LymeNet Flash: IV question - 6 weeks in -communication problem= no ABX tomorrow- am I OK?

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»	LymeNet Flash » Questions and Discussion » Medical Questions » IV question - 6 weeks in -communication problem= no ABX tomorrow- am I OK?

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Topic: IV question - 6 weeks in -communication problem= no ABX tomorrow- am I OK?

AliG
Frequent Contributor (1K+ posts)
Member # 9734

posted

I've had six weeks of Ceftriaxone. There is some kind of communication problem between the Dr's office & the infusion company.

I couldn't seem to get it resolved today & now I have no supplies for infusion tomorrow.

Can someone please reassure me that this is no big deal because I'm REALLY upset right now.

Thanks.
[Frown]

Ali

PS- I'M HATING THIS!!!!! This whole IV thing from the beginning has been one problem after another for me. [Mad]

The only thing that's been keeping me glued together is that I've been hearing that everyone has made such great improvements on this.

I've really had enough of dealing with all the problems I've been having. Everytime I think I've tackled all the issues & things are going to settle down, something else pops up.

It's like there's a giant freaking black cloud hanging over my head.

Now I have to wait for this Dr's office to call me back about this? I'm still waiting for her to call me back about the chest pain from LAST MONDAY!!!!!

Sorry, I needed to vent. [shake]

Please tell me missing a dose is no big deal. It's a slow replicating bacteria right. People pulse stuff. I'm going to be OK, right.

This is still REALLY hard to maintain patience with.

[Frown]

--------------------
Note: I'm NOT a medical professional. The information I share is from my own personal research and experience. Please do not construe anything I share as medical advice, which should only be obtained from a licensed medical practitioner.

Posts: 4881 | From Middlesex County, NJ | Registered: Jul 2006 | IP: Logged |

Cobweb
Unregistered

posted

Are you pulsing the Rocephin? I was four days on-three days off, so I should think missing a dose would be okay.

I have monthly appointments with my LLMD so new orders are written and faxed in before I even leave the office.

I guess for next time you can call ahead of time to be sure the order is in place. But it sounds like your Doctor's office is not very responsive.

And please tell me you are on actigal for your gallbladder-or is that something that's already gone?

Cobby

IP: Logged |

Vermont_Lymie
Frequent Contributor (1K+ posts)
Member # 9780

posted

Hi Ali,

Hang in there!

In my non-medical, I-am-not-a-doctor opinion, (based on speaking with the lyme literate doctors though about this), missing a day or two should not hurt treatment at all.

Hope next week goes easier.

Posts: 2557 | From home | Registered: Aug 2006 | IP: Logged |

AliG
Frequent Contributor (1K+ posts)
Member # 9734

posted

I just got a call-back from the Dr's office.

The infusion company billing dept was gone for the day. (Of course they were)

If they got the approval they'll send the supplies tomorrow. If not, they'll send them whenever they get the approval, so I should just just continue with maintenance of the PICC until I get the ABX.

She told me that, since I already have it in my system, I should be fine.

I would like to ask this:
Why then is it important for me to try to infuse at the same time each day??!!! [bonk]

Posts: 4881 | From Middlesex County, NJ | Registered: Jul 2006 | IP: Logged |

AliG
Frequent Contributor (1K+ posts)
Member # 9734

posted

Thanks guys, that's what I needed! [group hug]

I'm alright, I'm OK......

I forgot you were pulsing Carol. That does make me feel better.

Actigall? Of course not. Why would I want to protect my gallbladder? [bonk]

(Thanks for reminding me. I go back next Monday & wanted to ask about it.)

I really wish I could click my ruby slippers together three times.
I wish I was home! I wish I was home! I wish I was home!
I think I'm not in LLMD-land anymore. [shake]

Wait a minute!!!! She just told me he's only in the office Tuesday & Thursday afternoons. My appointments have been on Mondays.
WHO THE HECK HAVE I BEEN TALKING TO?!!!!!

