posted
I have a "probable MS" diagnosis from a less than kind neurologist who said LD is a bunch of bull when I suggested the possibility.
I just had my first visit w/ a LLMD on Wednesday.
She spent 2 hours with me!!!!!!!!!!!!!!!
She feels there is a pretty good chance I have a systemic infection such as LD and/or a co-infection.
She feels there is a very good chance that I may have something called chlamydia pneumoniae (cpn).
Apparently, cpn is closely linked to MS, and there is a lot of scientific research and facts to back this up....from CAMP B....the ones not in denial that systemic infections exist and are the root cause of many other things.
Does anyone have or have knowledge of cpn?
Posts: 55 | From North Carolina | Registered: Dec 2007
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posted
Hi, You should check out www.cpnhelp.org That is a great site (great people!) who will fill you in on everything Cpn.
My husband also has MS dx and has been treating cpn,lyme etc. Some lyme docs are recognizing the possibility that Cpn can be a chronic co-infection of lyme (or on its own).
Best of luck
Posts: 554 | From Naples, Italy | Registered: Jun 2006
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posted
I'm so glad your appointment went well! I like her too (saw her on Thursday )
Thought you'd be interested to know my previous LLMDs in Colorado said a large majority of their patients also tested positive for cpn. They really came to the conclusion that cpn very well could be the 'engine driving our disease phenomenon'...the trigger of our immune disfunction. It's very much an infectious soup, so to speak.
I was negative...but I was in the minority. I hope you get some good answers soon. Sounds like you're on the right track!
Posts: 136 | From North Carolina | Registered: Apr 2007
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adamm
Unregistered
posted
So...is it tick borne? And how easily is it transmitted from person to
person? I had a respiratory infection two days after I got my bite,
and my parents got respiratory symptoms a few days later?
Do you think I gave something to them I got
from a tick, or do you figure it was a legit cold (sx were JUST like
Aniek
Frequent Contributor (1K+ posts)
Member # 5374
posted
CPN is an extremely common infection. Most people get infected with CPN at some point in their life.
Having a past exposure to CPN alone does not mean anything. There are doctors who believe that CPN can become chronic.
I have read of links between CPN and fibromyalgia and chronic fatigue. My understanding from what I read was that it is such a common infection, they could not really draw any conclusions on the connection.
-------------------- "When there is pain, there are no words." - Toni Morrison Posts: 4711 | From Washington, DC | Registered: Mar 2004
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clairenotes
Frequent Contributor (1K+ posts)
Member # 10392
posted
I always found this page fascinating because of the similarities CPN has to LD, as well as the reasoning behind the meds used. It seems as though they are describing a Bb life process. The abx is the same as well. So if one is treating for LD, one may actually be treating for CPN.
I don't know if you remember, but I had replied to one of your earlier posts about how important it is to seek a second opinion after a probable MS diagnosis.
I am sure you read the thread about getting out of wheelchairs and all the others who were misdiagnosed.
My sister, who has Lyme symptoms, has tested positive for exposure to CPN.
She also has a very low CD-57 and a high C3a(??) along with an extremely high figure for a chemical which signals inflammation or infection in the body.
Sorry, I cannot remember the specifics right now.
All 3 of my sisters, along with me, have now tested positive for Lyme and/or co-infections.
Our mother had received an MS diagnosis and also tested positive for CPN.
She was never tested for Lyme.
Was she misdiagnosed with MS? Did she pass these infections onto her daughters congenitally?
Seems likely now. (she is deceased now)
Anyway, please continue your quest for answers.
You sound like you are on the right track!
Please keep posting your progress
Jackie:)
Posts: 209 | From maryland | Registered: Aug 2007
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