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» LymeNet Flash » Questions and Discussion » Medical Questions » Why aggressive LD treatment can fail

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Author Topic: Why aggressive LD treatment can fail
lymebytes
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I would like to hear your opinions regarding the aricle below.

Recently I have been studying a lot of Dr. James Schaller's books and articles I came across his site and have copied and pasted his article below. If you want to know why you aren't getting well, I am sure you will find this fascinating reading as I did.

I am search of answers, you should be too if you aren't getting well. I already know abx is not the only answer and may not be the answer at all. Even Burrascano admits antibiotics alone will never get you well.

This article will make you aware just how complex LD and co-infections are and that not just any doctor can treat this. You will see that taking abx, may make things worse because many of us have the inability to remove LD toxins and they can cause damage. There is a test available at Labcorp as he explains in the article.

If you have not heard of Dr. Shaller- is known around the world for his many books, on toxic molds, Babesia and soon coming out Bartonella. He is known for his indepth study of TBD's.

This is absolutely worth reading.

The test he recommends is a 5 part test done at Labcorp that will determine if your body is capable of even removing toxins and if not, we simply make the problem worse by increasing medications, making more toxins, creating more damaged.

Dr. Shaller was recently interviewed by PHA (public health alert) in a front page story "Ignore Bartonella and Die" : http://www.publichealthalert.org/AUG%2007%20PHA%20template%20REVISED.pdf

Books by Dr. Shaller
http://www.amazon.com/s?ie=UTF8&search-type=ss&index=books&field-author=James%20A.%20Schaller&page=1

Request for 5 minute FREE consult w/Dr. Shaller:
http://www.personalconsultcart.com/webdocs/Consult5minForm.cfm
~~~~~~~~~~~~~~~~~~~~~

Why Aggressive Lyme Treatment Can Fail:
Focusing on the Bee and Ignoring the Stinger By: Dr. James Schaller

I have never been comfortable with failed care. You know what I mean. You do an intake, get some lab testing done, you are given a diagnosis such as Lyme disease, and then you take full and aggressive antibiotics for complete trials. Yet they do not hit the home run you hoped for, and in fact at times you actually feel worse. At best, you improve partially and then hit a wall. Some even take IV antibiotics and still do not feel cured.

Why? How is it that the "cure" makes you sicker and leaves you far short of a return to normal health?

Last month, we mentioned one reason for Lyme treatment failure--Babesia has over 11 species that infect humans and our labs only test one or two. We have also found that Bartonella has at least nine species that infect humans and 99% of our lab testing is fair and only tests for two. I will discuss this more in an upcoming Bartonella textbook. Still another cause for Lyme treatment failure is exposure to indoor surface mold spore toxins found in 30% of USA structures (per EPA). These mold spore surface toxins highjack dozens of body chemicals and weaken your ability to fight Lyme. Are your air ducts dusty? If you answered, "Yes" this may be adding to your illness. Mycotoxins are almost entirely ignored, and sometimes actually naively belittled in advanced Lyme medical care.

In this article, I would like to discuss biotoxins that are not from special indoor molds, but from the Lyme bacteria itself. How often do you hear this discussed as a problem in Lyme treatment? If it is discussed, is it merely in the context of "it might be good to take some cholestyramine to bind up some Lyme biotoxins?" But when I listen to discussions about Lyme's surface biotoxins it is usually clear the reasoning is confused.

I would like to make this critical area of Lyme biotoxins and your ability to remove them simple and understandable.

First, we should not be surprised that any organism has biotoxins because the biological world is teeming with organisms that use toxic chemicals to function and survive. In the animal kingdom snakes and skunks have killing or annoying chemicals. Fish carry toxins in their barbs or their body. Insects have a wide range of toxic stingers and toxic inflammatory bites. Fungi and molds have dozens of toxins that have absolutely no safe dose. Finally, bacteria and viruses have many toxins that serve to undermine host defenses and increase the damage of these infections. In this context, that Lyme bacteria have toxins on its outer membrane should be no surprise. Lyme has over two-dozen plasmids designed to defeat the attacks of the immune system, so why not also have biotoxins to defeat the immune system and undermine the human body?

