posted
Hi, I've been diagnoised since 2005 and been receiving chelation therapy for it. Doesn't seem to be stopping it completely??-been doing it for two years now! The only other part I wish would not happen is the untimely seizures! They come and go-usually in the early A.M. hours and last longer and longer. I started taking "cortef" (prednisone) and that seemed to keep "it" at bay,--but, now I've had to "up" the amount of prednisone! I also get rashes-especially on my arms but on my legs too. Do any of you get any of these symptoms and if so,--could you please tell me "how' you might remedy some of these horrible, painful (mostly) leg seizures??--or; Could this be something totally different? I've been diag. w/ High Aldolase, P-ANCA, CRP-134 and etc..."HELP!" Thank you very much-- Sincerely, Ballet1
-------------------- Sincerely, ballet1 Posts: 8 | From Florida | Registered: Nov 2007
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heiwalove
Frequent Contributor (1K+ posts)
Member # 6467
posted
i'm confused. chelation therapy is for heavy metals. have you been receiving any treatment for your lyme and possible coinfections? antibiotics, herbs, etc? have you been evaluated for coinfections? do you have an LLMD (lyme literate doctor)?
if you have chronic lyme, i don't think chelation therapy alone is going to do it. although for many it IS an important component.
posted
ballet 1, why are you on a steroid? that does not bode well if you have lyme. your "seizures" could be caused by lack of adequate electrolytes, particularly magnesium, which could have stemmed from the chelation therapy or a disease bacteria that utilizes the mag.et al. for it's reproduction.do you take adequate vitamins & minerals regularly? definitely works for me.right now i am in a bad flare-up or reinfection, and lack of magnesium is not something i enjoy.try taking a separate supplement of mag.malate & see if it doesn't make a difference,especially at bedtime(you'll sleep better,too).
-------------------- ~*~ Carole ~*~ Young at Heart Grandmother of 4 Posts: 140 | From Morristown, NJ, USA | Registered: Jan 2004
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heiwalove
Frequent Contributor (1K+ posts)
Member # 6467
posted
a lot of folks w/ lyme take cortef and don't seem to have a problem with it. it's a steroid your body makes naturally, i think, quite different from prednisone as far as i know. a small dose is supposed to help greatly w/ adrenal fatigue.
shazdancer
Frequent Contributor (1K+ posts)
Member # 1436
posted
Hi, ballet1, sorry to hear you are going through this. Are you seeing a Lyme-literate doctor (LLMD)? (S)he may be able to give you a better idea if your seizure activity is due to ongoing infection, vitamin imbalance, or something else. I would think that if you are on a steroid, you also want to be on an antibiotic, so the bacteria don't take advantage of a lowered immune system.
Take care,
Shaz, 'Nother dancer
Posts: 1558 | From the Berkshires | Registered: Jul 2001
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Geneal
Frequent Contributor (5K+ posts)
Member # 10375
posted
I take florinef. I used to take cortef. It is not prednisone.
What dosage do you take?
Sounds like you need to see a Lyme Literate Medical Doctor.
Hang in there.
BTW, welcome to the board.
Hugs,
Geneal
Posts: 6250 | From Louisiana | Registered: Oct 2006
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