merrygirl
Frequent Contributor (1K+ posts)
Member # 12041
posted
I thought I would post my progress for others to see, especially anyone who may be new to Lyme. I hope that this would give others hope when there seems to be none.
I became very ill in May of this year. I never had a rash or tick bite that I knew of. I was tested for Lyme and was CDC IgM positive. I have been out of work since May.
I was started on 300mg Doxy per day by my PCP/ID doc. After a week and a half on the Doxy I was having severe Neuro problems. I was in so much pain and I really wished for death. I was admitted to the hospital.
I had aseptic menningitis and was started on IV Rocephin for 4 weeks. After the 4 weeks, I was still sick with Fevers, pain, sweats, depression, and tons of other symptoms.
So I went to see a LLMD. I have been on Biaxin and Plaquenil since July 23. I have noticed improvements.
Here is a list of what is improved for me so far:
Brain fog Twitching/spasms/tremors Nausea Depression/Anxiety Headaches Some of the fatigue
I would say before seeing my LLMD I was operating at 10%. I think I am operating at 40-50% now. I definitely have bad days still. I still have fevers and lots of pain and fatigue. I know that Lyme treatment is a rocky road. I just hope that someone will read this and see that you can see improvement.
Melissa
Posts: 3905 | From USA | Registered: May 2007
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CaliforniaLyme
Frequent Contributor (5K+ posts)
Member # 7136
posted
Yay*)!*!*! Glad to hear it*)!*)!
-------------------- There is no wealth but life. -John Ruskin
All truth goes through 3 stages: first it is ridiculed: then it is violently opposed: finally it is accepted as self evident. - Schopenhauer Posts: 5639 | From Aptos CA USA | Registered: Apr 2005
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posted
Thanks for sharing this. I am very happy to hear you are feeling better and hope the upward trend steadily continues! -Despin
Posts: 163 | From Cleveland, OH | Registered: Sep 2007
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merrygirl
Frequent Contributor (1K+ posts)
Member # 12041
posted
Thanks everyone!
I really had to sit and think about it. I still feel sick, but I don't wish for death anymore.
I would not have gotten any better if it was not for Lymenet and all my Lymie friends.
I hope everyone gets over this disease ASAP! We do not deserve this pain and suffering..
Melissa
Posts: 3905 | From USA | Registered: May 2007
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posted
I am very new to lyme. Actually they said I had Parkinsons, but I'm not believing it. I remember the rash. I have about 90% of all the symptoms I read. I have taken one blood test, but it's negative. I've read a test can come back negative, but you can still be positive. Anyway I've been dealing with this for 2 years. What do I do next?
-------------------- Cyndi3527 Posts: 1 | From Sugar Land, Texas | Registered: Oct 2007
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posted
Hi Cindy, IMHO, one of the best things you can do is read!!! Read all that you can get your hands on about Lyme Disease.
I actually carry the dx of Lyme Disease and Masters Disease (and we're assuming all co-infections at this point), so don't forget to include co-infections in your readings.
Finding the right doc is another big step. The newbie link here is really good to go through also.
Good luck, may you find peace and health.
-------------------- May we all find peace one day and may peace prevail on earth ~ Traveler Posts: 66 | From traveling the U.S. | Registered: Aug 2007
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merrygirl
Frequent Contributor (1K+ posts)
Member # 12041
posted
Cindy- Please find a LLMD. Go to the seeking doc section and post a request for the city/state you live in or near, and someone will direct you.
I would also look for a local support group that you could attend. There is a list on the left side under support groups.
I know I would not have seen any improvements without a LLMD.
Good Luck- Melissa
Posts: 3905 | From USA | Registered: May 2007
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bettyg
Unregistered
posted
welcome cyndi; i sent you my 78 page welcome package of info galore.
be sure to look for preparing for 1st llmd, lyme literate md visit!!
as stated above; read, read, read, and post in seeking dr. section for dr. closest to you.
texas stll has some vs. to many they had prior.
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Geneal
Frequent Contributor (5K+ posts)
Member # 10375
posted
Glad to hear the great news.
Progress is such a good thing.
Hugs,
Geneal
Posts: 6250 | From Louisiana | Registered: Oct 2006
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I am hopfully starting this protocol in the next few weeks.
Do you need to get you're eyes checked out regulary on the Plaq? I heard that it can cause retinal toxicity and I am a bit worried because the Lyme has already messed up my vision!
Posts: 263 | From UK | Registered: Mar 2006
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quote:Originally posted by Cyndi3527: I am very new to lyme. Actually they said I had Parkinsons, but I'm not believing it. I remember the rash. I have about 90% of all the symptoms I read. I have taken one blood test, but it's negative. I've read a test can come back negative, but you can still be positive. Anyway I've been dealing with this for 2 years. What do I do next?
First, let me celebrate with merry!!!! That is so awesome and I think it's great that you posted this for others to see!!!
Progress can be excruciatingly slow, but progress it is!!!!
Cyndi:
Maybe you could make a separate posting here and introduce yourself? Then we can devote all the attention on your problems there.
I have a Lymie cousin living in Sugar Land! I'm a native Houstonian, transplanted to Missouri.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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5dana8
Frequent Contributor (1K+ posts)
Member # 7935
posted
merrygirl
I am so happy to hear you are feeling better
Thanks for posting your good news. Really makes my day to hear of people improving
You have a really good chance at it since you got it earlier than alot of us here
Blessings on continued improvement Dana
-------------------- 5dana8 Posts: 4432 | From some where over the rainbow | Registered: Sep 2005
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merrygirl
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