Simply, Lyme bacteria release more than bacteria debris when they die, they also release highly specific chemicals that are designed to disrupt and damage a mammal's body. With each passing year, medicine and science learn more and more about the seriousness of biotoxins such as those made by Lyme bacteria. Biological toxins like those found in Lyme bacteria have so many ways to harm your body, that it would take a small book to show how they harm humans when released. Yet here are some brief examples.

Lyme biotoxins disrupt the fat cell system and if not removed cause a type of obesity highly resistant to diet and exercise. The critical Leptin hormone increases and creates a type of bloating, puffiness or abdominal distention that is demoralizing to those trying to have a healthy weight.

Lyme biotoxins can disrupt VEGF that make and open capillaries throughout the entire body. These biotoxins undermine VEGF function so your capillaries ability to get oxygen to many types of tissues is impaired. A disrupted VEGF system often leads to profound fatigue and body pains, particularly after exercise or pushing yourself to perform a "full day's work." Similarly, Lyme biotoxins can disrupt the manufacturing of erythropoietin, a crucial chemical that produces red blood cells that carry oxygen to all our body organs. Amazingly, the number of red blood cells does not control erythropoietin levels, but instead it is regulated by low oxygen in your tissues. The body knows you can have "average" numbers of red blood cells, and still have tissues starving for oxygen. That biotoxins can sometimes disrupt tissue oxygenation is not unique, since other illnesses also cause this problem, e.g., kidney or liver diseases, excessively thick blood, inflammation chemicals, nutritional deficiencies, hypothyroidism, infections or cancers.

Lyme biotoxins also undermine the making of MSH (melanocyte-stimulating hormone), which according to Dr. Cone's definitive text has about fifteen critical functions. It controls inflammation, so it is being used to treat inflammation disorders like asthma and psoriasis and ulcerative colitis. It helps repair nerves and makes the natural pain system work normally. Perhaps one reason some struggle with addictions is their MSH is abnormally low--under 35-40. This super anti-inflammatory chemical is currently manufactured all over the world for a wide range of illnesses. After passing the extensive FDA process it will eventually be available in the United States--just not soon.

Another chemical impacted by Lyme biotoxins with some similar abilities is VIP (Vasoactive intestinal peptide). VIP is the topic of over 10,000 research papers and is involved in dilating the heart's blood vessels, promoting breathing by bronchodilation and controlling the immune and hormone systems. However, its role in the brain is the cause for great excitement. It can undermine brain tumors, improve brain blood flow, improve learning and memory, and protect the brain.

The introductory article is only meant to show you sample ways Lyme biotoxins can harm the human body. Do you wonder how effective your body is at removing Lyme biotoxins? You can easily determine your unique genetic ability to remove Lyme's specific biotoxins by ordering a special 5-part HLA inherited gene marker test from LabCorp (test 012542), which is one of the largest labs in the United States.

This HLA test is not the HLA-DR4 test that is involved in aggressive Lyme arthritis. It is also not the HLA-B27 that is found in people with ankylosing spondylosis, various types of arthritis, and some people suffering from psoriasis, inflammatory bowel disease or other autoimmune disorders.

This 5-part HLA test is able to determine how well you can remove the dangerous biotoxins of different organisms that live in the oceans, lakes, forests, and buildings. But for our purposes in Lyme disease treatment, we are particularly interested in two patterns--the 15-6-51 or the 16-5-51 pattern. If you have these you will not be able to remove Lyme biotoxins. So when you try to kill Lyme with antibiotics, antibiotic herbs, HBOT, or a wide range of traditional or progressive means, you will release Lyme's surface biotoxins and they will pass throughout the body easily and disrupt and damage dozens of human body functions. Simply, this Lyme poison has no natural body antidote for those who cannot naturally remove it--it will simply stay in your body and damage gene expression, hormones levels, protein function and cause dozens of other injuries. Consider it to be an eternal disruptive chemical poison able to easily pass through water pores and cell membranes.

