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» LymeNet Flash » Questions and Discussion » Medical Questions » Letter from duck - INSULTING!

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Author Topic: Letter from duck - INSULTING!
lymebytes
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I went to my gyn last week, I recently posted he found the nodule(s)on my thyroid, so I am getting an ultra sound next week. Anyway.....

He had last seen me nearly 2 years ago, right smack dab in the middle of the dissemination of LD (after having cortisone shots) and my quest for an answer.

I admittedly was a wreck then, had seen many Md's, everyday the pain spread a little further, pain so severe & widespread I was on the verge of suicide, as no one could diagnose me. I had 4 bacterias and 4 viruses when all was said and done and who knows what damage all of this has created to my CNS, heart, etc. I shudder to think.

He never knew what the outcome was until I saw him this past week.

I explained the following: I have chronic Lyme and have treated with abx and am not improving at the rate I'd hoped, but I was severely sick by the time I was diagnosed and had 8 things wrong when I finally received help. It could take years before I am better, if I even do get better.

Strangely, he asked if I had been tested at "that lab in....." I finished his sentence, "Palo Alto? Igenex, yes." He said nothing but, it indicated to me he had heard of this lab, apparently not in a good way.

As I went on telling him my story, he looked at me with a look of disbelief, but listened, never verbally disagreed, only with his eyes and then I knew I had to go further. I explained the unreliable test, the CDC admitting nearly 1/4 million people were infected last year, that California is listed in the top 3 endemic regions according to the IDSA, that LD is now surpassed AIDS as the number one infectious disease and is the number one vector borne disease, etc., etc. ... all very convincing and I must admit, intelligently put together for such short notice on my part.

Today - I received a letter from him, well not a letter, but a note attached that reads, "This could be your source of information"...attached to a Stress Reduction Clinic flier! (Apparently everything I said went in one ear and out the other, he thinks all I need is a little stress reduction and my pain will vanish!) He said "8 classes and I will be a new person!"

OK, THIS IDIOTIC NOTE/FLIER STRESSES ME!!!!!!!!

After our long talk & explanation of all that happened to me he doesn't believe one bit of it and is trying to diagnose me. Accordng to him, all I need is to be in a MBSR (Mindful based stress reduction) class!

Why is it, that Md's will believe that "stress" can create "fantasy" pain and there are no such thing as chronic infections?

This makes me so mad, I can't tell you and now I shall reciprocate with ILADS fliers, Burrascano's treatment guidelines and I am printing out some information regarding the wickedness of this bacteria from the ILADS website.

This is why I vowed NEVER to see a mainstream Md again, but sometimes we have no choice. Here he is 2 years after my diagnosis, trying to subtly tell me I have been misdiagnosed.

I just can't believe this!! Someone tell me to calm down, or I may really need that stupid class!

[ 24. November 2007, 11:37 PM: Message edited by: lymebytes ]

--------------------
www.truthaboutlymedisease.com

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AliG
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quote:
Originally posted by lymebytes:

"This could be your source of information"


I'm confused. Is he saying that he thinks you've gotten your information from a stress clinic?

[confused]

You may want him to clarify what he meant by that note before reciprocating because that really seems to make no sense at all based on what you're saying transpired.

[confused]

--------------------
Note: I'm NOT a medical professional. The information I share is from my own personal research and experience. Please do not construe anything I share as medical advice, which should only be obtained from a licensed medical practitioner.

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lymebytes
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Hi,
No, he is saying that I don't have a 'chronic LD' infection (after all there is no such thing in his opinion) and that I have just been under stress the past 2 years!

He is suggesting that LLMD's have me brainwashed, there is nothing "physically" really wrong with me that a little stress reduction won't cure! [cussing]

I wasn't stressed until I received this insult!

I was diagnosed by the pres of ILAD's and told him that, he said, "Who told you about this doctor?" His tone indicating, I have been very misled.

--------------------
www.truthaboutlymedisease.com

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Lymetoo
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Exactly what I was going to post...I'm confused by This could be your source of information"

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--Lymetutu--
Opinions, not medical advice!

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Lymetoo
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He's nuts.

--------------------
--Lymetutu--
Opinions, not medical advice!

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lymebytes
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Confused? You aren't alone! So am I. He apparently didn't believe a word I said, and when he heard "Igenex" that set something off in his brain...you know "they all test positive through that lab" ha!ha!

