posted
Symptoms that have gradually appeared over the past 4 months: *numb fingers/front of legs, especially around the knee/front of torso/soles of feet and toes
*pressure in head
*just found out I have white matter lesions on my brain and 2 immune markers for MS in spinal fluid- the lesions are not typical MS
*aching between shoulder blades
*aching knees on and off- I am a runner and several times in the past 2 months my knees hurt so bad just after running
*my shin bones are very sensitive
*black floaty things in my vision
*weird things in my peripheral vision- turn my head to see something there, but nothing is there
*mild light sensitivity
*a feeling of getting chills throughout my body, including head- it's the feeling you get just before goose bumps appear, but I never get the goose bumps
*feeling forgetful- example- I walked in to the dark kitchen, paused and momentarily forgot where the light switch was; sometimes I just stare at the keyboard or piece of paper and forget what work I am writing or typing
*itchy anus- this has come and gone for almost 2 yrs- the MD 2 yrs ago said I was using too strong of a soap.
*feeling like I really need to work hard to get a complete full breath of air- the feeling when you know your lungs have reached maximum inspiration potential and it sort of feels good, like they are stretching.
*constantly clenching my hands in fists
*past 2 weeks- feeling like a urinary tract infection is coming on *my finger tips are pruning very easily, like I've been in a pool for hours, but instead it's just the shower for 1-2 minutes- yesterday, my finger tips were pruning as I stood outside in the cold weather without gloves
*stiff neck and back- when I bend forward at the upper back, my back feels like it's "humming" all the way down to my butt
*nausea
*achy teeth
The neurologist has said "probable MS"
I'm seeking a 2nd opinion from a MS specialist.
I'm going to a infectious disease MD this week.
I go in the woods a lot- but apparently not a lot of cases of LD in western North Carolina
I grew up In Rhode Island. Have lived in NC for 11 yrs now.
I visited RI 7/05 and remember laying in grass in my swimsuit with no bug protection....don't remember a bite or seeing a tick.
I just remembered going to the MD 11/05 complaining of a rash in my private area and itchy anus.
The MD said there was a red rash and I can't remember any more specific details.
She said I was using too strong of a soap and should use something milder.
The rash went away, but the anal itch persists on and off.
I'm scared!!!!
[ 16. December 2007, 08:13 AM: Message edited by: tracisuzanne ]
Posts: 55 | From North Carolina | Registered: Dec 2007
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tailz
Unregistered
posted
It sure sounds like it could be Lyme and/or one of the coinfections.
I am sure others will be on here very soon too, to welcome you.
I am so sorry you have been through so much.
have you been tested for Lyme at all??
If you have and you tested negative...you will learn from reading on here and the internet that the tests are horrible.
Others will follow with responses, I am sure, to tell you that you should see a LLMD (lyme literate Doctor)
A lot of your symptoms are sounding very similiar to a lot of long term sufferers on here!!!! A lot of "regular" doctors don't want to believe that Lyme can cause these symptoms long term.
Try to be strong! I'm sorry you have to be here...but I am glad you found this support!
Becky
Posts: 68 | From Massachusetts | Registered: Nov 2007
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Aniek
Frequent Contributor (1K+ posts)
Member # 5374
posted
It could definitely be Lyme. Some of the symptoms also sound like babesia, a parasite that is also carried by ticks.
There are cases of Lyme in North Carolina. Lyme has been found in every state in the country. It's rampant in Virginia.
I was in Providence, RI last year. I was sitting in a park for less than 5 minutes when I noticed a tick on me. So you definitely have had potential exposure.
-------------------- "When there is pain, there are no words." - Toni Morrison Posts: 4711 | From Washington, DC | Registered: Mar 2004
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timaca
Frequent Contributor (1K+ posts)
Member # 6911
posted
Yes, it could possibly be lyme. So do lots of reading here at the newbie links (top of page).
just don
Frequent Contributor (1K+ posts)
Member # 1129
posted
Along with ALL the others,,,I say WELCOME ABOARD!!
"I" see definite signs of co-infections here,,,bartonella sounds plausible.
A 'possible' reason for NOT seeing a tick attachment IS,,,sometimes they crawl where the sun dont shine,,,and YOU cant see them!!!(seriously)
One person told me theirs was in their tummy button ,,,for instance. For females they CAN crawl up far enough inside NOT to be seen etc.
heard a gyn doc at a lyme support meeting say she found 3-4 engored ticks a week in her regular practice that the patient didnt know was there!!
Besides a very large percentage of infected people didnt see one anyway!!! OR have the EM rash!! SO NOT seeing one or the other,,,doesnt mean a thing!!!
Get thee to an LLMD and get THEIR opinion,,,sure sounds possible to me!!! have YOU taken ANY abx for any reaon since your 'possible' infection??? Did YOU react in ANY way???(BEST test available)
You CAN get an Igenex test but that isnt proof positive OR negative either!!(JUST the BEST test available) observations of--just don--
-------------------- just don Posts: 4548 | From Middle of midwest | Registered: May 2001
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CaliforniaLyme
Frequent Contributor (5K+ posts)
Member # 7136
posted
WELCOME to LymeNet*)!*)! !*)!)*!)!*)!*)*!)!*)!*)*!
Just look!! It's amazing! We've had many people diagnsoed MS come to our local group and improve greatly with Lyme tx- and even go into full remission- it is iedntical- best wishes, Sarah
-------------------- There is no wealth but life. -John Ruskin
All truth goes through 3 stages: first it is ridiculed: then it is violently opposed: finally it is accepted as self evident. - Schopenhauer Posts: 5639 | From Aptos CA USA | Registered: Apr 2005
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