If you make the mistake of thinking you are still ill because of residual Lyme, and try additional antibiotics at higher doses, you will release still more biotoxins and they will damage your body. Therefore, no one should be treated with antibiotics unless it is known how able they are at removing Lyme's biotoxins. You do not open a drum of industrial chemicals until you first know how well the body is going to survive the exposure as you remove the top! For children who fear lab testing, their HLA pattern can often be determined from their parents. If both parents do not have the Lyme problem gene, then none of their children can have it.

Other HLA patterns exist which will cause Lyme toxins to be released slowly. But they are outside the scope of this introduction.

Further, one often hears that the treatment for those who have biotoxin damage is simply the use of cholestyramine, an old cholesterol medication with broad biotoxins binding abilities. Unfortunately, in reality, by the time most patients with the 15-6-51 pattern or the 16-5-51 pattern or other troublesome patterns get to my office, they have had these biotoxins disrupting many body systems and my interventions need to be equally as complete. The idea cholestyramine will reverse all damage in a few months of aggressive use is profoundly simplistic.

Further, after these individuals are physically repaired from biotoxin damage, they then require very tailored and carefully paced Lyme treatment along with treatment for their co-infections. (The original Lyme biotoxins and HLA pattern work was done by Dr. Ritchie Shoemaker. It has been replicated by a small number of clinicians who understand this medical science.)
From website: http://www.personalconsult.com/articles/aggressivelymetxfailure.html

--------------------
www.truthaboutlymedisease.com

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Keebler
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-

Thanks so much for this. I saw Dr. S. several years ago and while he said I was the sickest of any he'd seen he emphatically said I would not do well on abx. He did that test but I never understood the number code. So, I'll hunt down my results.

AND beyond all this is whether someone's ability to detox through the Cytochrome P-450 pathway is good.

Excess porphyrins can be very toxic, even fatal.

I've written lots on that but just don't have the energy now.

There is a great link to "secondary porphyria" in treatment of Cpn - I think through the www.immunesupport.com site. The Cpn article mirrors lyme treatment, and for some, Cpn may be a co-infection, too.

I'll try to come back later and clean up this post.

one can google porphryia for the American and the Canadian foundations for a start. It can be genetic, acquired from chemcial exposure or from damage from infection.

there are some things such as milk thistle, schizandra berry or other supplements to help stregthent the liver detox system and avoidance of certain drugs that use the C P-450 pathway . . .
but still infections need to be addressed in a safe manner as infections can make porphyria worse. It's truly a puzzle.

-
For those who can't afford the cholostyramine (or are allergic to shell fish),

Sarsaparilla, salvia m., carob . . . also bind to endotoxins. PubMed has info on some of this. Of course, having an expert figure out a plan is good - as is the very cleanest source for whatever products are used.

-

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CherylSue
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Thanks for the great article.

Does anyone know if doxycyclene is a drug that uses the C P-450 pathway?

I didn't do well on amoxicillin, and I'm wondering if the doxy is better for me. I seem to be doing better on the doxy.

Thanks for your input.

CherylSue

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sparkle7
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Thanks very much for posting this! I had suspicions about the herxheimer reaction... It seemed too simplistic.
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Jellybelly
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Very interesting, for some it looks like trying to kill even if NOT using ABX can be a problem. Dieing Lyme no matter how you kill it puts off these endotoxins....right?? Not good.

quote:
If you have these you will not be able to remove Lyme biotoxins. So when you try to kill Lyme with antibiotics, antibiotic herbs, HBOT, or a wide range of traditional or progressive means, you will release Lyme's surface biotoxins and they will pass throughout the body easily and disrupt and damage dozens of human body functions.


[ 17. December 2007, 10:10 AM: Message edited by: Jellybelly ]

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Keebler
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-

here's just one site www.cpnhelp.org/secondaryporphyria

I'm too dazed to do this in an organized fashion right now.
