Tracy9
Frequent Contributor (1K+ posts)
Member # 7521
posted
Not sure if this will help anyone, but I can transport 2-3 people from Ashford, CT..which is near UConn in Storrs, Vernon, Manchester, and very close to Sturbridge and ;I-84.
Even if you are coming from Mass, NH, or Maine and want to carpool from Sturbridge area, I'm only 15 minutes from there on 84, and can carpool for the last half hour.
I am also able to put up at least two people at my home if anyone is interested.
13 years Lyme & Co.; Small Fiber Neuropathy; Myasthenia Gravis, Adrenal Insufficiency. On chemo for 2 1/2 years as experimental treatment for MG. Posts: 4480 | From Northeastern Connecticut | Registered: Jun 2005
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bettyg
Unregistered
posted
quote:Originally posted by Monica922:
What about some kind of online petition of support for Dr. Jones like Ann has done for Congress?
hi monica,
since you are new, ann is an outstanding supporter of the petition that LYNNE created last year before the LDA created theirs! just setting the record straight.
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posted
Thanks Betty. I was just trying to think of something I can do to help from home since I cannot drive there yet Posts: 422 | From CT | Registered: Oct 2007
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dontlikeliver
Frequent Contributor (1K+ posts)
Member # 4749
posted
Someone please go in my place.
Jennifer very generously offered me her miles to fly over from the UK, but typically the airline wanted double the amount of miles normally required due to it being near Christmas, so I won't be able to make it after all.
DLL
Posts: 2824 | From The Back of Beyond | Registered: Oct 2003
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merrygirl
Frequent Contributor (1K+ posts)
Member # 12041
posted
Is there an email for the medial board??
I can't find it or I am staring right at it!
I am trying to go on the 18th
Thanks, Melissa
Posts: 3905 | From USA | Registered: May 2007
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map1131
Frequent Contributor (5K+ posts)
Member # 2022
posted
I'm saving money for next year trip to support the cause. No doubt there will be another fight for what's real and right when it comes to lyme & company. Oh, how I wish I could be there for this presentation and fighting this battle.
I've never felt the need to give to Dr J. and his battle until today. All I can do at this point is a little money for his fight.
Lots of prayers for the doc and all of you going.
Pam
Pam
-------------------- "Never, never, never, never, never give up" Winston Churchill Posts: 6495 | From Louisville, Ky | Registered: Jan 2002
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Tracy9
Frequent Contributor (1K+ posts)
Member # 7521
posted
Can those of us who are going plan to meet up somewhere? I will bring name tags!!!
13 years Lyme & Co.; Small Fiber Neuropathy; Myasthenia Gravis, Adrenal Insufficiency. On chemo for 2 1/2 years as experimental treatment for MG. Posts: 4480 | From Northeastern Connecticut | Registered: Jun 2005
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posted
I'm going from RI - will be going by bus I guess. I can't drive the highways, otherwise I would offer a ride
See you there!
Posts: 589 | From Rhode Island | Registered: Jun 2006
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merrygirl
Frequent Contributor (1K+ posts)
Member # 12041
posted
luvdogs-
I will have to drive through RI so I could potentially pick you up-
I just have to see if hubby can get the day off 50/50 % chance.
I am not offended if you would rather not...I know you don't really know me!!
Melissa
Posts: 3905 | From USA | Registered: May 2007
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bettyg
Unregistered
posted
quote:Originally posted by merrygirl: luvdogs-
I will have to drive through RI so I could potentially pick you up-
I am not offended if you would rather not...I know you don't really know me!!]
melissa, sorry, but i have to comment here as usual!
what an OPPORTUNITY for 2 lyme patients to get to know each other, speak about the LYME CAUSES, and think of different ways they can be effective and more in their own states and nationwide!
now, i will butt out, and forgive me, but i wished i lived closer and could car pool with one of you. BOY WOULD WE HAVE A LYME CONVERSATION!!
