Ann-OH
Frequent Contributor (5K+ posts)
Member # 2020
posted
I would love to know what you think are the best articles on Ld misdiagnosed as ALS AND which are the best doctors who understand and treat this problem.
I got another appeal from someone whose friend was diagnosed with ALS and he seems to fit the Lyme picture more accurately. Sadly he lives in an area where, as far as I know, there are no doctors experienced with treating this kind of LD.
Do NOT, please, post any doctor's names here. Please send me a private message or an e-mail at [email protected].
I have some articles to send out and I will do a search here, but if you have heard of or have any thing that might be helpful, please post that here, so we can all learn.
-------------------- There is no wealth but life. -John Ruskin
All truth goes through 3 stages: first it is ridiculed: then it is violently opposed: finally it is accepted as self evident. - Schopenhauer Posts: 5639 | From Aptos CA USA | Registered: Apr 2005
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This report summarizes what we believe to be the first verifiable case of a significant and progressive motor neuron disease (MND) consistent with amyotrophic lateral sclerosis that resolved during treatment with i.v. ceftriaxone plus oral atovaquone and mefloquine.
The rationale for use of these antibiotics was (i) positive testing for Borrelia burgdorferi and (ii) red blood cell ring forms consistent with Babesia species infection. The patient has continued to be free of MND signs and symptoms for 15 months, although some symptoms consistent with disseminated Borreliosis remain.
Posts: 6286 | From Oregon | Registered: Jan 2006
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posted
Follow Terry K's lead. Low doses when starting on Ceftriaxone can be one of the keys... and avoiding hard herxes..
Posts: 70 | From AZ | Registered: Sep 2007
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shazdancer
Frequent Contributor (1K+ posts)
Member # 1436
Even more than the article, the references may help you. Dr. M (from Terry's post) presented at the ILADS conference. Though he is retiring, may still be the best source of information.
Regards,
Shaz
Posts: 1558 | From the Berkshires | Registered: Jul 2001
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