posted
nancyb.. that's interesting to me. i actually think i've had Lyme since my episode. i'm 38 now and i was between 7 & 12 when i had PR.
i was never a sick person. i get the flu 2-3x a yr and i'm usually down for the count for 48-72 hrs (beat down, pinned to the bed, endless sleep). sometimes i end up with sinus infections. i don't get common colds.
i rattled myself good and broke my foot in Nov05.. that's when all my trobles started. perhaps that's what triggered the lyme.
i hope your daughter is doing well and not suffering too much. what part of Canada are you in? i spent quite a bit of time in Quebec City, and bits of time in Montreal & Vancouver racing bikes at ski resorts.
please share any info you come across which could link PR to Lyme, thanks.
take good care..
-------------------- "The hell with Drs.. we have each other!" My story began here:
You've got me interested in the PR now. I remember my doctor saying that it was quite unusual for my daughter to have it twice. I know she already had Lyme for the last episode but I can't be sure for the first.
Your story about having your symptoms come on after your foot injury is common. Many people find that an injury acts as some kind of trigger. Are you seeing a LLMD and have you been tested for co-infections?
Isn't Quebec City beautiful? I hope you had time away from the track to see the sights. I live near Toronto. Is it possible you were bit in Canada?
This is my second daughter to get Lyme. My oldest is just nearing the end of her Lyme/Bartonella treatment. She went 3 years undiagnosed and has been on treatment for 1.5 years.
I'll see if I can find any info about PR for us.
All the best.
-------------------- The Canadian Lyme Disease Foundation www.canlyme.com Posts: 128 | From Canada | Registered: Sep 2006
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There are a variety of causes for pityriasis rosacea. The microorganisms such as virus, fungus and bacteria are not referred to as the causative agents but, HHV-6 and HH-7 might be considered to play a major role.
But - I am wondering that since the typical Lyme rash and the PR rash are annular rashes, could they be mistaken for each other?
My daughter had all kinds of crazy rashes going on before she was diagnosed.
-------------------- The Canadian Lyme Disease Foundation www.canlyme.com Posts: 128 | From Canada | Registered: Sep 2006
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posted
i have positive IFA's for Borrelia & Babesia, and went undiagnosed for 18 months. i have 2 LLMD's and started treatment 18Sep (Azithro, Mepron, IV Rocephin in mid Oct).
i also tested positive for HHV6, HSV1 & Mycoplasma, and i have high titers for EBV.
i wonder if PR is an alternative rash for the bullseye. since we all react differently with different symptoms, it COULD be possible.
only someone who was guaranteed Lyme free prior to PR could confirm this. is there anyone out there??
i was too young to recall the details before, during and after PR. my dad doesn't recall much either.. and he took me to the Dr. all i know is i spent a lot of time in the woods.
i forgot to ask my LLMD about it today. i'll continue to do research and post on the subject. i wonder if those who had PR now have Lyme?? i bet there's a connection.
posted
I've always wondered too if there is a connection between PR and EM rashes. I had PR when I was about 9 and my brother had it at the same time, he was 12.
I went on to get LD 40 years later but my brother is Lyme-free.
Anyone else have PR and then Lyme? Anything else on this subject turn up, Nancy?
Mary
Posts: 267 | From Abbotsford BC | Registered: Jul 2003
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posted
The more I think about the PR rash and the more I read about the different types of Lyme rashes that can occur, the more I am convinced that so many children are being diagnosed with PR rashes instead of the EM rash.
There is no really good test for PR without doing a biopsy. And what doctor would do that?
Great. 2 conditions with similar rashes and no good test for either one of them. One goes away on it's own and the other will ruin your life.
-------------------- The Canadian Lyme Disease Foundation www.canlyme.com Posts: 128 | From Canada | Registered: Sep 2006
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posted
I got this right before I figured out I had lyme. Very Itchy Stuff.
I did lots of research, It will not leave any scars, it is not contagious, so they do not know how one gets it, but you do not really have to worry about spreading it. It will go away in about 3 weeks. It is almost always infects people in either fall or spring, usually never summer. This is another thing that they do not know hwy.
My boyfriend got it in fall, and never gave it to me, I got it in spring and never gave it to him.
from what i understand and experienced, its not a big deal. Just a little weird.
My daughter had her herald patch on her leg. Round circular rash, a bit scaly on the outside. The secondary rash appeared on her torso and was never very itchy.
She had hers in June and again in January. Both months are outside of the usual times to get it.
The doctor was surprised with a second bout of it as it is rare for a second occurence. She also had lots of other rashes going on at the same time. This was before LD diagnosis.
I can't be sure that my daughter had Lyme for the first PR, but she definitely had Lyme for the second PR - the one that is rare.
"This initial lesion enlarges over a few days to become a patch with a collarette of fine scale just inside the well-demarcated border."
Sounds just like the EM rash some people get. And how can a doctor differentiate between the two?
It goes on to say: "Within the next 1-2 weeks, a generalized exanthem usually appears, although it may occur from hours to months after the herald patch."
So if you go to a doctor with what lookds like a herald patch with no other rashes, the doctor could be falsely assuming it is PR.
The following symptoms can also be associated with PR: "Pityriasis rosacea is concerned with prodromal symptoms such as malaise, joint pain, anorexia, lymph node swelling, nausea and head ache."
Gee, have we seen those symptoms anywhere else?
I guess we can add this one to the list of misdiagnosis.
-------------------- The Canadian Lyme Disease Foundation www.canlyme.com Posts: 128 | From Canada | Registered: Sep 2006
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posted
my LLMD says PR is very suggestive of a tick bite. i didn't spend too much time on the subject (had tons of questions) but i did mention my age and where i was living at the time (South Jersey).
there must be more of you Lymies out there that had PR (or know someone who did) at one time or another. please share your story even if you don't totally remember the details.
-------------------- "The hell with Drs.. we have each other!" My story began here:
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