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» LymeNet Flash » Questions and Discussion » Medical Questions » Beginning Mepron - Tips??

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Author Topic: Beginning Mepron - Tips??
Mommy*of*3
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So my dh and kids are beginning Mepron on Monday.
DD will be taking Mepron and Biaxin for 14 days.
DS will be taking Zith and Mepron for 14 days.
DH will be on Zith and Mepron for ???

Any advice, tips, things I should know? I read that Mepron is best when taken with something fatty. Is that for better absorption?

For some reason I'm nervous about the Mepron. This will, hopefully, be the last round of ABX for the kids. After 15 long months. After, we will continue with vit C, D, and silver biotics though.

Posts: 101 | From USA | Registered: Apr 2007  |  IP: Logged | Report this post to a Moderator
TheCrimeOfLyme
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I have no advice, other than bless your heart.

Mepron is VERY hard to take, for some people.

I couldn't take it. It made me suicidal, and has done to a number of people as well. Just be careful with the stuff. Even at 1/4 dose, I was NOT myself on it.

--------------------
You want your life back? Take it.

Posts: 3169 | From Greensburg, Pennsylvania | Registered: Jun 2003  |  IP: Logged | Report this post to a Moderator
lymedesign
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Mommy*of*3,

My Daughter (11) has been on Mepron and Zithromax for 18 months now. She has no adverse reaction to this medication. No side effects at all. It was very tolerable for her and still is. Like others have said on this site, try and take it with something fatty as this helps with absorption.

Although testing negative for babesia, this is the one medication that really made a difference for her. She made significant improvement on this after a month or so.

A lot of folks complains about the taste, but if you have ever tried to take crushed up flagyl or plaquenil it is a walk in the park!!!

My only concern would be the short duration that was prescribed? Perhaps there is a reason for this??

I always start my daughters med's very slowly and ramp up, this helps with my nervousness about starting a new medication and hers.

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1Bitten2XShy
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I had no problems with Mepron other than the taste and construction paint consistency and color!

Do make sure you have something fatty with it. I used peanut butter in the morning, and it was a great excuse to eat icecream at night!

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Walnut
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I hope the meprom goes well. Your kids may experience flu like symptoms and lots of fatigue a week into the theatment. Schedule lots of rest for them.


Take mepron with something fatty like cheese or or a couple of table spoons of peanut butter (sugar free).

Drink a large (as in huge) glass of water with it.

Do not take on an empty stomach; and do NOT eat grape fruit or drink grape fruit juice while on mepron.

Brush teeth afterwards to prevent staining of teeth.

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CaliforniaLyme
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My duaghter & I both loved the taste- yum!*)*!)!!

I would make mini ice cream shakes for her morning and night- another reason she loved it (and she has always been on the scrawny side so she needed the calories too*)!. but oyu can use cheese or something healthier, too...*)!)*!!

--------------------
There is no wealth but life.
-John Ruskin

All truth goes through 3 stages: first it is ridiculed: then it is violently opposed: finally it is accepted as self evident. - Schopenhauer

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cbb
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Also, do NOT take CoQ10 with Mepron or Malarone.

See page 25 of "Diag Hints & Treatment Guidelines"
www.ilads.org/burrascano_0905.html

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sixgoofykids
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I felt better on Mepron than before I started it ... herxes were tough though.

As previously mentioned, it needs fat for absorption.

--------------------
sixgoofykids.blogspot.com

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djf2005
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yeah well if the ice cream mepron shakes dont work out for you, please be aware of the extreme mental herx you may be in for.

as listed above, i also became extremely suicidal and irratic on this med. either babs die off, or from the med itself, its too hard to tell.

either way, this med can be easy, or, very hard to tolerate.

do some searches for "babs blues buddies" as babs and mepron and such treatment is known to cause insane depression...

have you considered artemenisin?

good luck, best of health

humbly

derek

--------------------
"Experience is not what happens to you; it is what you do with what happens to you."

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Posts: 2269 | From Lansdowne, Pa | Registered: Mar 2007  |  IP: Logged | Report this post to a Moderator
djf2005
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oh and one more thing, take it with a fatty substance.

coconut oil is a great selection, as it is extremely fatty AND has anti yeast and fungal properties naturally! enjoy [Smile]

--------------------
"Experience is not what happens to you; it is what you do with what happens to you."

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justwondering
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I have only been on Mepron (with Biaxin and Art) for a couple of weeks and I am lovin' it.

I have Lyme, Babs and Erlich.

I still get fatigued, but I feel like some things are changing...

Maybe it is all in my head, but I already feel my weakness and just generally "sick" feeling is slowly disappearing.

So just prepare for the worst but hope for the best!

Not everyone experiences terrible side effects from the medications. I am sure I will have my days of herxing ahead of me, but the days in between are promising.

Best wishes to you:)

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yanivnaced
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justwondering:

What dose of Mepron are you on?

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Elizabeth in MN
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The only problem I had was that it caused extreme fatigue - the worst I'd ever felt. Within a day or two after stopping (after a three month protocol), the extreme fatigue lifted. Now I'm back to normal fatigue! [Smile]

Other people have given good advice (re: fat, CoQ10). Good luck!

Elizabeth

--------------------
Life is uncertain. Eat dessert first.
Come visit my blog! http://forcesofnature.wordpress.com/

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justwondering
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yanivnaced, i am taking 1 tsp twice a day.

Again, I still feel very fatigued, but just not as weak as I did before starting it.

I also am having night sweats at times, too.

Other than that, no complaints!

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Tracy9
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My husband and I are both on it; it seems to be helping us more than anything we have tried before.

We can feel it working, whether it's a herx or the improvement thereafter, within hours to a day or two.

Miracle stuff, so far!

--------------------
NO PM; CONTACT: [email protected]

13 years Lyme & Co.; Small Fiber Neuropathy; Myasthenia Gravis, Adrenal Insufficiency. On chemo for 2 1/2 years as experimental treatment for MG.

Posts: 4480 | From Northeastern Connecticut | Registered: Jun 2005  |  IP: Logged | Report this post to a Moderator
   

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