LymeNet Flash: Consider yourself lucky!

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»	LymeNet Flash » Questions and Discussion » Medical Questions » Consider yourself lucky!

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Author

Topic: Consider yourself lucky!

sparkle7
Frequent Contributor (5K+ posts)
Member # 10397

posted

You are lucky they detected it at 1 month...

I was ill for 10 years before any doctor figured out I had Lyme.

I'm still ill & trying to get well.

I've been on various antibiotics on & off for 9 months.

I did about 3 months of doxy at 400mg.

I think I started on 200mg & worked up to 400mg.

We all have different reactions to the treatment.

I never thought you could take abx for so long but you can.

I'm taking other stuff to counteract the candida issue.

I think my body started tolerating it better after a while & I didn't need the fluconazole & niastatin as much.

I have felt ill in my stomache, neauseaous, & herxing on & off.

I reduce the dosages if I start getting too ill.

I think it will take some time for me to get better - so, I just have to keep going forward with the treatment.

I think you only have to avoid dairy products 2 hours prior & 2 hours after taking the abx.

I tried to completely cut them out but I like to have a cup of coffee every day.

I did cut back on dairy alot, though. You can use sun block & try to avoid the sun.

I also like to get some light every day. I think it's healthy.

It's getting cold here so it's not as big an issue as in the summer.

I did have a problem when I did a far infrared sauna while on doxy.

I got a bit of a sunburn on my face from the far infrared waves.

Good luck!

[ 09. November 2007, 01:09 PM: Message edited by: sparkle7 ]

Posts: 7772 | From Northeast, again... | Registered: Oct 2006 | IP: Logged |

lymednva
Frequent Contributor (1K+ posts)
Member # 9098

posted

10 years is nothing. It was more than 40 for me and there are others here with equally long times undx'd and untreated.

It's all relative!

--------------------
Lymednva

Posts: 2407 | From over the river and through the woods | Registered: Apr 2006 | IP: Logged |

Lymetoo
Moderator
Member # 743

posted

42 yrs to get diagnosed....now up to 49 since being infected.

Welcome! [Smile]

--------------------
--Lymetutu--
Opinions, not medical advice!

Posts: 96239 | From Texas | Registered: Feb 2001 | IP: Logged |

TerryK
Frequent Contributor (5K+ posts)
Member # 8552

posted

Not really sure who your are talking about but yes, very lucky at one month. Use that opportunity that so many of us have not had.

Sparkle, I'm sorry for your 10 years of illness and for all of us who have had our lives changed forever in such an unpleasant way.

47 years to get diagnosed and my siblings and mother are not diagnosed yet but are sick too.

Terry

Posts: 6286 | From Oregon | Registered: Jan 2006 | IP: Logged |

Lisianthus
LymeNet Contributor
Member # 6631

posted

38 years undiagnosed.

Much better after 3 years of abx & herbs. Which I'm cotinuing to do.

Good luck,
Lisi

--------------------
yahoo 360 http://360.yahoo.com/my_profile-UqSNGiA9crUMRW.lFNGN5Jk-?cq=1

Posts: 986 | From Michigan | Registered: Dec 2004 | IP: Logged |

CaliforniaLyme
Frequent Contributor (5K+ posts)
Member # 7136

posted

Hey Sparkle- we are all lucky to be alive*)!!!!
You too*)!*)*!)!
!)*!*)!*)!*)!

I am glad we are all here.

--------------------
There is no wealth but life.
-John Ruskin

All truth goes through 3 stages: first it is ridiculed: then it is violently opposed: finally it is accepted as self evident. - Schopenhauer

Posts: 5639 | From Aptos CA USA | Registered: Apr 2005 | IP: Logged |

bettyg
Unregistered

posted

had lyme 38 years this xmas; tick OFF LIVE XMAS TREE got me!

34 yrs. misdiagnosed by 40-50 docs/specialists!

yes, 1 month is very lucky; THEY CAN BE CURED AND LIVE THE LIFE THE REST OF US ABOVE WISH WE COULD HAVE ENJOYED!! [Wink]

IP: Logged |

painted turtle
LymeNet Contributor
Member # 7801

posted

I was a real trooper through out my life living unknowingly with lyme, bart and babs since the 1970's in Massachusetts, at that time, age 8, 9 or 10.

Then the avalanche began to slide later in the 90's. Forget about it in 2003. Complete avalanche.

Diagnosed 2005 in July.

Over two years later, much damage has been done. But I still seek healing and to live a fruitful life.

--------------------
www.lymefire.blogspot.com

Posts: 855 | From United States of Mind | Registered: Aug 2005 | IP: Logged |

sparkle7
Frequent Contributor (5K+ posts)
Member # 10397

posted

Good to hear some of you with chronic Lyme ae getting better!

I've been treating mine since February & I still am just as ill.

At least I know what I'm treating.

I guess it's just going to take time.

Seems like it's never going to go away...

Posts: 7772 | From Northeast, again... | Registered: Oct 2006 | IP: Logged |

painted turtle
LymeNet Contributor
Member # 7801

posted

Well, Sparkle, your signature quote from Lau Tzu says it all, doesn't it?

It DOES take time.

I'm going to write that quote down, I like it so much!

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www.lymefire.blogspot.com

Posts: 855 | From United States of Mind | Registered: Aug 2005 | IP: Logged |

sparkle7
Frequent Contributor (5K+ posts)
Member # 10397

posted

Sorry - I meant this to be a reply to someone's post about finding out they had Lyme afer 1 month & about the abx treatments.

Sorry for the confusion.

Posts: 7772 | From Northeast, again... | Registered: Oct 2006 | IP: Logged |

CaliforniaLyme
Frequent Contributor (5K+ posts)
Member # 7136

posted

BettyG- never KNEW that! WOW- what a sucky way to get Lyme!!!!!!!!!!!!!!!!!!

--------------------
There is no wealth but life.
-John Ruskin

All truth goes through 3 stages: first it is ridiculed: then it is violently opposed: finally it is accepted as self evident. - Schopenhauer

Posts: 5639 | From Aptos CA USA | Registered: Apr 2005 | IP: Logged |

Lymetoo
Moderator
Member # 743

posted

quote:
Originally posted by sparkle7:
Sorry - I meant this to be a reply to someone's post about finding out they had Lyme afer 1 month & about the abx treatments.

Sorry for the confusion.

Man, I was wondering what happened!!!! Thanks for explaining that to this curious person!! [Wink]

And welcome! [Cool]

--------------------
--Lymetutu--
Opinions, not medical advice!

Posts: 96239 | From Texas | Registered: Feb 2001 | IP: Logged |

bettyg
Unregistered

posted

sarah, yes, it sucks being bitten by a tick off a live xmas tree!

i was telling sommeone this at a CELIAC meeting tonight, and they were dumbfounded! [Mad]

IP: Logged |

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