I guess he thinks I am still looking for answers to my pain and sickness and it is all in my head! OF COURSE, why didn't I think of this a stress reduction class! Stupid me, taking all these antibiotics, when all I needed was to be de-stressed! [bonk]

--------------------
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cactus
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Can you find a new GYN? You don't need a doc to insinuate that this is all in your head, or to make you defend your medical choices.

If that was his intent - then if I were in your shoes, I'd be hunting for a new GYN.

My old GYN was skeptical, too, and kept trying to send me to Johns Hopkins and other duckie places. I politely said no, tried to educate him, then gave up and released it.

Got a few references from my LLMD for GYNs who would be more open-minded. That helped. Maybe that's an option for you, too?

It's not all in your head. Well, maybe some of the keets are in your head, of course, but you know what I mean!

--------------------
�Did you ever stop to think, and forget to start again?� - A.A. Milne

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cantgiveupyet
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In my experience GYNS are the WORST dr out there.

I had a serious infection that it took three to figure out and diagnose (and it was something the standard swab found) They thought I had anxiety, but the infection that went undiagnosed caused severe trigger points in my pelvic muscles and the exams were so painful. I proved it when i went to physical therapy.

They were stunned. it wasnt anxiety after all and im now told I had/have a severe case!! hahah, ya think, duh!!

I am still dealing with three years later.


Anyway, I am angry for you, because they just sux to put it bluntly. If you have pain most gynos think its anxiety. One actually said i was abused and supressing the abuse, she just would NOT let it go!!!!!

Out of all the drs the gynos abused me the most, I probably will be entering therapy for it at some point.

Im not suprised at all by his reaction.

I would find a new gyno. See an endo or your PCP for the nodules.

--------------------
"Say it straight simple and with a smile."

"Thus the task is, not so much to see what no one has seen yet,
But to think what nobody has thought yet, About what everybody sees."

-Schopenhauer

pos babs, bart, igenex WB igm/igg

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TerryK
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[Mad] [cussing] [rant] What cactus said.

I often find that female gyn's are more sympathetic - not always of course.

My gyn's husband goes hunting and 3 of his friends got chronic lyme disease. Her son was bit by a tick and she was a nervous wreck about it. This is in a State where we hear over and over that we don't have lyme so I was really surprised to hear this.

Terry

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lymebytes
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My thoughts exactly, I need a new gyn and Primary for that matter. My gyn is near retirement, I may not see him again.

But he will receive a boat load of information before I let this go and then he can decide for himself.

He even asked me questions like, "Was there a death in the family, some major emotional upset?"

I said "No, nothing, I was bitten by a tick and now have some of the worst infections known to man, I am not crazy, I have a chronic bacterial infection".

Funny, I never knew that a loss or emotional upset could bring one to their knees in agonzing physical pain so severe you wished you were dead.

I have suffered loss/death of family & friends in the past, yes I was sad but I didn't break out with a case of LD! I've broken bones, herniated disks, been in car wrecks, given birth and all of that rolled into one day doesn't equal a day of lyme pain.

When will these ducks ever get it? Probably when they or someone close to them gets bitten!

You don't get lyme, until you get lyme, someone smart once told me.

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bettyg
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[cussing] bytes,

did he send you a copy of his MEDICAL report for this visit? what did it say....same thing as shown below in your post.


you have a right to file a RETRACTION for correcting whatever was wrong in his medical reports. write it up, and take it to their records dept. asking that it be made part of the file.


if you go to a large city clinic, ask if they have a person who handles complaints against drs. and/or their meical reports?

i've done this 2-3 times; 1 is up in air right now with hospitl ER!!

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Truthfinder
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Lymebytes, I would be very wary in future dealings with this doc in some respects .....

Like Ali, I find the note he sent you very odd - the way he phrased it is very peculiar - but I guess you have to assume that he's telling you that you have been mislead and a little stress reduction will fix you right up.

But that's what worries me. I wish you hadn't told him who diagnosed you. Maybe Lyme docs are a little more protected in California, but I would be concerned that he might contact the state medical board and lodge some kind of complaint against your LLMD if he really believes that your diagnoses and type of treatment are somehow inappropriate.

