Topic: Always Hot before LD Now Cold all the time?
lymebytes
Frequent Contributor (1K+ posts)
Member # 11830
posted
I find this really weird. Before being diagnosed w/ LD, I was hot all the time. Even in the winter when it was cold, I couldn't sleep with more than a sheet and light blanket and temp in the house had to be about 60 degrees. I would leave the windows open well into November.
I hated summers, I was always hot and summer heat made me feel sick. Now it is the opposite hate winter and am constantly cold.!
It was hot so much, my husband thought something was wrong with me, he was cold a lot, so I thought something was wrong with him! LOL!
My temperature my entire life has been 97.3 - even when I was hot for years, my temp would be 97.3 and has been in the 97's my whole life. A fever for me is 99 degrees.
It is not hormonal, everything was and remains normal there. No thyroid issues for either of us.
Since being diagnosed and starting treatment (19 months) I am cold all the time, now even sleeping with an electric blanket and big comforter.
My son in college studying nutrition, said we Lymies are likely out of shape and need to build muscle to stay warm and get healthier.
Burrascano does recommend builing muscle with light weights/many reps getting core temps up to 102 and oxygen will kill this stuff.
Anyone know why after starting treatment I would be cold all the time?
posted
I'm cold a lot too. I have a space heater under my desk at work and I have a shoulder wrap that I use in the microwave to help with the pain that I also use to keep warm.
There are times that I have to crawl under the covers fully dressed with the heating wrap until the shaking stops. I attribute it to lyme/co-infections.
Posts: 237 | From WV | Registered: Mar 2007
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posted
My core body temp is 95-97 degrees. I think I was normal at 98.7 prior to having lyme (not absolutely sure, because I rarely took my temp). I used to be hot all the time as well, I do live in so california, but I do tend to feel like its a bit chilly now.
I'm not to the point where I need an electric blanket, but I don't feel the need to sleep with the window open in middle of winter.
I don't know, I'm just all kinds of confused by all this.
Posts: 158 | From Santa Monica | Registered: May 2007
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posted
My body temp is also 97.3. The doctor gave me medication to raise my temp a little bit but with my lyme brain I can't remember what it was. I couldn't tolerate heat in the summer either. And now I sleep with socks and a sweatshirt over my PJ's and tons of blankets. I'd rather be cold than hot though. I wish I could help as to why this happens. Just wanted you to know that you are not alone.
Posts: 19 | From New Jersey | Registered: Dec 2007
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Dave6002
Frequent Contributor (1K+ posts)
Member # 9064
posted
I have the experience: first hot then cold, both were unbearable at some points.
My understanding is that the ketes don't like high temperature, so they hijack the our temperature controller and modify the temperature sensor in the brain, to decrease the body temperature, and make you feel hot even you have lower temperature.
Another explanation could be that the ketes mainly infect the neurosystem and cause damages to the temperature controller and the temperature sensor.
I got the biggest herx (I used to think I was in relapse) ever recently that lasted one week after using a heating pad around my head and spine for awhile.
So I believe the heating pad is doing something big: for good or for bad, I am still not sure, but tend to think it's good, so I keep using the heating pad and a void using cold air conditioning.
Posts: 1078 | From Fairland | Registered: Apr 2006
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posted
Yep. Freezing cold, always used to be toasty hot!
otm
Posts: 314 | From east coast | Registered: Oct 2007
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CaliforniaLyme
Frequent Contributor (5K+ posts)
Member # 7136
posted
Even while I ran a FEVER, I had chills for years/ Always felt COLD even though I had low grade fever I was alays chilled & cold feeling!!!
-------------------- There is no wealth but life. -John Ruskin
All truth goes through 3 stages: first it is ridiculed: then it is violently opposed: finally it is accepted as self evident. - Schopenhauer Posts: 5639 | From Aptos CA USA | Registered: Apr 2005
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cantgiveupyet
Frequent Contributor (1K+ posts)
Member # 8165
posted
I was cold for years, wore winter clothes to work during the summer because the AC chilled me to the bone.
Once I went on Armour thyroid, now I can sit around the house in shorts, and Im barely cold.
the lowest my temp was in the last three years is 94....very scary.....and the highest 98.9
-------------------- "Say it straight simple and with a smile."
"Thus the task is, not so much to see what no one has seen yet, But to think what nobody has thought yet, About what everybody sees."
-Schopenhauer
pos babs, bart, igenex WB igm/igg Posts: 3156 | From Lyme limbo | Registered: Oct 2005
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lymebytes
Frequent Contributor (1K+ posts)
Member # 11830
posted
Wow - you all sound like me, amazing how common this is!
I took will "herx like" from heat. I cannot take warm/hot baths, but can take warm/hot showers.
Electric blanket I made sure was low EMF, that is important as I have heard the spirochetes love electro magnetic fields, so always look on the box for low EMF.
Heat and even (nasal cannula) oxygen, either can bring on mild herxes....odd, the spirochetes have to be dying, heat and oxygen in small amounts they cannot survive.
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