posted
Hi -- this is inspired by Diana's post on constant chiropractic care. The national Chiropractic Wellness magazine came out with an article last spring, around March 2007, I think, with Vol 7 Issue 4 stating in an article on fibromyalgia that the syndrome has no known cause.
So I called them, and spoke to a couple editors about my fibromyalgia of 25 years turning out to be Lyme disease. I suggested that they run an article about this possibility. No one got back to me.
I'm wondering if others of you who are chiropractic patients with fibromyalgia symptoms would be interested in contacting them about the issue.
Chiropractic Wellness and Fitness Magazine 910 Via Rodeo Dr, Placentia, CA 92870 1-800-640-1089 fx 714-996-2223 www.cwfmonline.com Editor-in chief: Donald Kase
Some article excerpts:
Fibromyalgia is a chronic widespread musculoskeletal pain and fatigue disorder for which there is no known cause. Fibromyalgia, in essence, means pain in the muscles, ligaments and tendons, the action and connective tissues of the body. In addition to pain and fatigue, other symptoms include unrefreshing sleep, irritable bowel syndrome, chronic headaches, morning stiffness, cognitive or memory impairment, reduced coordination and decreased endurance.
For those living with fibromyalgia, the search for the elusive "cure" can be a seemingly endless road. "You can't go to a doctor and ask for a fibromyalgia test," says Barbara from Boulder, Colorado, ex-executive secretary, and fibromyalgia sufferer of over ten years. "It just doesn't exist."
Rsearch reveals that FM affects approximately 10 million Americans...
In 1990, The American College of Rheumatology published the diagnostic criteria for fibromyalgia.
Ok -- this is me talking again -- yes, I got this diagnosis by a rheumatologist in the 80s...
Posts: 13171 | From San Francisco | Registered: May 2006
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posted
The first thing I was ever diagnosed with was fibromyalgia. Then chronic fatigue syndrome.
I just got diagnosed last week with Lyme. The doctor I went to said that he feels a lot of doctors diagnose fibro to get out of doing further work.
In my experience, I was diagnosed after a 5 minute office visit with both fibro and CFS. It's supposed to be a diagnosis of exclusion, instead it was like they diagnosed me with the first thing they could think of.
Posts: 306 | From Brownsville, PA | Registered: Jul 2007
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posted
I actually caught my Lyme early BECAUSE of my chiropractor insisting I get tested. (I had 3 deer tick attachments that summer and was asymptomatic - started developing problems while waiting for results; OK now) That was 2 years ago and my chiro is still getting new patients with fibro., ALS, "auto-immune syndrome" - that one from a Johns Hopkins dr., and they are Lyme patients. I'll send these people his contact info.
Posts: 21 | From PA | Registered: Nov 2005
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quote:Originally posted by Robin123: Rsearch reveals that FM affects approximately 10 million Americans...
When I was dxd with it around 1980, the count was approximately 2 million Americans! Hmmmm...an epidemic!
I'll try to write them a letter as well. My chiro keeps referring to my problems as FM, not Lyme even though I told him I have Lyme.
He doesn't get the chronic part....duh.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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Greatcod
Unregistered
posted
Chiropractors cannot treat the underlying cause of Lyme--so their perspective is influenced by their need to make money..yes, I know, I'm a cynic.
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map1131
Frequent Contributor (5K+ posts)
Member # 2022
posted
Chiro might not be able to "cure" lyme, but they can make a difference in how chronic ill patients feel day in and day out. I know, some chiro are not worthy or gougers. True. Same for some MDs.
Most chiro offices today offer much more than just body adjustments. Examples: body massage, supplements, homeopathic, muscle testing, relieve for somethings as headaches, neck pain, foot pain etc, etc. It's a supplemental non-medical approach for treatment of symptoms.
Pam
-------------------- "Never, never, never, never, never give up" Winston Churchill Posts: 6495 | From Louisville, Ky | Registered: Jan 2002
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Foggy
Frequent Contributor (1K+ posts)
Member # 1584
posted
I was diagnosed w/Fibro in Steere's office as I had a - test. After IV treatment I had multiple + w-blots.
So apparently I had post-Fibro syndrome... Posts: 2451 | From Lyme Central | Registered: Aug 2001
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lymeHerx001
Frequent Contributor (1K+ posts)
Member # 6215
posted
I have all those symptoms of fibromylagia.
I guess I dont have lyme disease anymore because of the recent study in the New England Journal of Medicine but I do have fibromyalgia.
So Im just gonna tell people now that I have fibromylagia and not Lyme.
Wow this seem like people will accept me better.
Posts: 2905 | From New England | Registered: Sep 2004
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3greatkids
Frequent Contributor (1K+ posts)
Member # 3838
posted
How about....
Lame Duck Syndrome
Syndrome......I hate that....let's get down to the underlying cause. Instead they mask it w/ new drugs.
I signed up for a clinical trial for Fibro study and was quickly denied.......they would not take me because of my Lyme history. But I go to a duck and he will give me drugs used for fibro patients??????
Posts: 1076 | Registered: Apr 2003
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quote:Originally posted by lymeHerx001: So Im just gonna tell people now that I have fibromylagia and not Lyme.
Wow this seem like people will accept me better.
You're right, they will!
When I was dxd with FM, it was rather "new". I didn't bother explaining my illness then either. No one could understand what I had, since they had never heard of it or didn't know anyone who had it.
posted
ladycakes -- simply telling people they have fibromyalgia is exactly what doctors are doing -- easy term to use, with no explanation. Started by rheumatologists in the 80s, after the fibrositis term.
bsanders -- I like your idea of having your chiropractor contact them. I recently heard of a local chiropractor who understands what's going on. Good idea - I'll contact him about this. And to any of you who have chiros who know about lyme, this sounds like a good plan, to ask them if they'd be willing to contact the magazine for an article generated by these chiros in the know.
Lymetoo -- thx for being willing to write a letter. Hm -- 2 million fibromites in 1980 -- just how many millions are we now?
greatcod -- yes, money interest. We're unending patients. But at the same time, I frustated chiropractors when I wasn't improving. It went against their training that they see patients three times a week, then twice, then once. And what was I doing? Going the wrong way on a one-way street, so to speak... So I think they would appreciate knowing. And us chronic ones will continue to go for chiropractic care.
map -- yes to all the various modalities. They make us more comfortable. But at the same time, none of those folks I saw understood what was going on either.
Foggy -- that's hysterical -- PFS -- post-fibromyalgia syndrome. That's what I have! I was wondering! Another acronym!
Lymeherx, they'll love ya as a fibro patient...
3greatkids -- yes, we'll get drugs for fibro, but not abx, lol. Now if we developed a good case of acne... Hm -- LDS -- Lame Duck Syndrome -- another good acronym. How about CDS -- Clueless Duck Syndrome? Or MKBNWTS-DS; that's Maybe-Knowing-But-Not-Wanting-To-Say Duck Syndrome.
I have been communicating to people in the www.fibromyalgia-symptoms.org site that all the symptoms they are so desperately describing, begging for help with, is Lyme disease. It is not easy there -- imagine our lymenet discussion of all our symptoms, withou a clue that it's Lyme/co's. If anyone would like to help out there and answer their query posts, please. But go gentle -- they all think it's just fibromyalgia, of unknown cause.
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