posted
I've been in the hospital for 10 weeks now and no one has answers.I was in a coma for 14 Days and woke with a treach. (Voice box) and unable to walk or talk. I, doing a little better now but it looks like I have a long road ahead of me,if I don,t die. My dr.said I should not be here. I was on life support for 7 weeks and was not expected to make it. I am still on Vancomycin. I think this drug saved me from lyme. I can't talk right now i'm in to much pain to sit here in my wheel chair trying to hold my head up. I'll try to update everyone when I can.
CaliforniaLyme
Frequent Contributor (5K+ posts)
Member # 7136
posted
Jenny Umphress and a few others have had Lyme induced comas- they are usually caused by anoxic encephlaopathy- Jenny Umphress ended up coming out of her coma and out of her wheelchair (and then relapsed & died years later but she went off abx) and walked again!! It does happen, I am glad you made it!*)!! I hope they put oyu oon IV Rocepihn or seomthing similar if it was caused by Lyme!!! Some people end up on the Memorial pages because they don't come out of it- I am glad you did!!!!!!!!!!!!!!!!!!!!! Best wishes, Sarah
-------------------- There is no wealth but life. -John Ruskin
All truth goes through 3 stages: first it is ridiculed: then it is violently opposed: finally it is accepted as self evident. - Schopenhauer Posts: 5639 | From Aptos CA USA | Registered: Apr 2005
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bettyg
Unregistered
posted
al,
so sorry to read your story of being in the hospital this long, and no one knowing WHAT IS CASING WHAT TO GO WRONG!
thanks for updating us; you're now in our thoghts and prayers. i too AM GLAD YOU SURVIVED THIS FIERCE BATTLE!
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Vermont_Lymie
Frequent Contributor (1K+ posts)
Member # 9780
posted
Al,
My best wishes for your continued recovery and better health. I am hoping that you pull through this well and get better. Vancomycin sounds like a good abx for lyme.
Best wishes.
Posts: 2557 | From home | Registered: Aug 2006
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Beverly
Frequent Contributor (5K+ posts)
Member # 1271
posted
I am so sorry you are going through this, but I am glad you came out of the coma and Vancomycin is working for you.
Keep us posted and I hope you will be feeling better soon.
posted
You are in my prayers Al. Hang in there! Vancomycin can be a very powerful and wonderful drug in late stage Lyme disease.
Lindsay
-------------------- "One day at a time"
Current: -1.2 IM bicillin three times a week -1.25 IV Vancomycin every day -IV glutathione and IM B12 -Byron White since Jan. 2011 -ALA, Yasko protocal, Adapten-All, thyrosol, Pekano, phosphalipid exchange, probiotics, oregano... Posts: 390 | From FLORIDA | Registered: Jun 2007
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CaliforniaLyme
Frequent Contributor (5K+ posts)
Member # 7136
posted
Prayers for you*)!!!!!!!!!!!!!!!! Let us know how you are doing when you can!!!
-------------------- There is no wealth but life. -John Ruskin
All truth goes through 3 stages: first it is ridiculed: then it is violently opposed: finally it is accepted as self evident. - Schopenhauer Posts: 5639 | From Aptos CA USA | Registered: Apr 2005
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canbravelyme
Frequent Contributor (1K+ posts)
Member # 9785
posted
We're sending you healing thoughts
-------------------- For medical advice related to Lyme disease, please see an ILADS physician. Posts: 1494 | From Getting there... | Registered: Aug 2006
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posted
Thinking of you. Hubby is not in quite as bad shape as you are in, but I can definitely relate to your statement "no one has answers".
Find the best LLMD you can afford -- someone who is on your side and believes in chronic Lyme and tickborne illnesses. Gather your friends and family around you and rely on them to help in this time of need.
Don't be afraid to ask for help. It is a sign of a strong person and not a weak one to let others do things you can't do for yourself.
Best wishes.
Bea Seibert
Posts: 7306 | From Martinsville,VA,USA | Registered: Oct 2004
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Healing prayers coming your way. Glad you woke up, and hope that your docs are lyme literate. If not, fight to find some to help you.
If you meditate or practice any relaxation or guided imagery, imagine yourself healed and walking. You will get there!
God Bless, Jenn
-------------------- When given lyme make lymeade! A tick check a day keeps lyme away! [email protected] Raising awareness by creating as many lymebassadors as possible! Posts: 158 | From Northern Wisconsin | Registered: Oct 2005
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merrygirl
Frequent Contributor (1K+ posts)
Member # 12041
posted
Just wanted to say Im sorry for your troubled times.
I will keep you in my prayers.
Remeber it is the time for miricles. If anyone deserves one you do.
