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» LymeNet Flash » Questions and Discussion » Medical Questions » To those who were 1st diag. w/ fibro, but turned out to be lyme...

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Author Topic: To those who were 1st diag. w/ fibro, but turned out to be lyme...
GardenLymer
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If this is the case w/ you - I would very much appreciate you posting briefly about that experience.

A friend's Mom has fibro - I was telling him about how many times it turns out to be lyme. I will forward the thread to him.

He's young, just out of H.S. (a friend of my daughters) so I don't want to overwhelm him w/ too much info. But I thought words from those who have had this wrong diag. along w/ Dr. B's symptom list would be enough for him to see if there was a corralation to his Mom.

She has had this diag for yrs - but recently seems to have taken a turn for the worse - weight gain - a few car accidents,insomnia, etc. (I'm sure there's more I'm unaware of - I don't really know her.)

So please share your story of wrong diag w/ Christopher, so he might possibly be able to point his Mom in the right direction.

Many advance thanks to my fellow Lymenetter's for help w/ this! (((hug)))

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barksplinter
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My was the ultimate nurse. Smart, organized, energetic, high morals and ethics, extremely kind, easy to work with, and PRETTY!

She had to retire at age 42 with Fibromyalgia as a diagnosis for SS.

Was also diagnosed with Chronic Fatigue Immune Deficiency Syndrome.... and joined a support group for the same. Only the last year has gotten her a + Lyme... meanwhile she has worsened significantly.

Over the last 5 years at least 4 of 5 gals she started with have been diagnosed with Lyme. The fifth was never tested. Others who have came into the group have had a similar path.

Try printing out the 70 or 80 symptoms of Lyme that are on the net ... and be sure and steer toward a good lab... It would be a miracle if she would go to a LLMD right out of the gate.

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Robin123
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Absolutely -- my story exactly.

I was bit by a tick on my foot in 1981, went to a clinic to ask what it was, "it's a tick", they took it out, I had no symptoms at the time.

Symptoms started three months later with sore shoulder muscles, then a stiff neck, then head-to-toe muscle pain that was declared to be fibromyalgia by a rheumatologist.

I went to FM support groups for years -- for 25 years -- along with other kinds of support groups for conditions I thought I had, like repetitive strain injury, candida, chronic pain, etc.

Then my chemical sensitivity went over the top and I went online to ask why. That's when I was told by a nurse on the East coast that all my 50 symptoms sounded like Lyme disease and had I ever been bitten by a tick. She solved a 25-year mystery.

I got tested through the Igenex lab, came back positive for Lyme, went on clindamycin antibiotics 150mg 4x/day and within one week, the fibro pain went to zero. And chemical sensitivity, fatigue and ankle swelling also diminished.

We're all different, so just because clindamycin worked for me doesn't mean it'll work for someone else. We're all individual when it comes to antibiotic effectiveness.

Only about 18-30% ever see the tick that bit them. Lyme can also be transmitted by other insects as well as by human transmission.

[ 20. October 2007, 04:28 AM: Message edited by: Robin123 ]

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Aniek
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I had a bulls eye rash when I was 12, in 1986. The ER and dermatologist didn't know what it was, so told me it was an allergic reaction.

In 1988, when I was 14, I started to have severe pain and inflammation in my knee. I have had some form of pain ever since then. For years, I lived with no diagnosis, and doctors telling me the pain was unrelated.

In 2002, I had severe wrist pain. I was diagnosed with tendinitis. The pain moved to my other wrist and into my back and shoulders. I lost the use in my hands for about a year because of the pain and weakness from wearing wrist braces. The doctor refused to reconsider the diagnosis, even though I didn't respond to treatment.

In 2003 I was diagnosed with fibromyalgia. I told the pain specialist who diagnosed me about the history of the bulls eye rash, and he told me that he had a rash on his nose after a bug bite once and he doesn't have Lyme.

I decided not to accept the fibromyalgia diagnosis without first looking for every other possible cause, including Lyme. The reason?

Fibromyalgia is a syndrome. That means it is a name given to a grouping of symptoms. It does not tell you what the cause is. It does not have any treatment, besides treating the symptoms.

It is the same as being told by the doctor "you have unexplained pain and a greater propensity to feel pain, and probably also have one or more of the following symptoms: fatigue, irritable bowel, or depression."

I noticed the rash because it was on my neck. But what if it were in my middle back, or on my head? I would never have seen it...

