My sister found this press release at the Neurologist's Office. I hope you can get it from this link. If not, just go to www.aan.com it is under press releases dated May 23, 2007.
-------------------- Seeking renewed health & vitality. --------------------------------- Do not take anything I say as medical advice - I am NOT a dr! Posts: 830 | From TN | Registered: Aug 2007
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QUOTE: " This guideline states that long-term use of antibiotics does not improve the outcome in people with chronic symptoms after customary treatment of Lyme disease. Specifically, further treatment does not improve overall health quality of life, memory, or depression."
WRONG, WRONG, WRONG!!!!
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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posted
It sounds like from these guidelines that IV antibotics are much more effective in treating lyme verses oral antibotics?? That's how I interpret this...I could be wrong.
Posts: 33 | From Delaware | Registered: Nov 2006
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My doc is going to repeat my treatment. Has the 2nd treatment helped anyone ?
Posts: 4 | From Oregon | Registered: Dec 2007
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Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
Hey cancunmom..
Hope you are feeling better soon.
Just so you know...
If you dress a shunk up in a pretty pink dress... it is still a skunk.
In MY opinion... these "new" guidelines are simply a cover your butt attempt by the Infectious Disease ducks who are on the legal hotseat for possible anti-trust violations, fraud, monopolization and exclusionary practices related directly to their incredibly insane Lyme disease guidelines.
If they (previous authors of the IDSA guidelines) "go down" with their guideline ship.. and my guess is they will... they will of course STILL feel they need to rule the roost and therefore, they are setting themselves up for trying to keep their stinky kingdom in tact.
They will also try... once the Attorney General's fire under their tail feathers starts to burn their bee-hinds... to play the ... "Well we aren't the ONLY idiots saying patients shouldn't get treated, blah blah blah. Here are OTHER guidelines saying the same thing."
(Then they will call themselves "main stream". I love when they do that. JERKS!)
If you'll note... some of the same authors are on both sets of guidelines and one set is simply a copy cat of the other... with a few more dopes in the author column added on for good measure.
They made this crazy effort like no one would notice that stupid pet trick they are pulling!
Come on ducks.. get a grip!
Anyhow.. I've recently heard yet ANOTHER set of guidelines are in the works.. or are TRYING to be! The ID ducks must feel they need 3 sets of idiot guidelines to cover their big BLOOMING butts! HA!
But.. bottom line..
Pretty pink dress or not.. it is still a skunk.
Hope you can get the meds you need. Take care of you!
posted
Sure am glad I didn't stop after a month of antibiotics.
The long term effects ,that they state long term use of antibiotics causes , have actually gotten better- i.e. memory, cognitive, physical pain,fatigue,depression etc.
I would have been left in La La LymeLand if treatment had been stopped too soon.
2 and a half years, so far, on orals and 8 months IV.
posted
I had 6 weeks of IV in april and got much better. Now im getting bad again and wondering if its gonna help
Posts: 4 | From Oregon | Registered: Dec 2007
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posted
Hey Tincup, can you tell us all how you REALLY feel about the ID Ducks???? LOL, you had me nearly falling off my chair.
I feel exactly the same way about them, but you just put it into words in such a wonderful way that I can't.
I took Daughter to "THE BEST" infectious Disease specialist in Boise...........with my information in hand that I had printed off about IgeneX, western Blot, LLMD's.........
He took that paper took a look at it for about 5 seconds, and tossed it in the garbage. Told us that IgeneX was a bogus lab, the LLMD was a bogus MD.
and then he told the hospital he was with NOT to ever send a test to IgeneX. My friends (friend has Lyme) cousin works in the Lab and told her about the memo they had gotten from this Duck.
So, all you newbies who are thinking about going to an infectious Disease quack.......you may as well go to your local Vet. He or she probably knows more about how to treat Lyme.
New Lyme treatment....uh huh
Hugs,
-------------------- ICEY Posts: 468 | From Las Vegas NV | Registered: Jun 2005
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luvs2ride
Frequent Contributor (1K+ posts)
Member # 8090
posted
Am I missing something in this report? Sounds like the same ole' dribble to me.
Sparkle, I think you are right. We don't have the exact right answer yet, but at least the ILADS doctors are trying. Seems the IDSA docs are just kissing it off because they don't have a simple answer.
I am sure there will never be a "just right answer" because there are so many variables involved with each patient.
That is why I prefer integrative docs. I want to hit this from all angles. So far, this has served me well.
Luvs
-------------------- When the Power of Love overcomes the Love of Power, there will be Peace. Posts: 3038 | From america | Registered: Oct 2005
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Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
Sparkle said..
"Not to be a ball breaker but maybe both camps are wrong? ILADS & anti-long term abx people..."
Well it wouldn't be the first time.