Oh this is rich. It just gets funnier & funnier all the time. [bonk]

Posts: 4881 | From Middlesex County, NJ | Registered: Jul 2006 | IP: Logged |

magaro
Member
Member # 12948

posted

I am currently doing Rocephin (2Grams) and have pulsed throughout as follows:

Week 1 & 2 - everyday
Weeks 3-7 - every other day
Week 8 (now) - 2 days on; 1 days off; 2 on; 1 off, etcc

The pattern change was due to bad herxing as well as liver issues. I also am on Actigall.

I am no doc, but I am pretty sure you are okay missing a day, based on what I am doing. I was also on either minocycline or doxycycline every day during this time.

Good luck

Posts: 48 | From New Jersey | Registered: Aug 2007 | IP: Logged |

AliG
Frequent Contributor (1K+ posts)
Member # 9734

posted

Thanks Magaro. [Smile]

I'm not on any orals. [Frown]

Carol, were you on any orals along with the IV?

[confused]

Posts: 4881 | From Middlesex County, NJ | Registered: Jul 2006 | IP: Logged |

Cobweb
Unregistered

posted

quote:
Originally posted by AliG:
Thanks Magaro.

I'm not on any orals.

Carol, were you on any orals along with the IV?

Pulsed Flagyl , took Minocycline for two months, Arteminisin(herbal) and also Rifampin.

LLMD always has me on two antibioitcs concurrently.

Cobby

IP: Logged |

AliG
Frequent Contributor (1K+ posts)
Member # 9734

posted

Oh fluke!! [shake]

Posts: 4881 | From Middlesex County, NJ | Registered: Jul 2006 | IP: Logged |

feelfit
Frequent Contributor (1K+ posts)
Member # 12770

posted

AliG,

I am on IV Rocephin 2grams, 2xdaily. For Six weeks. No pulsing, no Actigall, no mention of probiotics.

My Doctors nurses, the infusion co., and my home health nurses are all very accessable, but I too am wondering if all of the bases are being covered.

I am taking Theralac on my own, thanks to all of the advice here. I see my Doctors nurse tomorrow and am going to mention Actigall....you should too!

I hope that everything gets settled.

Rhonda

Posts: 3975 | From usa | Registered: Aug 2007 | IP: Logged |

feelfit
Frequent Contributor (1K+ posts)
Member # 12770

posted

I'm not on any orals either.

Posts: 3975 | From usa | Registered: Aug 2007 | IP: Logged |

CaliforniaLyme
Frequent Contributor (5K+ posts)
Member # 7136

posted

I was on Rocephin with no pulsing either Feelfit- and I lost my gb- don't miss it, but still, some people do*)!! Definitely get on ActiGall*!*)!)*!
Yup, AliG, most people pulse so one dose is no big deal!!!!!!!!!!!!!!!!! Nor one day- nor two*)!
You are okay*!!!
Best wishes,
Sarah
p.s. I HATED Iv until month 7, now I LOVE IV!)**!
Hope it does for you what it did for me, doesn't do it for everyone but I wish it did(*)!

--------------------
There is no wealth but life.
-John Ruskin

All truth goes through 3 stages: first it is ridiculed: then it is violently opposed: finally it is accepted as self evident. - Schopenhauer

Posts: 5639 | From Aptos CA USA | Registered: Apr 2005 | IP: Logged |

AliG
Frequent Contributor (1K+ posts)
Member # 9734

posted

Thanks everyone. [group hug]

I still didn't see anyone say they pulsed the Rocephin without being on another ABX [Roll Eyes]

, but the approval went through. My ABX will get out to me today so it will be pretty late, but not missed.

Man I need a nap!

Thanks again!
[hi]

Ali

--------------------
Note: I'm NOT a medical professional. The information I share is from my own personal research and experience. Please do not construe anything I share as medical advice, which should only be obtained from a licensed medical practitioner.

Posts: 4881 | From Middlesex County, NJ | Registered: Jul 2006 | IP: Logged |

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