My first symptom 8/07 (or at least the first I noticed) was numbness in my middle 2 fingers of left hand.
It gradually moved to all 4 fingers (not the thumb)and then to the right hand.
Then about 2 months later (11/07) I also had numbness in front of legs/knees, torso, soles of feet.
The numbness is ALWAYS there, just sometimes more noticeable...sort of numb with hyper-sensitivity at the same time....it's very hard to explain to anyone.
The numbness in legs/torso/feet has stayed fairly stable since it started about 1 month ago.
However, the numbness in my fingers has gotten gradually worse, and comes in waves...I can't seem to figure what (if anything) makes it worse.
My fingers are pruning in the shower after less than 30 seconds!!!
My typing is becomming worse (although, never very good)- I'm hitting wrong keys because I can't feel very well...
I catch myself holding my hands in fists a lot....I never used to do this.
Has this happened to anyone?
Posts: 55 | From North Carolina | Registered: Dec 2007
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groovy2
Frequent Contributor (1K+ posts)
Member # 6304
posted
Hi Suzanne
This is common symptom of Lyme and co infections-
with treatment it will go away - but it can take awhile for this to happen--
Many Many people here were DX with MS - --Jay--
Posts: 2999 | From Austin tx USA | Registered: Oct 2004
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CaliforniaLyme
Frequent Contributor (5K+ posts)
Member # 7136
posted
Good ole claw hand, eh? I had that, my hands became like claws always curling in. My feet were completely numb from toes in the beginning and then up to my knees, my upper calves, it was progressive. Could stick pins in them and not feel them.
Numbness, everythign, started in waves and then would eventually stay...
Sounds like Lyme, we've had many people MS Lyme locally- I have come to believe some other diseases are sometimes Lyme but I truly believe that MS is often or usually Lyme- why? because we have a local lone wolf regular family practice MD who rediagnosed all his MS patients Lyme and treated them all- and its worked!!!!!!!! Sincerely, Sarah
-------------------- There is no wealth but life. -John Ruskin
All truth goes through 3 stages: first it is ridiculed: then it is violently opposed: finally it is accepted as self evident. - Schopenhauer Posts: 5639 | From Aptos CA USA | Registered: Apr 2005
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shazdancer
Frequent Contributor (1K+ posts)
Member # 1436
posted
Hi, Suzanne, I think I know what you're saying. I have had times when I could barely feel the fluff on a stuffed teddy bear, but if I inadvertently bumped a hand, even a light bump makes me cringe and grab my hand.
I was treated for Lyme and babesia.
Posts: 1558 | From the Berkshires | Registered: Jul 2001
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posted
Hi, I know we're all different, but I would like to share:
*One of my first noticibly bad LD symptom was numbness across the upper left side of my back. It stayed for MONTHS - until abx treatment - then it was one of the first things to GO. *For several months before dx'd, I found myself waking up in the middle of the night with my hands clenched so tight, and I never knew until this post that it might be relevant to LD! Again, no hand-clenching anymore - and I promise it wasn't tension, or whatever.
I am 11 mos into treatment. I, too, have an MS specialist who is monitoring me. Like you I have some brain lesions that he is not thrilled about, but also like you, they are not 'classic MS'. My MS doc has handicapped my probabliliy of being dx'd with MS at about 1% - he can't rule it out but doesn't think it likely. That's meaningful to me because he has seen thousands upon thousands of patients and is the director of an International MS center in NYC. He'll be monitoring my situation annually.
So, keep on the LD investigation too! Most of my physical symptoms disappeared with treatment, and a certain number of the mental ones too, although they are more persistent. Since some MS treatments are contra-indicated for Lyme, you should really see the LLMD as soon as possible to try to clarify your diagnosis.
I know this is a terrible situation to be in. So just push, push, push to see the docs quickly, take the tests, get whatever answers they can provide. To this day I've had only four positive bands on IGenex WB, so I have to keep my dx a somewhat open question. But because of my thorough set of investigations, I am able to be fairly confident about the choice I've made.
I really, really feel for you and will have you in my thoughts and prayers.
Cannot stress enough that if you are going to check out the LD possibility, you need an LLMD.
otm
Posts: 314 | From east coast | Registered: Oct 2007
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treepatrol
Honored Contributor (10K+ posts)
Member # 4117
posted
The nerves are being attacked try b-12 shots and complex b vitamin and magnesium and cq10. It will help restore myline coverings on nerves.
-------------------- Do unto others as you would have them do unto you. Remember Iam not a Doctor Just someone struggling like you with Tick Borne Diseases.
posted
Great suggestions Treepatrol for these symptoms. The only thing I would suggest be added is 400 Units of Vitamin E slowly increasing to 800 Units within a month's time. Improves circulation which is very beneficial in improving the numbness symptom.
SandiB
Posts: 991 | From USA | Registered: Aug 2001
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