Topic: Lyme test less indicative of lyme, and new doc appt
cantgiveupyet
Frequent Contributor (1K+ posts)
Member # 8165
posted
I had an appt with yet another dr. He ran another Igenex WB and now it is showing less reaction.
IGM 30, 41 show positive
IGG 41 IND
Edit- I just found my 2006 results
IGM 23-35, 31, 34, 39, 83-93 all IND 41 positive
IGG 30 positive, 41 IND
Genova found +1 for the strain of yeast i had vaginally for the whole year of 2006 :-( Dr wants me to try nystatin, and the expensive suppliment i can NOT afford.
but my good bacteria is 3+ finally.
Allergy, to only 7 foods, one zucchini which i live on cause i cant eat much :-( Pumpkin and sunflower(which i suspected since they make me stiff), grapes, kindney beans. Nothing i eat regularly but zuchini.
was suprised i wasnt reactive to yeast.
My testosterone is low , but within normal range at the lab, wants me to take topical testosterone and progestrone :-(
I left feeling hopeless yet again. And cried after the appt.
He suggested taking alkaseltzer and greens to get alkaline, but my urine PH is 7.5 most days. :-(
He said my reaction to carbs doesnt sound like yeast, since with yeast you usually have a GI reaction. I get stiff instead and feel hungover with milkshakes :-(
Doc said my body insnt strong enough for abx. Guess at this rate it never will be. I cant even afford the 50.00 suppliment he recommeded.
Current symptoms,
IC- bladder, vulvadynia, pelvic floor muscles tightness More pain during ovulation, some stiffness, mainly pelvic always hungry thirsty nausea neck stiffness sometimes rib tenderness during my period. Not able to sleep(mostly due to worrying about being sick) ear ringing skin and hair dullness
One of the dr i am seeing gave me malarone to try 1 pill a day. I think it maybe helping with stiffness, hard to tell though.
I asked about mold exposure and he didnt think that was a factor :-(
On paper i look healthy......i really think im going mad.
-------------------- "Say it straight simple and with a smile."
"Thus the task is, not so much to see what no one has seen yet, But to think what nobody has thought yet, About what everybody sees."
-Schopenhauer
pos babs, bart, igenex WB igm/igg Posts: 3156 | From Lyme limbo | Registered: Oct 2005
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CaliforniaLyme
Frequent Contributor (5K+ posts)
Member # 7136
posted
Did you get tested for Babesiosis & Ehrlichiosis?? It is a good idea to get tested for all TBDs because a strong positive in one can indicates, if you don't know it is LYme, whether or not it is TBD related or not~!!!
SO if you got a Babs positive or an Anaplasmosis/ Ehrlichiosis positive, it would indicate at least you did have TBDs...
Just an idea, Best wishes, Sarah
-------------------- There is no wealth but life. -John Ruskin
All truth goes through 3 stages: first it is ridiculed: then it is violently opposed: finally it is accepted as self evident. - Schopenhauer Posts: 5639 | From Aptos CA USA | Registered: Apr 2005
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cantgiveupyet
Frequent Contributor (1K+ posts)
Member # 8165
posted
Hey Sarah,
I appreciate your response :-)
Coinfection panel thru Igenex in nov 05 was negative as was bart and mycoplasm at MDL at the same time.
Im neg across the board for everything but myco pneumonia IGG which just turned positive march 07..never had an IGM response.
Im looking into the fry labs blood slide, got the test kit in the mail today, it is my last hope that something will show. Just have to find a dr to take the blood.
Its difficult with me because dr just dont know, and wont give me abx to try, so if i dont get a positive, well im stuck like this for life
-------------------- "Say it straight simple and with a smile."
"Thus the task is, not so much to see what no one has seen yet, But to think what nobody has thought yet, About what everybody sees."
-Schopenhauer
pos babs, bart, igenex WB igm/igg Posts: 3156 | From Lyme limbo | Registered: Oct 2005
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Michelle M
Frequent Contributor (1K+ posts)
Member # 7200
posted
quote:Originally posted by cantgiveupyet: I had an appt with yet another dr. He ran another Igenex WB and now it is showing less reaction.
IGM 30, 41
IGG 41 IND
In august 06, i had IND on almost all the starred bands on the IGM This current WB is very similar to my first WB
Can't, are you saying your IgM was IND or positive for bands 30 and 41? (you indicate band 41 on IgG was indeterminate but you don't say what IgM was...)
Please pardon my confusion!!
Michelle
Posts: 3193 | From Northern California | Registered: Apr 2005
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cantgiveupyet
Frequent Contributor (1K+ posts)
Member # 8165
posted
Hi michelle, sorry for the confusion, i typed it when i was still upset.
