Given a clinical DX of Lyme in Nov '05 I stopped ABX treatment middle of June of this year after 18 months.
At that time I was feeling better in some ways, but the pain was not improving (in my hands, arms, feet and legs as well as breasts, neck and face and spine). This pain is a burning, tingling, numb, stabbing aching..... I was taking 3-4 Tylenol 3 and 2-3 x 300 mgs of Neurontin per day. My energy levels were really good.
Two weeks after stopping the ABX my pain started to get worse and in no time I was taking 8 Tylenol 3 (sometimes 10) a day as well as 5 x 400 mgs of Neurontin a day, and it was barely taking the edge off.
I was miserable and desperate.
An MRI and EMG told the neurologist that I didn't have "True" peripheral neuropathy. No sign of Demylination or lesions either.
Two weeks ago I started treatment for candidiasis with diflucan (fluconazole) and nystatin. I did this without a doctor as I had some of the meds left over.
Within two days of taking these meds my pain was reduced to less than half of what it was. How could it work so fast to get rid of that pain?
After being on those two meds I got very sick from the die-off even though my pain was almost gone. I was so sick - vomiting, nausea, touch of a fever, all-over sick feeling, like I was poisoned. I figured this was too much die-off and time to stop the diflucan and nystatin.
That was two days ago. Tonight that awful pain is back big time and I am really miserable.
Why would those drugs stop my pain so quickly and then it would come back so quickly when I stopped them?
Does anyone have an idea of what is causing this? It makes no sense to me.
Thanks for any input or advice,
happygranny
-------------------- Dxd clinical Nov 05 - March 08 tested low pos. from Igenex Started Bicillin/Flagyl Oct 2008 was on Ketek Tinidazole prior - PN, concentration low, tinnitus, PVCs, sore lymph nodes, hair loss, joint pain with some swelling, muscle tenderness. Posts: 56 | From Manitoba | Registered: Feb 2006
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Geneal
Frequent Contributor (5K+ posts)
Member # 10375
posted
Diflucan is known to hit Lyme.
Also yeast symptoms can mimic Lyme symptoms.
Could be one or the other or both.
There are some members who have made progress with Lyme on a diflucan protocol.
Hugs,
Geneal
Posts: 6250 | From Louisiana | Registered: Oct 2006
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posted
Probably not a good idea to take both meds at the same time. They are both for yeast and you must have killed too many at the same time. I would lower dose of one and start more slowly ramping up. Cindy
-------------------- Cindy Posts: 227 | From VA | Registered: Sep 2005
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lymeHerx001
Frequent Contributor (1K+ posts)
Member # 6215
posted
I have this too when I first start anti fungals,
I have a couple days of feeling pain free!
And yes I was diagnosed with Lyme too.
I think that the immune system is always challenged and yeast is adding to this. When we kill the yeast the immune system backs off and we have a reduction in pain and inflamation. Then after a breif time it picks back up again and we never get out of it.
I was never able to push through a yeast herx. Never.
Im waiting now for my parisite test to come back and if I need be I will treat for those first.
Posts: 2905 | From New England | Registered: Sep 2004
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Today that feeling of being poisoned by the die-off is almost gone and so I am starting the diflucan again at 50mgs a day and staying away from the nystatin for a bit...see what happens.
I remember reading this summer that a German LLMD found success treating Lyme with diflucan(fluconazole) so I can see that maybe it is also affecting Lyme as well as yeast.
At the Canlyme site someone responded saying he had notice a reduction in is PN pain when he used nystatin for yeast, so I guess there is something to this.
I am hoping that if I keep taking low doses of diflucan it can keep my pain lower. Though from what you say lymeherx it doesn't necessarily last long. It did last two weeks for me and I hope it returns.
Anyone else have a similar experience with pain and yeast meds?
Thanks again, happygranny
-------------------- Dxd clinical Nov 05 - March 08 tested low pos. from Igenex Started Bicillin/Flagyl Oct 2008 was on Ketek Tinidazole prior - PN, concentration low, tinnitus, PVCs, sore lymph nodes, hair loss, joint pain with some swelling, muscle tenderness. Posts: 56 | From Manitoba | Registered: Feb 2006
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tailz
Unregistered
posted
I had problems on Diflucan, too - sometimes I wonder if it's the dyes in it. I do better on metronidazole.
But since you felt better initially, and later worse, that probably is not your problem. Sometimes I think that the candida it is probably killing along with the Lyme actually keeps some other bug in check. I had this happen recently with metronidazole.
Mastic gum and turmeric has helped me some - not entirely - but it would be worth trying. It kills h-pylori, which sometimes is present.
Try keeping track of when the pain kicks in though. My pain often coincides with electromagnetic field exposure - typing on the computer, driving, etc...
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lymeHerx001
Frequent Contributor (1K+ posts)
Member # 6215
posted
I think that since the Diflucan is a major drug manufactured in a large plant that all the EMFs that are generated in that plant are being stored in the Dilucan.
Also pink stores more electromagnetic energy than a white pill. Just like white throws reflects more light.
Maybee this is why I cant tolerate Dilucan. Its all the EMFs that Im putting in my body. It might be the same with you Tailz.
Posts: 2905 | From New England | Registered: Sep 2004
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