Background - I started on Biaxin yesterday and I also increased my Silver Biotics dose. In the past several days I have become MUCH more diligent about taking all my vitamins and neutricueticals.
I have herxed/reacted on the Silver Biotics alone when I first started using it. Symptoms of that were: fatigue, waking up 1-2 hours after taking it freezing cold and shivering, then 1 hour later burning up and sweating like crazy, horrific nightmares for the first 5 days. I tried Biaxin last week and had to stop b/c my newborn was vomiting from it. It gave me nausea and this feeling of being constantly dehydrated, body aches, headache ... We are trying it again this week to see if Biaxin is what caused her tummy troubles. If not I continue, if so we try another abx.
So last night I woke up about an hour after taking the Silver Biotics and going to bed. I woke up from a fairly bad dream with my ears ringing and crackling, feeling overall like something was very wrong, and when I tried to call out to my husband I couldn't talk. After a moment or so it passed, but my ears were still ringing and crackling for a little while.
Any insight? Suck it up and deal? Should I bother my LLMD about this or just wait for my next appt or to see if it happens again? Suck it up and deal or call?
Posts: 101 | From USA | Registered: Apr 2007
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treepatrol
Honored Contributor (10K+ posts)
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posted
call
-------------------- Do unto others as you would have them do unto you. Remember Iam not a Doctor Just someone struggling like you with Tick Borne Diseases.
I do know that sometimes when you wake up you don't fully wake up and you can be "paralyzed" for a few seconds which might explain why you couldn't talk.
This used to happen to my sister quite a bit - she was awake but not quite and couldn't move her body but after a few seconds it passed.
Could be all your meds put you into a very deep sleep and it took you a bit to come out of it?
Just a theory. Hope you have a better night tonight!
~webmeg
Posts: 257 | From Connecticut | Registered: Oct 2007
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quote:Originally posted by webmeg: Probably safest to call.
I do know that sometimes when you wake up you don't fully wake up and you can be "paralyzed" for a few seconds which might explain why you couldn't talk. ~webmeg
Yes, this could be exactly what happened. I just don't know. And maybe I just freaked out for a moment b/c of the ringing/crackling in my ears. I don't know. I've just never experienced anything like that before. Just incase I just shot an email to my LLMD.
Posts: 101 | From USA | Registered: Apr 2007
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oxygenbabe
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Are you breastfeeding? Although I very much believe in breastfeeding, if you are on abx I wonder if you should switch to formula. Otherwise your baby will be getting abx at such a young age and may develop resistant flora.
Why are you taking silver biotics? Nobody said that was safe. I would stick with the antibiotics. Taking a heavy metal (no matter what the producers say about it being safe) does not seem wise to me.
I've learned much in 7 years of lyme and trying a few really experimental treatments like salt/c, and I consider silver in that realm.
Hyperbaric, IVIG, other stuff I personally do is used widely in medicine even if not always for lyme, it is relatively safe.
Silver is not.
And again, abx in the breastmilk, are probably not good for the baby.
Posts: 2276 | From united states | Registered: Jun 2004
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quote:Originally posted by oxygenbabe: Are you breastfeeding? Although I very much believe in breastfeeding, if you are on abx I wonder if you should switch to formula. Otherwise your baby will be getting abx at such a young age and may develop resistant flora.
Why are you taking silver biotics? Nobody said that was safe. I would stick with the antibiotics. Taking a heavy metal (no matter what the producers say about it being safe) does not seem wise to me.
I've learned much in 7 years of lyme and trying a few really experimental treatments like salt/c, and I consider silver in that realm.
Hyperbaric, IVIG, other stuff I personally do is used widely in medicine even if not always for lyme, it is relatively safe.
Silver is not.
And again, abx in the breastmilk, are probably not good for the baby.
I pretty much disagree with everything you wrote.
I'm not taking anything that isn't recommended by my LLMD, who is also very knowlegeable about pregnancy and breastfeeding.
Posts: 101 | From USA | Registered: Apr 2007
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oxygenbabe
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Your LLMD recommends silver biotics? I wouldn't trust him or her. As for abx in breastmilk it is not an "opinion" to be disagreed with.
That should be enough to at least think about, especially if you're going to be on longterm antibiotics for lyme, not just a week or two for infections. You need to think about the doses you're on, the reactions you're having and how your own raised cytokines and inflammatory molecules can affect your infant through the breastmilk, the time to breastfeed or express milk (as far away from abx as possible) etc.
Again, if your LLMD recommends taking a heavy metal (silver biotics) along with antibiotics, I personally wouldn't trust him.
