posted
I am trying to find a doctor that treats Lyme in Northeast PA (particularly near the Hazleton/Wilkes-Barre area). For the past year and a half I have been having many different symptoms including headaches, dizziness, anxiety, visual disturbances, tiredness, sore back, pressure in the head, hair loss, and muscle twitches to name a few.
I have been shipped from my family doctor to an ENT then to a neurologist and most recently a hematologist. MS runs in the family but I have had an MRI with contrast that came back normal. The neurologist diagnosed me with migraines but has not put me on medication, just B2 to prevent headaches and effexor for the anxiety (the anxiety has been so bad that I cannot drive long distances, my half hour commute to work was becoming difficult).
My family doctor finally ordered the lyme titer when I was in for a checkup in July and I told him how frustrated I have been with not figuring out what is wrong with me. I think he did it just to make me feel better and of course it came back negative. However, with all of the research I have done on Lyme, it seems that the test is not a very reliable for those who do have Lyme. Each time I go to one of my new doctors, I ask about the possibility of Lyme but no one seems to want to listen.
I'm so frustrated by everything. I have improved slightly, but I am still experiencing most of the symptoms mentioned above, just not as severe. I has lost about 35 pounds in early 2006, but since I have not exercised regularly in nearly a year due to not feeling well, I have put all of the weight back on. My hair loss has not gotten any better and I am very self-concious about it. I just want to go back to feeling normal again. I'm only 26 years old and I feel like I am falling apart! My family used to think I was crazy but the more research I do on Lyme, the more they are thinking that I may be on to something.
Now I just need to find someone to listen to me. I appreciate any help and/or advice!
Posts: 1 | From PA | Registered: Oct 2007
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posted
I'm from Northeast Pa. as well (Scranton) but now living in San Francisco. Pretty sure though that I was bit in Pa.
I don't know of any Pennsylvania LLMD. If you go on to the other forum and ask for some Pa. Dr.'s someone will send you some information on them. I'm sure there is one in Philadelphia area.
Your symptoms sound very much like mine. I had body wide twitching, weight loss, hair loss, seizures. After a year of going to Dr.'s one of them decided to do a Western Blot test.
It was positive for lyme. I'm now on antibiotics and back in the "land of the living".
Barb
Posts: 281 | From san francisco | Registered: Jun 2006
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bettyg
Unregistered
posted
welcome! i sent you a private message with my newbie PACKAGE info galore of 78 pages.
to find pms, look at top of left hand side under HELLO by flashing light or in my profile ok//////1
no llmds in 2 cities you mentioned; i'll let penn folks help you tomorrow during normal hours! they know best.
Go to SUPPORT GROUPS found in left-hand column, by country, then by state! Check 1st page to see where the various groups are located for your state. CLICK on link closest to you.
Read carefully if support group leader wants you to call them or EMAIL! Many are very sick themselves; so be patient in getting a response from them. Thanks!
SUPPORT GROUPS .... LYME FOR ``YOUR'' STATE! See below!! 8-19-07
You might be interested in joining your online state yahoo group. All are set up the same way with the state name and lyme run together as one word, http://health.groups.yahoo.com/group/STATENAMELYME, e.g. newyorklyme,
except for 4 states which have a hyphen between the statename and lyme, e.g. southcarolina-lyme. Those states are SC, WY, ND, SD.
The groups were set up by Phyllis Mervine of CALDA, Calif. LDA, to help create an infrastructure for the Lyme community for patient support, local resources, and political action. thx Phyllis!
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posted
Hi Knork, sending you a PM with name/number of the man about one hour away from you who saved my life. Highly recommended. Be sure to take a very detailed history of symptoms and all test results so that he can see what's been excluded. Best Luck To You.
onthemend
Posts: 314 | From east coast | Registered: Oct 2007
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janet thomas
Frequent Contributor (1K+ posts)
Member # 7122
posted
None in ne PA. One near Bloomsburg-I suggestyou contact Larry Linford at southeast Pa Lyme support group. Some in NY not too far from ne PA.
-------------------- I am not a doctor and this is not medical advice but only my personal experience and opinion. Posts: 2001 | From NJ | Registered: Mar 2005
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posted
Hi Everyone! I live in NEPA too and I was diagnosed Sept. 19th with Lyme disease. I've had extreme joint pain since around April and no one knew what it was. I went to the er and just told me tendonitis because the pain would shift from one side to another. I'm not sure if I got bit a year ago...or in april...I just know I have it now. I'm interested in the Bloomsburg DR.'s info if anyone has it? Or if anyone has any info on LDMD's close to Hazleton/Wb area? Thanks!
Posts: 5 | From nepa | Registered: Oct 2007
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posted
I have tried over and over to get an appt. with the doctor in Bloomsburg. His wife said that the Doctor himself has Lyme and only works part time. He is full up to the brim with patients and isn't taking anymore. I think he has Lyme patients, plus regular patients, I asked her to call me if ever there was an opening......that was months ago.
-------------------- Tracy Posts: 24 | From NE PA | Registered: Feb 2007
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