Somewhere is a neat file on my computer with it all there. - the snorer in apt next door has robbed me of sleep (tinnitus prevents using earplugs). I'll come back in a day or two and add it when I can think.


CherylSue, I think doxyc. is okay - as I recall (key phrase). the foundation sites have lists and sometimes you can search on pubmed with the drug name and any piece of P-450, cytochrome, or porphyria as the other part of the search.

Each drug maker's info page lists how the drug is metabolized, although sometimes the C P-450 pathway is not mentioned, but rather just liver, etc.

If you do well on a drug that's great. Even with a drug that is on the C P-450 list, if special care is given to keep porphryins down with other methods, it may be workable. Beta Carotene, etc. frequent meals, no fasting, etc.

Most docs don't know much about this. I find it very fascinating. I deal with this but ignored it mostly as lyme treatment was not available anyway the pharmaceutical way. Now I see I need to learn way more.

Cheers ! and here's to the day we can have fun hobbies away from all this homework.

The last line of the link is amazing. high homecyst. can result in fuzzy thinking. amazing what other info. comes along -
So while some stuff is different, I think a lot can be learned from this article: - www.cpnhelp.org/secondaryporphyria

And, it's great to see the article that started this tread.

I saw that Dr. Shoemaker (cited in Schaller's article above) had a video on YOU TUBE explaining this a few months ago. sorry don't have the link. It may be easy to search out.


-

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CherylSue
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Keebler, thanks for the tip. I want to check out these sites, but tomorrow is another day. Let's keep this thread going. I think it's another piece of the puzzle.

CherylSue

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cantgiveupyet
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Im tired of all this research too.....but still i plug on.

SO, what do those of use with these genotypes do?

I have the chronic lyme one. And got sicker on abx....and had some of the porpyria symptoms while on the abx....very scary times.

Do i need to hit the cholesyrimine(spelling?) or is there other binders i should be using before I try abx again?

I was using phosphatylcholine but im not sure if this binds toxins. My Visual contrast test did improve while on this.

--------------------
"Say it straight simple and with a smile."

"Thus the task is, not so much to see what no one has seen yet,
But to think what nobody has thought yet, About what everybody sees."

-Schopenhauer

pos babs, bart, igenex WB igm/igg

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Parisa
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Keebler,

If you were unable to use antibiotics, what did you use? Have you improved? Were you able to clear some of the biotoxins?

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adamm
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Wait, so CAN those with these genetic markers remove Lyme

toxins with pharmaceutical therapy? Or are they eternally damned?

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ICEiam
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WOW, this is very good and kind of scary. My daughter started treatment in March of 2005. She has never gotten any better, she never has a good day and I have to honestly say she is worse than she was before she started treatment.

She has done just about every combination of abx, IV, HBOT and many of the natural combinations. She is still not any better, she only seems to get worse. She does have the HLA-DR4 gene. I am wondering if this is the problem? Sure sounds like it.

Now what????? How does one go about removing these toxins? Sheesh, what to do? Guess I will copy article and take it to LLMD next visit. He just put her back on Alinia, Levaquin and Keflex.......should we wait on starting it again?

HELP!!

--------------------
ICEY

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Peacesoul
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I've been on abx for almost 5 weeks now and I am NOT getting better. In fact, I'm worse.
I detox all the time, but still feel like hell. Yes,I have some good days, but mostly not so good days.
I'm on doxy,zithro and have to start flagyl soon and I am ALWAYS questioning if I'm doing more harm to my body than good.
The best way to describe how I feel is TOXIC, I feel that hungover feeling all the time.

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Jellybelly
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Peacesoul, I feel HORRIBLE when taking the right ABX, and even though the above info could be discoraging to some, feeling really bad while killing this stuff is to be expected.

Seems the difference though is some can't clear those toxins, EVER maybe or at least without serious help.

