posted
I have been on amox and doxy for about 2 years now and others before that. I have been taking antibiotics for about 6 years now. I also take numerous supplements. My hair is falling out like crazy (started about 8 months ago) and I don't feel that I have gotten any better in all this time other than my speech. I have quit taking my meds to see if my balance gets any better. When is it enough? I don't mean to sound so negative but I am almost at a give up point! Posts: 58 | From Andover,Ohio,USA | Registered: Nov 2003
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CaliforniaLyme
Frequent Contributor (5K+ posts)
Member # 7136
posted
Hair loss is a symptom of Lyme. If your balance is bad you are neuro Lyme. I was on orals for a year and they did nothing for me. Neuro Lyme often needs IV or IM. IM Bicillin is only once a week shots and safe-
Some people stay chronic for life- what you are on may just be keeping you from getting progressively worse- doesn't mean it is not working- if you are neuro it can be a lot worse than just balance issues- the orals may be keeping you from getting a lot worse- I would ask your doc about something stronger-!!!
Best wishes, Sarah
-------------------- There is no wealth but life. -John Ruskin
All truth goes through 3 stages: first it is ridiculed: then it is violently opposed: finally it is accepted as self evident. - Schopenhauer Posts: 5639 | From Aptos CA USA | Registered: Apr 2005
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lymeinhell
Frequent Contributor (1K+ posts)
Member # 4622
posted
Have you had your thyroid and adrenals checked recently?
Another thought - 6 yrs and not any better - perhaps you missed treating coinfections (along with detoxing fungi, heavy metals, and addressing mineral imbalances). If you have an untreated coinfection, it could definitely hold you back from getting well.
-------------------- Julie _ _ ___ _ _ lymeinhell
Blessed are those who expect nothing, for they shall not be disappointed. Posts: 2258 | From a better place than I was 11 yrs ago | Registered: Sep 2003
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posted
Yes, I am and have been treating my coinfection, babs.I get blood work every 3 months and everything has tested good. I do have mono that came up on my blood work about a month ago. I see my lyme doctor every 3 months also. I am lost as what to do next. My insurance will not pay for IV treatment.
Posts: 58 | From Andover,Ohio,USA | Registered: Nov 2003
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posted
daisylynn, i went through these things 6 years ago. had a lot of hair loss, crawly sensations, anxiety, shaking chills when warm, etc. felt really lousy at times. had low temps a lot; was hypothyroid-still am today, but doing better. recently did some artemesia blend and it seemed to stop some sx. the book Healing Lyme by Buehner has protocols for treating co-infections like Babesia. my hair stopped falling excessively when i worried more about nutrition issues and got off the antibiotic bandwagon. try using a good mineral supplement,especially magnesium oriented. it does sound like an adrenal issue; mine were messed up 6 years ago big time.
-------------------- ~*~ Carole ~*~ Young at Heart Grandmother of 4 Posts: 140 | From Morristown, NJ, USA | Registered: Jan 2004
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otm
Posts: 314 | From east coast | Registered: Oct 2007
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Peacesoul
Unregistered
posted
I started losing my hair 3 yrs ago. Devastating to say the least. But this past month, I've not lost ANY hair. The only thing I'm really doing that I never did before is juicing. I believe I was lacking many nutrience and now my body is getting them and my circulation is better because of it. That is the only thing I can think of that can be the cause. I'll keep you posted.
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tailz
Unregistered
posted
I can't handle more than about 3 or 4 days of antibiotics anymore - any of them - before I give up. I don't think I'm able to get rid of toxins effectively, living in an area with a high magnetic field due to power lines and cell phone towers.
Maybe try EDTA? I just restarted that - along with artemisinin and quinine powder tea. EDTA is supposed to unclog arteries and so forth. It's worth a shot.
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