Topic: Numbness on some areas of body - a pin does not hurt
Health
Frequent Contributor (1K+ posts)
Member # 6034
posted
Hi everyone,
I saw a new LLMD in the USA, will be getting the IGENEX tests done again,
I am getting worse in some ways. My SKIN is numb in areas, I can poke a pin on areas of my lower leg and draw blood and not feel it. Other areas I can feel it. I can walk though, and was on the bike before, the pedal bike but for a few minutes only, so that is good.
I am a woman, and I have this numbness on breasts too, I could draw blood with a pin and not feel in some areas.
I have also had raw areas where I could not wear a sweater last week because of it hurting, I think this was herxing,
Is this numbness lyme? The new LLMD was not sure what it was, why I am not well, and my old LLMD was not sure if it was still lyme, My breathing is involved and I cannot stop antibiotics or breathing will go,
The new LLMD in the USA stressed IV, but I was denied it here,
Both LLMD's are not sure why I am still sick after treatment and think maybe if put heads together can figure it out.
I am to have the tests done soon.
In the meantime, I am having this numbness, I am on minocycline, that is all I coudl get.
I have not had this numbess before, been with me about 4 months, seems to be getting worse, has anyone had it and what was it, lyme?
I also have started to get INSOMNIA, I have never ever had this, it started about 2 months ago, off and on.
thanks,
Trish
Posts: 1250 | From Canada | Registered: Aug 2004
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Health
Frequent Contributor (1K+ posts)
Member # 6034
posted
Sorry, I meant they were not sure if this was Lyme still. They felt that I may not be well because I needed IV for lyme, I have only ever been on orals for lyme, babesia and Bartonella.
Because my breathing is so involved, they think it maybe not be lyme,
So we will see what this new LLMD thinks and then go from there, My brain is much worse,
Trish
Posts: 1250 | From Canada | Registered: Aug 2004
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bettyg
Unregistered
posted
trish,
i had a neurologist give me tests for numbness, etc. you'll know it when you ar numb, and whe nhe gives you electrical SHOCKS!
also, are you a DIABETIC? neuopathy can be from both illnesses. good luck.
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groovy2
Frequent Contributor (1K+ posts)
Member # 6304
posted
hi Trish
Babs caused numbness for me-also caused insomina-
after long treatment for babs the numbness is gone-
have you looked into Babs--Jay--
Posts: 2999 | From Austin tx USA | Registered: Oct 2004
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Immediately after being bit I had numbness in my hands and feet then last year numbness/tingling, neuropathy type pain in feet but sometimes in hands. Taking antiepileptic drug for it and it helps my back pain too (lyrica). LLMD put me on this.
-------------------- RV Posts: 249 | From Healing in USA | Registered: Mar 2005
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Michelle M
Frequent Contributor (1K+ posts)
Member # 7200
posted
Hi Trish.
Lyme can cause peripheral neuropathy or actual demylenineation of the nerve sheathing but it is usually in the extremities such as arms and legs; never heard of it elsewhere. But what do I know -- I can't even spell demylenenation?!!! However, I'm hoping I'm close enough that you know what I'm talking about.
Have you ever been treated for your co-infections?
Betty's idea was good, too; have you been checked for diabetic conditions?
Babesia in particular is suspicious for returning. Breathing issues certainly point to that.
As for lyme, it seems like your treatment hasn't been especially aggressive. Well, maybe it was in the past, but mino alone is more a maintenance regimen and not a full-on treatment regimen.
Hope your new LLMD puts together an aggressive plan for you. I'd get started with babesia treatment irregardless of test results. Maybe consider doing the Dr. F blood smear in Arizona; results seen here from it are very promising.
Hugs to you,
Michelle
Posts: 3193 | From Northern California | Registered: Apr 2005
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posted
How have you determined that the numbness is getting worse? I've taken shots for years. A doctor taught me a good trick. If you swab an area with alcohol and then gently tap the needle around until you find a spot that has no feeling you can inject yourself with no sensation at all. The surface of your skin is not completely covered with nerves, thus the "numb" spots. On the other hand, if you have large areas with no feeling that is not normal.
-------------------- Paula Carnes Posts: 23 | From Las Vegas, NV | Registered: Jan 2007
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CaliforniaLyme
Frequent Contributor (5K+ posts)
Member # 7136
posted
Hey Trish*)!!!
I had progressive numbness but not all over- it went from my toes upward and slowly went upwards over the course of a few months until it was right below my knees- I could stick pins through my calves, ankles, feet, could not feel them, was VERY weird.
Walking felt like walking on stilts almost, a very strange disconnected sensation. I had Lyme & Babesiosis at that point and I am not really sure which it was- it went away with IV Rocephin though so I tend to think it was Lyme!!!
My feet and limbs are completely normal now- rather, as normal as they will ever be. I got severe frostbite as a child and 3 of the toes on my left foot have permanent nerve damage so they have never been normal since I was 9. (See p.s. if interested in story of what a dumb kid I was*)!
Before I had the numbness I had lots of peripheral neuropathies and I also had developed Raynauds Syndrome in my hands and feet which I do attribute to Babesiosis not Lyme because that resolved on Mepron.
The numbness I had was very scary because it was clearly progressing upwards and I was losing parts of myself. It was creepy. It is a creepy symptom in my experience.
I have no numbness and no symptoms today and hope you can say the same one day- soon!! All of that went away in the very last months of my IV- months 8-9!!! I know we don't all have the same experience of full recovery with IV but I wish we all did- sincerely. Best regards always, Sarah
p.s. I snuck out at night in the dead of winter in Charlottesville, Virginia where I lived when I was 9 to go ice-sliding in my tennis shoes a few miles away from home- it was a full moon and bright- I LOVED ice sliding!!! And my shoes got stuck in the ice I had to run home BAREFOOT it was so painful almost lost those toes! Mom was FURIOUS, was visiting lecturer at University there and boy was she mad at my midnight return with messed up feet!!! My WHOLE feet were numb- I was scared I was going to lose them- and it was SO painful bringing them back to life- which made me wonder when my feet began to go numb years later if the numbness had started in my toes because of that old nerve damage? I wonder-
-------------------- There is no wealth but life. -John Ruskin
All truth goes through 3 stages: first it is ridiculed: then it is violently opposed: finally it is accepted as self evident. - Schopenhauer Posts: 5639 | From Aptos CA USA | Registered: Apr 2005
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