The first thing I would do is get a copy of the office consult notes from this doc - find out what he put in your file. I would do that before I sent him anything.

I like your idea of sending him the info you mentioned, but as Betty suggested, perhaps some statement by you to be put in your medical file would also be in order.

It might also be helpful to advise him of the anti-trust suit filed against the IDSA by the Attorney General of CT, which is at least suggestive that the IDSA is the group purposely misleading people by ignoring scientific evidence, not ILADS! [cussing]

I would actually go a bit further than this, but I hesitate to mention what I would do....

Well, perhaps you can look at this incident as your opportunity to enlighten a duck blundering in the darkness...... think how good it will make you feel if your case makes an positive impact on this guy. If not, at least you gave it a good try. [Smile]

--------------------
Tracy
.... Prayers for the Lyme Community - every day at 6 p.m. Pacific Time and 9 p.m. Eastern Time � just take a few moments to say a prayer wherever you are�.

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Geneal
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What an ignorant jerk!

My Ob, whom I saw in April of this past year for my yearly stuff,

Was also completely in the dark.

When told I had Lyme the only thing he wanted to know was the name of the doctor treating me.

Uh, "no one you would know."

He was suprised by my weight loss at the time.

Wanted to do an ultrasound of my uterus as I had mentioned heavy periods.

Uh, "no thanks."

The ultrasound was a prelude to a D&C!!!????

I told him that there was no way I would let anyone admit me to a hospital,

With all of those special germs there, while on antibiotics for Lyme.

My pap was normal. If it had been abnormal, I may have considered this.

I knew and still know that my menstrual issues are Lyme related.

I used to really like him. He delivered both of my babies.

He tried the stress thing too on me.

I just shut him up and out with a few comments like

"Do you specialize in Lyme disease?"

"I have 8/9 neighbors with Lyme and some are men!"

"Maybe you should read up on Lyme disease before you try to tell me about my problems."

I guess that sounds nervy, but after spending years working in hospitals

With doctors, I knew that most of them were toads.

He wasn't about to feed his ego or belief system off of my suffering.

Hang in there.

If you look at it a little differently, you would see

That his opinion is just that and not based on research. [shake]

I would take the brochure and write a note back stating that you feel HE would

Benefit from that type of clinic more than you would. [Big Grin]

Just keep considering the source. [bonk]

Hugs,

Geneal

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canbravelyme
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Hi Lymebytes et al.,

My tack for the past 6 months has been that I go to duck with something specific, and the Lyme diagnosis is non-negotiable.

If I go to neuro for seizure help, I make it clear that I am interested in their help for symptom management: this is all.

Now they desperately want to weigh in; to be the great genius who "cracked the case" where 4 years of previous doctors didn't. I discourage this. I'm seeing a Lyme specialist; what the H does a GYN (etc.) know about Lyme for gosh sakes??

Dress well. Stay on topic. Do not argue with a duck; it will just end in frustration. I make it clear that I'm 38 years old, and this body is my responsibility, and I'm consulting with you about this one issue. Are you willing to be my duck?

[kiss] [spinning smile] [kiss]

And I agree: When you have the energy, go through the report point by point and get the retraction, if you feel this report could give you aggro in future. I don't have the energy to go after each one, but for pivotal reports that are filled with innaccuracies, I believe it's important that the doctor be accountable.

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For medical advice related to Lyme disease, please see an ILADS physician.

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AliG
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I STILL don't get the note!

Is it possible that he HAS thought about it and does believe you and realizes the stress this whole thing is causing you?

Maybe he REALLY feels he's offering you something helpful. We ALL have major stress on a daily basis. Maybe he felt bad about obviously causing you more?

I would call & say you're not sure what the note was supposed to mean because you don't see how a stress clinic could have been ANYONE'S "source of information" about disease. Maybe an explanation might help dispell your anger & frustration.

Of course if he truly is the HUGE jerk you suspect (entirely possible), it could just end up making you more angry. [shake]

I'm just hoping that maybe he wasn't trying to be what we all obviously are thinking (a duck-head) because then I have to get inflamed too! [shake]

I'm so sorry you're going through this!

[group hug]
Ali

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Note: I'm NOT a medical professional. The information I share is from my own personal research and experience. Please do not construe anything I share as medical advice, which should only be obtained from a licensed medical practitioner.