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map1131
Frequent Contributor (5K+ posts)
Member # 2022
posted
betty, maybe we can organize a lyme bus sometime next year to come around and pick us up and take a lyme conference trip? lol It will probably be years before there is anything in the mid-west closer for us to attend. Since we all know that we don't have lyme in KY or Iowa?
Anyone familiar with the Harry Potter movie where the two decker bus comes racing down the street and picks him up?
There were some crazies on that bus. Not like us?
Pam
-------------------- "Never, never, never, never, never give up" Winston Churchill Posts: 6495 | From Louisville, Ky | Registered: Jan 2002
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That would be great! There is a chance I will be getting a ride with a friend, but it doesn't look promising. If it is a nuisance for you, I am fine with taking the bus. Otherwise that would be fun!
You can PM me if you'de like. I live right off of the highway (195)... I am psyched! Thank you so much and I can pay for gas! Let me know when you know about your hubby. Thank you so much!!! I will PM this to you also...
Sara
Posts: 589 | From Rhode Island | Registered: Jun 2006
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merrygirl
Frequent Contributor (1K+ posts)
Member # 12041
posted
I should know tomorrow!I will Pm you with more info, It would be great to meet!
Betty- wish we could come get you too!!
If we ever get a Lyme bus, it has to totally be a big green bus!!
Talk to you soon! Melissa
Posts: 3905 | From USA | Registered: May 2007
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posted
Good news. The weather forecast is "Sunny" (no snow) for the 18th.
-------------------- "Help Or Be Helpless" Please visit "Activism" board daily. See the threads regarding the IDSA Guidelines crisis and the threads about Dr. Charles Ray Jones and decide how best to help today! Posts: 1265 | From does not list | Registered: Jun 2004
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sometimesdilly
Frequent Contributor (1K+ posts)
Member # 9982
posted
sorry to say i never heard from any fellow marylanders willing and able to make the trip by car.
i had to go ahead and make train reservations- amtrak ups the ticket price if purchased fewer than 3 days out, so reluctantly, i have to withdraw my offer to drive folks to CT.
I'm looking forward to meeting as many Lymenetters as possible up there!
dilly
Posts: 2507 | From lost in the maze | Registered: Aug 2006
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posted
That is disappointing, Dilly! Wonder what is up with Marylanders?
While there is a storm in the northeast presently (even the Governor of CT got stuck temporarily in traffic apparently) and there may be more precipitation on Sunday, no snow is forecast for Monday the 17th or Tuesday the 18th.
-------------------- "Help Or Be Helpless" Please visit "Activism" board daily. See the threads regarding the IDSA Guidelines crisis and the threads about Dr. Charles Ray Jones and decide how best to help today! Posts: 1265 | From does not list | Registered: Jun 2004
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-------------------- "Help Or Be Helpless" Please visit "Activism" board daily. See the threads regarding the IDSA Guidelines crisis and the threads about Dr. Charles Ray Jones and decide how best to help today! Posts: 1265 | From does not list | Registered: Jun 2004
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Our Lyme doctors are being discredited and brought up on charges; O ur coverage is being denied; We are losing the ability to be treated with effective protocols. This is our chance to DEMAND access to quality care!
1. Join Legislators & Media for FREE breakfast
9 am to 10 am
Private Dining Room - 1st Floor / Connecticut Legislative Office Building in Hartford
Call your state legislators at www.congress.org and make sure they are coming.
Speakers:
Representative Jason Bartlett - 2nd Assembly District for the State of CT
Daniel Cameron, MD, President
International Lyme & Associated Diseases Society (ILADS)
Patricia Smith, President
Lyme Disease Association, an all volunteer national patient advocacy organization
Sandy Berenbaum, LCSW, BCD
2. Lyme Disease Prevention Informational Forum
10 am to 12pm
Room 1-D / Connecticut Legislative Office Building in Hartford
Matthew Cartter, Durland Fish & others will speak at this forum.
