posted
I was wondering if anyone here has there main symptom of muscles twitching?
There driving me crazy!
Also anyone have a rash that's bumpy, itchy scaly on the back of there head?
Went to dermotologist, nothing permanant works.
Funny thing is I've told doctor's I was bite there. All said not a tick bite.
Posts: 64 | From New Jersey | Registered: Dec 2007
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treepatrol
Honored Contributor (10K+ posts)
Member # 4117
posted
Almost everybody has muscle twitching if infected with lyme Bb uses the myline covering on nerves also adrenals get kicked in which can cause racing a heart , like when you get a adrenalin rush scared surprized etc.
Get some Bcomplex in yourself and some magnesium. The rash could be yeast or ringworm? or bart theres just tons of stuff that can make your head itchy. Even some parasites.
-------------------- Do unto others as you would have them do unto you. Remember Iam not a Doctor Just someone struggling like you with Tick Borne Diseases.
posted
Yes, my main symptom for Lyme was muscle twitching. Started in my fingers, then moved on to large muscles like the thigh.
Worse at night and when I would first wake up.
4 months of Doxy has gotten rid of 90% - I still get an occasional twitch here and there.
My other big issue related to this was muscle vibrations - like I was shaking under my skin. Actually sometimes I was really shaking. Especially upper legs.
I just posted on another thread about what the condition is technically called thanks to some info from zman:
PS Never had a scalp rash although I did have a very itchy quarter sized area on my scalp before treatment.
BUT numbness at the top of my scalp and back of my head was a big issue. Like I was washing someone else's hair. Posts: 257 | From Connecticut | Registered: Oct 2007
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posted
Muscle Twitching (fasciculations) was my number one symptom. It is now completely gone and has been for at least a year. I have been on antibiotics for 19 months and I believe the combination of those and my magnesium supplement did the trick.
I take Peter Gillham's Natural Calm magnesium supplement. It can be found in most health food stores or online. My Lyme Nurse who practices under Dr. S in San Francisco recommended the supplement.
Twitching drove me nuts. I also was checked out at both AlS clinics in San Francisco as I thought the twitiching (Fasciculation) were directly related to ALS.
Thank God I didn't have ALS and the treatment got rid of the twitching.
Barb
Posts: 281 | From san francisco | Registered: Jun 2006
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Just Julie
Frequent Contributor (1K+ posts)
Member # 1119
posted
Back in 2000, when my twitching first started, I did a search online and what came up was ALS and MS.
Scared me half to death. Went to half dozen doctors (can we say quack?) including a very rude, short, condescending neurologist who did the requisite "neuro exam" supposedly lasting an hour, in 15 short minutes. What a condescending a** this guy was. Anyway, he proclaimed me with his wisdom in having "benign fascisculation syndrome". I almost bought that, thank goodness I kept looking, because while bfs does exist (then as it does now) I felt there had to be something more to it.
I am now going into my 8th year of having twitching. I thought back in the beginning that my LLMD would proclaim (magically, ha) that the abx combos he was putting me on would make them go away, but he never really did address this issue. I did try the magnesium supplements that are all over the message boards, and some of them made the twitching WORSE. Much worse. In fact, they scared me in their intensity.
So, I dropped the mag, keep my eye on the twitching thru a journal, so I could let my stress level go down a bit from the obsessing of actually having them happen, with no real relief in sight as I kept taking abx, changing combos, battling yeast infections, etc.
When I stopped taking all abx, after nearly 4 years of it (straight) I noticed a GRADUAL, very gradual decrease in the twitching. The intensity of the twitching was also going down. But again, I didn't let myself get my hopes up. And in true lyme fashion, the twitches came back, not as they had before, more of an intermittent pattern. And I definitely noticed that the twitching would ramp up whenever I felt real, physical stress. Mental stress, while "stressful" (lol) could bring them on with regularity, but I found that the physical "fight or flight" type stress made them much more pronounced.
I can say now, that there are some days that I don't even think about them. I can't say that I don't have them on those days, just that they are not so foremost in my mind that I notice them.
They are a bummer. I kept thinking for quite some time that I *might* just have ALS and would eventually develop a full blown case of it, but I think the time line for living/dying of ALS is 5 years at the most, and I'm at year 8, like I said.
I always read the posts about twitching, I am fascinated by reading others accounts of it, makes me feel "better" knowing I'm not alone!
-------------------- Julie Posts: 1027 | From Northern CA | Registered: May 2001
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posted
Julie, you sound just like me!! (except unfortunately, I still have the 'spectre' of ALS haunting me...I'm just under two years of twitching).
I've had various vague & some not-so-vague health issues since '91, but a couple years ago my muscles started twitching. I googled it and had what I lovingly (not) refer to as a diarrhea moment. Yup. It seemed like everything came up ALS.
One neuro and an 'essentially normal' EMG deemed me as having benign fasiculation syndrome. But a neuro at an ALS clinic at Duke (after the briefest, most cursory exam of all time), said I was 'worrisome for early ALS' (another diarrhea moment) and wanted me to come back so he could monitor me for 'muscle wasting and weakness'.
Needless to say, I had a lot of other symptoms that didn't fit that diagnosis and through some referrals ended up with a LLMD. Now, a year and a half into treatment, I'm still twitching like crazy...sometimes more crazy than others...occasionally I get a nice break! It sure seems to go in cycles.
I too read the twitching posts with interest and agree it is so comforting that many of us share this particular unsettling symptom. Posts: 136 | From North Carolina | Registered: Apr 2007
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posted
Wow! I'm kinda glad to finally find others with this symptom. Glad to hear that some got it under control after abx and mag treatment. Somedays I would take a magnesium supplement and the twitches would go away, only to show up later again.
Anyone notice that one limb tends to be the main offender? My Left arm seems to be the last one twitching when the other limbs really mellow some early mornings.
I also have the "shadow" of ALS hanging over me. Waiting for the Western Blot test results.
I've been on Doxy 400MG a day for 1 month so far. I had been sick for 6 months when I started, so I guess I might need several more months.
Posts: 111 | From Mid Michigan | Registered: Feb 2008
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posted
When 1st diagnosed with LD, I had terrible (non stop painful) fasiculations in my calf muscles for over 1 year and very painful burning skin over my whole body & several other neuro lyme symptoms.
two years of abx & muscle twitches are 80% diminished in duration & intensity. Took doxy & alinia & then ceftin & alinia & now doxy & alinia again & multi vitamins & mag supplements, CQ 10, cats claw & Vit C. Mag supplements temporarily made them worse, then the muscle twitches started to get better (about 12 to 14 month period).
My view is I didn't get this nasty disease overnight, so it won't go away overnight. but I am noticably better than 2 years ago. Good Luck.
Posts: 213 | From ohio | Registered: Jul 2006
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You could just have dry scalp which is something you get in the winter.if this is the case, Use paul michelle tea tree shampoo and conditioner.
Or you could have, I hate to say this but Lyss. They tend to gather in the back of the head were it is warm. Sometimes they are hard to see. So you might want to have someone who knows what they are looking for.
Ring werm It could be but you usually see that in the nape of the neck.
good luck!
-------------------- Except the ones you love,be sure that you are also being excepted!!!! Posts: 16 | From Elkton,MD. | Registered: Feb 2008
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