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Vermont_Lymie
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quote:
Originally posted by Lymetoo:
He's nuts.

I agree. He is a sad excuse for a physician. There must be an IDSA brainwashing clinic somewhere. Hope you can work with someone else in the future!
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CaliforniaLyme
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If you email me his name & address to
[email protected] I would love to send hima physician packet that I make up!!!

I send the same to good & bad docs with a letter that is very flattering saying that their openmindedness and interest have prompted the packet request from a grateful patient. For the good ones it is true- for the bad ones it has a certain kind of irony that they may be able to appreciate as enlightening (hopefully!)

Just has California related medical abstracts-
nothing speculative-

Since he sent YOU something non-related to gyn, you can send something back-*)!
Best wishes,
Sarah

--------------------
There is no wealth but life.
-John Ruskin

All truth goes through 3 stages: first it is ridiculed: then it is violently opposed: finally it is accepted as self evident. - Schopenhauer

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Lymetoo
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quote:
Originally posted by Geneal:
"Do you specialize in Lyme disease?"
......................
"Maybe you should read up on Lyme disease before you try to tell me about my problems."

Priceless! I'm filing those in what little I have left of my memory!!!!

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Opinions, not medical advice!

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map1131
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lymebytes, thank goodness he's just your gyn. You only need his expertise once a year on your yearly tests. I know you were insulted and I can understand. Reminded me of that cartoon on lymenet post of skeleton.

I have found stress to be a very strong enemy to my illness. If these seminar would help you in any way to lessen the stress we are living with when we have a chronic illness, great.

It won't cure you, but you might just gain something else. More peace of mind. Send him a note back thanking him of thinking about you and the stress that your medical/physical illness has caused in your life and for sending you this information.

Chronic, acute etc patients are always stressed. Money, doctors, meds, health, life, etc.

Pam

--------------------
"Never, never, never, never, never give up" Winston Churchill

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Lymetoo
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I'm envisioning:

"Do you specialize in Lyme disease?"

Duck:

"No."

"Then don't embarrass yourself!" [Big Grin]

--------------------
--Lymetutu--
Opinions, not medical advice!

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map1131
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Tutu, you're so bad. lol

Pam

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"Never, never, never, never, never give up" Winston Churchill

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bettyg
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geneal, loved your comments back to him too; the one tutu is going to try to remember!! lol

sarah, wonderful about the dr. package and those NOT helping patients receive a package back too for the note they sent!! priceless! you rock girl. [group hug] [kiss]

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lymebytes
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You know seeing him brought back so many memories of my search for a diagnosis. Who of us here didn't get the "anxiety" "stress" "depression" diagnosis? It was a slap of reality from the past and I had really forgotten how illiterate most people/Md's are about LD.

Ali - No, he didn't believe me! Please believe me! Doctor's don't believe any of us, unless they are our LLMD's. Read my other posts, he asked if I had a death in the family or some other "upset"! He wasn't being helpful, he was trying to lead me off the LD track. It may seem hard to believe, especially when we are use to seeing LLMD's, but when you return to a mainstream Md, I forget how ignorant they are! Please be mad at him with me!! [Wink]

Sarah - thanks, ironically I too have packets of info I have given mainstream Md's. After I was diagnosed I couldn't stop there, as you might know I have a website (link below, visit if you haven't!) I started regarding LD and I was VERY much into educating any doctor I came across. I always include the Public Health Alert issue that printed my story too, sometimes effective, sometimes not. Some Md's accept the info, others do not, I have had Md's hand it back without even looking at it! I didn't even think to bring any information with me the other day. I never thought we'd go the lyme-go-round, but we did. Thanks, I appreciate it and I am so glad you are doing this too, especially here on the W. Coast where doctors are just so illiterate it is sickening. I will make sure he is informed, for what its worth. Thanks very much.

In California doctor's are protected by laws (for those of you worried about my mentioning my LLMD - I did not give his name) that they can prescribe as they see fit in the diagnosis of a patient, same goes for pain medications, I know the doctor that changed the laws for pain management. It would be extremely rare if not impossible to get an LLMD into trouble here.

Just had to vent on this ... thanks for support. I think we forget how illiterate 99% of the world is regarding this disease because we immerse ourselves with people that understand (i.e., LD support forums) and see most often our LLMD's. I forgot how illiterate the rest of the world is.

