LymeNet Flash: I'm going crazy

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»	LymeNet Flash » Questions and Discussion » Medical Questions » I'm going crazy

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Author

Topic: I'm going crazy

kelly06
Member
Member # 10417

posted

I recently started having symptoms after finishing a long treatment for Lyme (a year of antibiotics) because all my symptoms had left me.

Its been 2 months since stopping and now I have lots of joint pain, sinus and respiratory infections, feel really depressed and almost paranoid at times, no interest in sex at all, becoming forgetful.

I'm so scared its back again. I don't see my LLMD until the 11th so I sit and wonder until then trying to keep a positive outlook. I feel I need a support group now more than ever.

There is one very close to home. What kind of things can I expect at a support group? Do my symptoms sound familiar to all of you that have had recurrences?

Kelly

Posts: 64 | From Maryland | Registered: Oct 2006 | IP: Logged |

cjnelson
LymeNet Contributor
Member # 12928

posted

How long were u symptom free?

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Seeking renewed health & vitality.
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Do not take anything I say as medical advice - I am NOT a dr!

Posts: 830 | From TN | Registered: Aug 2007 | IP: Logged |

Lymetoo
Moderator
Member # 743

posted

quote:
Originally posted by cjnelson:
How long were u symptom free?

I was wondering the same thing!

Support groups are awesome! I attended one many years ago for chronic illness and one for Interstitial Cystitis.

Was too sick during Lyme treatment to attend one for lyme!!

Praying that this is not a relapse for you!!! [group hug]

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--Lymetutu--
Opinions, not medical advice!

Posts: 96239 | From Texas | Registered: Feb 2001 | IP: Logged |

kelly06
Member
Member # 10417

posted

Symptom free for about 3 months maybe a little less

Posts: 64 | From Maryland | Registered: Oct 2006 | IP: Logged |

kelly06
Member
Member # 10417

posted

Clarification: Was symptom free for 2 months prior to the stop of the antibiotics. Plus 2 months after stopping. Hope this makes sense

Posts: 64 | From Maryland | Registered: Oct 2006 | IP: Logged |

Lymetoo
Moderator
Member # 743

posted

quote:
Originally posted by kelly06:
Clarification: Was symptom free for 2 months prior to the stop of the antibiotics. Plus 2 months after stopping. Hope this makes sense

Bummer. That stinks!!

So much for the "two month" theory! Were you treated for babesia?

--------------------
--Lymetutu--
Opinions, not medical advice!

Posts: 96239 | From Texas | Registered: Feb 2001 | IP: Logged |

Geneal
Frequent Contributor (5K+ posts)
Member # 10375

posted

I think that is why my LLMD does a "remission challenge".

Once you are symptom free for two months on antibiotics you stop daily antibiotics.

Once a week for three days you do the following protocol.

Day one - 1500mg of flagyl

Day two and three - 1500mg of biaxin

If no herx, then continue this once a week for two for three months.

If you remain symptom free without herxing, then bingo, you are officially in remission.

If at any time you herx, back on meds you go.

Hugs,

Geneal

Posts: 6250 | From Louisiana | Registered: Oct 2006 | IP: Logged |

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