posted
I have been wondering for the last 6 months what is considerd nuerological symptoms. I am going to list my symptoms and hopefully some of you can tell me if its nuerological in your non-medical opinion.
My 1'st symptom that made me aware there was something wrong was my vision. I would start to see yellow dots or a flash in my periphial mostly in right eye.
I was extremely tired and no matter how much i slept it didnt help.
What brought me to the e.r. was i was driving to the twin cities and came over a hill and seen a flash of light or something. Then my vision went zig zaggy and had a feeling of falling. Like in an elevater when it stops. I pulled over and started crying uncontrollably and couldn't talk for about a minute. It was over as fast as it started.
Stroke Right.
Everything was fine ekg,eeg, catscan, except mri. Had a small inconsitency on one side of my brain. Could be MS, syphilis,normal or lyme.
Test come back positive Labcorp Elisa and Western Blot for lyme. But the IGG was negative although the IGM was positive.
At this point I dont know how long or what i had.
I didnt realize how bad the brainfog was untill they put me on recephin in hospital while they did the spinal tap.
Spinal tap comes back negative so they give me doxy.
Since then i have a whole list of new symptoms even after another 2 months of doxy.
Dosage Seems a little inadequate according to most of you here but that is all i could get.
Large Joint problems and aches ie elbow knees . Adrenaline rush attacks about every ten minutes.
Still see yellow flash and floaters.
Dizzy Spells
Twitches as i listed on a previous post.
Depression (not in my opinion but you know the story)Easy OUT
And I guess the whole point of me asking this is do you think IV antibiotics are the next step because 2 courses of oral doxy hasnt done much for me. Feel better for awhile but seem to fall back in.
Oh I forget to mention I am cured accoring to my Internal MD. Dont believe me, just ask him.
Posts: 13 | From Granite Falls MN | Registered: Oct 2007
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posted
Yes!!! It sounds like neurolyme. Please get yourself to an LLMD who will treat you right away. It sounds like you responded well to IV rocephin since you mentioned you noticed brain fog lift.
Please find a doc right away to get you the correct treatment. You have all the necessary positive tests, neuro symptoms, and even something on your MRI. Maybe you could even find another duck to give you a month of rocephin if you are lucky but an LLMD is the way to go!
posted
hmmmm....most research I have read is IV Rocephin is best for neuro issues. I am in my 2nd week of it now, recommend it. Symptoms are still there but some things are starting to move out too. Of course they flared up real good before I noticed any of the moving out LOL
My chest wall pain is all but gone (should I have said this outloud!?!? )
-------------------- Seeking renewed health & vitality. --------------------------------- Do not take anything I say as medical advice - I am NOT a dr! Posts: 830 | From TN | Registered: Aug 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
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sorry to hear what you are going through.
I hope you can see a LLMD. The IgG and IgM are often swiched from what is expected.
a spinal tap should never be decisive if negative for lyme.
In the ILADS treatment guidelines (current, or 2005 or 2002) it is stated that spinal taps/lumbar punctures for CFS are usually not a good indicator.
The big question is this: How long had you had any signs or symptoms? You've had neuro the last 6 months. What about before that?
The antibiotics and combinations of antibiotics depend on how long Lyme's been working in your body and what your signs and symptoms are. Plus the state your body is in.
After one year it is termed "chronic Lyme disease" and it's a whole different deal.
Flashing lights and zig-zags: please be sure to see a recent post with zig-zag in the title--it's a good post for you. Zig-zags are a migraine with a headache, or migraine and no headache: migraine of the eye.
Flashing lights: did you see an eye doctor right away? That's important. Flashing lights in the eye can mean Lyme or MS or both or natural aging. If it's caused by Lyme, that's neuro.
You do have Lyme disease: you tested positive for it. Period!
Lyme can cause MS. They are indistinguishable on a brain MRI. But steroids prescribed for MS will hurt you, so please don't let a doc do that to you.
Fatigue: could be neuro in the brain or neuro in the GI tract, or both.
Neuro is brain things going on in the central nervous system or peripheral nervous system, but if you haven't had Lyme that long, then the neuro signs and symptoms will get worse without treatment: cognitive, short-term memory, possible headaches, tinnitus, getting lost! Many neuro.
Joints: "Lyme arthritis."
Twitching is definitely neuro Lyme.
I suggest, Coping With Lyme Disease, by Denise Lang, if nothing else, for the neuro information, and the signs and symptoms list. Is it at your library?
Also, see www.ILADS.org, "Treatment Guidelines", Dr. Burrascano's 33 pages of hints for 2005: the signs and symptoms checklist--for all the many neuro problems that can happen and will happen further, without proper treatment, from a Lyme-literate MD (LLMD.)
See recent posts for obtaining an LLMD. You need help with that, for example, a local Lyme Support Group. See the top of this page, far left, "Support Groups."
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
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Pennington,
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