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tailz
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Well, technically you have been under stress for the last 2 years (increase exposure to electromagnetic fields from cell phones, wi-fi, etc...), but that still doesn't mean you don't have Lyme. I think EMF exposure gave me my chronic Lyme, but I even eventually pulled a QUEST POSITIVE, not just an IGeneX positive - so there goes their theory that IGeneX stinks.

How did you get a doctor to test you for viruses though? None of the 3 LLMDs I've seen thus far have tested me for any viruses. I know I have EBV at least, but gee, it would be nice to be offered an anti-viral, because no abx yet has touched whatever is living in my eyes and ears. I still can't wear my contacts for even 10 minutes. I feel like I'm 12 again.

You can always borrow what I said to my GYN after he said - "Everything comes back normal. I strongly suggest you take something if it is offered (meaning Cymbalta)" - but I could never post it on here.

Since my PCP had said exactly this to me, I asked my GYN if he'd talked to my PCP. I was told by my GYN that he'd received a letter from my PCP regarding me. Sounds more like a report card, and I would think a menopausal woman would be beyond those. If they're going to pronounce my hormones dead, at least let me enjoy the benefits of being menopausal at 41.

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ICEiam
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I am so sorry you had to go through this again......but I almost have to laugh (not at you) at the MD. Unless they are a LLMD 99.9% of them are all about the same........which is cluess, closed minded and ignorant!!

I had an Infectious Disease MD treat my daughter and I as if we were totally crazy before we found our LLMD. He put down IgeneX and told the Lab at the Hospital he worked out of NOT to send any tests to IgeneX under any circumstances.

He told us that it was a bogus lab and our LLMD was a bogus MD. So be it, they are all about the same as far as I am concerned. Don't waste your time or your energy on this GYN Duck. Just move on and next time don't mention Lyme to your GYN, then you don't have to deal with the negativity.

Hugs,

--------------------
ICEY

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bettyg
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bytes, when i have time, i'll drop by your site that you mentioned! [Wink]
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AliG
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quote:


Ali - No, he didn't believe me! Please believe me! Doctor's don't believe any of us, unless they are our LLMD's. Read my other posts, he asked if I had a death in the family or some other "upset"! He wasn't being helpful, he was trying to lead me off the LD track. It may seem hard to believe, especially when we are use to seeing LLMD's, but when you return to a mainstream Md, I forget how ignorant they are! Please be mad at him with me!!


[Mad] You've got it sweetie! [cussing]

WHAT'S WRONG WITH YOU WOMAN?!!!!! [rant] [Razz]

Don't you know my rule for dealing with Lyme-Illiterate ducks?! For every stupidassed thing they say, voice over "Blah, Blah, Blah" in your head, followed by "NEXT!!!"

I mean really, if SO MANY primary care physicians are SO clueless, how can you really expect a man who said to himself, at some point in his career, "I want to look at Hoo-Hoos all day long" to understand the complexities of Lyme disease?

It's not like patients go to him and say "I've been bit by a tick, please make sure it didn't infect my uterus!" [lol]

Personally, I am much more comfortable letting my female PCP, who incorporates women's health into her practice, do my Pap smears.

I can't trust her to order the right co-infection tests for a tick-bite with a freaking argument EVERY SINGLE TIME, but I know she her motivation for offering "women's health" into her services could very well be because she had been to a male Gyn.

I had a bad experience with a male Gyn, can you tell by my disdain for that specialization? I should have been suspicious of the leopard print "gown", talked myself out of it. He was recommended by a co-worker who's 16 year old daughter thought he was great.

I was very uneasy about the fact that a chaperone was not automatically in the room. I told myself "Oh grow up! This man is a specialized DOCTOR. He spends his days in "there", surely you're nothing special. You've seen one, you've seen 'em all, right? Quit being such a big BABY!!!"

My experience in that "DOCTOR"'s office was rather unpleasant and emotionally damaging. I came to find out later that his nickname in the hospital was "Dr. Cassanova". [shake]

Regarding your gynoduck, if he's going to retire soon, it's likely that he won't be dismissing Lyme in too many others. I'd send him back some educational info and move myself along. "Next!"..... You'll never be able to go back to him without hiking up your stress level.

