posted
Apparently there is a wide range of diseases and prsentations of various diseases that actually exist but are not recognized by the CDC or IDSA. Because of this failure, most doctors in general are also not aware of these diseases. They trust the CDC and organizations like IDSA for information, and cannot comprehend what is happening which is on such a massive scale of corruption and scandal that only docs who have direct experience with these disorders through themselves, friends, or family members are enlightened.
You know, what we have here is entire groups of people behaving like a serial killer. Usually all of the friends and neighbors of a serial killer are shocked when he is arrested. Ted Bundy was a great guy according to his friends. That dude in Kansas who was arrested for being BTK...etc.
In this case, IDSA and the CDC etc. are behaving like a psychopathic serial killer. Everyone has trusted them in the past, and simply cannot comprehend that these organizations whould be engaged in such activities as are alleged by many lyme victims.
Posts: 523 | From Stillwater,OK,USA | Registered: Sep 2004
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Melanie Reber
Frequent Contributor (5K+ posts)
Member # 3707
posted
Hey Don,
I think that if you are suspecting Bart, it is most definitely worth trying to get diagnosed and treated.
I made the most progress in the last 5 years with Bart meds...and am wishing that same feeling of good for you.
I think I have read TC recommending a simple test through Quest of all places.
If you present with the classic symptoms and mention the testing you want, I can't see how a doc could turn you away. (It is at least worth a good try)
Much love, M
Posts: 7052 | From Colorado | Registered: Mar 2003
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adamm
Unregistered
posted
If a duck is the only one you can see, it might be worth your while
to say you were scratched by a cat (seriously.)
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jamescase20
Unregistered
posted
if your lucky minocin MAY kill some barts. maybe he/she could prescribe that...since they could hide under the lyme treatment as minocin is for lyme too. my duck was like cipro no way...my tendons will fall off. He did give me minocin since its for lyme and he has a pos west blot...its all about the lawyers! he as documents to back up giving me minocin, but not cipro. I got my own cipro on line from india. I appear to be in slow recovery.
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posted
It's amazing how many ducks haven't a clue about Bart. Can't expect much since they do not fully understand Lyme.
I went to a duck for something else other than Lyme. When he found out what was going on with me, he sent me to a round of doctors to see what was REALLY wrong with me. (Insert sarcasm)
One was an infectious disease doctor who did not examine me, took one look at my questionnaire and said I did not have Lyme, babesia, or bart. To go see a psychiatrist.
The other was an ENT for swollen glands in neck. He was the only one who had any knowledge of BART. He recommended seeing a surgeon to have the rest of my lymph nodes examined for possible biopsy.
The nodes in my neck were not large enough.
I am not sure if lymph node biopsy will prove Bart, and who wants a biopsy anyway. Clinical observation is best if suspected.
Posts: 85 | From here | Registered: Jul 2007
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posted
Don't get treated for Bart, get treated for a depressed immune system, and Bart will have no chance...
Posts: 442 | From Biddeford, ME | Registered: Nov 2007
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northstar
Frequent Contributor (1K+ posts)
Member # 7911
posted
Aside from general nutrition, and exercise, how would you "treat" immune system?
How would you test to see what aspect of the immune system is weak? There has been discussion of Th1 vs Th2, but I have no idea how one checks for these things.
I see lots of products and herbs mentioned, but they are always presented in isolation of each other. Some are beyond the reach of most lyme/tbd patients , such as IVIG.
Some may even have contradictory recommendations, such as echinacea or androphogis (sp?).
Any recommendations?
Northstar
Posts: 1331 | From hither and yonder | Registered: Sep 2005
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posted
Treat the immune system by making sure that all things necessary for its normal function are present in proper amounts, and things that are detrimental to immune function are absent or minimized. To the first group belongs diet, which should be as free as possible of preservatives and processed /refined carbs. High fructose corn syrup is a no-no. Cre should be taken to avoid synthetic flavorings. Omega three fatty acids are generally in short supply in western diets and when low can result in proinflammatory states. Vitamin D should be available in abundance, as differentiation of different white blood cell types depends on it. If it is low, white blood cell differentiation might be arrested, and an incomplete or inadequate response to immune challenge will be the result. Insoluble fiber should be present in the diet in abundance as it is nonabsorbable and hence a stool detox vehicle. The importance of fresh air cannot be overstated. Imbibe lots of clean, untainted water daily.
To group #2 belong chemicals of any kind; Strong cleansers, perfumes, alchohol, caffeine (it gives a lift, then the adrenals drop out),diet soda(it's been around long enough to say that if it really helped people lose weight, the more popular sizes sold would be petite), hair dye or hi-light products, and heavy metals. Remember group 2 are things to avoid or remove. The largest source of heavy metals to most humans is mercury from dental amalgam, but there is still thimerosol ( a chemical preservative, ~50% mercury by weight) in tetanus boosters and adult flu shots, and aluminum is in the new HPV vaccine. This does not mean you should run to a dentist and demand removal of amalgam fillings, this will result in a megadose of mercury unless the removal is done properly, and since most dentists refuse to acknowledge that it is a problem to begin with, they can't be bothered to go through the trouble of removing it safely. There are some dentists out there that will though, but caveat emptor. Ones'living space should be evaluated from this perspective, some home building products outgas wonderful things like formaldehyde; any recent renovations that precede some health decompensation needs to looked at critically.
Prescribed medications should be looked at as well, the more meds one is on, the more detox load on the liver and kidneys. They have well studied effects, but they are poisons none the less, poisons with a desired side effect are not as good as clean running metabolism.
If many GI complaints are present, food sensitivity should be tested and leaky gut syndrome identified if present.
That's a good start.
Posts: 442 | From Biddeford, ME | Registered: Nov 2007
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aklnwlf
Frequent Contributor (5K+ posts)
Member # 5960
posted
Hey JustDon,
I've been on the Internet for hours today trying to find info on Bart myself.
Personally, I wouldn't waste my time going to a regular duck.
I'm basing that on the crap I went thru with to get a Lyme diagnosis.
Mayo twice, Emory once, huge bills no help whatsoever.
From what I've been reading today looks like depending on which type of Bart you have and the complications it could take some time on meds.
Been my experience that the regulars don't want to treat long-term.
What are you thinking of taking for Bart?
I did the Levaquin/Septra/Tindamax for 5 months straight with only a temporary recovery.
I've been looking up other things today.
Haven't found anything recommending the combo I took before.
So on to other things for me.
I'm looking for a lab (read about Fry lab here) to possibly pinpoint which Bart I have.
Still looking around though.
Hope this helps.
-------------------- Do not take this as medical advice. This comment is based on opinion and personal experience only.
Alaska Lone Wolf Posts: 6918 | From Columbus, GA | Registered: Jul 2004
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jamescase20
Unregistered
posted
my duck just fired me...I am so mad...well on my own again...thank god for the internet drugs overseas
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northstar
Frequent Contributor (1K+ posts)
Member # 7911
posted
Thank you.
Northstar
Posts: 1331 | From hither and yonder | Registered: Sep 2005
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