I'm still on conventional therapy too, but looking for more improvement through other avenues. Thought I'd give rife a try.
The session was about 1/2 hour. Much to my amazement, I was sick as a dog for the next day and a half. I don't know what it did, but it sure did something! I have my next appt on Tues.
I'm straight Lyme, no CONFIRMED co's, been on doxy (or doryx) 11 mos. Intially dramatic improvements, now I've plateaued, with a big, ugly road block in the mental/mood/body temps/numbness area of neuro.
Anyone have any rife experience to share? No debate, I'm doing both trad and this, I'm just interested in the experiences of anybody who has tried rife, with or without success.
Thanks for your thoughts & insight -
otm
Posts: 314 | From east coast | Registered: Oct 2007
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lymeladyinNY
Frequent Contributor (1K+ posts)
Member # 10235
posted
Hi onthemend, I'm a newbie at rifing but I'll tell you, rifing has helped with the flu-like feelings that I've always suffered from with antibiotic treatment.
I wasn't on antibiotics for two months and just rifed and I felt really good. I have a GB-4000 at home - this machine has footpads and hand wands. I was getting lots of treatment from the neck down, but my head wasn't getting much.
So, Lyme in my head was going untreated and I was starting to get very ill with brainstem problems. My husband put one footpad on my forehead and the other on my rear end (he's an electrical engineer so I assume he knows what he's doing!) to rife just my head, neck, and back.
It was helping but not enough. I recently went back on antibiotics and the head issues are getting better. Of course, now the flu-like symptoms are acting up again. Sigh.
So, as a new user to rife, I would say it helps quite a bit and I will continue to use it. In fact, I love it!
- Lymelady
-------------------- I want to be free Posts: 1170 | From Endicott, NY | Registered: Sep 2006
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posted
You know, Lymelady, I have an absolutely euphoric feeling today, which I have not experienced in about . . . . oh, 2 1/2 years! I am truly, truly astonished. I will have to try this again several more times before I draw any conclusions, but if I get a feeling like this - it must mean something?
Even if it doesn't actually 'cure' the Lyme, it could be worth it just to have this feeling again!
Thanks for sharing your experience.
otm
Posts: 314 | From east coast | Registered: Oct 2007
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map1131
Frequent Contributor (5K+ posts)
Member # 2022
posted
I can't answer any of your questions about rife and abx together. I've never experienced them together.
I quit abx in '03 cold turkey. I had been on abx from July '99-May '03. I would have to dig thru years of notes to know all of them.
First two months of illness from hell, I remember doing doxy, amox, ampicillian, z-pak. Two months off abx and I had over 40 symptoms of lyme.
Started long term abx Nov '99 and I remember biaxin, IV rocephin, clindimician, flagyl, etc. etc.
I had to move on.
Pam
-------------------- "Never, never, never, never, never give up" Winston Churchill Posts: 6495 | From Louisville, Ky | Registered: Jan 2002
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posted
All of this information is invaluable, thank you so much.
ABX saved my life. But trad medicine let me down for the 1 1/2 years before I was dx'd. So, I guess I am probably open-minded to a fault when it comes to treatment. I am taking an approach like DBergy - just figuring out what works and not getting caught up in any sideshow.
I know it is not generally best to mix trad and homeo or other therapies, but I can't quite give up my abx yet. I still feel them working 'a little bit' in terms of increasing my sense of internal wellness. But I am beginning the process of incorporating other therapies, of course with the goal of eventually leaving abx behind AND being well.
I know I can't be certain what's helping me without using single therapy as a type of 'control' to really measure results, but after 11 mos of abx, I think I have an idea of what they do for me, and will have at least a reasonable guess as to what, if anything, Rife brings to the party. But I will keep in mind all I've read, all I've heard, and would very much appreciate remaining informed on anyone's experience/progress.
Thanks for reading recs, I had previously looked at Rosner's book - in the early days - when I thought - hmmmmmm - sounds far-fetched! Now here I am doing it!
Thanks again
otm
Posts: 314 | From east coast | Registered: Oct 2007
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lymie tony z
Frequent Contributor (1K+ posts)
Member # 5130
posted
I dont know how it's possible or even why I got the feelings from your post that I did, on the mend.
