posted
I am so confused. I have been treated for lyme and bartonella for a few years now (off and on). But now I have developed night sweats every night for the past two weeks. What the heck is going on??? The only thing I can think of is that the night sweats started about two months after I began the cowden protocol. ??? Any help thoughts??????????????? thanks.
-------------------- Bullsye rash: 1994, tx w/ ABT, Symptomatic:1999 Hospitalization: 2004 Equivocol results (specialy lab) resulting in chronic use of ABT, herbs, etc ever since. Severity of symptoms continue to worsen intermittingly. Posts: 140 | From maryland | Registered: Oct 2006
| IP: Logged |
posted
It was my experience that my night sweats were caused by Babesia. Have you been tested for Babesia? The Fly Lab has an excellent test for Babesia. http://frylaboratories.com/services.html Check it out.
SandiB
Posts: 991 | From USA | Registered: Aug 2001
| IP: Logged |
disturbedme
Frequent Contributor (1K+ posts)
Member # 12346
posted
I had night sweats really bad. They went away once I started treating Lyme and Bart.
I've heard that it's caused by Babs, so I don't know. I hope I don't have babs (my co-infection test from Fry showed it negative)! But for now, the night sweats have gone away with Bart and Lyme treatment.
-------------------- One can never consent to creep when one feels an impulse to soar. ~ Helen Keller
My Lyme Story Posts: 2965 | From Land of Confusion (bitten in KS, moved to PA, now living in MD) | Registered: Jun 2007
| IP: Logged |
tdtid
Frequent Contributor (1K+ posts)
Member # 10276
posted
Another one that is being treated for babs and getting the bed wetting soaks. I'm sure it could be other things as well, but in my case, my LLMD feels strongly it is babs.
Cathy
-------------------- "To Dream The Impossible Dream" Man of La Mancha Posts: 2638 | From New Hampshire | Registered: Oct 2006
| IP: Logged |
CD57
Frequent Contributor (1K+ posts)
Member # 11749
posted
Are night sweats and the bed wetting soaks the same thing, or different?
Posts: 3528 | From US | Registered: Apr 2007
| IP: Logged |
groovy2
Frequent Contributor (1K+ posts)
Member # 6304
posted
Hi All
Babs is usually the cause of night sweats -
Check your body temp - Babs also causes Low temp - 96F and lower -- Jay --
Posts: 2999 | From Austin tx USA | Registered: Oct 2004
| IP: Logged |
tdtid
Frequent Contributor (1K+ posts)
Member # 10276
posted
Sorry CD57 if I used wording that made it confussing. Yes, when I said "bed wetting soaks", it's the same as night sweats. I just call it that since the bed is seriously SOAKED horribly after it happens.
Not fun no matter what you call it.
Cathy
-------------------- "To Dream The Impossible Dream" Man of La Mancha Posts: 2638 | From New Hampshire | Registered: Oct 2006
| IP: Logged |
My wife contracted Lyme and four co-infections in Frederick County, MD. We were forced to sell our home and return to NY because of the disease and what it did do to our family life.
The hot shot doctors in Silver Spring Holy Cross Hospital said there was nothing wrong with my wife, the hot shot doctors at Frederick Memorial said that we don't have Babesia here in Maryland, and the hot shot doctors at Shady Grove Hospital in Rockville, said that my wife had been adequately treated for Lyme and her symptoms must be all in her head and that she is faking her illness.
As you read through the Lymenet forum you can acquire a sense of the true misery of this illness and the danger that you are in. You will also see the total disregard for this disease by the medical profession. Many doctors cling to the notion that a bacteria that has survived millions of years in the environment can easily be cured with 10 days of bubblegum flavored antibiotics.
You are in trouble, more trouble than if you had cancer, because with cancer you would get medical treatment and compassion from the medical profession, but with Lyme, you get neither.
My wife initially received amoxicillin and appeared to be showing signs of improvement 4 1/2 years ago. After 3 weeks her health began to decline and she is still sick 4 1/2 years later.
We did not know it then but she was suffering from Babesia, Bartonella, Mycoplasma, Erlichia, Borrelia - all from one tick bite in Maryland.
My wife has received some of the best oral and I.V. antibiotics that money can buy. Last year we spent roughly $29,000 in medical expenses that were not covered by insurance fighting this disease. The year before we spent approximately $21,000.00 in medical expenses not covered by insurance. Last fall my wife ending up in the hospital critical care unit to the tune of $33,000.00, most of which will be covered by insurance this time. The hospital did bring her back from the brink but she is in no way cured or in remission.