--------------------
"When there is pain, there are no words." - Toni Morrison

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yourtroubl
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I started with just pain in one finger....I thought I hurt it and had it xrayed...

I then started having worse sleep problems. Went to sleep clinic..No apnea.

My hands started really hurting...

I got numerous sinus infections (I thought)

I got so tired I could not go on shopping at Walmart one Day...

My shoulders and elbows started hurting..

I was tested for carpal tunnel.

I was tested for Lupus etc.

I was told I had fibromyalgia...Rheumy told me I had bursitus, tendonitis and did not know what was wrong with my hands.

I was put on steroids...sent me to hospital twice... I have gained about 65 pounds.

I had a stroke (tia) the neurologist tested me for everything....Western Blot came back positive CDC. The Health Department started calling.

Infectious Disease said I did not look like I had Lyme...I had Fibroymyalgia...

I have greatly improved with 6 months of anitibiotics...now in iv.

Please have a test.

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AlisonP
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It was a car accident that set off my symptoms. It finally got so bad I couldn't work.

I was told by at least 2 doctors that I had "fibromyalgia" and would just have to live with it.

I've never been bitten by a tick that I know of, and never had an EM rash.

And yet, I tested CDC positive for Lyme.

And two years into treatment for Lyme, I am feeling better.

--------------------
 -

The obscure we see eventually. The completely obvious, it seems, takes longer. --- Edward R. Murrow

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Lymetoo
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My story is listed below in my signature. I was diagnosed with FM about 25 yrs ago. I've been ill most of my life. I had hundreds of tick bites during my childhood.

Finally dxd with Lyme disease and babesia in Aug '00 and am now doing well after 4 yrs of antibiotics.

I hope she will get tested through Igenex Lab in CA!!!

--------------------
--Lymetutu--
Opinions, not medical advice!

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5dana8
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Hi gardenlymer

here's my short story:

The very reason I have been sick with lyme for the past 21 years is because the first 7 years they kept telling me I had both CDFIDS & fibro.

I suffered horribly for those years but finally got my lyme diagnosis 7 years later & went threw my first IV in 94. I stayed on oral abx and was in 80% remmission for 9 wonderful years

till aprox 3/4 years ago I had a relaspe or reinfection, for which I am alot better after these years of antibitotic treatment for lyme again & also treatment for the co-infection babs.

I dearly hope your friend will at least listen to you. I know people who have been diagnosised with either CFIDS or fibro & seem really tied to their diagnosis & don't want to hear anything else. It's heart breaking to say, but all you can do is present the facts & then in the end it's really up to them to decide.

I hope this helps in some way & your friend can find the help she or he needs [group hug]
Dana

ps: here's a link to the basics. Maybe you could print this out & send to your friend?

http://www.lymepa.org/Basics_4th_ed_html.htm

here's one more link that might help:

http://flash.lymenet.org/ubb/Forum1/HTML/008359.html

--------------------
5dana8

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hurtingramma
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I was diagnosed with FM quite a few years ago. My first symptom was numbness in my left arm. They did heart studies. Then it progressed down to my left leg, then foot, then the right foot.

Also, during this time I was having horrendous headaches (still do), dizzyness, fatigue, and I can't remember what else.

They did all the tests for MS, sent me to a headache clinic that just kept trying different medications then gave up.

The neuro sent me to a rheumatologist, who, within minutes, diagnosed me with FM.

It wasn't until about 2 years later that I was diagnosed with Lyme. After my daughter had been diagnosed with Lyme and noticed our symptoms were very similar, she recommended I see her LLMD. Thank God I did.

I have been slowly making improvement, especially on the cognitive symptoms. I used to have someone check everything I did at work because I knew I was making mistakes. When I'm on my meds, the numbness/tingling goes away. Occasionally I have to stop (I get rashes) and the stuff comes back again.

BTW - my husband also has Lyme, as does my grandson who probably got it in vitro.

--------------------
"Few of us can do great things, but all of us can do small things with great love". Mother Theresa

http://www.facebook.com/profile.php?id=1629665573&ref=name

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GardenLymer
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Thank you so much barksplitter, Robin123, Aniek, yourtroubl, AlisonP, LymeToo, 5Dana8,& hurtinggramma!

Please, keep them coming!

I want Christopher to realize that this is not an uncommon thing, and there might be great hope for his Mom!

I know her to see her, but not well enough to go up to her & try to expain all I know.

