LymeNet Flash: Need Test for Bart or Not? What R U Taking?

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»	LymeNet Flash » Questions and Discussion » Medical Questions » Need Test for Bart or Not? What R U Taking?

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Author

Topic: Need Test for Bart or Not? What R U Taking?

aklnwlf
Frequent Contributor (5K+ posts)
Member # 5960

posted

Hi there.

I used Igenex Lab back in 2004 for the 2 strains of Bart that they test for.

My test came back negative.

Like alot of folks I haven't really recovered since treatment. (Have Lyme and coinfections).

Think Bart is holding me back.

I've done 5 months straight of Levaquin/Septra/Tindamax and recovered only temporarily.

Did really well back in 2005 when put on Cipro/Biaxin/Flagyl but was only on it for a month or two.

After being put on something else I relapsed.

What are you all taking and how many times a week, what strenghts and for how long?

Seems like everytime I start to made some headway my LLMD will cut me back to 3 days a week and everytime I've relapsed.

Been looking on the Internet today and see that Doxy/Rimfapin is a often mentioned combo for Bart.

Treatment is for at least 3-4 months and sometimes longer depending on if there's heart involvement.

Some sites mentioned lifelong theraputic treatment.

Any thoughts on this?

[confused]

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Do not take this as medical advice. This comment is based on opinion and personal experience only.

Alaska Lone Wolf

Posts: 6918 | From Columbus, GA | Registered: Jul 2004 | IP: Logged |

jamescase20
Unregistered

posted

I had to self treat. Duxks suck. I tanked with slightly swellon glands after lyme 1.5 mo. on lyme target abx. Tanked in 2 days. Thats NOT lyme. BART! BTW, its well known, bart subspcies 1 causes air hunger...thats what I have bart.1.

taking now:
sliver of roxy
bactrim
oxytetracycline
ambien
cipro

[ 17. January 2008, 07:20 PM: Message edited by: jamescase20 ]

IP: Logged |

Clarissa
Frequent Contributor (1K+ posts)
Member # 4715

posted

Igenex missed my Bart back in 2002 so I was only treated for Lyme.

Fry picked up my Bart in Sept 2007 and I've been on a combo of zithro & Rifampin for over 2 mos.

I'm herxing like a mother...but I think that's a good thing. We'll see...

--------------------
Clarissa

Because I knew you:
I have been changed for good.

Posts: 1625 | From Florida | Registered: Oct 2003 | IP: Logged |

aklnwlf
Frequent Contributor (5K+ posts)
Member # 5960

posted

Hi there,

Thanks for the replies. It sure is hard to figure out what is going on when not recovering to well.

Are you all taking your meds every day of the week or only on some days?

How long is your treatment suppose to be?

Everytime I start to improve my LLMD will drop my meds to 3 days a week.

I've relapsed every time.

[confused]

--------------------
Do not take this as medical advice. This comment is based on opinion and personal experience only.

Alaska Lone Wolf

Posts: 6918 | From Columbus, GA | Registered: Jul 2004 | IP: Logged |

Hoagie
Member
Member # 13664

posted

I'm on five days/wk. Can't really say I'm getting better overall.

Starting to wonder if I might have a coinfection, but I had tested negative and don't have any of the classic symptoms.

Posts: 10 | From Pennsylvania | Registered: Oct 2007 | IP: Logged |

Hoagie
Member
Member # 13664

posted

Oh I should add the 5 days/wk is for Lyme.

Posts: 10 | From Pennsylvania | Registered: Oct 2007 | IP: Logged |

disturbedme
Frequent Contributor (1K+ posts)
Member # 12346

posted

Fry lab is good.

They also picked up my Bart.

--------------------
One can never consent to creep when one feels an impulse to soar.
~ Helen Keller

My Lyme Story

Posts: 2965 | From Land of Confusion (bitten in KS, moved to PA, now living in MD) | Registered: Jun 2007 | IP: Logged |

Clarissa
Frequent Contributor (1K+ posts)
Member # 4715

posted

You may want to check for the biotoxin gene, too. That kept me staying sick, as well as the missed Bart diagnoses from Igenex (you need to test Bart at Fry labs!!)

http://www.biotoxin.info

This could be another reason why you're staying sick..has to do with die-off from the Lyme that may still be circulating in your blood.

Also do a search in medical forum for biotoxins.

Good Luck and trust your instincts!

Clarissa

--------------------
Clarissa

Because I knew you:
I have been changed for good.

Posts: 1625 | From Florida | Registered: Oct 2003 | IP: Logged |

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