posted
After 13 months, my LLMD feels I'm ready to wean off abx. I have a few lingering sx-but we feel they may be side effects of the meds. If the sx come back stronger, back on I go.
For those who went off abx-did you still have symptoms-I feel much better now-but I'm kind of scared.
The plan is to spend a month getting my stomach back in order, detoxing, the re-eval.
Posts: 561 | From eastcoast | Registered: Aug 2006
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lymeinhell
Frequent Contributor (1K+ posts)
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posted
Instead of just stopping cold turkey, why not taper off very very gradually, giving your body time to adjust? Or add in some Cat's Claw to keep up the fight?
Just a thought, as this is what my LLMD did with me after 6 mos of abx - it took another 3 months to fully wean off. And no relapse - almost 3 yrs now. This is not medical advice - just what worked for me.
I still had symptoms,some Lyme related, but a majority yeast related (my blood sugar was all out of whack, and I would often feel drunk after eating). And yes, I was very scared... but took the time to address the other issues and restore my mineral levels along with detoxing.
-------------------- Julie _ _ ___ _ _ lymeinhell
Blessed are those who expect nothing, for they shall not be disappointed. Posts: 2258 | From a better place than I was 11 yrs ago | Registered: Sep 2003
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Did you take a sequence of metronidazole or tinidazole to nail the "cystic forms" that lyme forms to resist treatment? (see Burrascano, Lyme Treatment Guidelines)?
Other than that, there was nothing special; my body was very glad not to have all those abx coming in! Be sure to take acidophilus, or eat yoghurt at first, though. Yarrow tea may be helpful to heal damage to the GI tract, too. And be sure to get optimal nutrition. Especially if you're vegetarian, B supplements are probably a good idea. Garlic is always good.
DaveS
Posts: 4567 | From ithaca, NY, usa | Registered: Nov 2000
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lymeinhell
Frequent Contributor (1K+ posts)
Member # 4622
posted
Diflucan, Oil of Oregano, clove oil topically, tons of acidophillus, and continue to watch my diet. I still take Theralac daily.
Getting your body back in 'whack' takes a long time, but easier to do once your body is able to keep down the germ load.
I'm on an exhaustive regimen of vitamins, and give myself weekly IM magnesium shots. I detox using foot patches (did them every day while on abx), rebounding, body wraps and FIR Infrared sauna. Let me tell you, PU stinky I was indeed!!
Best of luck to you.
-------------------- Julie _ _ ___ _ _ lymeinhell
Blessed are those who expect nothing, for they shall not be disappointed. Posts: 2258 | From a better place than I was 11 yrs ago | Registered: Sep 2003
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5dana8
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posted
hi Shoney
I had to stop all abx a year & 1/2 ago. I am doing rife and am stable for now. Not much back sliding so I think the rife & supps are holding me for now.
It took several months to clear the herx (toxins) from years of treatment on abx. I am one of those people who don't eliminate toxins very well.
I was really scared too. I had not been off abx for 12 years so I was concerned to say the least.I am shocked that I am doing as well as I am now. In the last 12 years I have not been off abx for this long without a major relaspe. So I consider this huge progress.
Not sure I would feel totally comfortable going off all my supportive thereapys. Like garlic, olive leaf, monolaurin & pau D Arco tea ect... Lately specially the garlic.
I am now on diflucan to mop up the yeast problem am left with fightening. Yeast can sometimes make you feel as sick as some lyme symptoms.
Ditto...the other posters make sure your diet is good with no sugars and very little starch ~ it's really important. And also ditto on what lymeinhell said too~ detox as much as possible. And tank up on your probiotics
At least he said you can get back on them if your symptoms come back too strong.
Good luck and wishing you all the best Dana
-------------------- 5dana8 Posts: 4432 | From some where over the rainbow | Registered: Sep 2005
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posted
Bryan Rosner's two books have great advice for weaning off antibiotics and transitional traetmnts that help, I am using a rife machine and a few of the herbs he recommends. http://www.lymebook.com/top10book .
Portland
Posts: 31 | From Portland OR | Registered: May 2007
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valymemom
Frequent Contributor (1K+ posts)
Member # 7076
posted
I was fortunate, shoney, to be symptom-free for two months while on abx......so then I went off.
I ditto the advice of looking for some supportive herbs and supplements.
Because I did treat for bartonella, I went on the resveratrol that Stephen Buhner recommends and I also samento. I take other supplements - defintely probiotics - Omegas and niacin - chorella or pectin and a good multi vitamin.
I have actually been trying to use up what we have at home from years of three with lyme.
I wrote in another post that I have not been on resveratrol for two months and my brain fog/spelling/short term memory problems are off the charts!!!!!
So I am calling for resveratrol today.
Posts: 1240 | From Centreville,VA | Registered: Mar 2005
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posted
A number of people on this thread have posted they have been abx-free for several years. That is truly awesome - I hope to be there one day.
How can you tell, for example, if you're getting a flu it's just a simple flu? Or if something is achey, that it is not the start of a relapse?
Also, do you guys periodically have bloodwork done to make sure everything is fine? Like monitoring CD-57 levels, etc?
Probably the longer you are in remission, the less likely that you will relapse. Unless, of course you get bitten again.
Posts: 29 | From NY | Registered: Sep 2007
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lymeinhell
Frequent Contributor (1K+ posts)
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posted
I think the knee jerk 'oh my gosh, I have the sniffles, I must be relapsing' thing hangs on for quite a while. Any new thing (that could really be JUST a cold, flu, etc) and you instantly think relapse.
When do you get over over-reacting? Maybe after the first real cold or flu and you realize that's all it was - just a cold.
I think I might have posted that same title sometime last year when I got 'just a cold'.
My LLMD continues to run CBC's when I go. I now go every 6 mos (up from every three months).
We gave up on the CD57 2 years ago. I felt great, but was still a 1/19. An immunologist agreed with my LLMD - it's such a small part of the entire picture, that's in and of itself, it's not necessarily meaningful.
So, in my case - IF IT AIN'T BROKE, don't fix it.
-------------------- Julie _ _ ___ _ _ lymeinhell
Blessed are those who expect nothing, for they shall not be disappointed. Posts: 2258 | From a better place than I was 11 yrs ago | Registered: Sep 2003
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quote:Originally posted by blossom: Also, do you guys periodically have bloodwork done to make sure everything is fine? Like monitoring CD-57 levels, etc?
Probably the longer you are in remission, the less likely that you will relapse. Unless, of course you get bitten again.
Yes; It all depends. One common "relapse" indeed involves a new infection- there are still lots of hungry ticks out there. There were deer in my compost pile (luckily not eating my garden) this morning.)
As for monitoring, the monitoring is deficient, anyway, so I will just keep watching for ticks, rashes, and suspicious symptoms. Now I know what to do and what to watch for.
When I was sick I always, uh, ...'tested'... negative. Now I wouldn't be surprise if I ...'test'... positive!
DaveS
Posts: 4567 | From ithaca, NY, usa | Registered: Nov 2000
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Lymeinhell[/B] -so, you are in remission? Great!. Funny you should mention feeling drunk after eating-I feel "spacey" after I eat sometimes-is that a yeast sx? How did you address it-I take an anti-yeast herbal, and garlic-I can't take diflucan-too much on my liver.
5dana8-after you stopped abx-did you still feel like you were herxing? I still do-I wondered if it was toxins. How do you know a lyme herx, from a toxin herx?
Thanks
Posts: 561 | From eastcoast | Registered: Aug 2006
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