posted
I know we all suffer. Some can handle it better than others.
I unfortunately am not dealing with it so well.
Been on Doxy for 8 weeks and Lyrica. No improvements.
Also, Been on Oxycodone which has dulled the pain somewhat. I don't want to rely on this med too long. The pain has been too bad without it though.
Now I'm afraid people will start treating like a druggie (My Primary Doctor and the Pharmacy staff) and people at work. Haven't worked in 7 months but the nurse knows of my meds and word travels fast. Been denied short -term disability at work also. Appealing it right now.
My Lyme's specialist is working hard to help with work issues. Unfortunatley she doesn't prescribe narcotic pain meds.
Anyone else have work issues like this? Any suggestions? Should I see A pain management doctor if my primary cuts me off the pain meds?
Posts: 30 | From enfield,ct | Registered: Sep 2007
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posted
I have the same major pain areas. It started in the back of my head and neck in 2004. then my lower back. I have been on pain meds and going to a pain clinic for over two years.
the pain meds helped me to continue working, but then I do not have a physical job, I sit at a desk. (sitting is difficult too, but I have managed to keep my job)
I started getting abdominal pain last feb, sharp pain in the area of my ilium. was never diagnosed what it was. it lasted about a month, and I neede dmore pain meds.
last february, I did a month of doxy and my pain decreased to the point that I thought I could go off pain meds. I went into detox and got MUCH worse.
I immediately started getting pain in my upper back area. I don't know if the stress of detox made me get worse, or if I had the pain and it was being masked by the pain meds.
I could not function at all without pain meds. I have intractable pain, which could be fatal. I never knew before, but people can actually DIE from untreated pain if it is severe enough. your body will go into shock and just start shutting down.
my pain dr didn't want me to go back on the med I was on (fentanyl patches) so I went through hell trying to find something that worked.
lyrica worked but i had sever muscle spasms. oxycontin made me itch. I started on the lowest dose of extended release morphine and vicodin for breakthrough pain.
The painn spread from my upper back around my ribs and to my chest, and then down to my abdomen.
I started antibiotics in august, and I am getting better. I am taking less and less of the vicodin. I hope I do not ever have to go in detox again, it was awful.
I would definitely suggest a pain doctor, regular doctors do not get much training in the control of chronic pain. its much different than acute pain.
short acting pain meds are like a rollercoaster, the longer acting extended release are much better, you don't get the rollercoaster effects, but more on an even keel, around the clock pain control.
Posts: 615 | From maryland | Registered: Oct 2007
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posted
i get extreme pains in my rib, chest area - in between the ribs, known as chest wall pain and then of course around to the pack in between ribs, although its difficult to discern the "in between" feeling
it is called chostochondritis.
-------------------- Seeking renewed health & vitality. --------------------------------- Do not take anything I say as medical advice - I am NOT a dr! Posts: 830 | From TN | Registered: Aug 2007
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tdtid
Frequent Contributor (1K+ posts)
Member # 10276
posted
Sadly, I don't have a solution for you but I too have always had my worst pain focused in the areas you are mentioning.
Before my diagnosis, I had been put on so many different meds and what worked for me before I knew it was lyme was oddly a chiropracter. I have no idea why it worked, but I would be breaking out in sweats due to the horrid pain and be off the table and able to breath again, THAT fast.
I was also trying accupuncture, hypnosis (not sure if that helped or not since I'm a skeptic, but yet I did seem to tolerate the pain in a different way after that).
I have just been put on Lyrica, but dang, the side effects of that one are messing me over badly and no relief yet, so not sure how long I want to test the waters with this one.
Was on percoset, but like you, it's not something I wanted to take too much and surely don't need to get addicted or blacklisted, so around and around in circles we go.
I wish I had a solution for you, since I'd have it for me as well as many others, but I basically just wanted to say that I can relate to your pain 100 percent and it's horrid.
Cathy
-------------------- "To Dream The Impossible Dream" Man of La Mancha Posts: 2638 | From New Hampshire | Registered: Oct 2006
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tailz
Unregistered
posted
My pain seems to increase whenever the electromagnetic fields go up in my home, though my house measures higher than most homes at all times. I still can 'sense' the increases pain-wise.
But get a gaussmeter - my pain is even worse when I visit my neigbor, and her home measures 4-10 milligauss or higher. Lymies are basically being nuked, and the spirochetes are loving it. So is the yeast!
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Aniek
Frequent Contributor (1K+ posts)
Member # 5374
I highly recommend finding a pain specialist. You don't want your Lyme treated by your PCP, why have pain treated by your PCP?
There are options for controlling pain that reduce the need for narcotics. If it is muscle pain you are having, I've had great results from Zanaflex.
-------------------- "When there is pain, there are no words." - Toni Morrison Posts: 4711 | From Washington, DC | Registered: Mar 2004
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bejoy
Frequent Contributor (1K+ posts)
Member # 11129
posted
My experience with this kind of pain:
Pain between the shoulder blades and back of shoulders is caused by tension in the pectorals/chest muscles.
Pain in chest and ribs is caused by toxic lymph that irritates pec and core muscles. Also caused by stressed spleen.
Look at pictures of the lymph system. It's all over in the armpits, chest and core.
Manual lymph drainage and spleen drainage from a good massage therapist helps.
Spleen supp from Standard Process helps(from professional only).
Gentle core training (sit ups) helps drain spleen and core lymph. Also gentle arm excercises helps drain lymph in arm pits.
Red root tinture helps drain lymph. Also lots and lots of water.
This kind of pain can be a herx, and can mean your body is clearing out toxins and dead bacteria. Keep it moving!
Sorry you hurt so much! I'v been there, and know its no fun.
This is my experience. May not be yours, but I hope this helps.
-------------------- bejoy!
"Do not go where the path may lead; go instead where there is no path and leave a trail." -Ralph Waldo Emerson Posts: 1918 | From Alive and Well! | Registered: Feb 2007
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posted
bejoy, that makes sense, I have swollen glands under my chin, in my neck and my underarms. have had them for 3 years.
Posts: 615 | From maryland | Registered: Oct 2007
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bejoy
Frequent Contributor (1K+ posts)
Member # 11129
posted
Rebounding - jumping on a mini tramp - is also supposed to help drain lymph, and thereby reduce pain.
I just got one at a thrift store, but haven't given it a fair chance yet to see how well it works.
-------------------- bejoy!
"Do not go where the path may lead; go instead where there is no path and leave a trail." -Ralph Waldo Emerson Posts: 1918 | From Alive and Well! | Registered: Feb 2007
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