It sounded like you were euphoric alright! Actually I somehow got the impression you were drunk or somehow otherwise incapacitated.
Could this phenom be your 30 minute Rife experience?
Even if it were true....how the heck would I even want to know just by reading your post that you sounded strange.
Must be my own lymie brain today thinking it's psychic....
Weird!
Oh well....be careful with those frequecies....and never go across any vital organs....OK!
Careful...
zman
-------------------- I am not a doctor...opinions expressed are from personal experiences only and should never be viewed as coming from a healthcare provider. zman Posts: 2527 | From safety harbor florida(origin Cleve., Ohio | Registered: Jan 2004
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posted
No kidding, Cave. It's just that I can't figure out which is which, and there's a lot at stake in getting it right! Just doing my best and using trial and error. So nice that my health is the guinea pig! That's why I love to hear what everyone else has experienced - just to see where I fit in, & to get other ideas.
Hey Zman, sorry, don't quite get it, and apologize in advance if it's humor and I'm not getting that. I was sick for 1 1/2 days after rifing for the first time - no idea why - and then the day after that, I woke up with a feeling of happiness and energy that I haven't felt in so long. I am not drawing any conclusions at all - I just found it interesting.
One thing that eventually DID cross my addled brain is that the rifing focused on the intestines, & I wondered - after the sickness of the previous 1 1/2 days, which was intestinal - if maybe I had cleared the way for a big old dose of seratonin uptake! I had read somewhere, sometime (probably here from one of you medically literate Lymenetters!)that a huge % of seratonin uptake is from the gut. No claims, ever, just wondering! Anyway, nevermind, because the feeling's gone today. And, wish I COULD be drunk sometimes through all of this, believe you me, but no, wine is no longer a meaningful part of my life!
Best to all, and I do appreciate info & hearing your thoughts & experience.
otm
Posts: 314 | From east coast | Registered: Oct 2007
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posted
No, I would never believe abx were poison - they saved my life. I am trying to add things to help - just as I re-incorporated exercise into my life as soon as I was physically able, and got a huge health & symptom controlling boost from that.
I would have been 110% close minded to anything OTHER than trad medicine if it hadn't told me for 1 12/ years that there was nothing wrong with me! While I almost lost my life (sorry for the drama). Now, I'm looking at other stuff to ADD - just in case there IS any merit to it. Finding out that the medical community didn't know it all (you probably already knew that - I'll admit I didn't & had quite naive expectations) left me in kind of this terrible position of always . . . wondering if I'm on the right track. Do you know what I mean? Especially when progress is slow, sideways, backwards, up, down & over.
And, I do know I can't abx FOREVER (well - - - maybe I could. I guess you do what works!) I have heard from many people, especially around here in NJ, that it takes about 2 years to really come through. It's hard to be so patient, especially when progress has leveled off so much after the first big leap back to wellness. But no, I'm abx until I'm symptom free. Got me out of a four month stay in bed. I'm looking at alternatives to help me get there quicker & to maintain once I reach that goal.
Am interested in everything people have to say about what has worked for them -
Thanks all - otm
Posts: 314 | From east coast | Registered: Oct 2007
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D Bergy
Frequent Contributor (1K+ posts)
Member # 9984
posted
I have not heard anyone say that antibiotics are poison or anything against science. Where are these straw man arguments coming from?
The bottom line is you can go by the reported results of people who have actually used whatever method is being discussed, whether it be antibiotics, herbs or frequency treatments. Or, you can go by the opinion of people who have no experience.
Do whichever seems more logical to you. We all have to live with the results of our own decisions.
I hope you get better, however you do it.
Yes, my wife is still using MMS. She took a few days off to let the Diarrhea go away. She said yesterday, "I feel better than I have in a long time". I hope she can be done with Lyme by the end of March. By then, I should to know if it can eliminate Lyme completely.
She will start on it again tomorrow.
