posted
After 9 months of various abx/antifungals my arms started getting the annoying pins and needless sensations as well as something that I can only describe the "beginning of burning" (which I know all to well, since I've had it in my legs since the beginning). Usually I had tingling in my arms for a few days every 2 months or so, but now it has been going on for a week and it's more then just tingling. I see this as a clear progression or whatever is affecting my nerves...very discouraging after doxy, levaquin, zithromax, rifampin, nystatin, diflucan. I don't know what my LLMD will try next...he had high hopes for rifampin and levaquin since he suspects Bart (positive IGG). Has anyone actually gotten rid of their tingling/burning after they have been around for a while?
-------------------- Why me? Well, why not me??? Posts: 411 | From San Francisco, CA | Registered: Mar 2007
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posted
Yeah, I tried everything...but maybe not long enough. I am feeling great in all other aspects, expect for the neuropathy...the abx took care of my other symptoms pretty quick.
Did your burning start in the limbs and spread to the whole body, how long did it take to spread? Do you experience any weakness in your muscles?
thanks
-------------------- Why me? Well, why not me??? Posts: 411 | From San Francisco, CA | Registered: Mar 2007
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savebabe
Frequent Contributor (1K+ posts)
Member # 9847
posted
I have burning sensations in my hands and feet.
I have found that bart treatment with levaquin has helped.
Now I really feel that neurpathy is not only a symptom of lyme, but is one of the major indicators of bart.
Posts: 1603 | From ny | Registered: Aug 2006
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posted
did your neuropathy start in both hands and feet at the same time? Mine is from my feet up to my thighs and now from my hands to my elbows too...it just makes me wonder if soon my whole body will be burning and tingling.
-------------------- Why me? Well, why not me??? Posts: 411 | From San Francisco, CA | Registered: Mar 2007
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Michelle M
Frequent Contributor (1K+ posts)
Member # 7200
posted
Polyradiculitis (nerve pain/tingling in your arms) is a classic sign of neuroborreliosis. It can actually cause demylineation of the nerves in your arms. I am not a doctor, of course, but if this symptom went unrelieved or worsened, I would be inclined to consider an MRI, as well as IV treatment. Lesions in certain areas of the brain cause problems with nerves in corresponding parts of your body, including your arms.
I have this too -- "dead" spots along my forearms, with tingling and pain. It corresponds to a large lesion in the centrum semiovale of my brain.
This could be caused by the general brain hypoperfusion/vasculitis common with lyme, and in many cases seems reversible. I have seen many people on LymeNet describe it being reversed after treatment.
Michelle
Posts: 3193 | From Northern California | Registered: Apr 2005
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Mine started with a tingel in a finger tip 6 yrs ago. Within 6 months it had moved to fingers, toes and then all over the body accompanied with twtiching. My body became an electrical circuit gone haywire.
The pain - terrible.
I then had a 3-4 fusion thinking it was a disk. Well, that sent me off the charts for pain.
What helps me is warms Epson salt baths, loose clothes and staying warm. Cold makes me worse.
I don't take any pain meds other than 20 mg of Elevil at bedtime.
I tried all kind of meds- nothing touched the nerve ending pain.
A few months ago I did a detox with HMD. I had no mop ups in me and was in terrible pain.
I now use Chlorella. I am taaking a ton of it and will use clelators gradually.
good luck, let me know how you are.
I know your pain.
I do not have any muscle weakness, just occasional twtich when the mag has worn off.
Peace, BJG
Posts: 468 | From IL | Registered: Oct 2003
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