posted
Does anyone else have such bad structural problems that their ribs jam up like they were just slammed into the boards during a game of hockey? Or how about ligaments in the sacrum area that snap and pull their whole spine out of alignment? Does anyone else here need to see a chiropractor every few days just to stay functioning?
I am currently being treated for mold and viruses as well as bacterial infections. The only thing that has helped my structural problems was chelation therapy and it was temporary (although dramatic)and lasted about 1 month.
I can't say that I have met anyone with lyme disease that has these sypmtoms to the degree that I do.
thanks,
Diana
Posts: 202 | From vancouver, canada | Registered: Jun 2005
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trueblue
Frequent Contributor (1K+ posts)
Member # 7348
posted
Yes, stuff just slips out with no warning.
One of my early freaked out warning signs that something was really wrong was my shoulder slipping out of place in a movie. I couldn't get up to try to pop it back in. It was and continues to be a big mess.
Ribs go out as they darn well please (amongst other things).
My connective tissue seems to have forgotten how to hold my skeleton together. I've just started seeing an Ostoepath hoping to get this better under control. So far, the manipulations are gentler than my really rough chiro. I'm hoping that and trigger point injections might help correct this problem.
Even the chiro has a hard time with me because even though I am so tight I am still hypermobile, pffft...
I'm sorry it happens to you, too. <- gentle hug
-------------------- more light, more love more truth and more innovation Posts: 3783 | From somewhere other than here | Registered: May 2005
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posted
Yup, big time ribs issue. SI joint, sacrum, thoracic area -- I keep the chiropractor in business without a doubt. The better I am, the less of this I have going. This too shall pass.
Posts: 689 | From western MA (we say buttER and pizzA) | Registered: Nov 2004
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Truthfinder
Frequent Contributor (1K+ posts)
Member # 8512
posted
Yes, what you guys are describing is exactly what I've been dealing with since the early 90s.
I just don't know if this is a TBD-related issue or not since I don't hear it discussed.
Does everyone get the costochondritis thing going on a lot, too, because of the hypermobility of the ribs?
My spine (including ribs) is definitely my most debilitating, confusing, and frustrating problem.
Tracy
-------------------- Tracy .... Prayers for the Lyme Community - every day at 6 p.m. Pacific Time and 9 p.m. Eastern Time � just take a few moments to say a prayer wherever you are�. Posts: 2966 | From Colorado | Registered: Dec 2005
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groovy2
Frequent Contributor (1K+ posts)
Member # 6304
posted
Hi All
Daina- I had -Back -Rib -hand -elbow - everywhere I could hurt type problems like you discribe--
Hurt like a *#@&*@!!##&**
Lyme caused some of this pain --
But Babs Caused the Most of these symptoms for me -
Once I treated the Babs ALSO-
It did take awhile - about 3 months or so to start feeling a differance -
My pain is 95%- Gone - 2 yrs Babs treatment
With constant treatment- I now have Easy and Pain free movement --
I also think it Good to take Glucosimine Sulfate (GS) to repair damage Babs-Lyme does to my joints--
I am sure I would be in a wheel chair now-
But I took GS before I was DXed with lyme and babs- and I am 100% Sure It- Saved My Joints -
It has helped EveryOne I personally know that Takes GS -Lot of people -
Costs about $12 a month - Worth Every Penny --Jay--
Posts: 2999 | From Austin tx USA | Registered: Oct 2004
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posted
Yeah -- this describes my daily life. I am a chiropractor's dream...and nightmare. I went from starting to go to them once a month, to finally, everyday. Everyone thought that was crazy. Can you believe that not one -- not one -- chiropractor knew about Lyme! So I backed off the everyday care, 'cause it seemed crazy, even tho I could have started going twice a day! I backed off in my activities so as to protect my body more.
Well, to maybe help explain that one, the national Chiropractic Wellness magazine had an article on fibromyalgia last spring. And, wouldn't you know it -- they said it's of unknown cause.
Well, I picked up the phone and talked to the editorial staff at length about my fibromyalgia really being Lyme disease and that maybe they should run an article about that possibility. I never heard back from them.
Am still thinking it might be a good idea for them to hear from Lyme patients, because I certainly stumped all the chiropractors. And if the chiros aren't being told, that's why.
They won't lose our business if we know about Lyme, as I think we'll still need the help. So they should at least get educated about the disease, 'cause some of their patients are going to have it.
So yes, to ribs, spine, vertebrae, sacrum, joint extremities -- I find that we have to work with chiros who are kind to us, because we're not the usual quick and cured patient.