You are more important than some ignorant quasi-duck!!!!!!

[group hug]

Sorry for not kicking in sooner, I'm just on a kick of trying to seek out the basic good in humanity. I forgot that it doesn't apply to ducks. [Roll Eyes]

[ 26. November 2007, 09:33 PM: Message edited by: AliG ]

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Note: I'm NOT a medical professional. The information I share is from my own personal research and experience. Please do not construe anything I share as medical advice, which should only be obtained from a licensed medical practitioner.

Posts: 4881 | From Middlesex County, NJ | Registered: Jul 2006  |  IP: Logged | Report this post to a Moderator
sixgoofykids
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I had a similarly bad experience with my gynie-duck!

I had to tell him I was being treated for Lyme because of the issue I was seeing him for. He's been my doc for 17 years, apparently he has thought this whole time I was a hypochondriac ... he told me anyone who only treats Lyme should be held under suspicion of being a scam and that I definitely should not have to travel out of state to be treated.

I have mentioned my health problems to him over the years as he delivered three of my children ..... I had difficult pregnancies ... I know now I was feeling a Lyme flare as it was the same as when I got sick, in fact, I kept thinking I felt pregnant when I first became ill this time around.

Then, knowing I was on abx and without asking me what it was, he was going to prescribe doxycycline. I had gone in for a lesion on my cervix ... I don't know what the doxy would have done to help.

When I told him I had just gotten off doxy, he said to just take Advil then because my issues were probably from inflammation.

He is normally very friendly as we have known each other for so long .... but he was very quiet, only spoke when he had to, and seemed very angry.

I will not go back.

I guess what I'm saying is, I feel your pain!

I also don't get why he used the word "information".

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sixgoofykids.blogspot.com

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Truthfinder
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Tutu and Ali - you are cracking me up here...

[Big Grin] [Big Grin] [Big Grin]

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Tracy
.... Prayers for the Lyme Community - every day at 6 p.m. Pacific Time and 9 p.m. Eastern Time � just take a few moments to say a prayer wherever you are�.

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Lymetoo
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quote:
Originally posted by Truthfinder:
Tutu and Ali - you are cracking me up here...


That "hoo hoo" comment still has me laughing!!! [lol] [Big Grin] [lol]

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--Lymetutu--
Opinions, not medical advice!

Posts: 96223 | From Texas | Registered: Feb 2001  |  IP: Logged | Report this post to a Moderator
AliG
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quote:
Originally posted by Lymetoo:

That "hoo hoo" comment still has me laughing!!! [lol] [Big Grin] [lol]

Well I mean seriously, come on! Don't tell me that thought never crossed your mind about a male Gyn!!! They figured out a way to beat the rules & they don't even have to spring for dinner!
[bonk]


BTW - "Dr.Casanova" no longer holds a license to practice medicine in any state that I can find. [Wink]

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Note: I'm NOT a medical professional. The information I share is from my own personal research and experience. Please do not construe anything I share as medical advice, which should only be obtained from a licensed medical practitioner.

Posts: 4881 | From Middlesex County, NJ | Registered: Jul 2006  |  IP: Logged | Report this post to a Moderator
ballet1
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Hi,
Why are Dr.'s ( well, your OBGYN anyway!) so thoughtless?? I have had many experiences with all kinds of Dr.'s in the same context,--them never taking the time to listen or wanting to find out what's wrong and why we're all experiencing such horrible pain!

I wonder why too,--even my own "family members" refuse to believe "I'm sick!" with chronic lyme disease!!??

Doesn't make sense does it?? Just "hang-in there!" because our time will come!!

Hope you're feeling a little better (vindicated),--I like the idea of sending the "packet" of information to the Dr.

That sounds "fair!"

Sincerely,
ballet1

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Sincerely,
ballet1

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Ann-OH
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You hired him, you can fire him.

I once fired a doctor with a postcard so his staff would see it too.

Find a friend who can recommend a good,preferrably female ob/gyn near you. When you go for the first time, interview the doctor.
Find out if she is knowledgeable, if not, leave a packet of info for her.

You be in control and then let her staff know you will decide soon about making another appointment.

Ann - OH

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www.ldbullseye.com

Posts: 5705 | From Ohio | Registered: Jan 2002  |  IP: Logged | Report this post to a Moderator
   

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