D Bergy
[ 17. January 2008, 11:10 PM: Message edited by: D Bergy ]
Posts: 2924 | From Minnesota | Registered: Aug 2006
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I totally know what you mean. I'm on abx and also rife. I've been on abx for about 2 1/2 years now, and while I've made tremendous strides w/them, I too wanted to add other treatments. At the same time, because of setbacks that seemed to crop up after I thought I'd "gotten well" on more than one occasion, I sort of felt like abx alone weren't going to get me completely well and I needed to find some other forms of treatment.
I know Rosner's book says to stop all abx for best rife results, but I feel the same as you about abx. Plus, I'm also herxing from rifing while abx, so I feel that it's adding to my therapy too
I'm at the point where my herxes are pretty mild compared to what they used to be. I'm now rifing for Bb, Bart and Babesia. I rife almost every day. In addition, I'm on 5 abx and a number of herbs.
My LLMD plans to try taking me off of some of the abx next month, so I wanted to have my backup plan in place for that as well, and I think rife fits the bill.
I'm way better than I was a year ago and much better still than 2 years ago. In fact, I have only a few symptoms left, so right now I'm satisfied with my progress.
I'm really anxious to be off of abx, however, and worry a little about stopping abx, because every time I've tried in the past, I've gone downhill quickly. That was before I had the rife machine, so I hope that won"t be the case again
Posts: 975 | From California | Registered: Apr 2007
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posted
Thanks all, very much for your info & experiences. Hate the journey - like the co-passengers!
otm
Posts: 314 | From east coast | Registered: Oct 2007
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RoadRunner
Frequent Contributor (1K+ posts)
Member # 380
posted
quote:Originally posted by D Bergy: I have not heard anyone say that antibiotics are poison or anything against science. Where are these straw man arguments coming from?
The bottom line is you can go by the reported results of people who have actually used whatever method is being discussed, whether it be antibiotics, herbs or frequency treatments. Or, you can go by the opinion of people who have no experience.
Do whichever seems more logical to you. We all have to live with the results of our own decisions.
I hope you get better, however you do it.
Yes, my wife is still using MMS. She took a few days off to let the Diarrhea go away. She said yesterday, "I feel better than I have in a long time". I hope she can be done with Lyme by the end of March. By then, I should to know if it can eliminate Lyme completely.
She will start on it again tomorrow.
D Bergy
Nice post bergy
RR
-------------------- "Beep Beep" Posts: 2630 | From ct | Registered: Nov 2000
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Truthfinder
Frequent Contributor (1K+ posts)
Member # 8512
posted
Well said, D Bergy. I have yet to see one person claiming that abx are `poison' and yet I've seen this accusation several times in past weeks.
On the other hand, I've seen that most here agree abx shouldn't be considered one of the 4 basic food groups, either.
Unfortunately for us, science is WAY BEHIND in too many critical areas of health care, partly because there is little interest in the scientific community to study treatments with no big commercial jackpot at the end.
Some of us choose not to wait for `science' to prove everything to us.
D Bergy, that is just excellent news regarding your wife. I realize that the `fat lady hasn't sung yet' on this, so I guess time will reveal more in coming months.
Onthemend, it sounds like you have a healthy, unbiased outlook regarding conventional and orthodox treatments. I think it's pretty important to keep your options open.
-------------------- Tracy .... Prayers for the Lyme Community - every day at 6 p.m. Pacific Time and 9 p.m. Eastern Time � just take a few moments to say a prayer wherever you are�. Posts: 2966 | From Colorado | Registered: Dec 2005
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Truthfinder
Frequent Contributor (1K+ posts)
Member # 8512
posted
Dissenting opinions are fine, Cave. As long as they are respectful, they balance the discussion.
I just haven't seen the evidence that you spoke about.
-------------------- Tracy .... Prayers for the Lyme Community - every day at 6 p.m. Pacific Time and 9 p.m. Eastern Time � just take a few moments to say a prayer wherever you are�. Posts: 2966 | From Colorado | Registered: Dec 2005
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lymewreck36
Frequent Contributor (1K+ posts)
Member # 4395
posted
After I took cipro and levaquin and they destroyed the tendons in my body, I did feel like those antibiotics were poison. For a very few rare cases, they can be poison.
And long term flagyl left me with neuropathies.
And so forth.
