posted
Anyone have bell's palsy? How long will it last? I was told at the emergency room 4-8 weeks . Now going on 16 weeks. I feel like a monster. Help if you can
Posts: 111 | From Pa | Registered: Oct 2007
| IP: Logged |
Greatcod
Unregistered
posted
I believe that your initial treatment for Lyme should have cleared that symptom. Maybe I'm wrong.
IP: Logged |
posted
Can't get diagnosis because I can't get in to see a doctor. No doc no diagnosis no treatment just neurontin and pain-killers. I'd be a junkie if it were up to them. My gp won't consider lyme because the blood test was negative, so I'm searching for a llmd
Posts: 111 | From Pa | Registered: Oct 2007
| IP: Logged |
Greatcod
Unregistered
posted
OK, what you have to know, and your doctors should but don't, is that Bells Palsy is a presenting sign of Lyme infection, and that you should be on antibiotics as soon as possible to prevent long term consequences. Also, how long after the Bells Palsy developed did you get the blood tests? And do you have headaches??
IP: Logged |
posted
I went to the er that day because I was afraid I was having a tia or mini-stroke. I have been sick for years with other symptoms which I've been tested for. I thought lyme was ruled out because of the test but then one of my clients suggested I check out the lda site because it sounded like what i had and I've been trying to get in with a doctor fot the last 3+ months to no avail. I did get a symptom checklist from one llmd but he can't see me till next May.
Posts: 111 | From Pa | Registered: Oct 2007
| IP: Logged |
posted
Is it one side of your face or both? Did you have other cranial nerve disfunction?
I have bilateral paralysis - one side is much better now though - and other cranial nerve problems like double vision for 10 months now.
Negative lyme tests all the time. I still think it may have been from the flu shot. Everything else has been ruled out. I'm not tired, I'm not achy...........just paralyzed from the neck up.
-------------------- Tracy Posts: 24 | From NE PA | Registered: Feb 2007
| IP: Logged |
posted
Just one side. I do have aches and pains and have had for awhile. It came from nowhere. I was at work and my eye just stopped blinking and my lips were drawn on the right side. It looks better than it did but it isn't better
Posts: 111 | From Pa | Registered: Oct 2007
| IP: Logged |
tailz
Unregistered
posted
I have mild Bell's Palsy on and off - still. What seems to cause it are things like holding a blowdryer to my head, driving, standing near someone using a cell phone, using a cordless phone, etc...
Buy a gaussmeter and find out what the electromagnetic fields are doing in your house - mine are higher than most. My neighbor's is higher yet. I don't think Lyme is your only problem. EMFs are somehow involved.
IP: Logged |
posted
I developed Bells Palsy 2 months into oral treatment for Lyme Disease.
I was went to the ER, they knew I had lyme and told me I needed IV.
They gave me IV and ACYLOVIR in case it was a HSV-1 or HSV-2 Infection.
I have to tell you what helped me the most in recovering from the bells palsy was the IV and accupunture as soon as possible. IT HELPS SO MUCH!!!
My Accupunturist helped it go from a monster face to almost normal in a few days. Something though I got 2-3 times a week for at least 2 months straight.
When my LLMD saw me after he then tested for the herpes infections-found one and though the bells was a combo of the LYME and the HERPES INFECTION.
I know I also went into an ifared sauna that day.
Heat reactivates viruses by the way.
It took about 3-5 months till I did'nt look in the mirror every day and cry. It did get about 70% better but then I was taken off IV and it came back!!!
Devestated was put back on IV and now it's 90% better. Even my best friend of 15 years can't tell I have it. I can though... It's been since December 6, 2006 since the first attack came on and it really has just straighten out...my smile that is!!!
Not the whole other mess!!
Please PM me if you need support or have any other questions.
I really feel for you, this was the most devestating part of my whole diagnosis and treatment.
As vain as it sounds, it sucks to not have your smile or your face.
GET ANTIBIOTICS AND ANTIVIRALS!!!
Good luck
JENNIFER
Posts: 111 | From San Francisco | Registered: Feb 2007
| IP: Logged |
GiGi
Frequent Contributor (5K+ posts)
Member # 259
posted
My big problem was a severe Bells Palsy and left sided paralysis from top of head to toe, caused by heavy metals, gold crowns, root canals, and a Lyme infection.
I am perfectly well today. The EMF symptoms disappeared completely as I was detoxing all the above. I was treated with a few months of antibiotics adding alternative treatments as I went along.
Just know that with the proper treatment, you will get well. I hope that you find the right doctor soon who understands Lyme and everything else that is at the base of it. It took me a while to figure this out --- it's never just Lyme.
Best wishes to you.
Take care.
Just sharing my experiences.
Posts: 9834 | From Washington State | Registered: Oct 2000
| IP: Logged |
Michelle M
Frequent Contributor (1K+ posts)
Member # 7200
posted
My daughter (14 then) developed one-sided Bell's as a lyme relapse about a year after completing a rather lengthy treatment with our LLMD.
Right outta the blue.
I recognized it immediately, having lyme myself.
Called our LLMD on the weekend!! Ha! Put her immediately on high dose Amoxicillin + Probenecid + Zithromax.
In about 3 days it had receded appreciably, in a week it was GONE.
It scared the you-know-what outta us.
Black Powder, I am feeling so bad for you. Ducks are notorious for missing that particular diagnosis. I'm only surprised they haven't tried to dose you with steroids yet -- often done (at patient's peril!!) in an attempt to "cure" Bell's.
Michelle
Posts: 3193 | From Northern California | Registered: Apr 2005
| IP: Logged |
mbroderick
Frequent Contributor (1K+ posts)
Member # 5220
posted
Sent you a private message with information...
Posts: 2097 | From PA | Registered: Jan 2004
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
Printer-friendly view of this topic