Finding out I had Lyme last year solved the mystery of why I couldn't get well with chiropractic care. However, I also can't live without it.
So it means being as careful as possible not to physically stress the body. Yes, I let others open heavy doors for me, etc.
Jay, if you get back on here, am curious how much glucosamine you take daily. Nice to hear something's working for this problem. And, no babs here, just Lyme.
Posts: 13116 | From San Francisco | Registered: May 2006
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Jellybelly
Frequent Contributor (1K+ posts)
Member # 7142
posted
Big problem here. I have had standing appointments at both my chiropractor and physical therpaist for years.
All of my major joints just either fall out of place or are pulled out of place. I also have or had what they called and it looked like scoliosis. Odd thing is that with treatment and regaining much of my health my scoliosis has straightened out. Chiro says that isn't normal. Very odd.
My physical therapist was always asking what did you do to get your body in this bad of shape in 5 days, when I did nothing.
But, again since having gained a more normal health pattern again, I went for literally 6-7 years without ever seeing her. Just had to see her recently, well in the last year though a few times.
I also have some hyperextendable joints in some places and other areas are stiff as a board. I need to stretch a lot.
Posts: 1251 | From california | Registered: Apr 2005
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Truthfinder
Frequent Contributor (1K+ posts)
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posted
The chiropractor I saw for years was responsible for my ability to continue working as long as I did. But I just continued to become more inflexible, less tolerant of the adjustments, unable to lie on my stomach because my ribs were so volatile, and finally unable to respond well at all since the adjustment created more problems than the original misalignments.
He told me that he has a very few patients that are a complete mystery to him, and I am one of them. I had a friend tell him much later that I probably had undiagnosed Lyme Disease, and she reported that he had said ``Aha! That might explain a lot of things.....''
My hope, of course, is that he will remember that when dealing with his other `mystery' patients and do his own research (and he was very knowledgeable about so many health issues). After all, I live here in a climate of ``no Lyme here'' so progress is slow in the information network.
Glucosamine, chondroitin (sp), MSM - all constipating and perhaps it takes a long time to feel any difference, but I never felt any change.
My theory is that the ligaments themselves are lax, and the surrounding muscles try to compensate by becoming too tight (hypertonic).
Interesting info about the Babs..... guess I should maybe try to get a different test for that. I tested negative at Bowen. and maybe Bart, too.
I guess Igenex is the place to go for Babs and Bart testing?
Tracy
-------------------- Tracy .... Prayers for the Lyme Community - every day at 6 p.m. Pacific Time and 9 p.m. Eastern Time � just take a few moments to say a prayer wherever you are�. Posts: 2966 | From Colorado | Registered: Dec 2005
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Jellybelly
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posted
Tracy, I kind of agree. I have felt like my ligamnets just couldn't keep me together so my muscles spasmed up to keep me from falling apart, literally.
Posts: 1251 | From california | Registered: Apr 2005
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posted
Thank you everyone for your replies. I don't feel so alone with this. I simply can not function without an adjustment when my spinal joints all jam up. It is so incredibly painful, I will go anywhere, pay anything.. I hate being so desperate and I dread long weekends..
Diana
Posts: 202 | From vancouver, canada | Registered: Jun 2005
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In talking to the pharmacist about glucosamine Chondroitin - He said that I should take it for at least a month - maybe two...
then stop taking it...and then you will know if it is working or not. I tried this and it has helped me a little bit so far -
Not 100%, but I have only been taking it for about 4 months. It takes a little while to get it built up in your system.
My sister is an RN - and she said (LOL) You didn't get this way overnight - the drug is not going to make it better overnight
I guess it is suppose to build up the joint tissue that is lost due to aging, everyday wear and tear, and of course - LD.
But really, I do feel better, I take 1500mg per day every day.
-------------------- Those who say it can't be done, should get out of the way of those who are doing it! Posts: 34 | From South Dakota | Registered: Sep 2007
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posted
Amazing to be reading a column like this one -- describes my everyday life. I have to think about everything I do, in terms of will it knock me out physically, and will the chiro be available, if needed.
Truth, did you contact your chiropractor after being diagnosed with Lyme? If you haven't, I think it's a good idea, in terms of the further educating of our medical professionals. I have been contacting all the people I saw when I was a medical mystery to let them know.
Posts: 13116 | From San Francisco | Registered: May 2006
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Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
Absolutely.