But I do know, thur him, that he thinks she needs help at this point. My husband does fire & rescue & was at the accidents & overheard him say at the scene..."someone'e got to do something"...I'm trying baby - it's just probably not the someone, or the something you were thinking of, LOL (God works in mysterious ways, huh?)

Oh, and thanks for the link, Robin123 - he'll get it, as I'm going to send the entire thread to him.

(((hug)))

Anyone else?

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Lymetoo
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Lyme Disease Symptoms List
1. Unexplained fevers, sweats, chills, or flushing
2. Unexplained weight change--loss or gain
3. Fatigue, tiredness, poor stamina
4. Unexplained hair loss
5. Swollen glands: list areas____
6. Sore throat
7. Testicular pain/pelvic pain
8. Unexplained menstrual irregularity
9. Unexplained milk production: breast pain
10.Irritable bladder or bladder dysfunction
11.Sexual dysfunction or loss of libido
12.Upset stomach
13.Change in bowel function-constipation, diarrhea
14.Chest pain or rib soreness
15.Shortness of breath, cough
16.Heart palpitations, pulse skips, heart block
17.Any history of a heart murmur or valve prolapse?
18.Joint pain or swelling: list joints_____________
19.Stiffness of the joints, neck, or back
20.Muscle pain or cramps
21.Twitching of the face or other muscles
22.Headache
23.Neck creeks and cracks, neck stiffness, neck pain
24.Tingling, numbness, burning or stabbing sensations, shooting pains
25.Facial paralysis (Bell's Palsy)
26.Eyes/Vision: double, blurry, increased floaters, light sensitivity
27.Ears/Hearing: buzzing, ringing, ear pain, sound sensitivity
28.lncreased motion sickness, vertigo, poor balance
29.Lightheadedness, wooziness
30.Tremor
31.Confusion, difficulty in thinking
32.Diffculty with concentration, reading
33.Forgetfuiness, poor short term memory
34.Disorientation: getting lost, going to wrong places
35.Difficulty with speech or writing
36.Mood swings, irritability, depression
37.Disturbed sleep-too much, too little, early awakening
38.Exaggerated symptoms or worse hangover from alcohol

--------------------
--Lymetutu--
Opinions, not medical advice!

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timaca
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My story is backwards from what you want. But, worth looking at.

I was diagnosed with lyme at Columbia Univ. Medical Center(after being very ill for a year and a half).

I believe that was a correct diagnosis. I improved on antibiotics a lot, but didn't get well.

Recently I was diagnosed at Stanford Medical Center with CFS and chronic viral infections. It looks like that is an accurate diagnosis too.

The symptoms for both illnesses are the same.

So, check out both lyme, and viral illnesses (see www.hhv-6foundation.org)

Timaca

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w0tm
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Ditto! When this nightmare for me began six years ago, I was "diagnosed" by a "famous rheumatologist" as having "fibromyalgia with CFS tendencies". The diagnosis was asking me ten questions then testing for the "17 points of FM pain". EVERYTHING hurts when you have Lyme and many other diseases! It took him about four minutes! He then proudly told me had "diagnosed" more people as having FM than any other doctor in the Midwest. He even had my disability letter for Social Security typed out before my appointment!

He was NOT happy I did not accept his diagnosis. The medical community and insurance companies love "fibromyalgia" as an "illness" since no lab test exists for it. It's just a "fibromyalgia trained" doctor saying "you have it". It clears out the waiting rooms of overworked doctors of chronically ill patients and stops running up insurance costs.

My LLMD doctor is convinced FM and CFS are the same thing and are both usually HHV-6 (herpes six). HHV-6 CAN be tested for! In a recent study of a group of 200 people with FM, 198 tested positive for HHV-6. Of a group of 200 "healthy" people only two tested positive for HHV-6. There are many ways to treat HHV-6. "Transfer factor" seems to be the most common. See www.immunitytoday.com IC64 (I think) cured me of HHV-6.

After being misdiagnosed with FM/CFS, I was then "diagnosed" with everything from MS to leukemia. Further testing always proved them wrong. It took years but I finally stumbled onto an LLMD who sent my blood samples to IGeneX and I had Lyme.

I'm now on an IV after wasting ten years seeing doctors who ranged from sympathetic and caring to down right rude calling me a hypochondriac and "selfish" for taking up his valuable time "when I could be treating people who are really sick".