The IDiot ducks have a history of .. a LONG history... of being plum dead out wrong. From day one when they were dragged from their little warm offices to follow up on complaints and concerns about children being sick and entire families coming down with "arthritis"... till now.
Wrong wrong wrong!
I've actually never seen any one group of people so dead out wrong before anywhere. Even the Bigfoot and Chessie followers have more credibility at this point!!!
But the difference is.. and this is MY opinion of course...
They KNOW better.. don't care... CONTINUE being wrong... and they STILL push that garbage down others throats.
Why?
The answers is more indepth that this.. but my two words to describe it/them and the situation being as it is, would be...
Evil and Money
But enough of the compliments for now... as I have miles to go before I sleep... and my bet is.. the projects I am working on will probably result in some sleepless nights in THEIR caves!
Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
Yo Ice-I-am-too...
I just went outside in the snow and ICE in shorts and hiking boots.. and yes Just Don.. a shirt too....
To fill the bird feeder.
So Ice I am too. With a bit of nuts thrown in there! HA!
Oh... you said..
"He took that paper took a look at it for about 5 seconds, and tossed it in the garbage. Told us that IgeneX was a bogus lab, the LLMD was a bogus MD."
First I am so sorry that happened. These ducks are so pitiful and sorry they can't even hear the word 'Lyme' without foaming at the mouth and having poison darts shoot out of their ears.
Think of it this way...
If you had an article or info about diabetes or a new medication for Altzheimers you wanted to discuss.. would you get the same reaction?
Nah.
They act as if they have been sucking on lemons when they hear the word Lyme.
But I have a favor to ask you and everyone reading this...
Whenever you get this reaction and insane comments about our doctors or labs.. PLEASE write it down.. date and time and details of what office, the ducks name, etc.. and turn it into the lawyers. I think the LDA could forward your information for you, which would be added to the others who have done this with their information.
Thanks for considering it.
As single patients they won't listen to us... but maybe they will listen to the "man" when he comes knocking on their door with the power of ALL of us together... and the government behind us.
Alot of the stuff is pretty inflammatory if you are sick with chronic Lyme BUT they do have some points that I agree with.
One is that I do think Lyme can change form & present with a different disease that originally came from the tick.
There is scientific evidence that this may be the case - if you start treating Lyme with abx it can transform into something else.
This may be the reason why long term abx don't work for alot of people.
I think the ISDA's approach is tactless & hurtful to people who are sick but they may be partially correct in assuming that long term abx don't work.
I have not seen any studies for long term Lyme patients that have favorable statistics that abx do cure them.
I don't have health insurance - so, any of the coverage issues presented by the ISDA camp don't apply to me.
It's just not nice for them to deny that people are ill & making them seem to be foolish or crazy.
This is in the way they word their report.
At least ILADS acknowledges that people are ill & do need help.
I just don't know if I agree with their approach with abx, either.
From what I've read, the Cowden protocol seems to help.
I'm going to give that I try.
I'm not going to completely rule out abx - but I didn't find them to help much after about 8 months of use.
Not much is known about long term use of abx & how they can negatively affect the body.
There are some studies that they can reduce the immune system function, cause people to get respitory infections, & cause the incidence of breast cancer to rise - not to mention all the candida issues & drug resistant infections...
Posts: 7772 | From Northeast, again... | Registered: Oct 2006
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sparkle7
Frequent Contributor (5K+ posts)
Member # 10397
posted
PS - re: "He took that paper took a look at it for about 5 seconds, and tossed it in the garbage. Told us that IgeneX was a bogus lab, the LLMD was a bogus MD."
Sounds like your doctor has an insecurity issue... that's so disrespectful.
Sorry this happened.
I have seen doctors who acted similar.
I hate giving them money after going through some crap like that.
I wish I never paid any doctor who acts nuts like that.
Doctors aren't immune to being wackos...
I hope you aren't planning to return.
Posts: 7772 | From Northeast, again... | Registered: Oct 2006
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posted
If you guys didn't already know this, 3 authors of the IDSA guidelines also helped author the AAN guidelines. This is probably why it feels like deja vu when you read it.
-------------------- The best index to a person's character is how he treats people who can't do him any good, and how he treats people who can't fight back. -Abigail van Buren (Pauline Esther Friedman) (1918-2002) Posts: 409 | From Florida | Registered: Dec 2005
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I agree with you. We need reliable testing and better treatment. This is why HR 741 & S 1708 are so important.
However, like Dr. Burrascano has said before, it's unfortunate, but it's the best treatment that we have so far. Until treatment is developed that is much more effective and safer, this is it for many Lyme patients.
-------------------- The best index to a person's character is how he treats people who can't do him any good, and how he treats people who can't fight back. -Abigail van Buren (Pauline Esther Friedman) (1918-2002) Posts: 409 | From Florida | Registered: Dec 2005
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