Im going to edit it, but that is positive for the IGM for those bands. I also added my 2006 results. Regardless this dr doesnt think my body can do abx.
-------------------- "Say it straight simple and with a smile."
"Thus the task is, not so much to see what no one has seen yet, But to think what nobody has thought yet, About what everybody sees."
-Schopenhauer
pos babs, bart, igenex WB igm/igg Posts: 3156 | From Lyme limbo | Registered: Oct 2005
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cantgiveupyet
Frequent Contributor (1K+ posts)
Member # 8165
posted
-------------------- "Say it straight simple and with a smile."
"Thus the task is, not so much to see what no one has seen yet, But to think what nobody has thought yet, About what everybody sees."
-Schopenhauer
pos babs, bart, igenex WB igm/igg Posts: 3156 | From Lyme limbo | Registered: Oct 2005
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cantgiveupyet
Frequent Contributor (1K+ posts)
Member # 8165
posted
It seems I am always so different from those on this board.....
i think what annoyed me about this dr is he was all about me having bart and lyme on first appt, and now yesterday, i cant do abx. No lyme etc.
Tested for chlamydia pneumonia that is neg, yet mycoplasm pneumonia is high on IGG. I think they both can cause havoc.
I hope one day soon i can get well and not have to deal with all these jerk dr. :-(
sorry to be neg, im just really running out of fight.
-------------------- "Say it straight simple and with a smile."
"Thus the task is, not so much to see what no one has seen yet, But to think what nobody has thought yet, About what everybody sees."
-Schopenhauer
pos babs, bart, igenex WB igm/igg Posts: 3156 | From Lyme limbo | Registered: Oct 2005
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Michelle M
Frequent Contributor (1K+ posts)
Member # 7200
posted
Fry Labs is a GOOD idea!!
I don't really understand what is meant by your body being "too weak" for antibiotics. I DO know you're about the size of a feather, but they could scale down dosage to fit. Plus UP your probiotics, like Theralac.
Another thought: Would your doc oversee letting you try out the Buhner protocol? Maybe it would aggravate your IC less. I do think you should be monitored as they are potent herb, not really unlike antibiotics. Your 30 band continuing positive does seem concerning.
Michelle
Posts: 3193 | From Northern California | Registered: Apr 2005
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cantgiveupyet
Frequent Contributor (1K+ posts)
Member # 8165
posted
thanks Michelle,
I think he was concerned because my bladder didnt tolerate fish oil, but many with IC cant handle it. And the Dmannose seemed to iritate me too.
Im not sure if he would let me try buhner protocol, i have done cats claw in the past. If I go back, i will ask.
he wants me to try the wheat grass to see if it helps.
I got the impression he didnt feel lyme was my problem.
-------------------- "Say it straight simple and with a smile."
"Thus the task is, not so much to see what no one has seen yet, But to think what nobody has thought yet, About what everybody sees."
-Schopenhauer
pos babs, bart, igenex WB igm/igg Posts: 3156 | From Lyme limbo | Registered: Oct 2005
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Geneal
Frequent Contributor (5K+ posts)
Member # 10375
posted
I thought (possibly) the longer you have had the infection (bb) the less antibodies your
Body may be making????
A WB in itself is not conclusive or diagnostic of Lyme disease.
Sheesh. I guess I am really glad a duck diagnosed me with Lyme with only one IgM band (23).
You may actually be sicker now than when you tested in 2006.
Co-infections are a definite possibility too.
Hang in there.
Hugs,
Geneal
Posts: 6250 | From Louisiana | Registered: Oct 2006
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cantgiveupyet
Frequent Contributor (1K+ posts)
Member # 8165
posted
Hey Geneal,
you are correct, it seems this dr did clinically diagnose on first visit, then second visit after test results, said nope.
I really have worked on yeast and diet since 2005/06 when i was on abx, and was hoping to try abx again. but guess not with this doc.
I dont feel as sick as i did in 2006, but maybe my body was fighting more then, thus the antibodies and a sicker feeling.
My gut is saying i have babs. if its infectious at all. I really dont know anymore.
I know im a complex case, but its not my fault im like this.
the LLMD i have gone to recently are now telling me they dont use abx, abx does not cure lyme. I got the impression they only use them on recent cases.
-------------------- "Say it straight simple and with a smile."
"Thus the task is, not so much to see what no one has seen yet, But to think what nobody has thought yet, About what everybody sees."
-Schopenhauer
pos babs, bart, igenex WB igm/igg Posts: 3156 | From Lyme limbo | Registered: Oct 2005
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