Until I ever see a lab test (like a test tube or squiggles under a microscope), I believe FM and CFS do not exist. They are made up terms given to people who have a wide range of symptoms. They each really are sick from Lyme, HHV-6, MS or any of a hundred other ISD's. But correctly diagnosing immune system disorders is still in the Dark Ages!

The term fibromyalgia was thought up by a doctor giving a paper in (about) 1989 believing "The Yuppie Flu" needed a medical sounding name. To me, it is 100% bogus. BUT "treatment" of the symptoms of fibromyalgia/CFS has grown into a multi-billion dollar industry. Yes, some products and treatments do help but they are really treating the symptoms of Lyme, HHV-6 or some other ISD. You just have to keep looking until you get a correct diagnosis. It shouldn't be that way but it is.

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Robin123
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Every medical specialty makes tremendous money off of us -- you can treat a syndrome forever and never get it right what's really wrong. I was at a rehab hospital for a month once -- I understand that month cost my insurance 40K. I didn't get better but I sure enjoyed the art therapy program!!
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kelmo
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To Christopher.

I don't know how old you are, but my daughter started getting sick around 14, it progressed despite numerous "specialists" treatments. These specialists all gave her their special diagnosis.

How could one person have so many things go wrong?

She was finally given the diagnosis of fibromyalgia

No tick bite.

She is improving on antibiotics. I will never accept the death sentence of living with fibromyalgia.

Get to a lyme doctor and get bloodwork done.

Kelly

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IMHisda
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I was diagnosed with Fibromyalgia/Chronic Fatigue Syndrome then went undiagnosed for Lyme for 12 years. Since getting treated for Lyme my memory and energy has increased and I'm on the right medications for all the pain,etc. stopping it in it's tracks as much as possible. HBOT really helped too but most important is an LLMD. There are actually some days without any pain (if I'm out in the sun and not sweating profusely from the Babesia).

--------------------
RV

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GardenLymer
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UP for the weekenders...Then I will forward to Christopher on Mon.

Thanks again everyone!

Lymetoo - thanks for adding Dr B's symptom list! My puter skills are, well, let's just say the ave 1st grader can do more on here than I can. Copy & paste is sadly still paper & glue for me [Razz]

If there are more of u out there, please add to the thread.

Trying to plant a seed here (or) lead a horse to water, and see if grows (or) drinks.

Hope you are all having a wonderful weekend!

(((hug)))

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Lymetoo
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You're welcome! How about this?

When to Suspect Lyme Disease
http://tinyurl.com/lx2pz

It's Lyme Time You Knew
http://flash.lymenet.org/ubb/Forum1/HTML/008359.html

More info:
http://www.ILADS.org/

Wild Condor's Links and information:
http://www.wildcondor.com/lymelinks.html

--------------------
--Lymetutu--
Opinions, not medical advice!

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A J
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For another example of what a bad diagnosis FM is here's the story of an extended family member who before being diagnosed with fibro was supposed to have its predecessor non-arthritic rumatisum (Latin for pain that's not from arthritis). When you know what the words mean it's hard to believe anyone would be satisfies with such a vague diagnoses, but many were until insurance companies quit paying for it then all the sudden all his patients & I'm sure many others all had fibro. She has lived for decades with dehabilitating pain & an incredible array of other diagnoses which are supposedly unrelated including carpel tunnel, irritable bowel & migraines. We can't convince her that all these things could be related or to go to other doctors for another opinion.


I've had doctors trying to push the fibro dx on me for 5 years (though I've been in pain a lot longer). Some of them were well intentioned, but uniformed & others were either to arrogant to admit they didn't know or interested in building a base of patients who have to pay for a visit every month to get more pain killers. Even the smartest & best intentioned MD I've had didn't think to test my C reactive protein even though he knew how much celebrex & other anti-inflammatory drugs did for my pain. Even though he thought of things like adrenal function that no one had cheeked he was still only treating symptoms. I haven't started treatment for Lyme yet & don't know how it will turn out, but already the llmd has found Lyme, co-infections (like HHV-6), thickened blood (depriving my muscles of o2 & energy), high C reactive protein (causing inflammation) & Creatine kinase (proof of muscle damage) Which means she found more reasons for me to have total body pain in 1 month that anyone else had in 5 years. So it was definitely worth seeing her even if in the end all my pain isn't caused by lyme.

[ 30. September 2007, 05:11 PM: Message edited by: A J ]

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Lymetoo
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quote:
Originally posted by A J:
Which means she found more reasons for me to have total body pain in 1 month that anyone else had in 5 years.

