posted
Does anyone else here have motor nerve damage (not sensory nerves) caused by Lyme disease as seen by reinnervation and/or denervation in an EMG?
Posts: 20 | From Portland, OR | Registered: Dec 2007
| IP: Logged |
Tincup
Honored Contributor (10K+ posts)
Member # 5829
-------------------- There is no wealth but life. -John Ruskin
All truth goes through 3 stages: first it is ridiculed: then it is violently opposed: finally it is accepted as self evident. - Schopenhauer Posts: 5639 | From Aptos CA USA | Registered: Apr 2005
| IP: Logged |
posted
Tincup, what did your EMG show? Reinnervation and/or active denervation? How many limbs were involved and did you have swallowing and/or diaphragm involvement? Did treatment help these symptoms?
Posts: 20 | From Portland, OR | Registered: Dec 2007
| IP: Logged |
posted
I had some trouble with swallowing at certain points with Lyme. I didn't have any kind of EMG or anything (no insurance), but that probably would have shown damage. I didn't take any supplements to directly affect nerve regeneration, but blood-thinning herbs such as Gingko were helpful, at least for sympton reduction. The important thing is, all this stuff resolved after extended antibiotics and herbal treatment for Lyme and co-infections. Thus there was probably a certain amount of nerve regeneration happening. Good luck; may you find the optimal treatment with the fewest possible setbacks! DaveS
Posts: 4567 | From ithaca, NY, usa | Registered: Nov 2000
| IP: Logged |
I have a lot of problems that suggest irritation and damage of motor nerve, only my EMG that I took 2 yrs ago was perfectly normal (though I didn't have half the problems I have now) and all the drs I have seen recently tell me it is psycosomatic since emg is normal and will not repeat the emg because they don't think it is outdated. Don't quite know what to do, ah, before you ask, no, not a llmd in sight: you know I do live in Europe
Posts: 75 | From europe | Registered: Mar 2007
| IP: Logged |
djf2005
Frequent Contributor (1K+ posts)
Member # 11449
posted
kev-
i have not had the test/s you describe, but i did have all the sypmtoms you stated and to the same severity.
they resolved with extensive treatment with abx, hbot, sunlight, FIR sauna, detox, vit supp, and much more.
healing these diseases is an all day job for 2-4 yrs.
it sucks sometimes but look at it this way, when youre done, and healed, how much knowledge will you have gained?
hope you find the best treatment.
hang in there man
humbly
derek
-------------------- "Experience is not what happens to you; it is what you do with what happens to you."
Had an EMG in 2002, 5 years before Lyme diagnosis, which showed L4 (or L5?) radiculopathy causing symptoms in both legs.
Posts: 175 | From Colorado | Registered: Feb 2007
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/