posted
Does anyone here ever feel like their bones are going to explode? That's about the only way I can explain the pain I am in every day.
I think I would much rather be in labor. At least I would know it would eventually go away.
What helps with this? The only time I feel any relief, is when I'm in a hot bath. It takes the edge off a bit.
I do take percocet for pain but by about 4:00 in the afternoon I can hardley move. Also being from Iowa, this cold weather is about killing me.
Posts: 111 | From northeast Iowa | Registered: Oct 2006
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posted
i know just what you mean, the bone pain is so so deep and burning and often sharp and feels like it will rip thru my skin! i take oxycontin which takes the edge off alittle, hope you get some better relief, i guess the only way to make it go away is with the antibiotics, Radha
Posts: 392 | From New York | Registered: Dec 2005
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CaliforniaLyme
Frequent Contributor (5K+ posts)
Member # 7136
posted
Ehrlichiosis aka Anaplasmosis goes into the bone marrow and can affect mast cells and all sorts of stuff!!! It can also be compeltely blood negative even in acute fatal cases- So make sure you have been treated for it if you have symptoms- the CDC Ehrlichiosis page says it is a clinical diagnosis-
It can only be treated with Doxycycline or Rifampin- the GREAT news is that with treatment it is the easiest TBD to get rid of!*)!!!!!!! Usual for Ehrlichiosis is 400 mg Doxy for at least 6-8 weeks!!
Lyme and Babesiosis can cause bone pain too but Ehrlichiosis far and away has the most impact on bone marrow/bone so if you have those symptoms and Lyme talk to your doctor about it!! Sincerely, Sarah
-------------------- There is no wealth but life. -John Ruskin
All truth goes through 3 stages: first it is ridiculed: then it is violently opposed: finally it is accepted as self evident. - Schopenhauer Posts: 5639 | From Aptos CA USA | Registered: Apr 2005
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tailz
Unregistered
posted
I had the most excruciating back pain - it felt like it was all radiating from a bone near the center of my back - and no doctor even offered me an aspirin for my pain, so I know where you're coming from.
What really caught my eye though was your mention of how your pain increases after 4pm. Mine does, too - also, weekends and holidays, with summers being slightly less predictable. I really do suspect you are electrosensitive like I am.
Maybe try this - pick a time of day when you are feeling less pain, and then stand a few feet away from someone using a cell phone to see if your pain increases. I happen to live between my neighbor and a cell phone tower, so whenever he fires up his cell phone on his deck (or any neighbor beyond), my pain increases every time without fail.
I also happen to live in a house with a naturally high magnetic field from the power lines. You might want to look into getting a gaussmeter and RF meter to measure this for yourself.
I have some info on electrosensitivities and the symptoms in my signature. You can PM me if you'd like more info on the subject. I have a ton of it.
Antibiotics have helped some (Ceftin and then minocycline probably helped the most), but I think there is more to chronic Lyme than a spirochete and some coinfections, as I am by no means pain-free, and like you, the only thing that has helped is a hot baking soda bath, but then the pain quickly returns. Sleep helps, too, though I have trouble sleeping. Hope you feel better soon.
I was going to say the only thing worse than bone pain was eye pain, but I take that back. Bone pain is probably worse. I was blessed with both.
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tdtid
Frequent Contributor (1K+ posts)
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posted
Thank you for starting this topic. I have horrid bone pain but have to admit I never thought to separate it from the rest of the pain.
Sarah, you had mentioned Ehrlichiosis could cause some issues that may be related. I tested negative for that co, but have learned enough that this doesn't mean anything with tick borne illnesses.
I guess my question is, my doctor started me on amoxy, so I never even went the doxy route. I'm treated for bart and babs but still fight bone pain off and on. Is it likely that the bone pain doesn't stem from babs, bart or lyme or could that still fit in those categories?
Cathy
-------------------- "To Dream The Impossible Dream" Man of La Mancha Posts: 2638 | From New Hampshire | Registered: Oct 2006
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posted
Thanks Sarah, I was tested early on for ehrlichoiosis, it was negative. Where can I get a copy of the CDC ehrlichoiosis page and a symptoms list? Oh yeah, Glad your back!!!!!!
Tailz - never thought of the electrosensitivity. I'll have to try that little test. It makes sense, for Thanksgiving I was at my sisters house, there was at least 7 cell phones there. My arms hurt so freaking bad, I thought I was going to lose my mind.
Posts: 111 | From northeast Iowa | Registered: Oct 2006
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posted
from all that I've read about Bartonella, bone pain is supposed to be a flag for that disease, since it infects the rbcs, and where are the rbcs made? yup, the BONE marrow!which is why there is bone pain during infection with Bart. even though the tests have been neg., you can have it chronically (why does that word sound familiar?) seems like ALL the tickborne diseases can be chronic-ugghh.
-------------------- ~*~ Carole ~*~ Young at Heart Grandmother of 4 Posts: 140 | From Morristown, NJ, USA | Registered: Jan 2004
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....maybe some menthal campher...you konw that icy heat stuff that athletes use...
also arnica...the oil and rub it on the area- might help the pain.. (at a health food store)..
just a thought...
My LLMD says my bone pain that severly increased with BABS treatment and new burning skin and twitches was BART...
so I'm starting Rifampin....
best to you! lots of Love~
Fawne
-------------------- Energy flows where attention goes~ Posts: 302 | From Kauai | Registered: May 2007
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Beverly
Frequent Contributor (5K+ posts)
Member # 1271
posted
Hi july,
I have had what I thought was bone pain, it was very painful. I hope your goes away soon, keep us posted okay.
That is very interesting Sarah, as my bone marrow is low.
So sorry to everyone else who has this pain also.
Posts: 6641 | From Michigan | Registered: Jun 2001
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map1131
Frequent Contributor (5K+ posts)
Member # 2022
posted
July, I love your screen name. Is your bone pain by chance only in the long bones of body? Like the shins & arms?
Pam
-------------------- "Never, never, never, never, never give up" Winston Churchill Posts: 6495 | From Louisville, Ky | Registered: Jan 2002
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CaliforniaLyme
Frequent Contributor (5K+ posts)
Member # 7136
posted
Here is CDC on Ehrlichiosis:
Treatment
Appropriate antibiotic treatment should be initiated immediately when there is a strong suspicion of ehrlichiosis on the basis of clinical and epidemiologic findings.
Treatment should not be delayed until laboratory confirmation is obtained.
Fever generally subsides within 24-72 hours after treatment with doxycycline or other tetracyclines. In fact, failure to rapidly respond to a tetracycline antibiotic argues against a diagnosis of ehrlichiosis. Preventative therapy in non-ill patients who have had recent tick bites is not warranted.
-------------------- There is no wealth but life. -John Ruskin
All truth goes through 3 stages: first it is ridiculed: then it is violently opposed: finally it is accepted as self evident. - Schopenhauer Posts: 5639 | From Aptos CA USA | Registered: Apr 2005
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