CaliforniaLyme
Frequent Contributor (5K+ posts)
Member # 7136
posted
Please send him a note if you can (not under comments but where you send note_. I tried to send note but I have never been on MySpace before and did somthing wrong!! I think this guy may not be connected to the Lyme community and is a LYMIE LONER!!! I htink he needs to be HERE or at least know he COULD be!!! If anyone can, please send him an encouraging note!!! I tried!!! he is apparently indigent and wheelchair bound-
But I am worried that he has been told there is no treatment for his Lyme-!!! Many people all over US but in CA are told there is no further treatment and I am worried this guy is one of them!!! because he doesn't mention any plan for treatment-
Here's Gavin Peters web page at My Space- it has a video of him skating before he got sick- and you can write him a get well note*)!*)!)! & fill him in on possible resources!!!
Give a fellow Lymie some love*)*!)*!)!*! Best wishes, Sarah
FOR GAVIN's Latest Blog Entry
A good friend of mine put this page up for me, but I wanted tell you a little bit about myself. Thanks in advance to everyone who reads this. In 1998 I started noticing problems. I was seemingly healthy and working at skatestreet when I started having problems with blurred vision and my balance. From then on, my life has been like a roller coaster that sometimes I still don't believe I'm living. In 2002, I had to quit working and I have never been able to go back since. In 2003, I was diagnosed with MS and finally in 2005, I was diagnosed with Lyme Disease which is what I believe has caused all of my problems. Because it went undiagnosed for 10 years, I now live with severe vision problems, extreme fatigue, tremors in my hands and my legs. I have been in a wheelchair for a year and a half and unable to do almost everything I used to. Looking back, I think I was bit by a tick in 1995 in Ojai, where Lyme Disease is widespread. Although my passions and my freedoms were taken away from me, I know there is a reason I am going through all of this I am super thankful that I have the greatest friends who have been there when I needed them. It has made these really hard times so much better.
-------------------- There is no wealth but life. -John Ruskin
All truth goes through 3 stages: first it is ridiculed: then it is violently opposed: finally it is accepted as self evident. - Schopenhauer Posts: 5639 | From Aptos CA USA | Registered: Apr 2005
| IP: Logged |
CaliforniaLyme
Frequent Contributor (5K+ posts)
Member # 7136
posted
For all we know this guy has been told there is NO treatment!!! He sounds like he is not in any kind of treatment. I was told after 1 month of abx that there was no further treatment!!! So that is why I want him to know there is treatment!!!!!!!!!!! MySpace keeps not letting me do the email thing to him!!! Agh!!!!
-------------------- There is no wealth but life. -John Ruskin
All truth goes through 3 stages: first it is ridiculed: then it is violently opposed: finally it is accepted as self evident. - Schopenhauer Posts: 5639 | From Aptos CA USA | Registered: Apr 2005
| IP: Logged |
heiwalove
Frequent Contributor (1K+ posts)
Member # 6467
posted
hi sarah,
you have to have a myspace account yourself to email people through the site. i'll send him a note. thanks for finding him, and for caring so much, as you always do.
tdtid
Frequent Contributor (1K+ posts)
Member # 10276
posted
GOOD FIND. I don't have a My Space account but know that my college aged daughters do. Do we need to have an account to write to someone on here, which may be why yours didn't seem to work?
I don't know enough about that service, but hopefully someone with an account and help. Good job, Sarah.
Cathy
-------------------- "To Dream The Impossible Dream" Man of La Mancha Posts: 2638 | From New Hampshire | Registered: Oct 2006
| IP: Logged |
heiwalove
Frequent Contributor (1K+ posts)
Member # 6467
posted
i just wrote him a LONG email, directed him here and to the LDA site, suggested he post in seeking a doctor and check out the support group in his area.
i told him a bit about my story, and made sure to emphasize that there's so much hope!
CaliforniaLyme
Frequent Contributor (5K+ posts)
Member # 7136
posted
YAY!*))!*! THANK YOU HEATHER!*)*!)*!THANK YOU!*!*)!)*!!*)!*)!*)!*)!*)!*)!*)!*)!*)!*!)*!)*!)*!)*! I just worried about him reading that- and you have allayed my fears that he does not know about help*!)*)!! THANK YOU)!**! Now I can go enjoy the day treatment has given me*)!*! & go to the playground with my 2 year old*)!!
THANK YOU!)*!*)!)*!!! Best wishes, Sarah
-------------------- There is no wealth but life. -John Ruskin
All truth goes through 3 stages: first it is ridiculed: then it is violently opposed: finally it is accepted as self evident. - Schopenhauer Posts: 5639 | From Aptos CA USA | Registered: Apr 2005
| IP: Logged |
3greatkids
Frequent Contributor (1K+ posts)
Member # 3838
posted
Sarah,i am so glad you are here on Lymenet. You have such a big heart and have helped so many.
I'll touch bases w/ this poor guy.
Have fun at the playground!
Posts: 1076 | Registered: Apr 2003
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
Topic Closed
![[Smile]](smile.gif)
Printer-friendly view of this topic