LLMD's are much more thorough, if you ask me!

and about the fibromyalgia. Fibromyalgia means "painful muscles" ... Since I was dxd with it about 25-27 yrs ago, they have added all kinds of symptoms to the list of "Fibromyalgia."

Where did they get all these extra symptoms if FM means painful muscles??

--------------------
--Lymetutu--
Opinions, not medical advice!

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elle108
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My duaghter was bitten by a tick at 7. Her pediatrician documented the tick bite and saw the tick. Two months later, she became ill and has been ill ever since with a horrifying array og changing symptoms, but mostly experiencing exhaustion, concentrration problems and frequent infections.

AFter making the round of rheumatologists, immunologists, ID docs, allergists...her PMD ran a WB and it came out CDC positive of Lyme.

The specialist he sent us to ignored the WB results and promounced her to have Fibromyalgia. He told her to excercise and take AMbien to regulate hert sleep.

The whole thing sounded so bugus! With her history of a tick bite, years of symptoms and pain not even being all that prominent in her presentation, Fibro just didnt make sense!

She is now 18 and has been under the care of a LLMD since June. I can say this. Now, ehrn she wakes up in the morning, she is actually awake...
Antibiotics of Bb and Babesia accomplished this...not Ambien (which caused her to sleep round the closck)..

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GardenLymer
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Thanks everyone for your posts! Onward to Christopher now...Just so you know hon, LLMD stands for Lyme Literate Medical Dr. ; CDC is Center for Disease Control; ID Dr is Infectious Disease Dr (ID's are not usually Lyme friendly, but they LOVE to handout Fibro diagnosis)...
Any other questions - you know where to find me.
(((hug))) ~Cindy~

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lymeHerx001
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My experience was difficult.


If I knew that I had Lyme, I would have kept on the Cats Claw that I took on a hunch years ago.

Im screwed now with all this yeast in my gut, mycoplasma and God knows what else.

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EWT1638
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I was told I had fibro around 1999 (after many years of symptoms) ,and I had most of the 'symptoms'. But over the years of taking Klonipin, and being told to "live with it..." I slowly started having some, what I thought were strange, unrelated problems.

Anxiety attacks, major sleep disturbances, nightmares, fatigue, traveling and unexplained pain, sudden and extreme weakness, difficulty concentrating and eventually BRAIN FOG (couldn't understand easy problem solving, reading became a real challenge, couldn't spell worth beans!).

I had to stop home-schooling, and I still can't help my child with 6th grade math! BTW, I graduated with honors from a very good college, so this was NEW and disturbing for me.

I was told I had Chronic Fatigue Syndrome this past January. I initially came up negative on Western blot (by my general physician, who does not believe in Chronic Lyme), but two-three months later popped IgG positive, an indication of Chronic Lyme, through an llmd.

The thing to keep in mind is that Fibro and CFS, are "syndromes". Which is a name for a bunch of symptoms a lot of people have, without an explanation as to why.

Lyme Disease is concrete, but difficult to diagnose. It is often diagnosed clinically (through a long list of symptoms).

I used to think people were nuts (half my friends!), 'seeing Lyme behind every rock.' Turns out, they were the smart ones, not the doubting one I had been.

Get test by a LLMD who uses IGenX labs. Write down every little "weird" (read unexplainable) symptom. Do it now.

--------------------
When you reach your "wits-end" remember this: "Peace I leave with you, my peace I give you. I do not give as the world gives. Do not let your hearts be troubled and do not be afraid." John 14:27

Posts: 397 | From Loudoun County Virginia | Registered: Mar 2007  |  IP: Logged | Report this post to a Moderator
ladycakes
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The very first thing I was diagnosed with was Fibromyalgia, in 2001. I didn't have it too badly, a bit of join pain and some wicked fatigue. But it kept getting worse and worse.

For the first few years it was a gradual thing. I went to a few doctors for things that I thought were unrelated. Nothing really ever resolved, but it wasn't bad enough that I really pursued it.

I couldn't play sports anymore - by 2006 I could barely manage going to class. I'd wake up at 11 or sometimes noon, then I'd have to take a nap at about 3:00, sleep until I left for class at 5:30. In bed by 11, rinse and repeat.

I went to a new rheumatologist, and was diagnosed with fibro again (I didn't tell him I'd already been dx'ed with it). I figured well, I guess they're right then.