Even though I also feel very toxic when I stop the ABX, that toxic feeling eventually subsides and my over all health is a little bit better. I have been on abx several different times. Usually quit after about 6 weeks, as this is all I can stand. But as I said above each times the storm passes I am better than before.

I have been holding about an 85-90% remission for about 5 years and I used to look like "death". I'm even 51 now doing much better then my friends of the same age dealing with this time of life. I actually sleep better now, all night long as compared to how I slept in my 20-40s.

The report may seem discouraging but how you are feeling is not necessarily a bad thing. Just need to keep that toxic feeling down to a simmer so that inflammation doesn't do to much damage. It is going to take time, the longer you have been sick the longer period of time will be needed to heal the damamge. It does happen.

I still consider myself a work in progress after 13+ years of trying to get a handle on this, (I've been sick much longer then that):}

[ 19. December 2007, 11:07 AM: Message edited by: Jellybelly ]

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Peacesoul
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Jelly, thanks for that. I am discouraged.
There is just always something telling me that I'm doing more harm than good with the abx.
I'm also getting bad diarrhea and am worried about c diff. I'm doing all the right things (including detoxing) and it just seems like I will never feel better.

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Parisa
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Peace,

Are you taking your supplements a couple of hours apart from your antibiotics? That detail escaped my notice and since we started doing that my husband's stomach problems have improved some.

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tailz
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Exposure to electromagnetic and microwave fields cause metals to redustribute in the body (and brain?). This is why I only get worse on antibiotics.
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Clarissa
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Please also check out the thread Lymebytes started called "Herxing, toxins and why you may not be getting well" I'll post UP for folks who haven't seen it yet.

I'm seeing the Dr. S that wrote the article and I discuss my situation with biotoxins in all of my posts.

Helpful links: www.biotoxin.info

webcasts: http://www.biotoxin.info/webcasts
(you may need to copy and paste the second site into your browser).

This is well worth viewing because it has Dr. B's take on biotioxins (he refers to them as neurotoxins) and 4-5 interviews with the author of Mold Warriors...the pioneer of this biotoxin theory who co-authored with Dr. S. who is treating me and both my parents.

They both claim, that if you have Lyme or any co-infection that you should be tested for the "biotoxin gene" before being treated with abx. Otherwise, as you kill off the Lyme, the toxins from the die-off will just keep re-circulating in your system and you will remain ill.

My opinion, based only on my personal experience: I think herxes are unavoidable and will happen even if you go by this protocol.

Folks who have been on abx only weeks or a couple months need to be patient...this is not a quick-fix disease, however, MAYBE, just MAYBE, knowing you have the inability to remove the biotoxins naturally, and can do so simutaneously, your recovery will be smoother, faster, and most definitely more thorough with less risk of relapses.

Unfortunately, most of us folks have taken years of abx WITHOUT this knowledge. I was in"remission" for close to 4-years, but slowly the biotoxins (best to my understanding from Dr. S) recirculated through my body, keeping me sick. Igenex also missed my Bart coinfection.

Cut to: 4 years later, I did 2 1/2 mos of just Cholestyramine to mop up mess of biotoxins from 2 1/2 yrs of abx 4 yrs ago, and so, far 1 1/2 mos now on zith and rifampin AND cholestyramine to kill the Bart and mop up the biotoxins daily.

Then, I believe he will revisit any Lyme cysts that may still be lingering and hit me with some flagyl or tindamax (sigh).

This DOES make sense to me but, like any new theory, you have to remain cautious...keep your dukes up because, none of us need another shattered dream. I think we've all had enough ups and downs our entire lives. (I think I was born with this disease).

Anyway, it's awesome that we can share information and cutting edge news and research. I DO think I'm getting better but it's baby steps. Remember, I'm on my 4 month of treatment and this is my SECOND time around.

Definitely check out the webcasts so you understand the theory. The best you can do is trust your GUT. No one knows your body better than you do.