HOWEVER, I wouldn't be alive to enjoy these side effects if it weren't for anitbiotics in general. No alternative treatment would have saved me. Antibiotics are necessary, and can be poison in some cases.
There's no one formula for everyone. mary
Posts: 1034 | From North Carolina | Registered: Aug 2003
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map1131
Frequent Contributor (5K+ posts)
Member # 2022
posted
Cave and others, sometimes I say that abx became my enemy and became poisonious or toxic to MY body.
That doesn't mean that I am against abx or that I wouldn't recommend abx for someone suffering from this illness called lyme & company.
I always recommend newbies or anybody making progress on abx to stay the course. BUT, in my case, I stayed the course with abx for over 3 yrs and I know that my body considered or turned on me and decided enough from enough.
Abx became toxic for me. I will never say never and tell you that I would never do abx again. Because I may have to eat my words someday.
I have a script for on my kitchen counter right now that my Internist wants me to take because I had another staph outbreak(?), two weeks ago on one of my feet. I just treated staph in Sept with abx for eye infection.
I did the abx for 10 days, my eye was fine but I had sore throats and ear problems for 8 weeks after that off and on. I finally got over it with my rife machine until the latest with my foot. Now I'm back to doing rife treatments again for staph.
I chose to treat staph in another way. I consider abx my enemy, not anyone else's. I only know & have experienced my bodies reaction to "treatments" since '99. I am an abx failure, until I learn/experience otherwise.
Cave, we can support others on both of our experiences, in a supportive manner on lymenet. I respect you, you respect me. It will work.
Pam
-------------------- "Never, never, never, never, never give up" Winston Churchill Posts: 6495 | From Louisville, Ky | Registered: Jan 2002
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RoadRunner
Frequent Contributor (1K+ posts)
Member # 380
posted
quote:Originally posted by lymewreck36:
There's no one formula for everyone. mary
This is so true
RR
-------------------- "Beep Beep" Posts: 2630 | From ct | Registered: Nov 2000
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Truthfinder
Frequent Contributor (1K+ posts)
Member # 8512
posted
Well, for heaven's sake Cave, post the link to the thread where this "poisonous" comment is.
Even if true, if that is a poster's opinion, I guess they have a right to it just like everyone else.
-------------------- Tracy .... Prayers for the Lyme Community - every day at 6 p.m. Pacific Time and 9 p.m. Eastern Time � just take a few moments to say a prayer wherever you are�. Posts: 2966 | From Colorado | Registered: Dec 2005
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D Bergy
Frequent Contributor (1K+ posts)
Member # 9984
posted
I personally feel that antibiotics should always be the first line of defense for Lyme disease. Especially for a early diagnosis. It is the most tested, and quite often effective way of preventing chronic Lyme.
That option was closed to us because of lack of diagnosis.
The difference between poison and treatment is dosage, with most anything. If your treatment is working, stick with it. It really does not matter what treatment, in my mind. Use what you have available based on whatever evidence you can find.
None of this answers the questions asked in the beginning post. Which was the point of the whole thread, I assume.
D Bergy
Posts: 2924 | From Minnesota | Registered: Aug 2006
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map1131
Frequent Contributor (5K+ posts)
Member # 2022
posted
So you have something in black and white. Do you want a dooey button or what? Big deal? If anyone did say abx are poison, if I said it was poison, so what? Can you prove that there is nothing poisonous positively in all abx?
I had abx turn on me and my body. You can call me a liar. You can quote that I said abx are poison. Abx are poisonous to me. That is the truth. That is what I experienced and you have no right to claim myself or anyone else is lying about their own story and history with this lyme & company.
It just makes you angry when anyone posts anything that you consider non-traditional, alternative or whatever.
I've tried to play nice with you and you just turn things around and try bullying anyone that you want on this website.
There is no being nicey, nicey with a bully. Wasted energy.
Pam
-------------------- "Never, never, never, never, never give up" Winston Churchill Posts: 6495 | From Louisville, Ky | Registered: Jan 2002
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METALLlC BLUE
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Member # 6628
posted
I can't even fathom arguing, I'm here to learn and get well. I spent enough years arguing with doctors, now the war is fought with stealth silence and snipers. I'll pick off what I like and leave the rest.
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