I took the antidepressants, I did the excercises, and I got worse so quickly after that. I can't believe how much worse I felt this August as compared to last year. I was having weird symptoms, and he thought maybe MS.

So I went to a neurologist. He diagnosed me with Chronic Fatigue Syndrome. I saw an opthamologist for my eye problems. I went to a pain clinic. They gave me a psych consult.

Finally, just last Tuesday, I was diagnosed with chronic Lyme by an LLMD. Something that could have been easily treated, had I known to pursue another diagnosis, is now going to be a very, very long haul.

It can't hurt to get tested for other illnesses. It can't hurt to see a specialist.
It can't hurt to get a second opinion.
But it can hurt not to.

Posts: 306 | From Brownsville, PA | Registered: Jul 2007  |  IP: Logged | Report this post to a Moderator
Lymetoo
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quote:
Originally posted by ladycakes:
It can't hurt to get tested for other illnesses. It can't hurt to see a specialist.
It can't hurt to get a second opinion.
But it can hurt not to.

Well said, ladycakes! I'm sorry things didn't turn out better for you, but at least NOW you can get treated.

--------------------
--Lymetutu--
Opinions, not medical advice!

Posts: 96239 | From Texas | Registered: Feb 2001  |  IP: Logged | Report this post to a Moderator
Greatcod
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I got bit in 1985, showed up at the doc's a week later with oval rashes on my chest, and was told that they were heat rashes, and told a year later that I had Chronic Fatigue Symdrome with Fibromyalgia. It got to the point where I ended up on disability. 10 years later I got diagnosed with Lyme, and began ABX. I improved a great deal, but seem to continually relapse.
I think its very important to understand the Bulleye's rash and swollen knees description of Lyme onset, which doctors used to diagnose Lyme, is extremly inaccurate. It accounts for less than 10% of the cases. Rheumatologists especially misdiagnose Lyme, and call it Fibro.

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CaliforniaLyme
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I got bitten two weeks before my brothers wedding 10 years back. I got an ECM rash at one of the 3 bite sites and became symptomatic and developed my first acronym, IBS, and tested positive for Lyme & HME and was diagnsoed Lyme & HME and treated for 30 days. IBS gone. 104 fevers gone. HME gone.

Then diagnosed post Lyme syndrome.
And I was allowed to worsen for a whole year without treatment because those doctors didn't believe in treating Lyme longer than 30 days (idiots)
Then I accumulated acronyms-

MANY of them MCS CFS RLS MCS

and FMS FIBROMYALGIA

and it SUCKED being in pain 24 hours a day 7 days a week and then I got progressive neurological symptoms and developed chorea and encephalopathy and got put on IV Rocephin andi n month 9 the fibromyalgia disappeared.

I have not had firbomyalgia for 7+ years now.
It is very NICE
not to be in pain.

I can be present where I am.
It's lovely really.

Sincerely,
Sarah

--------------------
There is no wealth but life.
-John Ruskin

All truth goes through 3 stages: first it is ridiculed: then it is violently opposed: finally it is accepted as self evident. - Schopenhauer

Posts: 5639 | From Aptos CA USA | Registered: Apr 2005  |  IP: Logged | Report this post to a Moderator
Kerryblue
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Yes, 1st DX/M.S then few others even cancer with Lymph Node involvement. Forgot all DX.

Then FM for yrs. I still have just do not believe that is correct word, never did.
FM/ is neuroendocrine immune prob. also, prob. 1 of many Lyme co-infect.. Still more coming out on that topic.

If you would told me FM trash Can phrase. I would have gotten upset because knew was truly ill. Took long time to accept that, the person I new died & knew 1 did not care for at time emerged.

Bowen labs, started out treating FM, with Bowen testing FMers dx pts. only. Later Dr. W never had a FMer not have Lyme. I believe was their when she got her special fluoroscope, saw & found mutation with no host, & constant change shape to hide out.

I handed many letters to fam. out. They still do not get it, gave up on that. [bonk]
Now Lyme being in news so much still have doubting folks as in other post.

I helped with FM groups,in FM research, & FM,& Pain clinic.

Will tell you what most pts. had in common did my own research on 100`s.
They all knew as child, leg pains other things unexplained, not truly ill though. Except for way too many sore throats.

FM is sooo painful & just become so tired & ill.
Real just WRONG name or ID.

Huggssss, to all in Need [group hug]

Posts: 746 | From Clearwater/fl/Pinellas | Registered: Jun 2003  |  IP: Logged | Report this post to a Moderator
   

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