hshbmom
Frequent Contributor (1K+ posts)
Member # 9478
posted
Hello lyme fighters....my daughter is having a terrible time with nausea this week. She also has a sour stomach most of the day. She doesn't feel like she's having slow stomach emptying.
She was prescribed phenergan, up to 50 mg, but it doesn't touch the nausea. She's tried the kind you rub in your skin and the little torpedos.
She's in more pain than usual, can't sleep, and is having a terrible time this week...on top of a miserable period (9-12 heavy days).
You know a kid is miserable when they beg you to take them to the doctor or the ER.
The pediatric GI suggested a bottle of magnesium citrate? solution (green bottle of stuff used for colonoscopy prep). She was concerned she might be getting backed up again. My daughter seems to have occasional digestive problems with "Bell's Palsy of the Gut" due to vagal nerve involvement.
Maybe this is gluten intolerance/food allergy...she has a hard time with oatmeal, wheat, eggs & milk.
Of course, the daily pain medicine can cause some of these symptoms.
There's never a dull moment in the Lyme world.
Posts: 1672 | From AL/WV/OH | Registered: Jun 2006
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Aniek
Frequent Contributor (1K+ posts)
Member # 5374
posted
I had constant nausea that was diminished when I discovered food sensitivities. Unfortunately, the lab I used no longer does testing. But one of the biggest culprits turned out to be lemon, which I would never have discovered.
Any chance you can get your daughter to do an elimination diet? It's really hard to follow, but can make a huge difference.
My doctor recently told me that Taurine helps with nausea. It's an amino acid.
-------------------- "When there is pain, there are no words." - Toni Morrison Posts: 4711 | From Washington, DC | Registered: Mar 2004
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merrygirl
Frequent Contributor (1K+ posts)
Member # 12041
posted
Sorry to hear that she is still having a rough time. Did you look into Zofran at all??
I dont have any advice, but thought I would send my thoughts her way.
I hope she finds something to help soon!!!!
Melissa
Posts: 3905 | From USA | Registered: May 2007
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CaliforniaLyme
Frequent Contributor (5K+ posts)
Member # 7136
posted
This may be totally unhelpful but you never know!! With my first successful pregnancy, my older daughter Evan, I had terrible chornic nausea with vomiting!!! The doctor finally told me to eat: salty plain potato chips. It DID help, first thing which did, after lots of things which hadn't (tried them all, sea-bands, ginger everything, nothing helped_!!_).
Anywayz- you never know-
plain salty potato chips!!! Hope it works- Best wishes, Sarah
-------------------- There is no wealth but life. -John Ruskin
All truth goes through 3 stages: first it is ridiculed: then it is violently opposed: finally it is accepted as self evident. - Schopenhauer Posts: 5639 | From Aptos CA USA | Registered: Apr 2005
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sixgoofykids
Honored Contributor (10K+ posts)
Member # 11141
posted
Sarah, ROFL! When I was dropping weight and everything bothered my stomach, I LIVED on Ruffles! I wanted to eat healthier, but it was the only thing I could eat.
hshbmom, is she being treated for Bart? Once I treated Bart, all my GI issues went away within a few weeks.
-------------------- sixgoofykids.blogspot.com Posts: 13449 | From Ohio | Registered: Feb 2007
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posted
When that happens to my son, I give him digestive enzymes with every meal and probiotics between meals. He drinks ginger tea made with hot water, fresh ginger root and raw honey. Sometimes it takes a little time and it might be a good idea to stay on the stuff for a while until the digestive flora is rebalanced.
If that doesn't work, I juice cabbage and carrots with apples. He does not like the taste, but it works every single time. It's the cabbage that does the job, the other two are just to sweeten it up.
As for the periods, my daughter has that problem too. I finally got her on the pill because her hormones are just so messed up. Her acne is bad but the pill is helping.
Both the kids have hormone problems, adrenal and thyroid from lyme. We are working on getting them balanced but they are teenagers so it's really hard.
I hope you find a solution soon. It's hard to watch your kid go through this stuff. Good luck.
Posts: 8 | From CT | Registered: Jul 2007
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AZURE WISH
Frequent Contributor (1K+ posts)
Member # 804
posted
Has she tried reglan (it is a prescription)?
posted
This is my oldest, teen also, biggest symptom and issue that creates so much for her, along with the periods...
colonoscopy and endoscoppy results - ulcers but NO H-pylori, so I insisted on WB - POSITIVE
She has been on calcafate for a month and that seems to work if she takes it 2xs per day. If she slacks off at all for even 1 day, it goes right back up again...
-------------------- Seeking renewed health & vitality. --------------------------------- Do not take anything I say as medical advice - I am NOT a dr! Posts: 830 | From TN | Registered: Aug 2007
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Dave6002
Frequent Contributor (1K+ posts)
Member # 9064
posted
I had nausea and GI problem, which were my major debilitating symptoms, and are gone now with Bart treatment(Rifampin).