No Lyme patient advocacy representatives have been invited to the forum, but there will be an Animal Rights activist speaking. Who will speak for our children? We consider this a blatant dismissal of the concerns of patients who may have a differing opinion.
3. MAIN EVENT: Dr. Jones Hearing - Medical Board Proposed Memorandum of Decision
1:30pm
Conference Room 2c / Connecticut Legislative Office Building in Hartford , CT
The room seats 200. We need to fill them.
The hearing is scheduled to review the preliminary findings of the panel charged with overseeing this case. It is very important we demonstrate to the Medical Board, through our respectful attendance, the importance of this courageous physician to the care of our children nationwide. This is the first time the entire board will have the opportunity to see the patients & advocates. A large turnout is ESSENTIAL!
� For those interested in attending any of the above events or for more information contact [email protected] and so you can be notified in case of last minute cancellation.
� Stay tuned for information on letter writing campaign.
Directions & Parking Info
From I-84 Eastbound Take Exit 48, Capitol Ave (stay in right lane of exit). Go right at end of exit ramp onto Capitol Ave. and proceed past the Legislative Office Building which will be on your right. Immediately past the building, take first right and proceed past both the building and the parking garage beyond it. Continue all the way to the back of the garage to enter for parking. There is a covered walk way from the top level of the garage to the third floor of the Legislative Office Building .
From I-84 Westbound Take Exit 48, Asylum St. Go right at the light at the end of the exit, then bear immediately left onto the start of Farmington Ave. Go a very short distance on Farmington Ave. to the next light (YWCA is on the corner), and turn left onto Broad St . Go through one stoplight, and past the State Armory building which will be on your left. Immediately past the State Armory building, turn left into the Legislative Office Building access road, and then take your next left. You will be heading toward the Legislative Office Building parking garage. Continue all the way to the back of the garage to enter for parking. There is a covered walk way from the top level of the garage to the third floor of the Legislative Office Building .
From I-91 North or South Take Exit 29A, Capitol Area exit, and proceed along the exit 29A connector. You will come to a traffic circle at the end of this long connector road. Proceed around the traffic circle, and turn right from the circle onto Elm St. Follow Elm St. to the end, (you will see the State Capitol Building in front of you). At the stop light at the end of Elm St. , go left onto Trinity St. , then go right at the next light onto Capitol Ave. The State Capitol Building will be on your right. Proceed along Capitol Ave. , going past the Capitol Building , and past the entrance to I-84. You will also go past the Legislative Office Building which will be on your right. Turn right into the entrance immediately after the Legislative Office Building , and proceed past both the building and the parking garage beyond it. Continue all the way to the back of the garage to enter for parking. There is a covered walk way from the top level of the garage to the third floor of the Legislative Office Building .
From West Hartford, Route 44 Take Asylum Ave. (Route 44) from North Main St. in West Hartford . Proceed along Asylum Ave. (Route 44) heading toward Hartford until you get to the Broad St. intersection (The Hartford Insurance Group headquarters building will be on your left). Turn right onto Broad St. and proceed past the State Armory building on your left. Immediately past the State Armory building, turn left into the Legislative Office Building access road, and then take your next left, heading toward the Legislative Office Building parking garage. Continue all the way to the back of the garage to enter for parking. There is a covered walk way from the top level of the garage to the third floor of the Legislative Office Building .
Parking Info: Parking at the Legislative Office Building (LOB) is limited. Please allow extra time to park.
Limited free public parking is available on level one of the Legislative Office Building parking garage; Across the street from the Legislative Office Building (across Capitol Ave. ) is Hungerford Street . There is on-street parking in this entire neighborhood, free of charge; On Oak Street (diagonally across to the left from the Legislative Office Building ) off of Capitol Ave. , there is a public parking garage in the CT Education Association Building (CEA building - across from the Connecticut Supreme Court Library). This garage costs money, but can save you time and aggravation; There is also parking available on the street next to the CEA parking garage.