God Bless, Beth
Posts: 33 | From Clearfield, Pa | Registered: Oct 2007
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dontlikeliver
Frequent Contributor (1K+ posts)
Member # 4749
posted
I believe I read somewhere that Dr B was also in a coma for something like 10 days when younger, from Lyme.
Posts: 2824 | From The Back of Beyond | Registered: Oct 2003
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canbravelyme
Frequent Contributor (1K+ posts)
Member # 9785
posted
Whenever I open my mailbox, I see the few saved messages from Al, relating to me about seizures.
We're thinking of you, Al.
Best wishes,
-------------------- For medical advice related to Lyme disease, please see an ILADS physician. Posts: 1494 | From Getting there... | Registered: Aug 2006
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canbravelyme
Frequent Contributor (1K+ posts)
Member # 9785
posted
How is our friend Al?
Wishing you well,
-------------------- For medical advice related to Lyme disease, please see an ILADS physician. Posts: 1494 | From Getting there... | Registered: Aug 2006
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-------------------- "We must be willing to get rid of the life we've planned, so as to have the life that is waiting for us" - e.m. forster Posts: 921 | From PA | Registered: Jan 2004
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canbravelyme
Frequent Contributor (1K+ posts)
Member # 9785
posted
How is our Al doing? Has anyone heard from Al?
Al, we are all sending our most positive thoughts to you.
Best wishes,
-------------------- For medical advice related to Lyme disease, please see an ILADS physician. Posts: 1494 | From Getting there... | Registered: Aug 2006
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canbravelyme
Frequent Contributor (1K+ posts)
Member # 9785
posted
Does anyone live near Al, who could check up on him?
Best wishes,
-------------------- For medical advice related to Lyme disease, please see an ILADS physician. Posts: 1494 | From Getting there... | Registered: Aug 2006
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joalo
Frequent Contributor (1K+ posts)
Member # 12752
posted
I hope you are continuing to improve. I'll be looking forward to another update from you. You are in my prayers!!
-------------------- Sick since January 1985. Misdiagnosed for 20 years. Tested CDC positive October 2005. Treating since April 2006. Posts: 3228 | From Somewhere west of the Mississippi | Registered: Aug 2007
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Hi and love to all of you; I came home today after almost 4 months in the hospital. I still have a long way to go. I'm learning how to walk again and talk ,and eat. My trache is out and I can eat soft food and now my voice is back to almost normal. I can't walk yet and breathing is hard . I CAN'T THANK EVERYONE ENOUGH FOR ALL THE SUPPORT AND PRAYERS BUT I WANT YOU ALL TO KNOW YOU ARE IN MY THOUGHTS! Now that i'm doing better I will write more often as I feel up to it. Your Friend Al
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96227 | From Texas | Registered: Feb 2001
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canbravelyme
Frequent Contributor (1K+ posts)
Member # 9785
posted
Al,
I'm so relieved you're back!
Best wishes to you!
CBL
-------------------- For medical advice related to Lyme disease, please see an ILADS physician. Posts: 1494 | From Getting there... | Registered: Aug 2006
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merrygirl
Frequent Contributor (1K+ posts)
Member # 12041
posted
Welcome home!!!
Melissa
Posts: 3905 | From USA | Registered: May 2007
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CaliforniaLyme
Frequent Contributor (5K+ posts)
Member # 7136
posted
Dear AL!*)!*)!)!
Jenny Umphress had to learn to walk & talk and all that again after a Lyme coma- and she did!! She got back almost entirely to normal after that (ended up relapsing but she went off antibiotics prematurely). It takes SO much work but you can do it!!! You HAVE a strong will, I know that from your postings!!! You are in my thoughts, and will be. Very sincerely, Sarah
-------------------- There is no wealth but life. -John Ruskin
All truth goes through 3 stages: first it is ridiculed: then it is violently opposed: finally it is accepted as self evident. - Schopenhauer Posts: 5639 | From Aptos CA USA | Registered: Apr 2005
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feelfit
Frequent Contributor (1K+ posts)
Member # 12770
posted
Al,
So happy to read that you are home! Hoping that your Christmas stocking is filled with strength, love, and hope.
map1131
Frequent Contributor (5K+ posts)
Member # 2022
posted
Al, I just got to your post and story this Christmas Eve morning. My thoughts and prayers are with you. I was glad to see later in the thread that you are home and going thru therapy to work on walking and talking and of course eating.
You go get them! You will win this war. I refer to fighting lyme & company as war. Sure felt like it until this last year, now they are just battles. Go Al. Go Al. I'm doing a cheer.
Pam
-------------------- "Never, never, never, never, never give up" Winston Churchill Posts: 6480 | From Louisville, Ky | Registered: Jan 2002
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Vermont_Lymie
Frequent Contributor (1K+ posts)
Member # 9780
posted
Happy holidays Al! Great to see that you are going home and back on-line. My best wishes for your continued recovery!
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