posted
Pain management clinic is what you're referring to? I would call a few and ask them if they will treat you for Lyme pain. If it doesn't fly, move on to another.
You may be surprised. I went to physical therapy and Lyme Disease was one of the boxes to be checked as a main reason for the therapy. PA has a lot of Lyme, perhaps there will be something available to you.
You could always ask your primary doctor or your LLMD if they know of a pain clinic that would manage you. Good Luck!
Posts: 64 | From Maryland | Registered: Oct 2006
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bettyg
Unregistered
posted
i sent you a pm w/possibility!
why not try these 2 suggestions below!
Please go to SUPPORT GROUPS, left-hand side column by state. CALL the nearest group leader for advise. Do NOT email; many are too sick to reply; thanks!
People seeking doctors in certain states might be able to get help from their state online information and support group. Over 1200 people belong to these state groups. Many of the groups are small but quite a few have 20 or more people on them.
Type your state name and lyme as one word, e.g. newyorklyme
For SC, SD, ND and WY, put a hyphen between the statename and lyme, e.g. northdakota-lyme
The groups are moderated so you have to apply, and we don't allow doctor names, but once on the group, you can ask for doctors in a certain area and ask people to email you privately.
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luvs2ride
Frequent Contributor (1K+ posts)
Member # 8090
posted
A funny thing I am running into:
I met with a hand surgeon to discuss options of fusing my left wrist which has lost all its cartiledge due to lyme. In the discussion I mentioned my belief in infectious causes to Rheum. Arthritis. Turns out he believes it too.
On 12/18 had a colonoscopy. Right before the procedure, the doctor talked with me. Then I told him how treating for H. Pylori has practically stopped my RA. He said "Oh sure. It is the antibiotics. "My niece had juvenile rheum. arthritis and none of the traditional meds were helping her at all. Then she got some infection that required abx and while on them, her pain went away. That's when they got a clue. And by the way, I see you have had lyme."
I didn't bother to say I think I still have lyme. The fact he believes in infectious causes to RA was amazing enough. After he left the room, I looked at the nurse and said "He knows there are infectious causes to RA and a hand surgeon I met knows it, how come no rheumatologist in town knows it?"
If you think Lyme is a dirty word, just try to get a rheumatologist to test for bugs or put you on antibiotics. HA!
My point of this story is, there may well be pain management clinics who do believe infection is behind your pain.
I find it best to play Lyme down but talk freely about any other infection you have or just use infection in general.
I am amused at how many times I can mention Babesia to nursing staff and they always ask "What is that?"
Luvs
-------------------- When the Power of Love overcomes the Love of Power, there will be Peace. Posts: 3038 | From america | Registered: Oct 2005
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