I'm also taking NAC for the liver, and my probiotics are: Primal Defense, Florastor and Natren Trinity. I'm also taking NSI Women's Synergy multivitamin and Omega 3 and B Complex by NSI. (all ordered on Vitacost...seems to be one of the cheaper sites).

I'm vigilante on my NON-SUGAR/ no alcohol.low carb diet and take my epsom salt/baking soda detox baths everyday. Killing this disease is a really a full-time job and it's a total strain on your body (and relationships) physically and mentally.

I, myself, had a meltdown today. I've had HUGE crying/sobbing herxes on this zith/rifampin/cholestyramine protocol...but it's been cathartic and, I believe, necessary.

The only thing I can compare it to is grieving the loss of a loved one. It comes in unexpected waves. One minute you're euphoric, the next minute, crying like a baby with no hope in sight.

I just keep telling myself, "hold on, this is just a herx, you can get through it...this is not 'real' despair/depression/anxiety".

Sure enough, the herx passes and instant relief and a baby step in the right direction.

On a final lighter note: Have you all noticed how incredibly witty and funny we Lymies are? Humor is my #1 supplement.

Blessings to you all,

Susan

--------------------
Clarissa

Because I knew you:
I have been changed for good.

 -

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sparkle7
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Thanks for all the info, guys! I think if we didn't have a sense of humor we'd all jump out of a window...
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Clarissa
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Knowing me and my clumsiness right now, I'd even screw THAT up! [bonk]

--------------------
Clarissa

Because I knew you:
I have been changed for good.

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barksplinter
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Thanks for this post. It seems to help make sense of my wife's illness. She has a HUGE history of "CHRONIC FATIGUE" on her fathers side. She has NOT done well on any of the oral antibiotic regimes.

With Marshall's minocycline she got up to 15mg every other day, herxed horribly, and finally had to stop after about 6 to 8 months. 2 years later... she still feels she did damage to her body on Marshall's.

She was what I considered "pre-terminal" when she started micro-dosed Rocephin and started doing better after 3 weeks... went from 5% to 25% of her previous function. The doctor who put her on this felt hard herxing was not a good thing.

I have felt very strongly that she was suffering from what I call A PERFECT STORM... the collision of Errant DNA, Infection, and Exotoxins.

You can be sure I will be pushing for this HLA testing for her.

QUESTION: Does anyone know if Hyperbaric would be indicated or contraindicated in this scenario?

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Peacesoul
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quote:
Originally posted by Parisa:
Peace,

Are you taking your supplements a couple of hours apart from your antibiotics? That detail escaped my notice and since we started doing that my husband's stomach problems have improved some.

Hi, yes I'm vigilant with taking my probiotics (I just added s Boulardii also)and my diet is very clean. But I'm still getting bad diarrhea. Not every day, but every 3rd day. Oddly enough, I've not felt any nausea on the doxy. I start the flag this week so maybe that will help.
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BartonFink
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Does anyone have direct link to this specific test which shows if you cant get rid of toxins or not. I tried to find it but couldnt. Thanks.

--------------------
Please dont suggest "ask your LLMD" because we dont have them here in this country... [Frown] I just have to count on you fellow patients. [Smile]

Posts: 246 | From Finland | Registered: Dec 2006  |  IP: Logged | Report this post to a Moderator
daisys
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I haven't read the links yet, but wanted to post what I'm doing.

My acupuncturist/chinses med. practitioner wanted me to try something from a company she likes. They grow herbs organically away from electricity and mix it by hand (picture Canadian commune-type hippies).

She told me they had a product (a mix of herbs and homeopathic) that was supposed to specifically clear out dead spiroketes and their death toxins. I started it 2 days ago. It cost me a little over $20.

She said I wouldn't notice any difference right away, and in fact, I'm doing so much to detox, I may not be able to tell it's doing anything.

The only thing I can say with certainty is that as soon as I started it, I've been moving more stuff out, but in little bits throughout the day.

