posted
I'm a little scared right now as I developed neuropathy in my legs since starting treatment 4 1/2 months ago. It was NOT one of my symptoms prior to beginning treatment.
I just emailed with my LLMD's PA and asked her if this would be permanent. She said it's impossible to know- NOW I'M SCARED.
I know that sometimes during herxes you have Lyme symptoms that you didn't have previously, but this is a constant. Did anyone develop permanent neuropathy during treatment? Posts: 24 | From Massachusetts | Registered: Apr 2007
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posted
Can you describe your symptoms of neuropathy? Neuropathy is a pretty general statement. I hope someone can help you with their experience. -Despin
Posts: 163 | From Cleveland, OH | Registered: Sep 2007
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savebabe
Frequent Contributor (1K+ posts)
Member # 9847
posted
What drugs were you taking at the time the neuropathy developed?
Some cyst busting drugs can induce neuropathy, but it usually stops once the drugs are discontinued.
Posts: 1603 | From ny | Registered: Aug 2006
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thanks both...mine is a constant aching in my legs that I NEVER had before. I didn't know what neuropathy was until I described my pain to my first LLMD and he said "It's like a toothache in your whole leg". That's pretty accurate.
I was taking plaquenil but stopped about two weeks because that made it 10x worse. Could it be that the plaquenil is still busting some cysts? OUCH!!!!!!!
Posts: 24 | From Massachusetts | Registered: Apr 2007
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I am taking GOBS of magnesium. RLS I think is different. This is just a dull, constant ache in both legs. It makes walking (esp stairs) VERY tiring. It's worse during herxes.
Just realized that in 4 1/2 months of Lyme treatment, I've only been off Plaquenil 2x- each time for 2 weeks.
Posts: 24 | From Massachusetts | Registered: Apr 2007
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kelmo
Frequent Contributor (1K+ posts)
Member # 8797
posted
My daughter is dealing with that now. Leg pain was one of her first symptoms a year before she was diagnosed.
I think we are dealing with our old friend bart.
Posts: 2903 | From AZ | Registered: Feb 2006
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Ahhh....I know Bart all too well!!!!!!
Posts: 24 | From Massachusetts | Registered: Apr 2007
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GiGi
Frequent Contributor (5K+ posts)
Member # 259
posted
My doctor would probably tell you, as he told me many times when I was treating, that you are shifting toxins, not taking enough enzymes and binding agents to move the dead proteins out of the body.
When cells die, also metals are released and they shift, often moving into the lower body part, legs/arms/feet/hands/groin/lower jaw because they are heavier than body fluids. And if it is heavy metals, they will redistribute and settle somewhere.
It helps to take mop-up agents or binding agents to help with neurotoxins.
Take care.
Just sharing my experiences.
Posts: 9834 | From Washington State | Registered: Oct 2000
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quote:Originally posted by GiGi: My doctor would probably tell you, as he told me many times when I was treating, that you are shifting toxins, not taking enough enzymes and binding agents to move the dead proteins out of the body.
It helps to take mop-up agents or binding agents to help with neurotoxins.
What enzymes and binding agents were best for you?
I started Sasparilla for binding but dont know what enzymes or if there is a better binder.
(I do not take anything said as medical advice just personal experience!!! )
-------------------- Seeking renewed health & vitality. --------------------------------- Do not take anything I say as medical advice - I am NOT a dr! Posts: 830 | From TN | Registered: Aug 2007
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I had neuropathy prior to being diagnosed with Lyme and it was never that bad. After I first began treatment however, my nerve pain became unbearable and spread throughout my entire body. I also believe it is related to toxins.
I have found that detox footpads seem to reduce my neuropathy tremendously. I sue them on both my hards and feet and I can litterally fel them sucking all of the gunk out. I have also had acupuncture cupping procedure done before and my nerve pain was reduced for a week.
This procedure also eliminates toxins. Last time I had the cupping procedure done my detox pads were white for a few days and I dont think it is a coincidince.
Gigi, what doctor do you see? What did he tell you to take to help the problem? Please send me a PM because I would love to know more.
Thanks, Lindsay
-------------------- "One day at a time"
Current: -1.2 IM bicillin three times a week -1.25 IV Vancomycin every day -IV glutathione and IM B12 -Byron White since Jan. 2011 -ALA, Yasko protocal, Adapten-All, thyrosol, Pekano, phosphalipid exchange, probiotics, oregano... Posts: 390 | From FLORIDA | Registered: Jun 2007
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Thank you ALL for your responses- the PA talked to my doctor and he said it would not be permanent. He confirmed that plaquenil has a very long half life and my legs are probably full of toxins from busted cysts (see- you guys were right!).
And ironically, today my legs feel fine. Go figure!
I've been taking Vit C to detox but would love to hear more. Also, did the detox foot pads for awwhile(don't know why I stopped) and I LOVED them too!!
Posts: 24 | From Massachusetts | Registered: Apr 2007
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GiGi
Frequent Contributor (5K+ posts)
Member # 259
posted
Binding Agents / Mop-Up Agents:
Chlorella (is tops because you also have all the nutrient benefits that chlorella delivers. Please pull up some posts where I have listed all the details about it)
Pectin (apple and citrus) available in powder jars.
Betasitosterol Destroxin Any good product that has Zeolite in it (don't go for the liquid on people try to sell multi-marketing. Chitosan Cholestyramine (I don't care for it because it's difficult to take, prescription, and expensive and no nutrient whatsoever) Activated charcoal, only short term because it pulls good metals out also Fiber, Fiber, Fiber Veggie-Fruit mousse I described on the "what for breakfast" thread - it has lots of fiber and enzymes galore and it is very satisfying
Whenever you take any of these, if you get constipated with any, drink a tea, up your Vit C, anything to move things along as rapidly as you can, so the toxins do not get hung up in the gut and recirculate to settle in other body compartments.
Can't think of any others right now.
Enzymes - VitalzymeX (the one without Titanium-diox/ Tit-diox is carcinogenic); any good digestive enzyme. Rechtsregulat is tops - you start with two tablespoons are day, but then drop down to just a few drops and your blood will be bright and thin. And is able to do its job a lot better than sludgy black blood that cannot get where it is needed)
Avoid being constipated. Do anything you can not to be so. Drink tea, up magnes malate, whatever works.
Do lymphatic drainage - if the toxins can't come out, the nutrients cannot go in. Same delivery system. Look up some of the threads here on the subject. That will move things out of the feet and legs. I described in detail the other day the lymph flow. You need to know that in order to do it yourself with partner using a very soft brush and very gentle touch.
Do colonics. And if you have never done it, consider doing www.dr-natura.com - look at the picture gallery on that website and it explains what my answer here is all about. It is about nothing else but cleaning house.
Good luck and take care.
Just sharing my experiences.
Posts: 9834 | From Washington State | Registered: Oct 2000
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GiGi
Frequent Contributor (5K+ posts)
Member # 259
posted
If you search here for "footpads" - I posted a lengthy write-up on it. Take breaks doing them. The do work/push the system and you want to take short pauses; a few days, especially when they stay light.
Take care.
Just sharing my experiences. Things that worked for me.
Posts: 9834 | From Washington State | Registered: Oct 2000
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posted
Plaquenil is hydroxychloroquine, an anti-malarial, anti-parasite drug. Patients who have trouble with quinolones may not want to risk taking plaquenil when other antibiotics are probably effective. If it is being given for babesia why not take Mepron and Zithromax?
Plaquenil has significant risk of side effects, you can about read them here:
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