posted
I recently started Doryx brand of doxy. It seems to be helping my Lyme of the gut. Anyone use it? It is unfortuately quite expensive.
Posts: 472 | From New Jersey | Registered: Dec 2007
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lymebytes
Frequent Contributor (1K+ posts)
Member # 11830
posted
Biaxin. I started 18 months ago on amoxi, went 3 months, biaxin was added and within a month i was starting to have good days. Still on abx and been on biaxin most of the time, but it was a subtle but sure slow improvement. Bicillin was added in late summer shot my CD57 from 58 to 140 in only shots. But I still have viral issues and a co-infections to go.
posted
8 months of Cefzil, and Tindamax added at month 2. Combined with Benicar and Vitamin-D3 supplements.
Posts: 131 | From PA | Registered: Aug 2007
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CaliforniaLyme
Frequent Contributor (5K+ posts)
Member # 7136
posted
IV Rocepihn- I was on orals for a year and they did notihng because I was so late Neuro-
9 months of IV Rocephin*)!!!
-------------------- There is no wealth but life. -John Ruskin
All truth goes through 3 stages: first it is ridiculed: then it is violently opposed: finally it is accepted as self evident. - Schopenhauer Posts: 5639 | From Aptos CA USA | Registered: Apr 2005
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tailz
Unregistered
posted
Minocycline took my years of diarrhea away within a day - literally.
Metronidazole along with artemisinin helped with some of my symptoms initially, too (sinuses, ears, eyes).
But then improvement stops and starts going backwards.
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disturbedme
Frequent Contributor (1K+ posts)
Member # 12346
posted
I have not been on tx that long, but Rifampin has helped me SOOOO much (I have Bartonella as co-infection).
Azithromycin was also helpful for me but I could not stay on it as it made my stomach very angry at me.
I'm also on Doxy and Biaxin, but don't know how much they have helped, as I started noticing myself getting MUCH better after taking Rifampin.
-------------------- One can never consent to creep when one feels an impulse to soar. ~ Helen Keller
My Lyme Story Posts: 2965 | From Land of Confusion (bitten in KS, moved to PA, now living in MD) | Registered: Jun 2007
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dmc
Frequent Contributor (1K+ posts)
Member # 5102
posted
Rifampin is my number one, after the herx though.
Posts: 2675 | From ct, usa | Registered: Jan 2004
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sixgoofykids
Honored Contributor (10K+ posts)
Member # 11141
posted
Levaquin. All the others helped, but this made me turn the corner.
-------------------- sixgoofykids.blogspot.com Posts: 13449 | From Ohio | Registered: Feb 2007
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Vermont_Lymie
Frequent Contributor (1K+ posts)
Member # 9780
posted
Probably my experience is atypical, but after a couple of years of getting ill from untreated lyme and other TBDs, just the first 10 days on doxy (400mg/day) was a miraculous and positive experience.
Just those first 10-11 days of doxy killed something that has never fully came back.
Although I am still treating (it wasn't a 2-week miracle cure for all of my many symptoms), nothing has had the immediate strong positive impact of the first two weeks of doxy. Every other abx has been a slower, positive experience.
Posts: 2557 | From home | Registered: Aug 2006
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posted
last year i was on erythromycin for a couple weeks and felt great. it was for a sinus inf or bladder inf i think.
made my fevers and back pain go away, and i felt great temporarily. i don't think i woudl be able to go on it long term tho
Posts: 615 | From maryland | Registered: Oct 2007
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Clarissa
Frequent Contributor (1K+ posts)
Member # 4715
posted
8 months of IV Rochephin for plain old Lyme.
posted
I'm probably atypical for this post, but it was clindamycin 150mg 3-4x/day that instantly worked for my longterm Lyme case. Within a week, the fibromyalgia pain went to zero. That joy lasted six months and then the med stopped working.
Posts: 13171 | From San Francisco | Registered: May 2006
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jamescase20
Unregistered
posted
Roxy and bactrim meant instant relief for me and anyone I know who has tried it.
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posted
the combination of rocephin, biaxin and plaquenil was the best. lived a normal life again, even went off abx for a year. but relapsed.
Posts: 226 | From earth | Registered: Sep 2007
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Mathias
Frequent Contributor (1K+ posts)
Member # 5298
posted
Ketek was the first antibiotic that helped me at all. Then Factive/Doryx got me back to good health.
-------------------- Mathias Posts: 1250 | From New Jersey | Registered: Feb 2004
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djf2005
Frequent Contributor (1K+ posts)
Member # 11449
posted
i wouldnt say it was a good quality of life, but it was the best ive had so far.
levaquin for bartonella (in theory)
cheers
derek
-------------------- "Experience is not what happens to you; it is what you do with what happens to you."
shazdancer
Frequent Contributor (1K+ posts)
Member # 1436
posted
Ceftin the first time. Mepron/Zith for Babesia when I relapsed 3 years later.
Posts: 1558 | From the Berkshires | Registered: Jul 2001
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posted
Doxy for me was the 'miracle cure'. In bed for 4 mos prior to treatment. Just 200 mgs of doxy daily for 6 weeks got me functioning - kicked out the skin burning, difficulty swallowing, deep-muscles charlie horses, & inability to sleep. Horrible collapse at week 6 centering on brain 'buzzing'& other neuro stuff. Up to 400 mgs. Most physical symptoms gone, gone, gone (11 months into it)but mental have been slower to leave.
Recently changed to Doryx due to some increased nausea with doxy. Works well for me!
Had a huge initial spike in wellness on doxy, then a leveling off. For past 4-5 months, progress is hard to really point to. But I have an increasing FEELING OF WELLNESS, apart from the continuation of mental stuff, so I know that SOMETHING is being achieved.
Apparently I was very lucky to have no difficulties with doxy or doryx. Good luck in finding the one that gives you a good quality of life. I had no life until doxy.
otm
Posts: 314 | From east coast | Registered: Oct 2007
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CD57
Frequent Contributor (1K+ posts)
Member # 11749
posted
For me Rifampin....although it took awhile to be able to say this, and I'm still on it!
Posts: 3528 | From US | Registered: Apr 2007
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randibear
Honored Contributor (10K+ posts)
Member # 11290
posted
got to be flagyl. unfortunately the doctor gave it to me for c. diffcile and would not renew. rats....it got rid of headaches, tinnitus, droopy eyelid, etc. it was a godsend....
sigh.......
-------------------- do not look back when the only course is forward Posts: 12262 | From texas | Registered: Mar 2007
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quote:Originally posted by Cockapoo1996: I recently started Doryx brand of doxy. It seems to be helping my Lyme of the gut. Anyone use it? It is unfortuately quite expensive.
I used Doryx recently for a sinus infection. It was SOOOO much easier on my stomach than doxy. Yep...very pricey.
=========== Biaxin.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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posted
I have been on 3 grams of amoxicillin for 2 months as well as Malarone for my Babesia. Doxy was prescribed for mycoplasma but I couldn't keep anything down with it. I am going to attack the mycoplasa when babesia is a bit more under control. I am feeling much better. Although it seems I had progress really fast (maybe after 2 weeks) and have hit a leveling off point.
Posts: 183 | From Texas | Registered: Nov 2007
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