joalo
Frequent Contributor (1K+ posts)
Member # 12752
posted
The last week or so I've been having this weird creepy crawly feeling on my head. It feels like a worm squiggling down my part. Sometimes it happens once a day and sometimes several times an hour. What is this? Does anyone else experience this? It kinda creeps me out!!! Sheesh...
-------------------- Sick since January 1985. Misdiagnosed for 20 years. Tested CDC positive October 2005. Treating since April 2006. Posts: 3228 | From Somewhere west of the Mississippi | Registered: Aug 2007
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posted
I've recently started getting such feelings in my feet and hands, since starting Minocycline two weeks ago. I'm hoping it's a herx, and that maybe the drug is agitating the bugs that may be in my nerves.
Trouble is I didn't get this symptom til after I was on abx for 9-10 months. Not sure what that means.
Posts: 10 | From Pennsylvania | Registered: Oct 2007
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posted
I've have had that feeling of bugs crawling across my scalp for 4 years now. I could have SWORN they were there... I get exposed to lice fairly frequently. Several times I had people I worked with look at my closely cropped head.... NOTHING!
A few weeks a go my new LLMD told me it was CRANIAL NERVE NEUROPATHY.
It goes away ... then returns about every 30 days when my "Lyme" flares.
Posts: 70 | From AZ | Registered: Sep 2007
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tailz
Unregistered
posted
That's one of my latest symptoms. It's always at my left temple and I keep expecting to find a spider in my scalp, but nothing.
Creeps me out, too. It seems to coincide with my starting artemisinin - and possibly metronidazole. I was having a Lyme flare courtesy of my babs treatment, and out of desperation, I took metronidazole for a few days - so I'm not sure which is causing the crawling sensations. I'm guessing it is the artemisinin since I've been on metronidazole before and don't remember having crawling sensations this extreme.
I feel like I'm living in a horror movie anymore.
My cat with FIP had demodex mites. Please don't tell me I have these???
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tdtid
Frequent Contributor (1K+ posts)
Member # 10276
posted
I use to get this BEFORE my diagnosis. To the point that I thought I had to be losing my mind since it didn't make ANY sense.
I've been on treatment for a little over a year now and haven't had that symptom return YET, so not sure if it was related or not. Then again, for me personally, I'm finding that my herxing seems to be going backwards in a pattern of most recent symptoms back to where I started.
Still, I'm glad to read that this symptom really could have made sense and not just been the last straw to have some duck lock me away.
Cathy
-------------------- "To Dream The Impossible Dream" Man of La Mancha Posts: 2638 | From New Hampshire | Registered: Oct 2006
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map1131
Frequent Contributor (5K+ posts)
Member # 2022
posted
I know them bugs. They used to crawl in my head, arms, legs and feet. When you get your bacterial load down, hopefully you can chase them off.
I used to feel them everyday. Today it might be a couple days a month and not for long.
Pam
-------------------- "Never, never, never, never, never give up" Winston Churchill Posts: 6478 | From Louisville, Ky | Registered: Jan 2002
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You can do a search and get quite a few responses. However mine turned out to be bartonella hensle...
kind regards,
Julia
-------------------- Please consult your LLMD before making any changes to your treatment regimen. Posts: 641 | From NJ, USA | Registered: Oct 2001
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tailz
Unregistered
posted
Bartonella? I can't handle the Cipro though. The anxiety was unbearable.
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