Posts: 1078 | From Fairland | Registered: Apr 2006
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AliG
Frequent Contributor (1K+ posts)
Member # 9734
posted
babesia?
drinking full glass of water with meds?
not laying down or reclining more than 45 degrees for an hour after meds or food?
Chamomile tea & Rooibos (Red tea)?
ginger chews?
Campbell's Noodle Soup? (salty)
lettuce leaves dipped in vinegar?
-------------------- Note: I'm NOT a medical professional. The information I share is from my own personal research and experience. Please do not construe anything I share as medical advice, which should only be obtained from a licensed medical practitioner. Posts: 4881 | From Middlesex County, NJ | Registered: Jul 2006
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hshbmom
Frequent Contributor (1K+ posts)
Member # 9478
posted
I appreciate all of your suggestions. I needed the reminder to do these simple things.
Sarah, I have a Relief Band around here somewhere...I used it for morning sickness. It may help my daughter.
Merrygirl & Azure I may ask the PCP tomorrow if he thinks Zofran or Reglan will help.
Dave & 6 Kids My daughter has been on Bartonella treatment recently...plaquenil, zith, septra, etc...she's taking a break right now.
CJ What is calcafate? ..like carafate??
She was positive for H. pylori last year...and was given a treatment very similar to Lyme treatment & herxed very badly. That confirmed to me that she had Lyme.
I should have thought of ginger & other morning sickness remedies...had plenty of that problem in the past.
MKP How old are your teens? My daughter has adrenal problems too.
I have digestive enzymes...opened the bottle today for my other teen (son) with Lyme.
Aniek, an elimination diet is a great suggestion.
My daughter takes the PEG solution to get things moving...Miralax. It helps. She had to drink almost a gallon last fall when her guts quit working.
Ali, my daughter hasn't been treated for babesia...just Lyme & bartonella so far. Why would lettuce leaves dipped in vinegar work? I think that would make her feel more acidic.
Posts: 1672 | From AL/WV/OH | Registered: Jun 2006
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ByronSBell 2007
Unregistered
posted
I have had chronic nausea ever since getting sick with lyme. I did all the diet stuff and took tons of probiotics, treated for yeast, tried all the natural remedies. None of it helped, one thing that did *help* some was Ativan, it's a anti-anxiety med that helps me sometimes and dont quite understand why...
The only thing that has helped a little is just treatment for lyme, been treating for over 10 months now and it has finally improved some
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hshbmom
Frequent Contributor (1K+ posts)
Member # 9478
posted
My daughter saw her Urgent Care physician today. He prescribed tigan...an old drug used when phenergan doesn't work. He also gave her some samples of medicine for acid reflux.
He thinks she might have silent reflux. She had a tender stomach when he felt her belly.
If she's not better in a week he wants her to see the pediatric GI.
He didn't prescribe Reglan because of the potential side effects. He didn't want to give Zofran; I don't remember why.
He gave her a list of things to avoid in case her pain & nausea are due to reflux.
He said she could take half a tablet of Lunesta to help her sleep.
This has been going on at least 9 days now. She's so miserable. No one knows how miserable unless you've dealt with this, as you all have.
Have a great Thanksgiving.
Posts: 1672 | From AL/WV/OH | Registered: Jun 2006
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Vermont_Lymie
Frequent Contributor (1K+ posts)
Member # 9780
posted
I had a couple of days of terrible nausea this fall, and a couple of days of throwing up. My nurse told me of a brilliant solution that worked incredibly well for me -- benadryl!
Benadryl, an antihistamine, stopped both nausea and throwing up very quickly. It worked amazingly well, despite that the episodes were probably caused by different reasons -- one day was probably a virus, another was eating bad food, and other times might have been herxing.
The major downside for me at least is that one can become very sleepy after taking benadryl. But I would rather feel tired than extremely nauseous anyday! Hope your daughter feels better.
Posts: 2557 | From home | Registered: Aug 2006
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AliG
Frequent Contributor (1K+ posts)
Member # 9734
posted
About the lettuce leaves dipped in vinegar...
Someone had told me to do this when I was pregnant & it actually worked. I actually have at times taken a small "shot" of apple cider vinegar & followed with water. Just don't overdo it, because you want your body to produce more base enzymes than needed for the acid you put in.
I think the small dose of acid causes the body to produce base digestive enzymes.
Also remember the lactic acid in drinking a lot of milk can be irritating in the long run, even though it feels soothing at first.
-------------------- Note: I'm NOT a medical professional. The information I share is from my own personal research and experience. Please do not construe anything I share as medical advice, which should only be obtained from a licensed medical practitioner. Posts: 4881 | From Middlesex County, NJ | Registered: Jul 2006
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