I am just like one of those Slinky's with my tendons, ligaments, muscles and joints. Like a tornado went through my body and left me in a twisted pile of mess.
A NEURO chiropractor helps me most. Adjusts the eye/brain and neuro stuff... and the rib cage, etc.
This causes immense pain and is a pain because it needs fixing all the time.
Worst during and especially after a herx. Associated with chronic Babesia in MY mind.
posted
I wonder if pt (by pt I mean standard physical therapy- if you have insurance it might be 'covered'...)) might help? I think its more reliable than chiro. The glucosamine is a good idea. There's a supplement called 'nutrijoint' that helped me in the critical stage. When I 'graduated' to the chronic stage, I switched to 'nutrAjoint', which comes as a powder in a canister; you mix the powder in into juice or a 'smoothie'- it tastes pretty yucky- and drink it. It definitely helps, though. DaveS
Posts: 4567 | From ithaca, NY, usa | Registered: Nov 2000
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Truthfinder
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posted
Jelly, you mentioned spasm - oh, those are so awful. If I goof up and injure myself, then the spasms hit whenever I try to RELAX. My D.O. and chiro always tell me that the pain will stop if I relax - but just the opposite happens when I really `tweak' something or things get really fired up.
I had the dubious pleasure of spending time in the hospital with a pelvic fracture this summer, and the ER doc, the Ortho, the GP, and the nurses kept telling me that giving me valium would make me relax and all would be better...... not so. I spent 48 hours on valium and IV Demerol, going from spasm to spasm every time I would relax.
I think the docs and nurses were all shaking their heads at this (but I can't remember too much because of all the darn drugs.) And the idiot GP that ordered the Demoral gave me HALF the dosage that I asked for and knew I could handle from previous experience (and I promptly fired him the next time I saw him, BTW, and got somebody else who would listen to me.). But every doc, nurse, and my friends commented to me later about how much pain I was in......
Do others here go into this spasm thing when you RELAX after an injury or when things get really riled up?
Thanks for the info, Pam. Perhaps if I ever get my bowels to get more normal, I'll try the glucosamine again or the stuff Dave takes and see how I do.
Robin, I only left my chiro a message. I had hoped to run into him and tell him more, but found out he moved to another town but still has his practice here. You are right, though - I should make it a point to see what he knows and talk to him a bit more about this.
Diana, do you have Babesia?
Okay, so if this may be a Babs issue, again......
Is Igenex is the place to go for Babs and Bart testing?
(C'mon, you guys aren't going to make my poor fractured fanny do a search for this, are you?)
Sorry for everyone's plight here, but kind of glad I'm not too alone with this problem....
Tracy
-------------------- Tracy .... Prayers for the Lyme Community - every day at 6 p.m. Pacific Time and 9 p.m. Eastern Time � just take a few moments to say a prayer wherever you are�. Posts: 2966 | From Colorado | Registered: Dec 2005
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posted
My son Jordan (now 17) has very loose ligaments. The ligaments aren't able to support the muscles and he has a lot of pain.
Prolotherapy has helped him a lot. He's had 4 - 5 sessions and his pain is a lot less. Before prolotherapy, he would go to the chiro every week. Since the prolotherapy, he sees the chiro as needed which is usually every 6 weeks or so.
The down side of prolotherapy is it's not covered by our insurance and it's expensive.
-------------------- Peggy
~ ~ Hope is a powerful medicine. ~ ~ Posts: 2775 | From MN | Registered: Apr 2001
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trueblue
Frequent Contributor (1K+ posts)
Member # 7348
posted
What pab and Jelly said about the ligaments! *nods* Mine don't work right and are too loose so my muscles are always in spasm trying to hold me together.
When the spasms stop and everything loosens up then more stuff moves around. I am just starting with an Osteopath and trigger point injections. Hopefully this will help.
Chiropractic has helped all along. I go to the chiro to put stuff that's out back in, mostly, but have tried to do it less often feeling it was stretching my connective tissue out further and perhaps worsening the problem.
The osteopathic manipulation feels gentler than the chiro, so far. (My chiro is pretty rough). I've only been twice and the first time had no post adjustment reaction. I think balancing the cranial stuff helped. (Well, it took away my migraine, woo!)
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
pab, I'd like to hear how Jordan progresses with the prolotherapy. I'm glad to hear that's it's reduced his pain already. Yay!
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ps. sorry for writing a novel here.
-------------------- more light, more love more truth and more innovation Posts: 3783 | From somewhere other than here | Registered: May 2005
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