except Cave 76.'
"Back then a cave was important. It went beyond shelter. It was part of your identity. Every cave was like its own individual nation. We had our own flags and our own national anthems. I'll never forget ours. My mother wrote it. It had such passion and pride. Let me sing it to you. Wait, I'll clear my throat. Here goes:
"`Let `em all go to hell, except Cave 76.'
"Hah? Is that beautiful? I still get a chill when I hear that song."
Posts: 2276 | From united states | Registered: Jun 2004
| IP: Logged |
oxygenbabe
Frequent Contributor (1K+ posts)
Member # 5831
posted
Because it made me laugh my head off years ago when a baseball player did an impersonation of the whole riff for me. And I'd forgotten it until suddenly your named sparked a memory. And I went online and read bits. It's soooooo funny. Where did you buy the CD? Posts: 2276 | From united states | Registered: Jun 2004
| IP: Logged |
oxygenbabe
Frequent Contributor (1K+ posts)
Member # 5831
posted
Okay Cave I ordered the complete set on Amazon! Posts: 2276 | From united states | Registered: Jun 2004
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
![[Eek!]](eek.gif)
![[loco]](graemlins/loco.gif)
![[group hug]](graemlins/grouphug.gif)
![[lol]](graemlins/lol.gif)
Printer-friendly view of this topic