I'm going to give it one bottle's worth, and I do keep good track of symptoms, so maybe I'll be able to give it a recommendation. I'll post later about it.

It's Energetix Bacteria-chord, but I'm not sure a person can get it direct. Alternative pratitioners set up anonymous profiles for their patients and use the company's products and advice.

So far, they've been helpful for supporting my digestive system health when I started taking abx. I'm digesting food a lot better than before, and don't seem to be bothered by taking the doxy and ceftin generic--so far.

I'm still doing a lot of what's already been mentioned in this thread for detoxing.

If anyone else has used this product, I'd be interested in hearing from them.

Posts: 563 | From New Mexico, USA | Registered: May 2007  |  IP: Logged | Report this post to a Moderator
Munch
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Is the VCS test still being used to determine neurotoxins? I took it online and passed it.

http://www.chronicneurotoxins.com/

My brother just saw Dr C and passed his neurotoxin test. I didn't but think it was because I had the wrong contact lenses in!

Mixed them up with non-bifocal ones. ^&%# brain. The ones I missed were at the bottom where good vision is key. Will have to retake the test next time with the right contacts in.

Anyone using Diflucan (P450 pathway) with Abx? or the Dr Fritz Schardt protocol?

http://www.immunesupport.com/library/showarticle.cfm/id/6431

What about hormones? I'm on 8 of them because all of my labs come back low. Some hormones were so low they couldn't be measured like DHEA-S. That was less than 15 with normal being 25-220.

I'm low in HGH (IGF-1 way below normal) and flunked the stim test for it's release so I'm supplementing that too. My insurance is covering the cost.

How about heparin?

I am encouraged after reading this in Stephan Buhner's book "Healing Lyme" page 45-6:

"After the spirochetes are well established in the meninges (Munch's note -- the meninges part means the stiff neck!), they will often begin to penetrate the brain, adhering to the brain's glial cells especially the neuroglia, astrocytes, and microglia.

The neuorglia is a supporting tissue that is intermingled with other tissues throughout the brain. Microglia are scattered throughout the brain and central nervous system and essentially act like macrophages. That is upon infection they are activated to fight it. (See section on Lyme Neurotoxins, this chapter.)

Astrocytes are brain cells that are also capable of phagocytosis. They are failry large, star-shaped (hence their name - astro means star) and they support the nerve cells (neurons) of the brain and spinal cord. Basically, spirochetes adhere to both nerve and brain cells, causing changes in both.

Different types of proteoglycans contribute to the spirochetes ability to bind to brain cells. Binding is inhibited by substances that interfere with proteoglycan synthesis, and by exogenous (externally supplied) proteoglycans, e.g. heparin. (That is why heparin taken along with antibiotics has been found to help cure the disease.)"

That one little sentance about curing Lyme with Abx & heparin is all I think about when I do my daily heparin shots. I'm on 12,000 units twice a day so I need to do 4 shots.

Bind spirochetes Bind and then die!!!

My brain fog is 100% better. My pain is maybe 50% improved. Oh, I still have muscle pain but pain meds are working now. Neuro symptoms are way down too.

My fatigue improved somewhat on heparin. Last
week IM shots of compounded Methyl B-12 were added. I'm still not the Energizer Bunny but getting there.

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Clarissa
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VCS Test: you can also goto
http://www.biotoxin.info/
click on Testing at top of site to take the test BUT I think they charge you 15.00 to take it and get the results.

With my foggy brain, it was easier to understand than the site mentioned above.

They're probably identical tests...whatever appeals to your brain at that moment.

--------------------
Clarissa

Because I knew you:
I have been changed for good.

 -

Posts: 1625 | From Florida | Registered: Oct 2003  |  IP: Logged | Report this post to a Moderator
Clarissa
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Please see my post titled "Test for Biotoxin Gene" as I added additional important information this morning.

Happy Holidays!

--------------------
Clarissa

Because I knew you:
I have been changed for good.

 -

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