This disease sir or madam, is very, very serious. If you already have not done so, get yourself to a Lyme Literate doctor immediately. Four and one half years ago we were ignorant, fearful, and lulled into a false sense of security when symptoms improved with superficial antibiotic therapy.
My wife is at least alive now because we took the advise of our Maryland Lyme support group and seeked out a Lyme doctor because the mainstream doctors were leading us not to better health, but to the cemetary.
On the positive side, after 4 1/2 years of biological warefare, my wife is now cured of Babesia, Bartonella, Mycoplasma, and Erlichia. We are still battling Borrelia.
The night sweats was a minor symptom of Babesia that forwarned of what was to come. The major symptom of Babesia was "pseudo-paralysis" from the neck down. She had feeling throughout her body but was unable to move any part of her arms, legs, hips, or torso.
Roughly 8 months of Mepron and Zithromax therapy wiped out the Babesia, the night sweats, and the pseudo-paralysis. The Babesia symptoms began to resolve one week after beginning the Mepron / Zithromax and continued to improve thereafter.
Zithromax concurrently with the Mepron wiped out the Mycoplasma.
Doxycline wiped out the Erlichia.
Levaquin wiped out the Bartonella.
Multiple courses of short and long term I.V. Rocephin, I.V. Doxycline, and many orals have not wiped out the Borrelia.
Rife machine is working to wipe out the Borrelia as we speak. We wished that we had known about Rife so many years ago because how well it works to kill Borrelia, not just suppressing it.
Do what you can to save your life.
Godspeed to you and your family.
Posts: 45 | From upstate NY | Registered: Sep 2007
| IP: Logged |
I have only been to LLMD's now for a few years. And, yes, I have been through the IV rocephin, oral antibiotics and IM bicillin (along with a ton of other lyme treatments and interventions). I just don't seem to understand why I am developing new symptoms. My LLMD thinks it may be becasue the night sweats started after I was put on malarone- who knows. I feel for you and your wife! I hope the both of you take precausions. I used to live in upstate NY for many years. This disease is also very common up there too. As far as the medical docs here, I have learned not to seek treatment through any of those major medical institutions you have mentioned. ps. I'd love to chat more about your wife's challenges. thanks.
-------------------- Bullsye rash: 1994, tx w/ ABT, Symptomatic:1999 Hospitalization: 2004 Equivocol results (specialy lab) resulting in chronic use of ABT, herbs, etc ever since. Severity of symptoms continue to worsen intermittingly. Posts: 140 | From maryland | Registered: Oct 2006
| IP: Logged |
tailz
Unregistered
posted
Whatever you do, just don't let them tell you that your nightsweats are perimenopause - or menopause. That's what they told me, and I was 41 - and still, they were calling it normal. I have babesia.
One doctor told me when I argued him over menopause being normal along with my 500 other growing complaints, "I've seen women go into menopause as early as 29." (something stupid like that)
I can't believe I was dumb enough to take their stupid hormones (Premarin) out of sheer desperation in hopes of feeling like a human again, instead of some sweaty freak of nature.
I walked through grocery stores sweating, shaking, observing other 'menopausal' women who did not seem the least bit distressed, all the while trying to picture myself doing this at EIGHTY, and somehow I just couldn't picture it and hoped I died.
I had my hormones tested recently and I was looking at the reference ranges. Luckily, they at least make a notation for hormone tests done on young girls, otherwise this ignorant medical community would feel confident nailing a young girl with a dx of menopause without even twitching.
It's really sick what they are doing to mostly women it seems. It seems women get nailed with this disease more frequently and harder than men do overall, and when you have a male-dominated medical profession trying to get to the bottom of a problem involving a large proportion of women, that's their very first mistake. What's scary is that even female doctors have bought into the myth that menopause is a normal part of life.
If a woman is depressed, anxious, having panic attacks, sweating, etc..., it's always always always blamed on something psychological in nature if the woman is younger than 30 - or it grows to include menopause if the woman is in her 30's or older.
How can a doctor help a patient when they don't BELIEVE a patient is really sick?
I can't work, and because everybody screwed up, it's nobody's fault - that's what the lawyers I've seen tell me.
I'm sure none of my doctors are shopping at Goodwill trying to figure out when they get to start saving for their retirement, mostly because I paid for their retirement.
IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
![[Frown]](frown.gif)
Printer-friendly view of this topic