timaca
Frequent Contributor (1K+ posts)
Member # 6911
posted
JRW~ Labcorp states on the report that "Single positive antibody titers of greater than or equal to 1:80 may indicate past or current infection." Mine are not that high.
However, I was recently tested for mycoplasma pneumoniae, and that IgG titer came back at 1:64 with the lab stating (Focus lab)...Titers greater than or equal to 1:64 usually suggest recent infection. So, I am checking into the possibility of further mycoplasma testing to rule in or rule out an infection.
My viral labs had not spiked...so those likely weren't a cause for my downturn. I got some lyme labs back which may be some cause for suspicion, but I'm checking more into the mycoplasma first.
I have pulled out of my downturn (thankfully), only to get a head cold...and experience the wonders (beyond description) of nasal lavage.
Best, Timaca
Posts: 2872 | From above 7,000 ft in a pine forest | Registered: Feb 2005
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JRWagner
Frequent Contributor (1K+ posts)
Member # 3229
posted
Ah yes, the pleasures or nasal lavage...
I too had the same damm cold...everyone in the world has it...
A secret: buy a Fleet's Saline Enema...no kidding...empty contents, fill with warm saline solution...(salt...not too much, and warm water).
PRESTO...the BEST nasal douch you can buy! It really works well.
Mycoplasma...I tested positive years ago...but thought all the ABX I used for Lyme should do the trick...maybe not.
Yes, I did and can still have on occasion bad headaches. I have had a creaky neck on and off...and a very stiff neck for 2 weeks...after a bicillin shot.
Timaca
Posts: 2872 | From above 7,000 ft in a pine forest | Registered: Feb 2005
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JRWagner
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posted
Thanks Timaca...
Your Lyme WB results will show everyone how different the results from different labs can be...
This is a very scary thought...for example:
Your Focus results...if a regular MD were to have only these, he or she might not diagnose your Lyme Disease...
This is the problem so many others are facing...negative or inconclusib=ve lab results giving rise to a negative diagnosis.
What does your LLMD say about the different results? Did you also get tested for co-infections recently?
Yes, the headache (and neckache)thing...unreal...my eyes are half closed from the pain, and my lower eyelids are swollen...with dark circles.
Great look if I was in a Vampire movie!!!
Be well, JRW
Posts: 1414 | From Ny, Ny | Registered: Oct 2002
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WildCondor
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posted
Back when I had HHV-6 and EBV that were very high, I tried IV Ganciclovir and then oral antivirals to knock the viruses out. It worked, temporarily, but as soon as I stopped the meds, the titers went sky high again. Ironically, a few months later after I started Lyme disease treatment with antibiotics, all my virus counts went back to normal. Moral of the story, treat the Lyme, and the viruses might go back to sleep.
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JRWagner
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posted
WC...how are you doing?
Treating the bacterial component was my MO for 14 years...zilch. My viral titers are still high...so, this is not a black and white issue.
Perhaps our viral load is the main component here...not the Lyme...and perhaps not.
Timaca, what did your LLMD say about your newest test results? Dr. Montoya?
Thanks again, JRW
Posts: 1414 | From Ny, Ny | Registered: Oct 2002
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JRWagner
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up
Posts: 1414 | From Ny, Ny | Registered: Oct 2002
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AliG
Frequent Contributor (1K+ posts)
Member # 9734
posted
^
-------------------- Note: I'm NOT a medical professional. The information I share is from my own personal research and experience. Please do not construe anything I share as medical advice, which should only be obtained from a licensed medical practitioner. Posts: 4881 | From Middlesex County, NJ | Registered: Jul 2006
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posted
Wow, the results on WB bands from Focus, Igenex and Stonybrook are scarily NOT the same. I soooooooooo wish we had a 110% accurate test for this horrible infections!!!!!!!!!!!!!!!!!!!!! It's just nuts that there is still not a reliable test!
I wish we could hear a dialogue between the microbiologists at these labs to see what's up. Why the difference? Does Igenix record more bands?
soooo frustating,
Anneke
Posts: 364 | From California | Registered: Sep 2005
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timaca
Frequent Contributor (1K+ posts)
Member # 6911
posted
Sorry for the delayed response. I was out of town for spring break vacation.
I have not yet spoken with my LLMD regarding my recent lyme tests. I hope to do that by the end of April. I see Dr. Montoya in early May, so I'll get his input on my viral/lyme labs at that point in time.
I did not get retested for co-infections.
Wildcondor~ Treating the lyme did not lower the viral titers in me. Hence, I'm now treating the viruses.
My own personal take on my recent tests.... Lyme tests: while some bands came up positive, I am not jumping at a "I have lyme again" conclusion. I will just keep a watchful eye on tests in the future. I will be interested to hear what my LLMD and Dr. Montoya think of these results. (And I have a good idea what each may say--although I won't state those thoughts here).
I am more interested in making sure mycoplasma isn't a player. So, I will check that out further.
I just completed a trip to New Zealand. Something that I thought would be very hard to do. Surprisingly I tolerated the long plane flights and sightseeing better than I thought I would. Other than getting a second head cold, I did pretty well considering the chronic infections I've been battling.
Now, I'm just going to try to unpack, rest, do laundry, rest and do more resting...to see where I'm at healthwise.
Best, Timaca
Posts: 2872 | From above 7,000 ft in a pine forest | Registered: Feb 2005
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