posted
Or do you know of those who have and I can search their entries? I have been in a w/c for about a year and am getting stronger with treatment and can finally do some weight-bearing.
Any wheelchair to walking buddies? Thanks.
Posts: 830 | From Colorado | Registered: Mar 2005
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hshbmom
Frequent Contributor (1K+ posts)
Member # 9478
posted
My neice couldn't get out of bed when she was a teen, but is now on her feet & participating in life over 10 years later.
She had Lyme. I only assume she also had coinfections.
Posts: 1672 | From AL/WV/OH | Registered: Jun 2006
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Aniek
Frequent Contributor (1K+ posts)
Member # 5374
posted
There is a doctor who is in your state of Colorado who was in a wheelchair and had been diagnosed with ALS before Lyme. After IV Rocephin he no longer needed the wheelchair.
-------------------- "When there is pain, there are no words." - Toni Morrison Posts: 4711 | From Washington, DC | Registered: Mar 2004
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map1131
Frequent Contributor (5K+ posts)
Member # 2022
posted
WOW, there you go Ilene. I told you the other day you will get better. Now just find others and see how they got rid of the walker/wheel chairs.
Cave can probably give you some advice on what helped her.
Good post aliyalex.
Pam
-------------------- "Never, never, never, never, never give up" Winston Churchill Posts: 6478 | From Louisville, Ky | Registered: Jan 2002
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lymemomtooo
Frequent Contributor (1K+ posts)
Member # 5396
posted
There is a lady in our support group that was previously diagnosed with MS. After Lyme disease treatment she has gotten most of her life back. She was either in a wheel chair or close to the use of one.
Posts: 2360 | From SE PA | Registered: Mar 2004
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Rianna
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Member # 11038
posted
I was bed bound for 18 months needing 24 hour care after progressivly getting worse over 7 years of no diagnosis. It was suggested I could have LD and I tested positive.
After 14 months of treatment I am out of bed, I can drive to the Shops some days and can do my own house work now, albeit little bits. It has been a long hard road and I am told I have a long way to go but I have come so far, its still very difficult every day but to where I was its amazing.
Rianna
Frequent Contributor (1K+ posts)
Member # 11038
posted
JRachel11: First of all I want to send my hopes and prayers for your recovery.
Seizures - Are you taking or had Bartonella meds as seizures can be very much part of Bartonella.
I am sure many people here will reply to your post although I hope you do not mind but I have started a new topic to ask for stories of recovery. 'Recovery stories pls for severe Neuro Lyme Sufferer'
Much Love Rianna
Posts: 1172 | From UK | Registered: Jan 2007
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groovy2
Frequent Contributor (1K+ posts)
Member # 6304
posted
I ws bed bond for about a year -
Now Im doing Flips off the Diving board-
OK OK Im only doing Belly flops off the side -Jay-
Posts: 2999 | From Austin tx USA | Registered: Oct 2004
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Clarissa
Frequent Contributor (1K+ posts)
Member # 4715
posted
Not a wheelchair inspired story...but still very inspiring:
My sister-in-law was going blind in one eye, having tremors, motor skill problems and was diagnosed with an early onset of MS (she was in her late 20's) by a top neurologist in Boston.
Coming from a Lyme family, my Mother got her to an LLMD and she tested positive for Lyme.
2 years on various orals and she totally recovered. She re-gained her vision and now, literally, runs marathons!
I'm talking the 26-mile kind. She's an inspiration to me!
David95928
Frequent Contributor (1K+ posts)
Member # 3521
posted
One of my students had an MS diagnosis and deteririaed to teh point of being in a wheelchair for about six months. She then was treated, got up an walked, and now is attending college full time.
-------------------- Dave Posts: 2034 | From CA | Registered: Jan 2003
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posted
MAP especially thanks for PM-ing me. My computer died and I forgot I posted this. Wow. Thank you so much for all the support!
Talk about 2 steps forward and 1 back...I rolled down a hill and`shattered my femur 7 mos ago and a few days ago I mysteriously got a hailine fracture in my foot that I have been trying to weightbear on.
After my 2nd appt with Dr`K I stopped progressing. Then realized I could wiggle my toes. Now my bladder control is much better and I am putting weight on my legs` when I transfer.
I am having trouble standing with the walker, tho I know that is my next step.
This thread seems to be helpful to many, let's keep it going.
BTW, I was on tons`of abx including a PICC line and`only got worse. Dr K started me om aggreassive abx and I`was stiff as a board and couldnt detox. Now I am on cholestryamine and much more, but not abx.
That was helpful about tying knees together. I can hardly move my legs to push backwards. Anymore thoughts? Thanks.
Posts: 830 | From Colorado | Registered: Mar 2005
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CaliforniaLyme
Frequent Contributor (5K+ posts)
Member # 7136
posted
We have had in our local group 2 people lose wheelchairs for MS Lyme- one for ALS Lyme and one lose a 3 headed cane- MS Lyme- all walking now- all normal now except 2 on maintenance abx-
-------------------- There is no wealth but life. -John Ruskin
All truth goes through 3 stages: first it is ridiculed: then it is violently opposed: finally it is accepted as self evident. - Schopenhauer Posts: 5639 | From Aptos CA USA | Registered: Apr 2005
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posted
Very interesting link. Thanks Meg, I had lost the internet connection. Got it now.
Posts: 830 | From Colorado | Registered: Mar 2005
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I am practically housebound and can barely walk with a walker. My legs are so weak and feel like jelly and I have a hard time just standing. I get very discouraged as I have gotten worse over the past 2 years since treating lyme. Of course all the questions from well meaning family about "why are you getting worse?" doesn't help my morale any either. I was dx with MS for 6 years before lyme dx.
In another thread Californialyme you said about ALS and getting worse with orals. I thought that was interesting. All the LLMDs that I have seen say they do not know why I keep getting worse. This is the first time I have heard anything like that, that would explain my situation even though it was not an ALS dx. I have been on IV a month now.
Do you have any more info CALyme or others? Thanks for listening.
Posts: 262 | From nj | Registered: Dec 2007
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oxygenbabe
Frequent Contributor (1K+ posts)
Member # 5831
posted
NJ Girl maybe hyperbaric oxygen would help you regain muscular function.Do a search on this site or member boejr she is a nurse with a chamber who treats lymies in New Jersey.
Posts: 2276 | From united states | Registered: Jun 2004
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posted
oxygenbabe - Is that Julia you are talking about? I talked to her a year ago and I will definately go to her when I do HBOT. She is about an hour from me. Right now I am treating for Babesia and I have heard conflicting info as to whether HBOT can make this worse. My LLMD thinks it does not. I am doing a detox IV treatment protocol now and can't afford both that and HBOT. HBOT is something I will try in the future though.
Posts: 262 | From nj | Registered: Dec 2007
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oxygenbabe
Frequent Contributor (1K+ posts)
Member # 5831
posted
Yes it is Julia. Rest assured it will help you get stronger.
Posts: 2276 | From united states | Registered: Jun 2004
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posted
Attempting to return to topic. Anymore stories for we late stage, chronic lymies?
Posts: 830 | From Colorado | Registered: Mar 2005
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