Good luck and this information is meant to help you not offend you.
Posts: 2276 | From united states | Registered: Jun 2004
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posted
Night time is the worst for Lyme - symptoms seem much scarier - at least to me!
I tell you I had one VERY SCARY incident one night about 10 days into treatment. I had this major GUSH of sensation go through my body from head to toe and out my feet.
It was like an electrical vibration / wave that went through me. Freaked me out. Only happened once.
Our nervous systems can do really weird things when Lyme is around. It's when things don't go away that I get concerned. Glitches are going to happen.
Hopefully your odd night won't happen again!
~webmeg
Posts: 257 | From Connecticut | Registered: Oct 2007
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quote:I had this major GUSH of sensation go through my body from head to toe and out my feet.
webmg, I use to get this ALL the time and I mean several times a day for months on end. Scared me to death. That was long long long b4 dx of Lyme.
That was also when I truly thought and believed that I would be lucky to be around for a short time even. Docs kept saying nothing was wrong as tests never showed anything...boy I know what that one is like and have NEVER seen anyone explain it so eloquently!!!
Isnt that a hoot!
Mommyof3
Let us know what LLMD says!
-------------------- Seeking renewed health & vitality. --------------------------------- Do not take anything I say as medical advice - I am NOT a dr! Posts: 830 | From TN | Registered: Aug 2007
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Aniek
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posted
The waking up paralyzed for a moment, alone, isn't something I would be too worried about. I know it's horrific, but it's not that uncommon. If it happens repeatedly, I would be worried.
I had anxiety dreams every single night while I was on Vioxx. I think it was my body's way of trying to tell me something wasn't right.
However, the loud ringing in your ears could be concerning. Especially if it was so loud it was uncomfortable. I hope you hear back from your LLMD on that.
I hope tonight is better.
-------------------- "When there is pain, there are no words." - Toni Morrison Posts: 4711 | From Washington, DC | Registered: Mar 2004
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posted
I did hear back. He thought it sounded like a typical herx, told me to back down my dose if things were too uncomfortable, and keep in touch. I heard back from him within an hour of sending him a note.
We'll see what happens tonight.
And oxygenbabe - I shouldn't have been so short with you. I just don't have the energy to dig up all the reasons as to why we do what we do. Nor do I feel I have to justify myself. Rest assured that I don't take any decision related to my children lightly. I am a scientist by heart and a Chemist by schooling and training. With prayer, research, and much consideration we make plans for our family. So all things were considered carefully, and in the end we determined that even in our current, non-ideal situation breast is best.
Posts: 101 | From USA | Registered: Apr 2007
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I've done well on Biaxin. It was hardest in the beginning. While on Biaxin I've found it essential to drink LOTS of water. I never venture out without a water bottle, especially bad in the morning when herxing is the worst for me.
If I lay down flat while taking Biaxin, I get disoriented, nightmarinsh feelings. This was is remedied by sleeping propped up by an extra pillow. I put one thinnish pillow under my shoulders to keep me slightly elevated then I put my regular pillow on top.
I've had thumping sounds in my ears on and off for several years. It was one of my earliest Lyme symptoms. It happens rarely now and only when I'm stressed.
posted
You have described my Bicillin herxes perfectly, to the T. Posts: 390 | From Oakland, CA | Registered: May 2007
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oxygenbabe
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Hi Mommyof3, I worry about your baby, who has no choice in the matter. I did your research for you so you don't have to spend the time, and I'm not talking about justifying yourself, just thinking seriously about the situation. Another solution is to delay your own treatment 3 months, breastfeed during that time, then start treatment and switch to formula. Since it is your baby and you obviously love your baby and this will impact their health their whole life long you ought to seriously consider it. In the womb, and in early development, is when things can go awry that can never be undone later in life. That is the time of greatest vulnerability.
Posts: 2276 | From united states | Registered: Jun 2004
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tailz
Unregistered
posted
I would get shaking chills and sweats whenever I was exposed to electromagnetic/microwave fields from cell phones or power lines.
I think I had ehrlichia. In fact, I think cell phones and power lines caused my ehrlichia.
Google microwave sickness and electrical sensitivities.
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TheCrimeOfLyme
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Member # 4019
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Cell phones and power lines doesn't cause erlichia, unless the lines shake and a tick falls off....
Hi. I've had sleep paralysis, which kinda sounds like what you are going through. Its a VERY scary symptom, but with time, it passed for me.
Hopefully it will for you as well.
-------------------- You want your life back? Take it. Posts: 3169 | From Greensburg, Pennsylvania | Registered: Jun 2003
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