Posts: 983 | From The sky | Registered: Feb 2005
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posted
I'm driving from Boston and can take several passengers. Let me know if I can pick you up anywhere between Boston & Hartford. hats
I'll bring Lyme Green Ribbons
Posts: 956 | From MA | Registered: Nov 2004
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Tracy9
Frequent Contributor (1K+ posts)
Member # 7521
posted
I might take you up on that; I'm right on the way, and had offered to drive others; but we could carpool. That would make it easier all around perhaps!
13 years Lyme & Co.; Small Fiber Neuropathy; Myasthenia Gravis, Adrenal Insufficiency. On chemo for 2 1/2 years as experimental treatment for MG. Posts: 4480 | From Northeastern Connecticut | Registered: Jun 2005
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posted
To read some of the remarkable letters that are being sent in support of Dr. Jones, please see Tincup's *Thursday Party* thread.
-------------------- "Help Or Be Helpless" Please visit "Activism" board daily. See the threads regarding the IDSA Guidelines crisis and the threads about Dr. Charles Ray Jones and decide how best to help today! Posts: 1265 | From does not list | Registered: Jun 2004
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sometimesdilly
Frequent Contributor (1K+ posts)
Member # 9982
posted
many of my fellow marylanders have been very involved and busy doing Lyme-related work that has made a big difference -
including a (successful!!) in-person trek to our US senators' offices in DC to lobby for a federal Lyme bill.
For many reasons it is a difficult time of the year to travel so far, and i don't blame my fellow Marylanders for not being able to make the trip.
I SURE DO HOPE, THOUGH, THAT EVERYONE JOINS TINCUP AND LOU AND MYSELF IN SENDING A LETTER TO THE BOARD ET AL.
Yes, there will be many more Lyme battles in the years ahead, but this is one of those handful of times when it is absolutely crucial to stand up and be counted.
dilly
Posts: 2507 | From lost in the maze | Registered: Aug 2006
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Tracy9
Frequent Contributor (1K+ posts)
Member # 7521
posted
Dilly or Lymeblue, Roadrunner needs a ride from New Haven; which I think you both may be passing through? Maybe actually you should connect in NY and ride together!
If anyone can give Roadrunner a ride; please PM him! Thanks!
13 years Lyme & Co.; Small Fiber Neuropathy; Myasthenia Gravis, Adrenal Insufficiency. On chemo for 2 1/2 years as experimental treatment for MG. Posts: 4480 | From Northeastern Connecticut | Registered: Jun 2005
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posted
up for more help regarding transportation... Tracy9 u r doing a great job thanks for taking your time to do this....
Posts: 983 | From The sky | Registered: Feb 2005
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sometimesdilly
Frequent Contributor (1K+ posts)
Member # 9982
posted
since i couldn't find riders/co-pilots, i'll have to come up by train.
apparently amtrak throws us off the train in New Haven to transfer to a shuttle (train? bus?) to Hartford.
I'll be happy to ride into town with a fellow Lymenetter if anyone else is trekking north by train.
dilly
Posts: 2507 | From lost in the maze | Registered: Aug 2006
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13 years Lyme & Co.; Small Fiber Neuropathy; Myasthenia Gravis, Adrenal Insufficiency. On chemo for 2 1/2 years as experimental treatment for MG. Posts: 4480 | From Northeastern Connecticut | Registered: Jun 2005
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bettyg
Unregistered
posted
happy to read many of you are car-pooling, etc.
perhaps roadrunner can write letters and get more family members/friends to write too!
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lou4656
Frequent Contributor (1K+ posts)
Member # 10300
posted
This Marylander cannot go.
I am so sorry. But I just can't.
Really sorry.
-------------------- LouLou Posts: 1276 | From maryland | Registered: Oct 2006
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posted
weather.com forecasts "quiet over the northeast" for the 18th.
-------------------- "Help Or Be Helpless" Please visit "Activism" board daily. See the threads regarding the IDSA Guidelines crisis and the threads about Dr. Charles Ray Jones and decide how best to help today! Posts: 1265 | From does not list | Registered: Jun 2004
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